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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
lotsofquestions000 · 05/11/2013 13:14

Not sure its time to celebrate yet. I am convinced the rectocele is still there - all be it smaller and in a different place. I can def feel a lump down there when standing up and walking about Sad. got to wait 8.5 wks post op before my follow up as well. Anyone had this sort of experience and able to give some reassurance? I def haven't been doing too much!

joclairey · 05/11/2013 14:30

I've got my ultrasound tomorrow finally to find out the extent of my prolapse before I see the consultant for the first time. My pessary fell out last night when I did a BM :/

I decided to leave it out until after the ultrasound as surely having it in would skew the results of the ultrasound?

LetItAllHangOut · 05/11/2013 16:19

Oh what a fab thread, I wish I had discovered it ages ago! (Am NC regular)

I have a moderate-size rectocele which has recurred - I had a successful repair some years ago, but since I had my hysterectomy in 2010 the rectocele has come back - my womb was the size of a football, with fibroids, so the absence of it has sent everything into the wrong place again. So I have problems with BMs every day and am utterly fed up with it.

So my question is - any experience here of repeat rectocele repair? I'm seeing the consultant again soon and I expect he will suggest it. Am a bit reluctant as have a wonderful sex life Blush which is not affected by the rectocele and am worried that more surgery will affect sensitivity. Am also reluctant to have further surgery if it will recur again - but then again maybe it won't as I can't have a hysterectomy again.

TIA.

izzybizzybuzzybees · 05/11/2013 16:24

I've just had my preop. Slightly problematic as I'm a wimp in hospitals and when the nurse has taken my BP is too high, 160/110! I've been told to get it checked at GP and hope it comes down otherwise surgery will be cancelled!!!! Help!

curlyclaz13 · 05/11/2013 16:38

Well that was a waste of time, I want the coil fitting soon so no pessary for me. Why the doctor didn't say I don't know but the nurse was lovely and reassured me the prolapse isn't too bad.

WhoKnowsWhereTheTimeGoes · 05/11/2013 23:18

Haven't posted for a while, the thread seems busy at the moment, sorry so many need it but glad everyone can share and help. I had a rectocele repair about a year ago which has been totally successful (so far) and have a low grade cystocele which is not causing any problems.

Sorry to hear that you didn't get the pessary Curly. I've got to have my coil replaced next month and I'm a bit nervous as it's been in since before my repair last year and now things are tighter it might not go in as easily as the first one did.

Lotsof - my rectocele repair felt slightly swollen and lumpy till about 3 months post-op and the surgeon assured me this was normal. At three weeks you really shouldn't be doing too much still, but I would maybe up the amount of walking, don't go too far from home in case you get too tired to get back, but maybe an extra circuit round the block and speed things up a bit? Don't try swimming yet, too much risk of infection, but you can do it after about 6 weeks.

LovesBeingHereAgain · 06/11/2013 03:57

LetItAllHangOut sex was one of my main reasons for not repairing yet too. Although I did have an incident where I felt it get worse and since I have had trouble having an orgasm, not sure if it's related though.

I'm lucky that bm havnt been overly effected as yet but its my main concern whenever I feel ice done something to set it off.

lotsofquestions000 · 06/11/2013 09:11

thanks whoknows that's what I was hoping someone would say- physically I feel fine but when I stand up and walk around I get that feeling that there is something there IYKWIM. I take a look and all looks normal but the sensation is there and it does feel lumpy. My bowels are driving me mad too. I just seem to get bunged up every few days despite taking laxitives and lots of fibre - then I get terrible wind Blush until I go which can take all day. I am really worrying about going back to work in a few weeks if things are like this it would be awful!! I also really don't want to see many people as everyone will ask if I am ok and I don't want to say I am when Im not but don't want to go into the details as to why not!. I am pretty pathetic I know but I just want to feel normal again!!! Im sure everyone on here can relate to that!

lotsofquestions000 · 07/11/2013 10:12

worry of the day! [big sigh emoticon] have been getting some strange pin prick sensations down there in the last few days - not really painful but a bit twingy and not that comfortable. Normal?? does it last? Wondered from looking back on previous threads something about nerves reawakening/ knitting back together could this be it? On the plus side things are starting to feel stronger down there now.

