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*TAMOXIGANG* All the fours...44!

960 replies

GoodbyeRubyTuesday · 21/10/2013 19:43

Apologies for the bingo reference, couldn't think of a witty title but the other thread is very nearly full.

In honour of our new thread I have piled extra apple pudding on the trolley so tuck in :)

OP posts:
foofooyeah · 14/11/2013 19:14

malt sorry your having a rough day .... This too will pass

betsy I don't want to alarm you but my friend has had drain in for over three weeks! Don't think I could stand it.

Gigondas · 14/11/2013 19:20

Malt love what would help you feel better? I am comprising a long shopping list as dh off to New York next week.

smee · 14/11/2013 19:50

((((hugs))) for Malt. Tuck up warm and let yourself weep if it helps. The end of chemo is such a looked foward to marker, but it's overwhelming when it arrives. Not least because you're knackered and still feeling sick. xxx

Gig, hope the injections help.

Betsy, am sending you slow flow drains, for swift removal. Horrid things. Be out soon though. Smile

Missing lots I know. Sorry! I will dip in and out, but am thinking of you all. Smile

malteserzz · 14/11/2013 21:29

You're all lovely bet you're glad it's my last cycle!
NY shopping list sounds fab gigs

Watching the children in need concert then I'm going to take a pill and go to bed x

weebarra · 14/11/2013 21:50

malt, hope you are feeling better and betsy, thinking draining thoughts for you.
Had phone call from genetics nurse confirming I have brac2 gene. So I'll need a hysterectomy as well as a mx. Bugger.

foofooyeah · 14/11/2013 22:57

weebarra that's a complete fucker about the hysterectomy. I don't know anything about genes etc but so sorry you are going through this.

Gigondas · 15/11/2013 07:37

Weebarra that is a shock . My cousin. Is a carrier too ( but I am not , I do have potential issue with another gene but they are doing further tests as not sure it's significant).

My cousin did say that it can have positive outcome as they can target treatment especially chemo more effectively and the screening programme is becoming very more efficient so knowing you carry can be a good warning.

Betsey how are the drains?

Malt - I missed concert but was it good? I know cin does lots of good( and big gig raiding my purse for School donation) but can't see myself watching tonight as the celeb backslapping element if this boils my piss.

Slept ok so feel bit better - no nausea or sore tummy today Smile. And got reflexology lady later GrinGrin. What's everyone else up to?

malteserzz · 15/11/2013 08:06

Weebarra sorry to hear that but as gigs said it's good to find out these things. When will they want to do it ?

Gigs I thought the concert was really good, tom jones was fab, looked a bit older than that FB pic! Manillow looked like his face was so tight he could hardly open his mouth and Agnetha from abba did a duet with Gary. I will watch tonight, while ds watches the football with DM who is insisting on staying with us while dh is away Shock

Not up to anything today ( again ) I am a recluse this week. Did sleep better last night though

foofooyeah · 15/11/2013 11:57

Children in need isn't too popular in our family after my reclusive uncle left all his money to it instead of his poor 6 nieces [ grin]. One of my sisters was 'if he rattles his tin at me he will need a bandage for his other eye' not very charitable I know and we do donate via the school.

Feeling very pukey today and gagging whenever I think of cold cap, nearly gagged just typing it. Shall stay indoors with malt

gigs glad your a bit better today.

foofooyeah · 15/11/2013 11:59

Did have good news at hospital though. Last time tumour as gone from 9 to 4cm, and this time right down to 2cm.

smee · 15/11/2013 12:39

Yay for foofoo's shrinking tumour. Smile

Weebarra, sorry to hear your news. Somehow missed that before. Agree with the others, definitely better to find out, but still tough. x

Malt, sleep is a plus at least. Hope you keep climbing out of it all.

mighty glad you're feeling a bit better, Gig. Enjoy reflexology. Smile

Betsy, yes how are the drains? Hope not sore. Mine always seem to get sore about day 5, most irksome. Hmm

Children in Need always a bit odd for me as when I was 17 a friend died on his motor bike that day. Always brings it back for me. He'd have been 48 now. Sad DS bounced off in his pyjamas. Very sweet to see all kids giggling at teachers. His had a Zebra onesie on. V.brave! Smile

malteserzz · 15/11/2013 14:47

Smee how sad about your friend :( hope ds enjoyed the day in his pjs

Foo foo that is a great result, must make it worthwhile that you can actually see what the chemo is doing

So tired today have watched 2 films but did drag myself off the sofa to make some cakes. This is a rare occurrence as dd is the baker of the house, the kids will be shocked when they get home !

