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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
mrsclairet · 07/03/2014 11:40

Sack you definitely need help with small children. I had an op done last year with a 2 and 4 year old and now I need it doing again as the consultant didn't do it tight enough, this time I'll have a 3 and 5 year old. I had 4 weeks of help but then was pretty much on my own to get on with it. I am glad I had it done but I'm a bit gutted I am only 32 and on my 2nd op already. One thing I learnt from a Facebook group is to see a urogynacologist as they are specialists in pelvic floor, I wish I had known that before I had my 1st op.

mrsclairet · 07/03/2014 11:46

noordinarygirl - yes it is on a saturday! I was surprised aswell but it is a private hospital that takes NHS patients. I saw the consultant and had an 8.20pm appointment!! It was rather weird! I originally saw him through BUPA as he is a specialist in this area and after my 1st op failed I didn't want any old gynacologist to do it so I'm hoping for a better outcome this time round. Then he said he would do it on the NHS. I haven't got to go in till 1pm on the saturday and I can have some breakfast but nothing after 8am so that wait is going to be horrible. Apparently though the nurse said he only usually does 2 operations whereas some of the other consultants try to pack more in so I hopefully won't have to be waiting round too late in the afternoon. 7 days to go!

SackAndCrack · 07/03/2014 12:18

Thank you for your help!

So I have another question. Grin

Ive been wondering for ages why my mooncup leaks when previously it was absolutely brilliant. And obviously this bloody prolapse is the reason. (Only taken me two years to figure out!)

I hate tampons as when I get ot wrong and try taking them out when they are a bit dry, I quite literally end up pulling my insides down. SO uncomfortable and makes me feel very squeamish.

So I looked into sea/menstrual/moon/jam sponges.

I have one for prolapsed organs, apparently you can wear them all month round to help keep things where they should be.

It arrived yesterday and it was HUGE.

Has anyone else tried them? For either their period, or for prolapse troubles?

And my last question, how often are you supposed to do pelvic floor exercises?

SackAndCrack · 07/03/2014 12:20

(Obviously you have to wash it regularly, you dont just keep it in for a whole month.)

Noordinarygirl · 07/03/2014 13:45

Sack just to give you an idea my pessary ring was 74mm and I would guess that's the diameter. It did look huge but it was squashed up for insertion and sprang back into shape.

SackAndCrack · 07/03/2014 17:01

Were you aware of it all the time? How often did you have to take it out?

Noordinarygirl · 08/03/2014 16:53

Sack I did have to go back a couple of times as it felt really uncomfortable. They changed the size once from 71 to 74mm but the second time it was just re-inserted. I asked fro them to try to get it as high as possible (which was a bit eye-watering) but that's when I couldn't feel it at all for a while. It did move down somewhat sometimes depending on what I'd been doing - anything involving crouching down definitely made it move. I kept having to try and push it back up as it seemed to be sitting almost vertically instead of horizontally. It was not ideal and like I said, I wouldn't to have wanted to live like that for years.

You leave it in for 6 months (without taking it out at all) before you need to go and have a new one put in. Personally I wouldn't want to take it out myself as I would be scared of what it might drag out with it and if it was as high as it should be I think it may be quite difficult to remove.

My experience may have been an exemption and others may have had them in with no problems at all. We are all different inside I think and it depends on what is prolapsing too.

SackAndCrack · 08/03/2014 20:14

Thank you for your reply. Im totally new to all this, so appreciate the insight.

Charlierabbit · 09/03/2014 11:53

Hello,just looking for some advice. I had a hysterectomy and anterior repair last May. All went well. Today I find I have another prolapse into vagina. I am devastated and don't know what to do for the best. Just to leave it or go back to GP to start in the NHS system again. I had a horrible year last year with three admissions for surgery and was determined that this year would be better.

julieporter · 09/03/2014 13:42

Hi
I'm knew to this thread and hope you can help.

I had a repair- uterine and bladder- 25 years ago and it was successful. I have taken great care since- no heavy lifting or high impact exercise.

I'm late 50s and have been on HRT for a few years which is supposed to help keep your bits in good nick!

However, I've tried using tampons this month (HRT bleed) and am a bit upset that my prolapse seems to have come back a bit.

