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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
BeyondTheLimitsOfAcceptability · 08/11/2013 07:36

She hasnt been my main gp long even, only since this year. I've been with the same surgery since i was born, with the same GP until he died last christmas :(

My mum has had haemorrhoids removed twice, once post labour and once more recently, unfortunately not at the same time as any other repairs, but I can ask her about it if you have any specific questions about having them operated on?

I do find that using the cream no longer makes any difference when mine appear, the suppositories on the other hand are amazing. Strongly strongly recommend you give them a go :)

jcakec · 08/11/2013 17:05

Izzy hopefully if you explain this to the hospital they will go ahead? could you call the ward. surely they are used to operating on people who are very anxious in hospitals. Whilst I was in there was a lady who was having panic attacks before surgery but they managed to talk her through to the anesthetic. I do hope they dont cancel your op, the waiting is horrible.

jcakec · 08/11/2013 17:11

9 weeks post op and I have started bleeding and have back ache and pain on sitting. Aghh ....I will spend some time looking back through the posts to see if anyone else has experienced this. So cheesed of.

WhoKnowsWhereTheTimeGoes · 08/11/2013 21:27

Any chance it could be a period Jcake?

LackaDAISYcal · 08/11/2013 23:01

Sorry to hear of troubles and niggles :(

Jcakec, I second the "could it be your period" Maybe call on Monday for some advice?

Lotsof, I hope things are feeling a bit better today; from previous threads it does seem that things appear to get worse befire they get better, so fingers crossed its on the up from here on in

Mrsclairet, the thought of a 2nd op must be quite daunting; hugs xx Re the piles, anal suppositories are what got me through after DS2. horrible horrible things (the piles, not the suppositories). Now if things falre up I use Nelsons homeopathic pile cream if minor or anusol if a bit more problematic and they disappear again quick smart.

izzybizzy, I have white coat syndrome when it comes to getting blood out of me, so I know how you feel. My veins all shrivel up and doe at the thought of someone getting blood. I have to go to a phlebotomist to have a sample done; they're the only ones that can get my veins to co-operate! I hope things go well for you and they let the operation go ahead.

I am a bit pissed this evening and actually dared to have a look down below Shock No amount of eye bleach could erase the image from my mind Sad It's all swollen and horrible and there are things there that shouldn't be there (or at least never used to be there) My cervix feels like it's swollen to three times its normal size and is visible if I bear down. Not to mention the ache and discomfort. I am utterly dejected by it and wish I hadn't looked Sad Spoke to DH too as he tried to get a bit amorous the other day and I shut him down completely Blush. Anyway, I told him how worried I was about it all (given what things look like) and how unsexy and crap I feel, having bled for 88 out of the last 98 days. He was an absolute angel, apologising for being so insensitive, telling me to make sure I tell him how bad things are (he hadn't realised) and giving me lots of cuddles. He also said that he'll book the morning off and come with me to my appointment.

And as an aside, I bought some Always Envive towels as they were on offer in TEsco and they have brought on a bout of nasty thrush. I didn't realise how highly perfumed they are and only nbought them because of the offer and the fact they seemd thinner for greater protection. I'm sure when I used them previously (just as a liner) they weren't as stinky. I have been using Tena mini but could use more protection. Any advice or recommendations greatfully received, though surely these things should be available on the NHS?

Tr0ubled · 09/11/2013 01:14

whoknows it was indeed me that had a hemorrhoidectomy at the same time as my prolapse repairs.
All I can say mrsc is proceed with caution. I had no idea of the pain it would cause me. They removed 2 piles, 1 anal fissure and 2 skin tags; only took about 15 mins to do apparently but as I discovered this has no bearing on the healing time. For the first 10 days post op the pain after a BM was worse than childbirth, I couldn't lie down and would kneel over my bed for up to an hour in tears waiting for the pain to subside. 8 months on my sphincter is still in spasm and I can't poo properly, I'm seeing a women's physio for biofeedback which is finally starting to help. She's basically retraining my bowels but also doing trigger point massage internally on the muscles (I am beyond humiliation now!). I don't believe every experience is as bad as mine and I think the fact I had it done at the same time as my vaginal work made it far worse as when the bum went into spasm so did the whole of my pelvic floor which was trying to repair from its own trauma! Speaking gobbledygook but hope it makes sense!!
Needless to say if I had piles again I wouldn't consider having them removed. Have you thought about having them banded? I had that done about 10yrs ago and it was almost painless.

