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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
NeverKnowinglyUnderstood · 04/02/2014 12:05

Hello lovely ladies
I wonder if anyone can help I have the option of seeing 2 different people for my prolapse one is Rhona Keaney and one is Mark Slack Both in Cambridge.

How do I make a decision? Does anyone have any experience of either of these gynae's?

Footle · 04/02/2014 12:18

This reply has been deleted

Message withdrawn at poster's request.

rugbychick1969 · 04/02/2014 14:58

I am after some advice!

Since December I have had severe cystitis symptoms, 4 lots of antibiotics haven't shifted it although I have had up to two or three days at a time when it goes now I think its just subsided with the help of some natural remedies so I am living with it. Some days I also have a heavy feeling down below like something is there and bloating and pain in my left side.

A GP examined me early in December and said I didn't have a prolapse but has referred me for a scan and I've had swabs, bloods and various urine tests which are clear. I've been back and forth and seen another GP who was reluctant to have another look and said wait for the scan. I had a new coil fitted yesterday and another GP didn't mention anything a miss but the feeling of something there is back today :(

I'm convinced I have a prolapse of some sort but cant work out why two GP's have said no. Has any one else had this burning feeling inside all the time with a prolapse or do I just have a bladder problem? I do get a little leakage from time to time but nothing major.

TIA

happylilme · 04/02/2014 22:52

I've had a busy few days.Well went back to the land of exercise, back to gym only did cardio so treadmill, bike rower. Have to admit did rower very gingerly. Legs can hardly move now but feeling human again.
Dtd at weekend ( feel rude just sharing this) decided I'd bite the bullet so to speak and after a few large glasses of vino decided it's now or never. I had no pain at all and while things are definitely tighter ie can feel walls now it was definitely more comfortable / enjoyable. Poor hubby didn't want to say it felt too different as during my prolapse years he tried to reassure me things felt fine. I could tell it felt better for him. Enough said Wink

Hope all you lovely ladies are recovering well and those waiting for operations your in my thoughts.

On th whole it's all been very positive for me so far and I'm glad I have had it done.

Nannasylv · 05/02/2014 15:15

kianaidan - I was having to use manual evacuation, and told the consultant that I could feel stuff moving on the other side of the rectum. When scans came back, it showed as a bulge/crease (which at the time I was told might even be cancer-scary!). After MRI defecography, I was told intussusception, small open rectocele. Still told nothing needed to be repaired! It wasn't until I attended the physio (Wisdem centre, Walsgrave) that I was told Cystocele too, and that my Rectocele and Cystocele were moderate, not small! It all made sense after that, and I found certain daily excercises (my own design!) worked at getting things to stretch back upwards, and let things pass through. The vibrator also helped (not daily)and also with bum raised if possible. Every morning, after having my first wee, before getting up, I knelt on the bed, with my head and shoulders to the mattress, bum waggling in the air (everything being shaken up towards my waistline, for about ten minutes. When I went downstairs for breakfast, I would either need the loo before I even ate, or immediately after. It worked best if I manually evacuated at night, and put an Anusol suppository in to sit there overnight. Maybe TMI, but I hope this helps.

kianaidan · 05/02/2014 20:05

Thanks Nanysylv hope u are healing well. Ok I have nothing like that. I have no probs going but stfuggle to get clean. I have to clean inside with a baby wipe. I.m pretty sure I have a rectal vaginal fistula but was wprried the fecal staining may be from prolapse. I have an appt nxt month with colorectal so I guess I.ll know more then

Noordinarygirl · 05/02/2014 21:37

Happy what a wonderful positive post from you. It's restored my faith in these sorts of ops massively.

I had a meeting with my 'new' consultant today and feel hugely reassured after having a long, relaxed talk with him. I am actually glad that he's doing it now as I didn't sense any sort of 'rushing' from him, which my original consultant tended to do. SO pleased now, I definitely feel as if I'm in very safe hands. 13 sleeps to go.......(til my op!)

happylilme · 05/02/2014 22:28

Noordinary I'm so glad things are moving again and that in 14 sleeps.it will all be over and done with and you will feel like the 40 something year old you're suppose to be. Recovery will take time but hopefully with lots of rest and sleep this will go smoothly. Like I said I lost what sex drive I had after having children and prolapse but now I feel like my old self again. I'll be on laxatives for a long time but I can live with that .

Keep us posted about your progress.

Dragon I hope you are feeling better after your infection and that you have killed the little blighter once and for all.

Dragonroad · 05/02/2014 23:53

Hi happy. Glad to hear all going well and I assume that goes for work too. I am much less sore than before and all is working as it should. Vibrater use indicates DTD would not be a good experience but it is getting better. However, so glad you have and all and on good form! One happy hubby I am sure.

I still await my scan but I am now feeling it will be fine. Haven't done much physically until last few days but am now back to walking longer distances at my usual fast speed with no adverse affects. Today I went into London on the train, walked to GOS hospital, spend all day there and did the return trip walking home from the station. Now feel fine.

Noordinary, 13 sleeps and a lovely consultant. It's all coming together!

impatienttobemummy · 06/02/2014 16:42

Can i ask your advice? Can you give yourself a prolapse 7 weeks pp? Went to drs and she said my anterior vaginal wall was baggy but not a cystocele as such however I've got awful flu and since all the coughing I've lost bladder control when I had it back a few weeks ago :-( do u think this could be permanent or do I have more healing to do? I have urgency and loss of control and a heavy feeling with pelvic pain? It's so sore all over down there from the strain of coughing.

intheround · 06/02/2014 19:01

I think coughing doesn't help especially if things are fragile
If you pull your knees up (like a foetal position in bed) or sit right forward ,it helps take the strain off your pelvic floor when you cough.

