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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
lollylou1 · 03/12/2013 13:22

lotsof well the 'uncomfortable' and soreness is still same as few days ago! Really struggled at work yesterday and in the end came home, popped into GP on way home and she gave me this week off work. I just trying best to rest now. Going back to consultant tommorow evening so hopefully all ok! I just feel sooooooo p'd off right now and feel like i've gone backwards. And I find it's really hard to desribribe how 'IT' actually does feel. Kinda sore/dry/uncomfortable/stingy/something there that shouldn't be............. JUST NOT BLOODY NORMAL!!!
Is anyone else feeling the same? Xmas Angry
is there light at the end of the tunnel? (no punn intended)Xmas Confused

surewoman · 03/12/2013 17:55

Hi all old friends and new folk - I haven't posted for ages and just wanted to reassure anyone about to have an op that yes, it is definitely worth it. I have been able to resume my life completely ... I have a daily BM, don't wet my knickers ever now, can walk all day, bike, ski, dance all night (only when very pissed!!!!) and have driven across Spain without having to stop and go for a wee. I have (touch wood) not had any problem at all with the TVT (although sometimes I think I can feel it a tiny bit on one side if I move suddenly). My almost non-existent vagina post op has resumed its pre-baby circumference (the consultant having been barely able to insert even the smallest of speculums) without need for dilators etc. and all looks fine (not absolutely perfect, but that is an age thing I'm sure!!). I have gone down a size in tampax and it stays put (hooray!).
I think I might still have a very small rectocele, but nothing too bothersome, so all is good.
Hang in there all you lovely ladies - it took me just over a year 'til I felt normal again, so don't rush things. Time will sort it all out, but you must, must, must, rest and take it easy.

Having said all of that, I have just been diagnosed with a possible (fingers crossed) polyp in my uterus, so bloody women's problems haven't totally left me - hopefully it is nothing and can be nipped off without too much hassle - seeing the consultant next week for results of tests etc. Hey ho.....
Love to all xxxx Sure

surewoman · 03/12/2013 18:00

Forgot to say - if anyone has any questions of any type, I had an enterocele, rectocele, cystocele, perineum repair and TVT inserted (to stop the leaks!) so feel free to ask Smile x

WhoKnowsWhereTheTimeGoes · 03/12/2013 18:14

Hi Surewoman - good to hear from you again. I'm only scanning the thread and popping on occasionally now as there are lots of people posting and I can't keep up! Mine is all successful a year on too, just the occasional twinge to act as a reminder not to overdo things. I haven't gone back to running but otherwise life is back to normal.

happylilme · 03/12/2013 19:35

Its so reassuring hearing for other people who have had this op done. Im having rectocele and perineum repair done on Friday and was just wondering if I should be feeling kind of human by Christmas (near 3 weeks)?? and how long should I take laxatives for?? Sooo nervous.

lotsofquestions000 · 03/12/2013 19:54

lolly I was desperate to see consultant before I went back to work so I could be pronounced 'normal' but wish I had hung on in there a bit longer cos like you I still have twinges and stinging as well as what I mentioned before and would be able to ask that sort of thing now but hey ho! I shall go to GP if continues (should have got myself signed off for longer anyway cos my job is crap at the mo and I think hey I came back for this!) So good luck and your description of things sound just like mine so I too am trying to take things a bit easier again too. Once you go back to work everyone just assumes you are back to A1 and its so not true!
Hey sure you must be a 'professional' Smile. Thanks for your encouraging words and hope the new issue isn't too much of one!
happy Hopefully you shouldn't feel too bad by xmas - just make sure people look after you!!! I wasn't in any pain or discomfort after about 2wks and the worst pain was in the first few days but it was more v low back/bum pain - not where you would think it would be but it wasn't horrendous so Im sure you will be able to enjoy a relaxing xmas - just don't do too much. As far as the laxitives go - read my previous posts for the continuing update Biscuit! but they help keep the weight down I think haha!

surewoman · 03/12/2013 20:28

Happy - It was about 7 weeks before I felt ok; I went back to work after 8 as it was summer holidays and I work in a school, and needed all of that. I found I still wanted a nap mid day for about a month afterwards.