Hope everyone's ok

UKsounding · 15/11/2013 14:56

Foo Hooray for shrinking tumor

Weebarra Hugs about your news. What a kicker! Sad Brew

Hi all waving to all

UKsounding · 15/11/2013 15:01

Malt Hooray for cake!
DH actually had to bake buns one night this week as DD needed them for a school fund-raiser in the morning and I could not be woken. Blush Bless him - he has to tackle all sorts of unexpected tasks recently. Fatigue hitting harder post-rads than ante-rads Confused Hope to feel livelier and catch-up with all the Tamoxygang news over the weekend.

BetsyBoop · 15/11/2013 16:40

All round to malt's house for cake then Grin Hope you are feeling better soon. I found the last cycle hit me particularly hard on the tiredness front.

wee - As has been said, better to know, but

smee - sorry about your friend

happy dance for foo's shrinking tumour

gigs - hope you enjoyed your reflexology

Trice - how are you doing after your op?

Kitkat - hope this week's chemo doesn't hit too hard.

to anyone else needing them, sorry but my tired, poisoned and anaethetised brain can't seem to retain where everyone is up to at the moment.

Bit of a wierd day here as less pain but felt really nauseous this morning. Luckily had some cyclizine left over from chemo so took that, can't handle icky at the moment. Feeling a bit better this afternoon. Drains are slowing, but still L=75, R=115. I think they will be out on Sunday regardless (6 days absolute max seems to be the rule here). I have a follow up appointment with the BCN on Wed so she will aspirate if needs be - she did warn me that being larger in the boobage department meant I was more likely to have seroma problems :(

MomOfTwoGirls2 · 15/11/2013 23:52

Well, taste buds are back (end of week 2). 1/2 bottle of red tasted just lovely... First wine of this cycle, and it went down and tasted very well indeed.

Drinking plenty of water before I hit the bed, hoping I won't have headache tomorrow morning. Kids have orchestra at 10am.

kitkat haven't posted in a while - well done to your DS. That is lovely. I have parent teacher meeting on Monday. They scheduled special one for me, so I didn't have to wait around.

malt hope you are feeling better. I can't wait until I can say I have last chemo behind me.

smee I lost two friends in a car crash at 17 too. Lots of things trigger that memory for me. I always feel for their families, so much life has happened to me since 17. Mostly great.

Weebarra, I'm expecting the same news in the new year. Best to know and act accordingly I think.

really, you've been quiet - hope this week has been OK for you, and that you had lovely time at your parents.

reallyreallyworried · 16/11/2013 09:04

Morning all

Sorry haven't been on for a day or two, think I hit the 4day slump! Then had the joys of an evening of the 'runs' last night. Although other than that I have been okay, except for feeling tired. Starting to think that I might not be able to do a full week of work next week Sad but think I need to give it a try. My bosses have been great and have said they will find cover IF I'm not up to it! But we'll see.

Hope you are feeling a bit brighter today malt sounds like you have had a rough week, although keep telling yourself, it's your last time! Grin

Hope you all have a wonderful weekend, anyone got any nice plans? Sending ((((((((hugs)))))))) to anyone needing them today! Xxxxx

Technoprisoners · 16/11/2013 09:45

Good morning everyone.

Can I join for some hand-holding please?

I am 47 and was called for routine mammogram screening 4 weeks ago. Then recalled for more tests - mammograms, scans and a core biopsy. They thought it was calcifications ... but it's not. It's a 1cm glow-growing invasive DCIS. Scans have showed my nodes look normal, but I understand the plan is to have a sentinel node biopsy, along with the local excision. It is oestrogen receptive, so they are talking about Tamoxifen after the radiiotherapy.

