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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
lotsofquestions000 · 30/01/2014 19:39

happy this is called a pelvic toner - you see it in a lot of womens mags, not cheap but me like you will try anything to prevent another prolapse although the mention of balls may be better if you go around doinf other things while holding them in. The PT involves a quiet 5mins in the bathroom in peace which can be difficult when being 'mum'!!! but I think anything has got to help.
amber I didn't have the same issues as you but you should def not be just accepting them it sounds not good. One thing tho when you mention squats - if you are doing what I think you are they are not good for PF issues as they put a lot of extra strain on it - go a try and get some professional advice Smile

Dragonroad · 30/01/2014 20:32

Nanny - you are quite right. After almost 8 weeks off work I really do have very little else to do! I am terminally bored!

I am assuming your operation was today and you are off in la la land on lovely hospital meds. Enjoy! Look forward to an update when you are up to it.

Dragonroad · 30/01/2014 20:46

Happy - another couple of weeks of phased return is a good idea. Reading your experience makes me feel better about still being off. The idea of doing long hours at the moment is not appealing.
Predictably, no response from consultant as to seeing me earlier. His secretary doesn't work Fridays so will call again Monday. If it were agony I would be more proactive but the antibiotics ease things quickly. I think a lot of the discomfort I have is bladder pain and perhaps on going infection. Shall call my gp to ensure I am on the right ones as cultures will be back.
Not sure what to do if this doesn't settle by half term. Have to go back at some point and this feels like it could roll on for some time.

happylilme · 30/01/2014 21:27

Well my advice would be just take off if you need it Dragon. While I'm putting on a front in work saying I'm fine when people ask I really wish I was at home back on my sofa. I think through this I've lost a bit of confidence as I am afraid of any sort of manual side doing damage. Not sure when this feeling will ease and I'll do things without having to think about it.

Was thinking about possibly trying dtd this weekend but I'm so bloody tired I doubt this will be the case. Hubby had a little peek sorry Tmi and now he is concerned about size which has got me concerned at this rate I'll be visiting Greenings office for some help.

In the mean time I shall keep my sports up by practicing and toning Grin

Hopefully once you get your cultures back you will have a few more answers and how to deal with it.

Dragonroad · 30/01/2014 21:43

If it is any help Happy, from a look on the outside my lady bits didn't look like they would manage a penis but (albeit gingerly) it did manage a slightly over sized vibrator....
I would support your suggestion of as much practice as possible Grin on your own.

happylilme · 30/01/2014 21:50

It's a trying job but it has to be done. Haven't upgraded from my wee bullet yet the thought of that big monster sends fear pulsing through my body. Maybe after cultures and infection goes rampant Roger can arise from your drawer again. Nearly spelt it your drawers again, good job checked spilling

happylilme · 30/01/2014 21:55

Lotsof I know know what you mean. I am using kegel balls just around the house so when I am putting pressure on my pf I can feel it and squeeze when necessary. Not very glamorous all this vagina watching and clenching. I'll be built like the incredible hulk in there by the time I'm finished.

happylilme · 30/01/2014 21:58

That was now know grr

Hope all went well today nanna and you're not in pain

flouncymcflouncerson · 31/01/2014 00:25

I can't remember who posted abut worrying about slight leakage post op. I was really worried after mine as it was when I was bending etc I noticed it. It settled and I had no urinary symptoms until recently. My pessary was annoying me again today so I removed and reinserted and my bladder has definitely dropped again. In fact things feel an absolute mess in there :(

I'm really very worried about my return to work. I've done no lifting since my op and am 11 weeks post op. I know that I am going to worsen my symptoms and my prolapsed by going back in the interim between surgeries but I feel I don't have a choice. Occ health weren't much use and just talked about using annual leave for a phased return til I'm up to full duties. But I can't return to full duties prior to my next surgery as I'll worsen things and then need a bigger repair, plus the fact I need to live like this til the op which won't be til End may at the earlisEst. I don't know what to do....

mrsclairet · 31/01/2014 11:39

Sorry I haven't really been following everybody's story but just wanted to say Amber no you definitely shouldn't have to put up with that!!

Flouncy I am so sorry to hear things have dropped. I had my op last May and have to have another one in March as the consultant admitted he hadn't done it tight enough. Have you thought about getting a 2nd opinion? When my consultant said he hadn't done it tight enough I thought I don't really want to have him operate on me again when he hasn't got it right 1st time round!! I did some research on the internet and have found a consultant whose research interest is women whose surgery has previously failed. He is based about an hour away from me so I'm not looking forward to the journey home after the op in the car but he seemed to know what he was talking about alot more than my other consultant who didn't even examine me! He examined me and told me that I hadn't been stitched up properly after birth and also that I had some scar tissue which needs to be removed (another thing the other consultant didn't tell me!) So although I am so disappointed I have to have a 2nd operation I am more hopeful this time round. Another thing, my 1st consultant was in his 60s and the 2nd consultant is about 40 and apparently these days they specialise much more than they used to. I have managed to get it on the NHS by paying £250 to see him with BUPA and then he has transferred me into the NHS system. Just a thought!