Whoknows - good to hear from you too and glad that you are also fine. I don't run either now, just fast walking!!! (don't want to risk anything!) xxx

Footle · 04/12/2013 13:04

This reply has been deleted

Message withdrawn at poster's request.

happylilme · 04/12/2013 19:12

surewoman and lotsof - thanks for the advice, had a meeting in work so think I will go back after 6/7 weeks and just start with doing mornings. Guess I will have to play it by ear and hope for the best.
Going out tomorrow for a long walk to enjoy my last day of freedom for a while.Then buy new pants and nightdress for my weekend away lol. My heartbeat quickens just at the thought. Just want it over and done with now. Eeeks

lollylou1 · 04/12/2013 20:52

Sooooo been back to consultant today and..... well good news is apparantly 'inside' is healing nicely, all stitches gone... bad news is he thinks i have scar tissue or the skin has overhealed and caused a pollup (sp) or skin has reacted to stitches. When he examined me he said ' Oh, is that sore, oh this is unusual' NO SHIT!! Long and short he is 'hoping it will settle down or sort itself out otherwise got to go back (again!) in 4/6 weeks for another procedure. HAD BLOODY ENOUGH NOW
sure good to read your all ok now, and pretty much 'normal', hopefully the other thing will be nice and easy.
happy just make sure you take it very easy for 2/3 weeks and have a lovely easy christmas.
lotof lets hope we are totally sorted in 2014 x

1966gettingold · 05/12/2013 07:18

Hi I am new here and am starting to really suffer the effects of childbirth wait for it 27,25 and 23 years ago three 9lb babies me back then very slim. Anyway I am going to see my gp today as I am peri meno and the scar tissue, and prolapse are beginning to be a nuisance more than they used to be and I realise I really didn't shout loud enough from the rooftops when I had my babies as the damage was quite bad.

Just wondering who this Prof D is please? Also quite interesting my daughter is a vet and was travelling and talking to a consultant obstetrician and the obstetrician said " that all women should have c sections as 90% of women will require reconstructive surgery in there lifetime vaginal, bladder and back passage etc" I have suffered most days one way or another over the last 27 years and the meno is definatley not helping.

My daughter said she will definately be opting for a C section after her discussions.

I feel for you all and I wish I had the knowledge back then to get it sorted out, as I have been reminded daily since of my child births every time I have a smear or examination there is quite often a " raised eyebrow at the state of me down there" I really am a candidate for a designer vagina.

mrsclairet · 05/12/2013 09:07

lollylou1 I have also got scar tissue which needs to be removed and when I saw the consultant he said "well if I'm being critical I could have made it a bit tighter" hence the 2nd operation. It's so horrible going through all that pain to know that it's still not right and I have to face another operation. My DH seems to have run out of sympathy for me and it's all starting to get me down a bit. It all just seems so UNFAIR. I try and think well at least I haven't got cancer, it's impacting on my life but it's not the worse news I could get but it's hard sometimes especially as I'm only 32.

lollylou1 · 05/12/2013 09:32

mrsclairet It does seem unfair i totally agree, I too try and think their are others worse off but it does get you down. As for the DH's, can you imagine the drama if something wasn't quite right 'down there' for them! They have it too bloody easy! When was your op? and do you know when you got to have your scar tissue removed?
gettingold can't believe you have suffered for so long, that's terrible. Doctors really should step up a little when it comes to this sort of thing.

MaccaPaccaismyNemesis · 05/12/2013 10:04

Hi, signed off work for another 4 weeks, and pleased because I've started doing more and realise how much more I need to recover. Driving makes me ache! Otherwise all going well.

surewoman · 05/12/2013 18:31

Driving is a killer - I had to sit on an aeroplane neck pillow for quite a long time afterwards when driving for more than 10 mins! (and that was after waiting 6 weeks to drive again!) Felt like a very old person!!!

happylilme · 05/12/2013 19:30

well ladies tomorrow I go under. Very mixed emotions. I am glad though as bowel movements have been so uncomfortable. Nervous, excited. I am dreading coming home to my 20 month ds as he is full of beans as you can imagine. Afraid of the stitches tearing. I plan to have 2 very easy lazy weeks after with lots of sleeping as one ds at school and I am still going to send my baby to his childminder. Sooo nervous.

