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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happylilme · 27/01/2014 22:10

Maybe Dragon pain is from having 2 infections and is sensitive now. My sensitive area was around where that pongy stitch was. I guess it's still early days and what with having infections has slowed the healing process down. At least when you have the scan you will have a better understanding of what's what. Is it a dull pain or more like water infection.

Yes work, I knew it wouldn't take long for cases coming in. So many referrals and so little staff in a large area of city. I guess the public servant in me wants to help and I feel that's what I get paid for so I should be doing it but some times they are mentally and emotionally exhausting. I will see next week and if I am struggling I will ask to see occupational health.
Do you think you will be ready to go back after half term?

happylilme · 27/01/2014 22:14

Flouncy glad you got it fitted. Do you feel more supported or is it too early to say? Do you have to take it out and insert it yourself?if so I'd imagine that's quite a challenge in itself.

Noordinarygirl · 27/01/2014 22:24

Flouncy on all visits I've had regarding my pessary, I've never been told to take it out, mind you it almost came out on its own at one point before I got it changed. DTD deffo pushed it up to where it should be and I didn't feel any discomfort and neither did my partner. Don't the rings look big though? I personally wouldn't like to try putting it in either as it was pretty uncomfortable having it put in by the consultant the second time. I asked him to make sure it was sitting in the correct position as the previous one just felt as if it was in vertically instead of horizontally IYKWIM!

flouncymcflouncerson · 27/01/2014 22:30

noordinary fingers crossed sex is ok with it in then. I hadn't felt it while it's been in but have recently been to loo and it now doesn't feel quite right. Kind of like it's pressing inside at the back almost. It kind of does feel vertical almost...maybe the BM moved it a bit. Ah fuck!

Noordinarygirl · 28/01/2014 08:35

Flouncy stick with it. I remember trying to push it back up all the time initially but once it's right up in place it should stay there (if it's the right size) unless you're doing stuff that involves crouching or lifting etc. and honestly if you and your partner are up for it....DTD as it will push it right up and once there it should be OK. Mine's been OK for over a month now and I haven't had that awful feeling of it pressing inside at all. When it does though it feels like a really full massive tampax half way out....really yuk.

Dragonroad · 28/01/2014 17:34

Doctors this morning after pain didn't go and I have another infection! More antibiotics. Gp suggested I ring the consultants secretary to let him know, which I will, but I am sure he won't see me earlier. Bummer.
Went into work today and told them I will be back after half term. Not looking forward to it.

greeningthedesert · 28/01/2014 17:44

Oh dragon, it really is a long road to healing for you. Glad your head is being so supportive.

Loublue1 · 28/01/2014 18:00

Sorry to hear that dragon, don't let it get you down and try and get as much rest as you can. You're not gonna get it after half term.

Dragonroad · 28/01/2014 18:03

I mostly want to be reassured there is no mesh erosion or other complication. Scan on 12th and can't wait.
Head has been good so far but once back it will be full on and there will be no allowances made. .....

happylilme · 28/01/2014 18:37

If it's like my job Dragon then, yes back to normal in a week. I am so sorry to hear you are going through this pain again. Can they move your scan forward by saying you are in a lot of pain that is keeping you awake? I think it's ridiculous that you are in a lot of pain and they just dish out antibiotics you need to know why and to speak to consultants that can really help. Maybe you should give them a wee call, you shouldn't be left in pain after major surgery.
I have been given four cases now. I'm having a word with manager as I still have stitches and some of these cases have got history iykwim feeling exhausted Sad

Dragonroad · 28/01/2014 18:46

Happy - I will call tomorrow and try to push. Let's see. 4 cases now....it is adding up for you. My boss today was making it clear I would be back with a vengeance and she has 101 plans, all of which require me to be on top form. Mmmmmmm.....
Are you totally pain free now you have returned to work?

happylilme · 28/01/2014 19:22

I am pain free now. Just more discomfort when sitting as I feel I am sitting on a lump. It's the stitches on the perineum sp?? I get tired and find it hard to concentrate for long periods of time. Yes four cases now. My last one just took the pee, violence so I've refused. Probably get a Mark against my name but I just couldn't cope with that and I wouldn't be helping anyone.
Is that iep's you have to do, surely not. You're not going back if your still in pain??