RainInTheSky · 31/01/2014 12:31

Mrs Clairet, please could you pm me the name of the surgeon you are trying now? I am doing physio at the moment but I am considering an op and plan to consult a number of surgeons first.

happylilme · 31/01/2014 12:50

Mrsclairet could you feel the scar tissue, where you in pain

mrsclairet · 31/01/2014 17:17

Hi, I have been in lots of pain and discomfort since the op but I'm not sure whether it's the scar tissue or not. The consultant said that my perineum is too short which I guess means bacteria can travel quite easily between the vagina and the anus so I have had a vaginal infection which went on for a while before I realised what it was and that caused quite a bit of pain. But the consultant examined me and said I can see how that would make sex uncomfortable and before that point I hadn't tried and after that I thought right I'm not even going to try until I've had the scar tissue removed. Unfortunately it's been 8 months now since my op but luckily my dh is understanding and doesn't mind (too much).

mrsclairet · 31/01/2014 17:20

happylilme for ages after my op I got a weird pain in my bottom, the only way I could really describe it was like the dragging feeling but worse, like someone was sticking a thermometer up my bottom! That feeling did start to go away after about 4 months and now I only get it very occasionally if I have been on my feet for a long time.

happylilme · 31/01/2014 18:37

After the birth of sons I had a lot of pain around the area I tore. Having sex was uncomfortable and if I orgasmed (sorry) it would be painful around this area which put me right off. As with you dh was (is)very patient. So far I haven't dtd yet at 8 weeks but due to some conversation on here I tried DIY and so far so good no pain at all on tear site. I do have a ridge up inside which is quiet big at the moment so I'm afraid of that area getting painful. I think it feels fine but not seeing consultant til March 12 weeks after surgery. I am very apprehensive about full sex and this feeling is growing by the day. I thought I'd feel the opposite.

happylilme · 31/01/2014 18:46

By the way clairet consultant asked me who carried out my stitches after birth. It was the midwife on a very busy Labour ward. He said she should have got a surgeon to do it as tear very deep hence rectocele hardly any perineum left between two. He said about scar tissue left and he has rebuilt this area. Forgot what it felt like to have a normal space between vagina and anus. It does feel well supported.

Loublue1 · 02/02/2014 15:46

Hi again, I'm 4 weeks post op Tom and this weeken my TVT stitches are very itchy and sore, feels bruised. Is this normal? I'm guessing the stitches are dissolving by now but I feel like I've been punched there, rather uncomfortable. Anyone else had this or have I just been over doing things?
Any advise please.

Loublue1 · 02/02/2014 15:47

That should read weekend and finishes with advice! Should have checked before I posted!

Nannasylv · 03/02/2014 13:24

Hi folks! It's done, I came home yesterday afternoon and I can't believe how much less pain I have been in since the op (just shows how much I was used to living with every day for the last decade!). I know it's early days, and that things can go wrong, but so far, so good. Back to bed for some more horizontal time! XX

kianaidan · 03/02/2014 14:33

Wishing u all the best in ur recovery Nannysylv. Cud I be cheeky and ask wat ur original symptoms of intussusception was? TIA

greeningthedesert · 03/02/2014 17:27

Wishing you a smooth and speedy recovery nannasylv.

Footle · 03/02/2014 17:38

This reply has been deleted

Message withdrawn at poster's request.

Dragonroad · 03/02/2014 20:35

Nanny - well done! The worst is over and everything is on the up. Rest up.

Noordinarygirl · 03/02/2014 22:10

Fabulous new Nanny. You must be feeling like a new woman already. Look after yourself and take things very, VERY easy for some time. So pleased for you that it went so well. Here's to a smooth, uneventful recovery x

tinkxx65 · 04/02/2014 10:14

Wow finally Nannasylv - hope is all going good for you.

Noordinary - have sent you a pm - Hope you are staying calm, I'm not lol.

Have not been on for a few days, so have not looked back over the posts but fingers crossed everyone is doing well.

I have an appointment with my colorectal man in two weeks - really hope to get some answers and discuss the best way forward, but am not holding my breath, he has no bedside manner at all and everytime I have seen him I come away thinking that didnt go according to plan.

Anyway
Take care all x

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