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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happylilme · 25/01/2014 21:28

Dragon maybe a little and often just to start with, start small and aim bigSmileBlush

Dragonroad · 25/01/2014 21:30

I am out of love with Rabbit at the moment! At least it can't sulk or pester.

happylilme · 25/01/2014 21:37

Tis very true, wish mine came with off button. Maybe once stitches are gone things will settle and Roger can reappear. Don't write it off yet. Still early days. Think hubby is as nervous as me lol I shant expect the earth to move, bless he would kill me if he knew what I wrote.

Noordinarygirl · 25/01/2014 22:03

OMG I am cracking up laughing at all the talk of ROGER! What a brilliant idea. My dear old Roger is a bit old now and I have actually been looking on the web at newer, better models. I am hoping to be a little bit 'tighter' in there but would hate for it to be SO tight that DTD becomes painful. Really don't want that to happen. The only upside of my particular op is that I shouldn't be getting stitched IN there just having mesh stitched AROUND the outside top of it (then tacked to my spine- YUK!)

I shall follow the DTD posts along with the exercise posts with great interest now....

happylilme · 25/01/2014 22:15

Noordinary I "heard" there is a good website, lovehoney where they are very reasonable and discrete. So a friend told me. Lol. Might be worth a butcher's hook if you know what I mean.
I really hope.you hear soon bout your op .

flouncymcflouncerson · 26/01/2014 00:25

I was supposed to wait 12 weeks for intercourse as I have hypermobilty and was warned that be best for the integrity of the repairs. Made it to 8 weeks and everything was fine. No pain or anything. Glad orgasms are physio approved! I may have just placed a wee love honey order!

Thanks for the pessary info, that's good to know it has helped you.

I'm still so annoyed about the need for further surgery. I think I'm going to try and go in prepared with questions and get him to agree to fox everything this time. I feel things are dropping further and further and I'm worried about going back to work and things worsening even more. That's why I'm keen on pessary as I'm hoping it'll hold things that wee bit more!

flouncymcflouncerson · 26/01/2014 00:25

I was supposed to wait 12 weeks for intercourse as I have hypermobilty and was warned that be best for the integrity of the repairs. Made it to 8 weeks and everything was fine. No pain or anything. Glad orgasms are physio approved! I may have just placed a wee love honey order!

Thanks for the pessary info, that's good to know it has helped you.

I'm still so annoyed about the need for further surgery. I think I'm going to try and go in prepared with questions and get him to agree to fox everything this time. I feel things are dropping further and further and I'm worried about going back to work and things worsening even more. That's why I'm keen on pessary as I'm hoping it'll hold things that wee bit more!

Nannasylv · 26/01/2014 19:46

Since rabbits are on discussion, perhaps the starting point, for those who are post-op, and unsure of capacity/tenderness issues, might be stimulation on the outside only, and see if orgasm is achievable, and how much/if it hurts? I got used to DIY with my ex being a Madonna/whore (celibate marriage as he only went elsewhere!), so I have a collection! There is a good one in Ann Summers, which is pink, about 8 inches long, with a white cap/switch, which is an ideal starter. For any novices?? this has no ears, just the main part, which works by vibration only (lots of different settings), but it's ripple shape is also good for the inside (TMI?). I don't think my main rabbit will be used until I know the slim one fits ok! I'll have to find a willing volunteer after that, if I want to know if everything works well under normal operational conditions. That worries me more, as my past partner choices have been disastrous! Having said that, I was recently told (by a 33 yr old) I could be considered a MILF!!, and he keeps asking me out for drinks, so, perhaps, I may have found the volunteer. lol

Nannasylv · 26/01/2014 20:04

flouncymcflouncerson - lovehoney is brilliant, and they have lots of special offers lately. They should be offering us commission if this works out well. lol
Noordinarygirl - Are you having the same op as me (Laparoscopic Rectopexy)? Perhaps we can post results of our post-op physio research?? By the way, I think, after all we've been through pre-op, we deserve to treat ourselves to the odd, new, tool to help recovery! lol

For all those fortunate enough to still have willing partners, I am sure they would be pleased to know that a proactive approach was being considered, lol, as (I'm told) most men (just not my ex) think of it every few seconds, and will be glad of the soonest possible recovery!