Dragonroad · 28/01/2014 20:14

Not IEP's, I meant one hundred and one plans!
I am really hoping I won't be in pain by then. It will be best for everyone for me to go back fighting fit but if I have ongoing problems I can't delay it forever.
As for pain, I think the pain in my lower belly is bladder pain and gets worse with infection. On the positive side I have just read that mesh erosion is linked with blood in the urine and I only had white blood cells.

lotsofquestions000 · 28/01/2014 20:15

happy I did have an uncomfortable lump that was there for about 10weeks but then did go.

intheround thanks for the advice - really don't know how Im going to tackle all that yet - may just have to get DH involved more but he hates all that sort of thing!

I treated myself to one of those pelvic toners which I guess does much the same thing as a rabbit can do (although may be more functional than pleasurable Smile just to really help strengthen things

happylilme · 28/01/2014 20:38

Noordinary are those the kegal balls. I have got these and I found they did help even with rectocele prolapse. Takes a bit of getting use to but I would recommend them for toning non sexual. Have tried since repair a boy what a difference, a lot more of a cosy fit. I'm having them in place and doing pelvic floors same time. I'll try anything to prevent any other prolapse.

Dragon that's a lot of work to get your head around for just starting back. Are you expected teach to?

Dragonroad · 28/01/2014 21:09

Happy - no teaching but all the problems like staffing, parents, children. It is more complex and less predictable. If I were in a class room it would be hard but I would have more control. I will be making decisions when I go back, can't even remember many names! On the plus side, there is a greater chance of being able to find a quiet 5 minutes to hide! My biggest worry is the stress of it and my boss watching to see the cracks, which I will do my best to hide.

AmberSpyglass · 29/01/2014 19:12

Hello, I started a thread on this and was directed here
so I've c&p, I hope that's ok.

I'm 26. I had a physically traumatic birth, with forceps delivery and 3rd degree tear. At first I was utterly incontinent of urine, but some control gradually returned. I had a mild prolapse, I think the anterior vaginal wall isn't as strong as it should be, and I saw a women's physio for a few months which helped, but it's not "fixed". I'm now almost 3years PP and am realising that perhaps what I'm experiencing is not "normal" or OK.

I have both urge and stress incontinence, varying from a few drops to a full wee . If I run, bounce on a trampoline (just one bounce will do!), dance, cough/sneeze/laugh strenuously I will be incontinent. If I'm going out to watch a band and dancing I have to wear huge tena pads, and they will be utterly saturated, I have to change them a few times over the evening.

I'm not sure why I haven't done anything about this. I do pelvic floor exercises but they don't seem to make any difference. I've also done a lot of bladder retraining that the physio taught me but that doesn't help with the stress incontinence. I think I thought, OK, it's bad but it's not bad enough for treatment so what's the point.
However I was talking to my midwife friend yesterday and she was saying she thinks she'll need surgery. She then described stress incontinence that is nowhere near as bad as mine. I've made an appointment to see my GP next week and am going to ask for a referral to the urogynae clinic.

Do you think this sounds bad, or am I overreacting? Do you have any personal experience? Am I likely to need surgery? If you've had surgery, what was your experience?

TIA

Dragonroad · 29/01/2014 22:41

Hi amber spyglass, sounds truly dreadful and in need of sorting. Glad you are on the road to looking into your options.

Loublue1 · 29/01/2014 23:09

Just started bleeding and now 3 weeks and 2 days
Post op. is this normal? I don't usually have periods as I've got a coil fitted so now worried something is wrong.
Anyone experienced similar?

Dragonroad · 29/01/2014 23:44

It might be stitches coming away? I think I read somewhere it can happen at about 3 weeks, not that I experienced it. Sorry can't be more help.

