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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happylilme · 22/01/2014 22:10

Footle thanks for info will see tomorrow if it's cheaper over counter. A lot of medicine is cheaper on continent, when I stay out in Spain I get my inhalers much cheaper .

gottagetthroughthis · 22/01/2014 23:26

if its any help there is a herbal remedy which I wouldn't take ALL the time but my mum has taken for years and one helps me go really easy for a couple of days if I haven't been - you can buy on the internet and whilst I don't advise taking them ALL the time they are my lifesavers at times Wink better tell you all what they are now - DUAL-LAX Extra Strong Tablets and they are a herbal remedy - as I say they are def worth a try for a change from movical which fills me full of wind!! I go really easily and no cramps Wink

Nannasylv · 23/01/2014 23:03

Long time, no news, but today I received my admission letter for next Thursday for a Laparoscopic Rectopexy!!! Nearly 18 years after the first symptoms began, but I got there! I can't wait. I would never have got this far without the help and guidance from you all. ~Thank you, and hugs to everyone! xx

lotsofquestions000 · 24/01/2014 18:57

saw physio today who checked I was doing my PF exercises properly and advised about exercise. She said going back to gym would be fine, regarding weights do sitting down ones and make them lighter weights, start slowly with a few and build up gradually. Most important thing make sure you engage PFs before doing anything that might strain. x trainer, rowing machine, bike all should be fine. Didn't ask about running as don't intend to ever run again!!! hope this helps

Loublue1 · 24/01/2014 19:29

Hi lots, how long has it been now since your op?

flouncymcflouncerson · 24/01/2014 20:17

Called my physio today as I feel things are dropping further and I have urinary symptoms again. She was fantastic and has walked round and spoke directly to my surgeon. He's said he won't reoperate til 6 months post op as the failure rate priori to that is too high however he has agreed to fit a ring pessary to see if that makes me more comfortable. So....does anyone have a pessary? How do you find it? Will it hold things enough to let me go back to work in the interim?

happylilme · 24/01/2014 20:50

Lotsof is free lifts out of the question. I really would like to go back soon and do something it's knowing what. I am going to refer myself for physio just for reassurance.
Hope everyone's recovery is going well and those waiting hopefully wait won't be too much longer.

happylilme · 24/01/2014 20:54

Flouncy and nana glad you are now getting somewhere. It's horrible those down days so at least things seem more positive Smile

greeningthedesert · 25/01/2014 05:05

Nannasylv I've been reading old threads - number 4 I think, from this time last year. Wow it has been a long slog for you to get a date for surgery. Congratulations for hanging in and getting there.

greeningthedesert · 25/01/2014 09:45

This looks like a good article on protecting your repairs in the long term. Certainly one to discuss with your physio or PT.

greeningthedesert · 25/01/2014 09:54

I have a couple of questions, if anyone has an opinion. I had cystocele, rectocele and TVT repairs with no mesh (except TVT). My surgeon told me that I can start work after 4 weeks - sedentary job, I'm a psychologist - but gave me a form for up to 6 weeks. I actually booked in all my clients for 4 weeks exactly, but then she gave me a follow up date during that week as well. Should I wait til after I have seen her to return to work? Should I try to spread clients out throughout the week? I have a 40 minute journey to work, will I be comfortable driving this at 4 weeks? (Insurance won't be a problem here). I'll need to be able to sit comfortably for 50 minute stretches (it is a soft comfortably chair).

I'm only 2 weeks post surgery, but am trying to make up my mind now so I don't cancel people last minute. I'm feeling remarkably fine, tired and a tad uncomfortable at times, but I'm more worried about disrupting the healing than being uncomfortable.

Noordinarygirl · 25/01/2014 12:21

Flouncy I've had a pessary since middle of last year. They look scarily big before they go in but they look like calamari rings! They kind of bend them up and then put them in place (not the most comfortable thing on earth but really not too bad). I had to go back a couple of times to get it put back into position as it kept falling down and felt like a very large tampon about to fall out and really uncomfortable. I also had to go up one size too as it just wasn't holding things in place. I have to admit I was trying to do all my normal gardening, which looking back was probably not the wisest of moves as it's all lifting and crouching and bending etc. I've been at work the whole time but if it 'moves down' I have to try and push it back up to where it should be and as odd as it may sound DTD is probably the best way to get it as high as possible. It's actually been OK but not ideal as it's meant I can try and carry on as normally as possible but I wouldn't want to live with it for much longer as just want everything to be fixed. I'm 46 and don't want to have decades of faffing with it but short term I would go for it if I were you.

Noordinarygirl · 25/01/2014 12:35

Happy I don't live in Snowdonia but it's not too far away - about an hour and a half drive. I used to go pretty often before all this started and 'peak bagging' (sorry hate that expressions really!) quite well. Were planning to do Ben Nevis last year as a kind of practice for going to the Himalaya but that's definitely out of the question now. I just have to be happy with going to lectures/talks from people such as Stepehen Venables and Doug Scott etc. How sad that the closest I'll probably now get is a damn jigsaw my daughter bought for me after my last op of a panorama with Everest, Nuptse and Lhotse etc on it!

You're right, our insides do make us have to make some pretty major life changes. That's probably where a lot of my frustration and fear stems from as the thought of anything further going wrong is quite worrying. I'm really not ready to turn into an 'old' person just yet and want to stay very active and adventurous for as long as possible.