Can anyone tell me if (after such a long fight for repair) it is normal for me to be getting jittery/a little down? I have every faith in the repair being the right solution, but today I'm feeling a bit low. Perhaps I just got so used to the fight that I can't handle the battle being over, or maybe it's just that I have just gone through a particularly painful/embarrassing/debilitating couple of weeks??

flouncymcflouncerson · 26/01/2014 20:57

nanny I think it's normal to feel a bit down, especially if you've been fighting for a solution for so long. It's also one thing to be arguing for something and then suddenly told it's on the cards. I think a little hesitancy about it would be natural.

I have been feeling quite low recently which concerns me as I have suffered on the past from pnd and I'm worried that this surgery effectively failing and me needing a further long recovery is going to bring all those old feelings back. It doesn't help that I'm stressed with regard to work and my managers seemingly inappropriate and insensitive questions.

Noordinarygirl · 26/01/2014 21:25

Nana I am having a sacropolpopexy which is mesh stitched to the top outsides of my vagina and then the other end being tacked onto my spine. I have a bad case of prolapsed cervix (it actually came right out last May by about 2 cms!) and a slight rectocele. I think once the mesh thing is done that everything else will be pulled back into place so I'm hoping that there won't be any internal stitching (zip-style!) to be done.

I have been feeling very nervous about the op and really quite down for some time now but it's all been exacerbated by things at home with my partner being absolutely rubbish. If truth be told I've been sleeping on my sofa more than in our bed for the past few months. Sex has never really been any good with him either so I've used my problems as an excuse for him not to come near me for almost a year now. Long live the Rogers of this world!!!!

greeningthedesert · 27/01/2014 10:16

At the grand old age of 44, I have finally bought my first 'pet' rabbit. You lot are a bad influence / good excuse Wink. I'm hoping it might have the same strengthening effect as the kegel8 but with a bit more pleasure... I did once try to use ben wa sex balls but they, depressingly, just fell straight out. Oof, just had visions of having to explain to customs here what is inside the package marked 'lovehoney rabbit' Blush (I live abroad).

I think feeling jittery and a bit depressed is totally understandable nannysylv, particularly with the struggle you've been thru to get to this point. Once I had made my decision to do the op and organised everything, I just went into total denial and ignored it all. It's not necessarily an approach I advocate, but I always tell myself that worrying will not change anything so I might as well just focus elsewhere. ((Hugs))

Loublue1 · 27/01/2014 18:33

Well the old rabbit conversation sounds interesting and was also wondering how long everyone has been waiting to resume normal activities! I'm 3 weeks post op today and have noticed a small amount of tread hanging down from near my prolapse repair, has anyone else noticed anything similar? I daren't pull it in case I pull on the stitches. Could this be where the stitches are dissolving? Or has something gone wrong? Any advice guys? Thanks

Noordinarygirl · 27/01/2014 19:39

I have a date at last 18th Feb - not as early as I'd hoped but with it being half term I may have my sister back down from Scotland to help luckily.

It's not (AGAIN) going to be with my own consultant but I have been offered the chance to have a meeting with the man who will be performing my procedure. The manager who has been sorting it all out for me has also said he will come and see me on the ward as a way of saying 'Thank You' for bearing with him and for not being nasty! I was quite touched and I believe he genuinely will keep his word. It sounds as if there's been all sorts of poor souls who've had cancelled ops (and some not being as polite and as patient as me!) but I think the consultant has some serious stuff going on at home by the sounds of it - he may even be ill himself - who knows. I shall forgive him, after all they are only human and not Gods, however much we put our lives in their hands.

Yay, yay, yay.............pleased but scared now!

happylilme · 27/01/2014 19:52

Lou, I had rectocele repair and perineum repair and I had to little prong like threads just at entry. So maybe it is that you are seeing. Surgeon said they could be there up to 3 months, industrial type stitches.