I'm just in total shock. Trying to think positive - that it's been caught really early etc ... if I hadn't gone or got called for my screening, I would have been 50 before it was picked up. No outward signs of anything different in my breast, no other symptoms.

I see the surgeon Monday and am trying to gather my courage but failing. Just see a bleak road ahead of me. DH is being wonderful and telling me to take one step at a time and I'm trying hard for him and the DCs, but feel like I've been given a death sentence. Please, any positive stories and boosters much, much needed.

malteserzz · 16/11/2013 10:05

Morning all

Techno welcome to you though sorry you have to be here Smile you're in shock at the minute, we all understand that feeling, hang in there till you see the consultant and know what the treatment plan is and you will start to feel more in control. If it is dcis that is really good news if you know what I mean

Really sorry you've hit a bit of a low. Maybe you won't be able to work all week but do a bit at the end of the week ? It's hard to say really. Hope you've enjoyed being with your parents and had plenty of tlc

I'm not up yet ! Might try and leave the house today Smile
Love to all

LadyBeagleEyes · 16/11/2013 10:21

I spoke to my Dr. and she said it wasn't low blood pressure I had but low blood platelets.
Will have blood tests on Monday and hope I can continue the chemo on Wednesday.
Although it's been nice to have a two week break, I just want to continue with the chemo as I feel that something is being done.

Marshy · 16/11/2013 11:07

Hi techno
Welcome and sorry you have found yourself here but you will get lots of good info and support. pretty much everyone, myself included, will have a good idea of how you are feeling right now.

In terms of boosters, my story started like yours with DCIS discovered on routine mammo. As mi e was extensive it was clear from early on that i would need a mastectomy. SLNB came up clear and when the breast tissue was examined after the mastectomy it showed no invasive cancer. So no further treatment for me apart from tamoxifen which i am about to start as my DCIS was 7.3cm and estrogen +

The outlook cor DCIS is very good but even if you do find that you have an invasive cancer, you most definitely have not been given a death sentence, as the ladies on here will confirm!
You are in the most difficult bit at the moment, waiting for clarity. Lots of people here for hand holding while you do that. I would also say to get to know your breast care nurse if you have one. Mine was fantastic at mopping up tears and answering all my questions. You will come through this, even if it doesn't feel like it now.
Hugs for you and apologies for typos as am on phone.

foofooyeah · 16/11/2013 11:16

techno agree you are at the worst point. It's not a death sentence, you will survive. It's just a bit grim.

Talking of which I am feeling grim today, very grumpy, and the three men in my house are really pissing me off.
Been very tearful which isn't like me but its been an emotional week with chemo and my sister who died last year birthday was on Thursday and I miss her so much. I may go and see one of my other sisters this evening and drink her wine ( I have another 2 sisters).

malteserzz · 16/11/2013 11:40

Hugs for foo foo xx
Sisters and wine sound a good idea as they will understand exactly how you feel with missing your sister.

foofooyeah · 16/11/2013 11:48

Yes, spoken to sister and am going to say overnight with her and drink wine and slag off men.

Tiny100 · 16/11/2013 12:33

Hi All - back again! Looks like chemo is going to knock me out for a week each time. Sad Haven't had a chance to read back through the posts, but will do later.

Welcome to Techno - holds hand tightly. I am still at the beginning of my journey and can remember all the emotions from the very beginning quite clearly. As others have said you will feel better once you have an action plan - DCIS it is the earliest form of breast cancer and has a very good outlook.

Marshy - How are you recovering from the surgery - are the drains out yet?

{{{Hugs}}} for FooFoo - a girlie evening with lots of wine sounds just what you need.

Malt - Hope you are feeling a bit better - how are your holiday plans coming along?

Really - Never feel guilty about not going into work, especially if they can get cover. Have you thought about going on sick leave whilst you have your treatment, or is this not an option?

Right, I am off wig shopping with my OH - oh the romance!