WhoKnowsWhereTheTimeGoes · 07/11/2013 10:14

It could be that, or stitches coming out. Try not to worry!

jcakec · 07/11/2013 11:26

Lotsof -it does sound like the descriptions I have heard about stitches scratching, so hopefully it is that. I dont know what to think about mine as for the past two days it has been hurting to sit again and I am wondering if there is something else that is causing this pain. It used to hurt to sit before my operation and I assumed that was the rectocele but the doctors seemed surprised that it was hurting to sit. i am doing much more now and excercising but it is such a worry knowing what it is safe to do isn't it? Maybe this pain is indicating I have been doing too much, sigh.

lotsofquestions000 · 07/11/2013 12:06

I cant see anything regarding the stitches coming out but I guess if they are all deep inside I wouldn't?? I have managed to get to see the consultant earlier (before I go back to work) thankfully so even tho he may tell me off or not be able to examine me properly ( it will be 5.5 wks then) at least I can speak to someone who knows before getting back to normal.
jcakec I have never had pain sitting down (apart from the week or so after op) so don't really know what to say. How many weeks post are you?
I find it really frustrating that there isn't enough post op info available to us - they seem to literally send us home and say see you in x weeks. We were given an info sheet but it seemed mainly aimed at those having hysterectomies esp regarding some of the advice about getting back to normal - it implied that you could start heavy lifting at 6wks for example, which I have ignored given the advice on here and what consultant said! It is something I am going to say to cons when I see him that a comprehensive guidance and advice leaflet for post op would have been a big help esp to worriers like me!!! but all the things cons said to me were verbal which you don't really remember that well. Jcake I have ordered and just received the Michelle Kenway book inside out which I think whoknows recommended it is expensive for what it is but I think well worth it for the likes of us and future exercise. x

lotsofquestions000 · 07/11/2013 12:19

Oh and 'bless you' whoknows you must think I'm one neurotic old bag Grin. You are a wonderful support to me xx

Just another thought jcakec is it anything to do with your bowels I do get an aching in lower back when I need to go and haven't been able to - a bit of backup!! which you would also have got with rectocele

WhoKnowsWhereTheTimeGoes · 07/11/2013 12:20

Yes, I've got that book, it is good.

Jcakec - I was still uncomfy sitting down when I went back to work at 7 weeks, had to sit on a cushion and lean on one of my cheeks rather than sitting upright. I remember being very pleased with myself when I managed a whole day at work, plus drinks and a meal after work one night all sitting upright at about 12 weeks. Maybe take things a bit easier for a couple of days and see it that improves things?

jcakec · 07/11/2013 13:08

Lotsof -it does sound like the descriptions I have heard about stitches scratching, so hopefully it is that. I dont know what to think about mine as for the past two days it has been hurting to sit again and I am wondering if there is something else that is causing this pain. It used to hurt to sit before my operation and I assumed that was the rectocele but the doctors seemed surprised that it was hurting to sit. i am doing much more now and excercising but it is such a worry knowing what it is safe to do isn't it? Maybe this pain is indicating I have been doing too much, sigh.

jcakec · 07/11/2013 13:09

Lotsof -it does sound like the descriptions I have heard about stitches scratching, so hopefully it is that. I dont know what to think about mine as for the past two days it has been hurting to sit again and I am wondering if there is something else that is causing this pain. It used to hurt to sit before my operation and I assumed that was the rectocele but the doctors seemed surprised that it was hurting to sit. i am doing much more now and excercising but it is such a worry knowing what it is safe to do isn't it? Maybe this pain is indicating I have been doing too much, sigh.