Nannasylv · 30/01/2014 00:19

Dragonroad - I am so pleased you have time to devote yourself in this way! lol Onward and upward haha!

Nannasylv · 30/01/2014 00:28

Well, today's the day! Just going to pack my stuff, then my son's collecting me at 9am. I hope it all goes well. Hope everyone is getting there! xx

greeningthedesert · 30/01/2014 08:38

Really good luck nannasylv.

amber definitely insist on a referral to a urogynae, you should not have to be living with things quite as bad as this. I had mild stress incontinence following the birth of my daughter 3 years ago - it was really bad at the beginning, even just standing from sitting released small floods. But a number of things gradually helped over the course of 2 years: kegels, a pelvic floor strengthener, the return of my periods and reducing breastfeeding. I couldn't run or trampoline, but I could hike with only a regular pad, and walk fast after my kid with only a little leaking. Most days I only wore a panty liner. I did surgery 2 1/2 weeks ago for cystorectocele repairs and a TVT. While dithering before surgery, my urogyn said that the decision has to be about my quality of life, if I feel I can live well with these symptoms then fine, "but at 44 not all women want to be wearing pads every day". The problem is the restrictions after surgery in order to preserve it are pretty severe and difficult to fit into a family with small kids. And the failure rate for surgery is pretty high. And you are nearly 20 years younger than me, which may well have an implication for deciding on surgery or not. One thing you may wish to ask about is a pessary. My gyn absolutely refused, saying they're for old women and cause all sorts of pressure sores etc. But I think he was out of date because lots of young women say how much they've been helped by them.

dragon I hope this latest round of antibiotics really sorts things out and is the last one you need.

happy it sounds as if we may have similar jobs in one sense. One of my concerns is that even when I feel physically strong enough to return to work, whether I will have the emotional strength to carry heavy cases. Right now I'm only 2 1/2 weeks post surgery, but I really can't imagine being able to support/help others in a couple of weeks time. Hope you do manage to only gradually return to a full case load.

I haven't needed pain meds since day 3 or 4 following the op, I wasn't even uncomfortable. But yesterday, one spot in my vagina really started hurting. I've no fever or smelly discharge, and so long as I'm lying down it's not too uncomfortable. It feels like one stitch is bothering me deep inside. Does anyone have any experience or knowledge of this?

Another question is that although I can now sneeze without leaking, for the past couple of days I've begun to dribble a bit if I bend over (I can only write this here: it feels a bit like wet fanny farts Blush). Does that mean the op has already failed. Is there still the possibility of improvement?

Sorry for the essay...

AmberSpyglass · 30/01/2014 14:59

Thanks greening. It's strange to hear people telling me that this is bad, I think I've been in denial! I have just recently stopped breastfeeding so that might help. I do kegels every day, I do need to do squats more though.
What are the implications for daily life if you do have surgery? Is it forever or "just" while recovering from the op?

I hope you're recovering well, it must've been a huge decision to make

happylilme · 30/01/2014 15:50

Well on phase return for next two weeks, off for half term then back to normal hours. Wednesday was hideous day done too much, my back,my bulge feeling all feeling sore. That's when I decided I would do a month of phase return.

Greening if your job is tough emotionally/mentally I would suggest longer off. I was in no real pain after operation an bar that one infected stitch I have found the recovery physically easier than I expected. Emotionally /mentally I am exhausted and just having to deal with others problems at the moment is very very hard work.

Dragon how are you feeling now? What about bringing scan forward.

I can't comment on bladder issues as I never had problems there, but you have my sympathies. It seems to effect everyday life also.

I have found it harder now that I'm back to work, getting back to normal doing school runs, dinner etc I'm trying not to lift my 22month old though I had to today to get him into the car. Petrified of things going wrong.

But apart from all that I'm fine, can poo straight again, still on laxatives for the foreseeable future. Haven't dtd yet. Still practicing Wink