Just for everyone's info I STILL haven't been given an exact date but they have narrowed it down to some time between Monday 3rd and Friday 14th Feb. I have been promised that I shall receive a phone call on Monday with an exact date. I will NOT be holding my breath, yet again, as I've heard it all before. (For those reading this and don't know, my op was cancelled when I was actually on the ward and waiting on 2nd Jan!!!!!)

greeningthedesert · 25/01/2014 14:33

The day before the operation, two weeks ago, I climbed a stunning mountain near here with my 2 1/2 year old on my back (and a large pad and several toilet stops). Today I managed half way around the block before I had to take the short cut home... (10 minutes). But I'm an optimist, we will get to the peaks again happy and noordinary, even if it takes a year to get there. And happy, your first week is over, I hope the next one is easier and less exhausting.

Noordinarygirl · 25/01/2014 16:49

Tinkxx and Dragon no specific date yet but they are narrowing it down ie. between 3rd and 14th Feb, so at least I'm getting there slowly! It's still pretty much all I can think about and as a result not really being very productive at work. With more job cuts looming I'm trying to keep looking busy and supporting my boss in the hope that my name doesn't crop up on the 'chop' list later in the year!

Dragonroad · 25/01/2014 17:49

Greening the desert - I imagine that for your job, so long as you can sit still for 50 minutes and concentrate you should be fine. I had similar repairs to you but had two infections that contributed to a bit of a slow recovery. At four weeks I was driving, albeit carefully, but I couldn't have sat in a chair for 50 minutes. You could test it out at home maybe!
I am about 6.5 weeks now and want to see the consultant after my scan before I return which will be end of February . Longer than I need probably but the nature of my work makes it tricky.

Dragonroad · 25/01/2014 17:51

Noordinary - really glad your date is moving nearer. Did you get a response to your letter after they cancelled so thoughtlessly?

Dragonroad · 25/01/2014 17:56

Happy- well done. Week one done. Are you still 3 half days for next week? Are you getting any pain or discomfort still?
Dreading my return, which I am putting off. I am starting to go in and make plans and will do some bits and pieces. My Head is being very good about it but really want to see what scan says to make sure all ok.

lotsofquestions000 · 25/01/2014 18:00

Its 3.5 mnths since my op. She didn't really say about free weights as she was loathe to commit to a definite 'no' but I guess the advice is the same - engage PFs try more reps with lighter weights and build up slowly.
I think 4 weeks would be too soon to go back to work unless you are really feeling good. I took 6 and in some ways wish I had had 2 more cos once you are back everyone expects you to be in A1 condition.
It is a bit depressing thinking about long term life style changes, I still often take laxitives as am just too scared of straining but I know its not good to do so really.
In a few months my allotment will need tending too and I am just so worried about it really. I do do a lot of walking now tho and up hills and that all seems fine. Going to have to brave the gym sometime as cant shift xmas weight at the moment!

intheround · 25/01/2014 18:21

Please be really careful about digging Lotsof It uses far more muscles than you realise, as does pushing a wheelbarrow.
One way round it if you have an allotment is to consider moving over to a raised bed, no dig system.

Nannasylv · 25/01/2014 19:09

Abigboydidit - I worked out, during my long wait for help, that I needed to exercise those muscles, and I can't recommend the rabbit vibrator too highly (don't laugh folks). My physio confirmed that Orgasms are the best excercise this area can get! I definitely improved bladder control (although only the surgical repair is going to deal with the prolapse problems), and the bonus was that this helps with pain (as well as improving your mood). It's nice if you have a willing participating partner, but DIY works too! Good luck. Hugs to all! xx

happylilme · 25/01/2014 21:20

Yes Dragon still doing 3 half day week, felt better Wednesday but don't know if this was psychological as I knew I had rest of the week off. Will see on Monday if I feel the same. Still not DTD, feels all bit lumpy be like a rollercoaster.

Noordinary hopefully you will get your date soon. I was planning to do Yorkshire three peaks but alas it's on the backburner. I am planning to do a walk in the peaks in the near future as this is doing my head in. I too am not ready to be old before my time. Hopefully after this op, your life will be of much better quality and while it will take time to recover you will be able to get out there and stick your 2 fingers up to women's problems. Sorry so vulgar but fed up with women's issues. By the way spoke to my sister who had mesh and she said that she has had no issues with it.

Lotsof I agree with you about work I too wish I took longer off. I found it mentally exhausting with little discomfort, no pain though. I am sooo afraid of doing exercise again. Maybe you can keep us posted how you get on if you do go back.

Greening, I think Dragon is right do a little test and see how you feel, I just found it tiring to even have to think for any length of time. I'm liking your positivity. I try to be positive so I'm determined to get out there and some point doing my three peaks.

Dragonroad · 25/01/2014 21:24

Well, nannasylv, since you mentioned rabbits I can mention my experiment! If you are of a delicate disposition stop reading now! I am 6.5 weeks post surgery and decided it was time to see how things are down there so got my rabbit out as obviously it is the ideal size and shape. I was jolly careful but it was painful and sore and whilst it would fit (was told it would be smaller after surgery) I gingerly removed my rabbit and put if back in the draw.
I am disappointed it is still so painful. I am not surprised as I still get pain i feel in the day but it feels raw.
When did other people resume operations below?

happylilme · 25/01/2014 21:25

By the way I'm buying rabbit on nannas physio advice. When in Rome and all that Grin it's purely for toning for my three peak challenge

Dragonroad · 25/01/2014 21:27

Happy - your last post arrived as I wrote mine. As I say in our overlap, my advice would be don't DTD just yet!

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