As for the old Roger, I can't believe I'm about to tell this as I'm usually quite a private person. After reading Dragons painful story about her rabbit, I suddenly took fear of what my new designer vaginas capabilities are. So after a purchase of the silver bullet from lovehunny, I decided to start smaller. Once inserted it was rather pleasurable actually. I won't go into the ins and outs (sorry for the pun) but I have realised that I do have a sensitive area where some stitches still are. Not ready for full scale onslaught yet with the real McCoy, but I shall put in some practice with the silver bullet purely for toning and preparation reasons for the next few weeks. Smile

happylilme · 27/01/2014 19:56

Noordinary, I am so so pleased for you hopefully it's the start of new beginnings and while recovery is long it will be worth it in the end. You might even conquer new peaks x

Dragonroad · 27/01/2014 20:37

Noordinary - great news and i am glad the hospital at least acknowledge how difficult this gas been and how good you have been about it.

Happy - hiw are you doing? Does the thought of a second week at work feel better than the first? As for your silver bullet - a much better idea than the relative monster I have. It is a big pink thing that is a little on the large side. I was reassured to hear you have a sensitive pAtch, makes me feel my own discomfort us to be expected.

Someone suggested the use of a rabbit to tone up the pelvic floor. A jolly good idea and being off work I have plenty of time to do just that, however, I was told to do 100 plus repatitions of my pelvic floor exercises and that is a lot of orgasms! However, I am up for a challenge..... Grin

Dragonroad · 27/01/2014 20:38

Predictive text on my iPad is rubbish - please feel free to ignore all the errors in previous post!

Dragonroad · 27/01/2014 20:59

Hi loublu- I have some internal stitches but apart from the Rabbit trial and Doing lots of 'vagina watching' (to quote Happy) I haven't explored further. Your description sounds like a stitch - suggest you don't pull it!
As for DTD, if I had a partner he would be looking very sad at the moment with no expectation of relief any tine soon. I am almost 7 weeks post op now.

happylilme · 27/01/2014 21:09

Lol I did find it funny the difficult gas bit Dragon in previous post.

I do happen to have a Roger too. I took it out and a calmy sweat went down my back at the size of it hence why I went for a few size smaller.
It felt rather strange to explore a part of my body that is new so to speak. I have to admit it was a bizarre feeling to go through, I was use to my vagina saggy bits and all. Now I am quite tight(not ridiculously) but definitely tighter. I think it will take a while to mentally accept that this is mine. Does that sound strange?
Is that 100 orgasms a day?? Your poor neighbours, but it's all part of the recovery, I never thought you could be medically told to buy a vibrator, I wonder do they provide them on the nhs.

Dragonroad · 27/01/2014 21:21

If they do provide them on the nhs I am pretty sure no one would want them. Remember nhs glasses?

happylilme · 27/01/2014 21:30

Tis true Dragon and I've never seen them for sale in a chemist. Grin
Second week at work and I have noticed I am getting more cases now. Don't think I can deal with upsetting cases at the moment so not sure what to do. I have 2 families to see next week so I'm hoping I'll be able to cope.

Dragonroad · 27/01/2014 21:48

Yes, it's not just the physical side of things. Take it easy with the emotional/ difficult cases. Pass them on if you need to for their sake and yours.
I have my scan on 12th and can't wait. My bladder area was really painful yesterday evening, woke me up last night and is still sore. Keep expecting another infection but no sign of a stench!

Loublue1 · 27/01/2014 21:52

I do hope no ones hubby's/ partners are seeing these messages. We're all strangers and yet I know more about you guys than my closest friends! Very strange! Go girls, happy rabbiting!

flouncymcflouncerson · 27/01/2014 21:59

I was fitted in at consultant today and have had a ring pessary fitted. I'm not sure how to tell if it's ok or not and am slightly concerned regarding it's removal and resinsertion! Nurse told me it's possible to have sex with it in situ but said she can't see it being comfortable as it would likely rub. She says sex is the best way to strengthen muscles as you can tighten around him and get feedback and the increased blood flow helps the area. I've to attempt sex with it in then remove if not possible. Not keen on either to be honest!

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