I can insert a Tampax outer tube ok but once I push the tampon in it quickly hits my cervix and is uncomfortable to use- so I take it out! Or is it just like this on the first couple of days of heavy bleeding?

I feel that everything descends more during a period as I'm not sure that things are as low as this normally.

I know that this would still be classed as 'mild' but it is still a bit annoying.

Can I be really cheeky and ask if anyone else with a prolapse- however slight- finds tampons tricky?

I'm hoping to stop the rot with more PF exercises but am a bit miserable over it as I thought it was all holding up well.

julieporter · 09/03/2014 13:42

knew- sorry- snr moment- new

Frenchfrogbutt · 09/03/2014 14:20

Hello ! I cant really find any information on french forum i might be the only one broken fanjo on France !
SO ladies please in advanced escuse my question !
Besides Footle who is more than kind to share her expérience over the time (thank you again !) do you have News from the
First girls on the thread IT seems that most of them disapeared after 6 months Feedback . I know some of you might had contacts i would be happy to hear success stories
/flourybap/ balls in the air/ jewel / sûre woman/ratherbeskiing where are you ???? We need you !
I have read SO much those threads all of you are my secret héroïnes ! :-)

kazzawazzawoo · 09/03/2014 15:49

Julieporter, that is similar to how I feel. I'm new here and don't know much about prolapses. I am seeing my gp about it this week.

However, I too struggle with tampons, but I don't think it's as bad afterwards.

This is quite new to me and I'm trying to find out as much as possible. I'm trying to do pf exercises, but find them really difficult. I can barely squeeze and only in certain positions Shock

Noordinarygirl · 09/03/2014 19:03

Julie and Kazza Sorry I can't help you about tampax as I had my womb out before my prolapses started - so no periods for me.

Charlie I should think about going back to your GP, sorry if that's not what you wanted to hear.

I think a lot of us have had quite prolonged periods of feeling rubbish and many of us have had at least 2 ops. I know I felt as if I was living a sort of half-life until it was all fixed, having to tailor everything I did around what I could and couldn't do without damaging myself further. The waiting was the worst part. Therefore I can appreciate how you must feel now after feeling so well and hopeful that you were finally sorted, only for something new to start flopping. My heart goes out to you Charlie. I am so sorry to hear about yet another set-back for you.
Hang on in there.

mrsclairet · 10/03/2014 15:40

Charlie I am so sorry, I had an op last May and I have been dreading finding the prolapse return ever since. I am going in to have another operation because the consultant said he didn't do it tight enough and so in my mind sooner or later it will prolapse again, I might aswell have it done sooner. I guess you have got to decide how much of an impact it is having on your life, personally it is really impacting my relationship with my dh so I just want to get it sorted.

kianaidan · 10/03/2014 20:34

I.m really sorry if this is TMI but do any of u with.prolapse have to clean inside back passage with a baby wipe after every bm. Still undiagnosed and wondering why I have to do this. I had a sigmoidoscopy and they only found some internal piles. They were looking for fistula. X

Noordinarygirl · 11/03/2014 16:31

mrsclaire how are you? Probably don't know what to do with yourself now! I felt in a real limbo during the last few days before my op. My thoughts are very much with you. Hope you have peppermint tea and prunes at the ready!

Happy how are you - still testing yourself exercising?

Dragon how are you now after week 2 back at work done and dusted?

Aveiro Are you still hanging on in there? Please let us know how you are as you sounded extremely low.

mrsclairet · 12/03/2014 18:30

noordinarygirl I went to have my blood taken today, my DH had the day off which has been nice. My mum is coming to stay for a couple of weeks tomorrow. It's strange, I think I'm okay but then I will do something silly, I feel very distracted and it's like my mind keeps wandering off and thinking about it even if I don't want to think about it if that makes sense!! I haven't had a bm today so I will have to take some senna or lactulose tonight as I don't want to be constipated before the operation!

kianaidan yes I have had this and it drives me mad because I find if I don't spend ages cleaning (which is hard with a 3 and a 5 year old to look after!) then it gets really itchy and sore. I find the looser my bms are the worse it is, if I am slightly constipated it doesn't seem to happen but obviously that isn't really an answer! I find haemmorhoid cream helps.