EllieFredrickson · 06/02/2014 19:52

Neverknowlingly

I've PMed you - I've seen of one of the consultants you mention.

impatienttobemummy · 06/02/2014 20:27

Thank you ill try that x

happylilme · 06/02/2014 21:27

Dragon glad your recovery is speeding up now. Hope it's not your grandchild in GOS hospital. Hope all is well xxx

Work is ok wouldn't say brilliant as they are piling it on thick and fast now. Did home visit which really upset me came out of house with tears trying not to show. I think I'm more emotionally knocked since op, not sure why. Find out on Monday what jobs are being axed so all good fun. But hey at least I got my mojo back Grin

In ways it's hard to believe it's 9weeks tomorrow since op.

lotsofquestions000 · 06/02/2014 21:58

happy good to hear that you are back to exercise (of all kinds!). Im pleased to say I am too! like you gym was very tentative - didn't give rower a go! but as you say it is great to feel like real women again - in every department Smile.

Nannasylv · 08/02/2014 18:29

Hi everyone! Thanks for all the recovery wishes

It's been 8 days now, and I've only had 2 where I was worried (my bowel seemed to come to a stop, and I was full, but with no urge to go. I decided to use Glycerine suppositories 2 nights in a row, and everything is flowing right again), the hardest part was resisting the urge to strain when they started working. I also asked my GP for Fibogel (twice a day), and I'm sticking with a high fibre diet (which I've always favoured). I'm being mega careful, as I couldn't cope with years more waiting/fighting if it went wrong again. I've had no leaking, so I think the DIY exercises had helped strengthen the muscles before I had my op. The discomfort has been limited to aching similar to mild period pain. It'll be a while before I try the DIY again, but it's definitely how I plan to test everything out!

Every day I feel blessed that I found a good surgeon who listened, and in a hospital where the care was good. When I look on here, it reminds me of that very long, dark period I went through, and the support which got me here, and I feel quite angry for all those still battling (this type of repair should be seen as a much higher priority!). NEVER give up! I haven't felt this comfortable in YEARS. The right repair is worth it! XX

sikofops53 · 08/02/2014 20:53

Hi think ive got right thread now! ive had 3 repairs now, im 8wks post op. had mesh repair on anterior wall prolapse. i still feel lumpy and bumpy does this ever get any better?

WhoKnowsWhereTheTimeGoes · 08/02/2014 20:55

For some reason this thread has fallen off my Threads I'm On, so haven't read it for a few weeks, just scanned through and wanted to say welcome back to Tinkxx - I was thinking of you a while back, so glad the cancer scare was a scare. Also so pleased to hear you've finally had your surgery NannaSylv and that all sounds good.

Nothing much new to report from me, rectocele repair is still holding up well 18 months down the line, I suspect my cystocele may have worsened very slightly as I feel slightly different down below the last few weeks but no real problem and I am trying to take care and look after it.

Dragonroad · 08/02/2014 23:13

Happy, yes is my granddaughter in the hospital. She is really very poorly. Went for a two day stay and discovered she has a very allergic gut and can't tolerate even Newcastle. She is also diabetic but as asymptomatic so she has hypos without ant signs. She is lucky to still be with us. Thank goodness for Great Ormand street hospital.
As for me, scan next week and consultant wants to see me the following day. It is much better than it was but still aches most of the time. I am wondering if I have another infection coming.....hoping I am wrong. I actually want to go back to work now.

Dragonroad · 08/02/2014 23:14

For Newcastle read neocate!

Dragonroad · 08/02/2014 23:18

Nanny - really pleased things are ticking along nicely for you.

happylilme · 09/02/2014 00:54

I'm so sorry Dragon about your little granddaughter, but she is in a wonderful place with fantastic specialist. I have had asymptomatic heart problem thought to be brought on by morphine hence my fear. People write the nhs off but the fantastic work by glenfield hospital, Leicester saved my life. I'm forever grateful.
I hope things improve for your little granddaughter, they are such wee fighters and by the sound of it she is x I hope your daughter is ok.
Please look after yourself also as you are still recovering. I think wanting to go back to work is understandable as its a little bit of normality. Just make sure you are ready though x

Keep me posted about your scan. Hope it's not another infection x

Nannasylv · 10/02/2014 13:26

Hi all, I just saw this, and wondered what you think? I opted for Fibogel!

Learn Gut Sense

www.gutsense.org/gutsense/the-role-of-miralax-laxative-in-autism-dementia-alzheimer.html

abigboydidit · 10/02/2014 15:56

Hi everyone - I haven't posted on this thread much and the last one was a while ago but I wanted to give a quick update. DS was an EMCS and DD was born by VBAC 20 months later - with episiotomy and forceps lift out. DD turned 1 a few weeks ago and at physio last week I was told I no longer have a prolapse! I still have lax walls and there is some deep tissue/nerve damage that are unlikely to improve but I have managed to go from a score of 0 to a minus 4. Physio is hopeful I will reach a 4+, though getting to a 5 (the maximum score?) is still not out of the question.

It has been a lot of hard work but am so pleased to have got to this point and just wanted toy spread a little ray of hope!

mrsclairet · 10/02/2014 17:50

A big boy did it that's fantastic news, you must be so pleased!