SMTIO · 06/12/2013 10:14

Hi. I had surgery 2 1/2 weeks ago, and reading this thread and some of the previous ones has been very reassuring. I really hadn't thought through how painful the recovery was going to be. The first 14 days were quite frankly awful. Now finally feeling like things are getting better, and hoping to be able to live something like a normal life soon.

I'm home alone with a big heavy 6 month old, so not lifting is just not possible. Really hope I'm not going to sacrifice the effectiveness of the mend Sad.

lotsofquestions000 · 06/12/2013 16:58

lolly poor you I feel for you! I wonder if I have a similar thing? As I can feel a hardish lump inside me, its nothing that's painful or uncomfortable its just that its there! Its a bit like having a tooth crown and you are aware your mouth feels different but eventually you get used to it and it just seems normal. I'm going to see how things go for a few more weeks and see if things settle down as the thought of having to have another op is awful and it could be something I could live with really! Especially as I was told this op might not last for ever and would probably be needing done again in about 10 years ( theres only so many times one wants to have fanjo cut open).
happy hope things went well today x

Dragonroad · 07/12/2013 07:29

Happy, I hope it all went well for you yesterday. Rest up and look forward to hearing how you are.

Noordinarygirl · 07/12/2013 10:06

Hi All, happy thinking about you and hoping it's all bearable and that you have some good friends to get you through Christmas. Hope you have a good chocolate advent calendar to keep your spirits up.

Can I just ask the rest of you how long you had off work - was it long enough or would you have liked longer?

lolly and mrsclairet OMG all this sort of stuff DOES get me down a lot too. Men just do not get it, can't understand it and don't want to think about it! You can bet your bottom dollar that there'd be a massive song and dance about it if it was their 'manhoods' that were being hacked around! It does make me feel horribly unattractive down there and the thought of ever actually having sex again is a little frightening right now. Haven't DTD for months now and God only knows what it would feel like for me or my partner if we did, what with mis-placed pessary, bulging bowels and eff knows what else in there.

The good news is that I got to my target weight on Thursday - 2 stone weight loss and feel marvellous about it and 5 - 6 weeks with no cigarettes now I think. Have stopped counting, so I guess I'm a real ex-smoker now!

26 days to go........big hugs to all recovering - don't overdo it and keep us up to date with your progress.

happylilme · 07/12/2013 20:22

well ladies back home was suppose to be another night but things went that well I came home early. Was so relieved to get pack and catheter out as that was the most uncomfortable thing. I think the thing that made the difference was the fact I had no morphine, had pethodine instead. Consultant said it is morphine that makes people ill. I feel really well just a little sore and stingy. Just on paracetamol and lactulose dreading first bowel movement though. Hope this is reassuring Dragon and nordinarygirl

Dragonroad · 08/12/2013 12:40

Hi happy - that is very reassuring and really glad all is well. Can you remind me which bits you had done? Last weekend for me before going in Wednesday if they don't cancel it. Still not shaken that off!
Make sure you rest up and make good use of the people around you, that seems to be the key from reading everyone else's experiences. Well done you!

happylilme · 08/12/2013 14:22

I had a large rectocele repair and a repaired pereinum(sp??) x still no real pain. Just stingy and trying to get comfortable to sit is a bit of an issue apart from that I am grand. My mum is over now to help so that is good. He was an excellent surgeon, he did all the stitches inside so no obvious scar, very reassuring, the hospital, nursing staff were fantastic. Couldn't fault the whole processes.

NancyWray17 · 10/12/2013 11:25

Thank goodness I found this thread and thank you to all the ladies who have posted. I was diagnosed with a cystocele several years ago which I'm sure started after my first child was born - she is now 15 and I have had 2 more! Decided against surgery then as I was apparently 'young' to be considering it and didn't know how I could manage the recovery period with very little help and three young kids. I am now mid forties and it has got so much worse I really cannot deal with the discomfort/pain anymore and have asked to be referred again. There are so many scare stories about unsuccessful procedures it is quite frightening. Did this op actually work out OK for anyone?!

mrsclairet · 10/12/2013 20:17

I went to see the consultant yesterday about my 2nd op. It will be end of feb or beg of march. He is not planning to use mesh which I am pleased about it. He examined me and today I have felt so uncomfortable. I just really really hope it works this time round. I told him last time I got really constipated and he said that shouldn't happen, I am going to try to avoid morphine this time but not sure if I will manage it or not. Fingers crossed it all works out.