Noordinarygirl · 12/03/2014 23:13

Day 22 post op - bugger, bugger, bugger........just when I thought everything was sorted I've had to use 2 enemas tonight! My BM diary was looking SO good with lovely, regular poohs. Didn't go at all yesterday. Went for a walk this morning, which ended up too far and I was in agony by the time I got back. Felt sick all afternoon and then felt totally bunged up. I've been eating incredible amounts of fibre and drinking s**T loads so why is this happening? I'd cut down to one dose of lactulose a day....back up to 2 again now though.

I was feeling so positive about it all and am pretty gutted that this has happened again today. Has anyone else had this along with feeling very nauseous? How long does it last?

Frenchfrogbutt · 13/03/2014 08:45

Hi nordinary
Well i dont have as you know any operation expérience but
I have read a thousand Times the 8 threads :-) SO dont Worry maybe the walk was a bit of overdoing and tired your body
As you said and for précaution go back to your initial laxatives solution . For Most of the girls i read IT tools them few months to have a régular bowel rythm
On my side just wanted to share how every body tell me that i am overeacting to my prolapse i am on a full dépression . I cant movicol from the knee to the neck . I had a trush and went under antibiotics unfortunately i développé an allergia and my body is Now covered with spots and redness. The Antibio did also constipate me and as a résultats : hello hemmoroids ! My irritation is Still there i cant do properly my reeducation , i feel ugly broken please tell me happy Times CAN come back despite the rectocele ? Sorry i had to share that somewhere as my mum has a lymphoma cant use the mum healing. Power and every body things ITs in my head . I am under anxiolytique since yesterday ...

Frenchfrogbutt · 13/03/2014 08:55

My keyboard change cant move to cant movicol hahaha

Footle · 13/03/2014 09:06

This reply has been deleted

Message withdrawn at poster's request.

Frenchfrogbutt · 13/03/2014 09:24

Hi Footle
Thank you for your answer , she knows my condition but i did minimised the grade and the impact . You are right she knows when something is wrong but herself have been suffering SO much for the last three years i dont want to add that to her burden. My husband does IT all at home i am lucky hé is kind but wants to cheer me up and says that i am thinking too much that i need to focus one day after the others . I think je brlieves some how i ml get used to IT .,, but if i was told this is IT live with that IT wont move but we know that thèse things are getting worse over Time dont they ? At one point i Will have to take a décision get the operation or not . Will the surgeon agree to do IT ? And if IT was worse after that ? Well over thinking .
I cant stop thinking to the old good Times when we went to the restaurants had fun eating without thinking oh my god Will i be constipated , had sex when we wanted to , playing in the park with my kid étc i became a nostalgia maniâc
Dont recognise myse?f just want to enjoy Life again

mrsclairet · 13/03/2014 10:10

noordinarygirl my niece is on movicol and lactulose (long story) and my sister was telling me that lactulose doesn't stimluate your bowels it just softens everything up for when you do go. I tried using it and it didn't seem to help me so maybe you should try something else? I have found dulcoease good but someone on the facebook page said it is a bit harsh and so I have got some senna for after the op as that is supposed to be a bit more gentle.

frenchfrogbutt I got so down with my prolapses, my husband keeps telling me that you only have one life and you've got to try and enjoy it and I know it's right but it just affects so much of your life it's hard. Personally I would go for the operation, but obviously it's a personal decision. Before my 1st op I was worrying all the time about going out and needing the toilet, half the time I'd be doing the school run feeling desperate for the toilet but since my 1st op my bladder is much much better, it's just my bowels that still aren't right. But it makes a big difference so I'm hoping after the 2nd op my bowels will be better and I will able to enjoy my life again.

kazzawazzawoo · 13/03/2014 10:11

Oh frenchfrog, that's me too Hmm I hate how feeling like this has affected my life. Nothing is spontaneous anymore. Nothing is much fun anymore. I can't eat what I want, can't have sex when I want ... I wasn't even aware this could happen! Why aren't we warned about these things? Why don't all women get a regular course of pelvic floor exercise classes to avoid these problems? Possibly anyway ... I'm only 49, but, combined with other problems, feel that my life is over and I'm an old lady already.

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