jcakec · 09/11/2013 09:55

Lacka - are you waiting for an operation? I am glad that you have a supportive DH . there is just no way they can understnd how crappy these things make us feel.
Whoknows -I think I over reacted last night but the whole area was aching, I must have overdone things. I have tried to get back to normal this week. the bleed settled down and is more of a discharge with pinky browny blood. Am right in thinking if it was an infection it would smell? I haven't had a period for a couple of years so I don't think it is that but I could be wrong, our bodies are strange things. going to rest more today to see if it settles down and see a doc next week if it doesn't. i wasn't given a post op check up.
Troubled - you have had such a horrendous time, I am glad things seem to be improving slowly.

mrsclairet · 09/11/2013 10:10

Thanks troubled, yes I thought I could get it banded but the consultant never mentioned that, if I ever go back I will have to ask. My mum said that my dad had piles banded years ago and felt better afterwards. I have also heard of a procedure called halo but I think it's very new and not many GPs know about it, they go in somehow and cut off the blood supply above the pile but don't actually cut the pile out and NICE have recommended it as an alternative to haemmorhoidectomy but I think I might have to save up and have it done privately. Sorry that you have had so many problems.

LackaDAISYcal · 09/11/2013 11:47

jcakec, I am waiting for my re-referral appointment. When I saw them a year ago, they said I had a mild cystocele and referred me to the physios. Had a few sessions, then they discharged me after I cancelled an appointment rather than rescheduling as I had asked. Still doing my PFEs but getting despondent as every time I do I am leaking urine and bleeding. I had a side issue of bleeding between periods and after removal of a polyp had a mirena coil fitted. This seemed to be making things better until everything went awry in August and I am where I am now. Things have obviously gotten a lot worse Sad I'm wondering if there is some reaction to the coil going on as my cervix appears to be very swollen, and getting more so. I have low grade pain, like period pain on one side and getting quite bloated and uncomfortable on a daily basis. Dr Google tells me things that frighten me!

MrsC, there was something on Embarrasing bodies about a new procedure for treating piles; that is relatively simple and pain free. Might be worth a trawl around their website for more info?

lotsofquestions000 · 09/11/2013 11:58

lacka your poor thing - sending lots of cyber hugs to you xx You seems to be going through so much! but DH sounds like 1 in a million.
I'm taking on board all comments about piles and thinking I will just keep treating them as before although I will prob get some suppositories. My GP did recommend them before and I used them for a while but found they made me want to poo which then defeated the object cos pooing made pile worse anyway!! will see how it goes. have good and bad days with them! Did have a shortish walk yest and piles were really stingy but cos it was all down there I wasn't sure if it was them or the op so made me realise that Ive still got to be careful. Oher than that I feel nearly normal and so am really wanting to get back to my life then have to remind myself about lifting etc

LackaDAISYcal · 09/11/2013 12:16

thanks lotsof; I hope you get some respite soon; as if there wasn't enough going on without the additional aggro from piles.

When I used suppositories, I put one in last thing at night before I went to bed, so wasn't aware of any side effects.

Having an easy day today; DH let me sleep as long as I needed. He really is a star as he is up at 4.30 every morning with our chronically early rising DS2 and is the one most in need of a lie in! He said I should have explained before how bad things are as being a typical bloke he just thought it was a little bit of discomfort/irritation and didn't imagine the psycological aspect of it. Having had gallbladder problems, depression, diagnosed with lupus a couple of years ago and now this, I feel I am testing the "in sickness" bit of our marriage vows to the limit!

mrsclairet · 10/11/2013 09:13

lackadaisycal I know what you mean, I have spent so much time at the hospital this year with my kidney stone and biofeedback sessions and consultant appointments I am getting rather fed up of it. My DH just expects me to get on with everything and always seems to think I'm fine, although when I had the op he took 2 weeks off work and did everything which was brilliant. You are lucky to have such a supportive husband.

My hope with everything is that there will be a new treatment in a few years that will sort things out, they are making medical advances all the time so that sort of keeps me hopeful when I get down about it all. I will have a look on the embarassing bodies website, thanks.

lotsofquestions000 · 10/11/2013 10:40

I will try that re piles.

have worked out what the stinging I've been experiencing is now following another look!. I have been stitched up either side at the base of the perineum (what there is of it follow childbirth) but it is like the two sides he stitched were never meant to be together (or haven't been for such a long time!) and that is pulling which is causing the stinging. I hope that is something that will ease/be sorted out easily as it would make sex very sore as I can feel the stinging sensation all the time (when there is no friction!). Will have to see what cons says when I see him in a few weeks at least I know what it is now as I was thinking that I might be doing some harm when walking as it was so uncomfortable.