WhoKnowsWhereTheTimeGoes · 07/11/2013 13:27

Lotsof - if you went back to threads this time last year you would have found me posting almost the exact same things!

lotsofquestions000 · 07/11/2013 14:31

that's what makes this thread a godsend isn't it!!

jcakec · 07/11/2013 16:51

I don't know why my post has been posted 3 times! Sorry about that. Whoknows- thankyou for still being on here and offering us advice and support. It is over 8 weeks now since my op, I can"t believe it. Lotsof - thanks for the book suggestion, it could be bowel related. I don't know why but I too have to keep taking laxative stuff. Even with that it still builds up over a couple of days before I can go on about the third day.

mrsclairet · 07/11/2013 18:25

I am having another 'down' day today. (For those new to the board I had my 1st op in May but need another in Jan/Feb). I feel so frustrated because I feel like the operation has made things much better in some ways, the dragging feeling is still there but nowhere near as bad as before and the bulge has gone but after the operation I got really badly constipated which made my existing pile loads worse and now that is driving me mad and I think I am going to have to have it removed. I have upped my fibre intake as otherwise I seem to get a bit constipated but I find when I do that it just gets so itchy and it's really hard to keep it clean so sometimes my pants are getting stained, then it tends to get sore aswell. I suppose that could be the prolapse so I should wait until I've had my 2nd op but I'm just worried another operation might make me constipated again and make things even worse.

I feel like the 1st operation has made me feel a bit more like the 'old' me, now I'm just frustrated that I'm still sore as I have regained lots of energy and want to do things and be normal!! Every time I go to the doctor about the piles they tell me not to have the op because it will be really painful but I think it's causing me lots of pain now!

Also I have been potty training my son this week so have had a bit of a rubbish week stuck in the house clearing up wee and poo!

lotsofquestions000 · 07/11/2013 18:39

ahh mrsclairet I really feel for you the thought of going through another op. I assume you have already been trying haemorrhoid stuff - In my opinion it doesn't get rid of them but does help ease the pain. The first cons I saw had suggested getting rid of my piles at the same time as this but my GP said it would be a bit much!! Not sure I would even think about that after all this. Mind you the idea of having a normal fanjo, no piles and even the skin tag removed would be a wonderful idea (imagine being like new again!).
and good luck with the potty training I had to train 3 boys many years ago - can still remember - took months for them to be reliable and I threw away lots of pairs of pants in that time haha!!!
Keep posting when you feel down there is always support on here

BeyondTheLimitsOfAcceptability · 07/11/2013 18:44

GP appt today, she confirmed that the "issue" she diagnosed as a rectocele is still there in her opinion. She has not yet rec'd the consultants letter, but will send me a copy so I know what it says and then we can decide where to go from there.
I love my GP :)

mrsclairet · 07/11/2013 19:25

thanks lotsofquestions yes it is so disheartening to know I have got to get through another op. I asked the consultant whether he would do it at the same time but afterwards he said he was worried about the bleeding. Then I was talking to my lovely GP and he said he has known people have to have blood transfusions because the bleeding just won't stop. I am putting anusol cream on every day, I don't know whether to try suppositories but am a bit squeamish with things like that so don't really fancy it. The GP gave me some steroid cream but that didn't work either.

My dad died of a brain tumour within 6 months of diagnosis so I try to keep positive and think well at least it isn't anything life threatening but it does get me down every now and again.

Beyondthelimits I'm glad you have got such a great GP. I have a lovely male GP but think he will be retiring in the next few years : (

WhoKnowsWhereTheTimeGoes · 07/11/2013 19:52

Someone else on the thread had haemorrhoids removed with the other repairs and it did cause a great deal of pain in the aftermath IIRC, think it was Troubled. I've never had them (touch wood) so no experience, but definitely worth trying anything else that might alleviate them I think.

izzybizzybuzzybees · 07/11/2013 22:54

Having a nightmare with my BP. It was raised at pre assess clinic. I was told to see GP this week and had appt today. It was still up, not as high, not surprisingly due to a few issues in the surgery. One being it was an appt at the nurse I'd been given which is really no use. I don't have raised BP, I have white coat syndrome!! I've to see GP, actually GP this time, on Monday and see what happens there. I'm worried the clinic will pick up that I haven't called in with the reduced BPs and that Monday is leaving it too late to rectify ie get a 24 hr monitor done. My BP at home is fine!!