MaccaPaccaismyNemesis · 10/11/2013 13:50

I have a little question, I'm almost 3 weeks post op and healing well. I know I have to wait 6 weeks until I can do the dirty, but I'm so nervous about how it will be.

I know we should use lots of lube and take our time, but will my lady parts still work IYSWIM? It's an important part of my life, and I'm worried that it won't be as good anymore.

Noordinarygirl · 10/11/2013 15:50

Hi All, not been on for a while but just wanted to let you know that I have finally discovered another lovely lady who has actually had the op I will be having on 2nd Jan (sacrocolpopexy). She's the first one I've come across and it's really very re-assuring to 'find her'. I was beginning to wonder if everyone who'd had that particular procedure was keeping quiet for some reason eg. it's a really awful, terrible thing to have done etc etc etc.

Anyway, I keep reading about all those recovering from ops and hoping that you ALL have good recoveries eventually, however painful and slow it mean seem to some, stick with it and take care of yourselves and I hope you ALL have enough support, both emotionally and physically. Bigs hugs........

flouncymcflouncerson · 10/11/2013 22:27

I've got GP tomorrow to get BP checked and a note for hospital. Hoping it's ok but I can feel myself tense and anxious just thinking about it! ive NCed from izzy

LackaDAISYcal · 11/11/2013 10:05

Good news Noordinarygirl; and what was her view on things? I read a DM article on someone who had had a laparoscopic sacropolwhatsit but that was the only refernce I could find.

I've been doing a bit more research and some of the symptoms I have may be down to endometriosis. Anyone any experience?

Well done on even thinking about sex maccapacca!! No advice, but from what I've read, it can cause problems. It's a case of trial and error I suppose and taking things slowly. (Was about to say you'll just have to suck it and see Wink Grin )

Good luck for your appointment izzy!

lotsofquestions000 · 11/11/2013 10:24

that's great news noordinary it will help having someone to share the experience with IYKWIM!!
macca brave women to be even considering it at 3 weeks Grin. I am just over 4 weeks and don't know whether I will be ready to get back in the saddle at 6 weeks - mentally as much as anything - although I can say that I dont think that it will actually affect my sexdrive - it will just be an anticipation thing I think - like the first time after childbirth!!
flouncy good luck with your BP check - just think calming thoughts haha!
lacka I don't really know much about endometriosis but I do know that it can cause lots of intermittent bleeding so you could be on the right idea - good luck getting to the bottom (pun!) of things and getting sorted.
I am feeling a bit less stingy today and really almost ready to return to RL and have something to look forward to - like Xmas!!! - off to amazon now Smile!!!

kianaidan · 12/11/2013 09:58

Hi all, Just wondered if I could ask some questions and see if anyone has similar. Since having my 3rd son 4mths ago I have bleeding from my back passage when menstrating. I also have issues emptying my bowels, getting backed up. Although with diet modification I do manage to go once a day. Also even if I clean thoroughly if I go back a while later therr is still something there if I wipe. Can.t find anyone else with these problems. :(

WhoKnowsWhereTheTimeGoes · 12/11/2013 18:08

This thread may be of interest if you haven't already seen it everyone.

Q&A with Women's Health Physios

flouncymcflouncerson · 12/11/2013 22:14

Surgery is tomorrow!! I'm frightened and my IBS is flaring up. I have ranitidine to take tonight and tomorrow morning. Do you think I could take some Imodium in the morning so that I don't get the squits?!

WhoKnowsWhereTheTimeGoes · 12/11/2013 22:47

I don't think you should take anything this close to surgery if you can avoid it, might be contra-indicated? What time are you supposed to be nil by mouth from, are you morning or afternoon list? Also, when I had mine they made me do an enema the night before to have a good clearout, so a dose of the squits may be no bad thing.

WhoKnowsWhereTheTimeGoes · 12/11/2013 22:47

Good luck BTW!

cardamomginger · 13/11/2013 00:35

don't take immodium!!!! the general and painkillers will block you up as it is - you don't want to make it any worse!

lotsofquestions000 · 13/11/2013 10:07

Flouncy - I agree with the others - being blocked up is the last thing you want! good luck with op tho