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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happylilme · 25/11/2013 18:36

nordinary I know what you mean by getting time off work. It's all pretty rubbish there at the mo with job loses.....hmmm I really do have to question my job if id rather be at home with stitched lady parts.

Dragon- I know what you mean about getting obsessed with certain aspects. Mine is about my poo (oops) before and after surgery. I really don't want any whoops during surgery if I take laxatives before.

Thank you for advice about shaving/trimming not something you ask in everyday life. Can just imagine Dragon wrapped up with clingfilm lol things we do. Sometimes its hard to be a woman.

11 days to go. IBS rearing its ugly head again.

Dragonroad · 25/11/2013 19:10

Happy - now you made me count my days down - 16 to go....so long my head will burst.

happylilme · 25/11/2013 19:46

I made a special advent calendar for my operation with chocolate. Is that sad???? You will be surprised how fast the next few days go. I'm trying to remain calm about it all.
I hope you do ask your daughter for help if you need it though, I'm sure she will be more than pleased to help. I'm like you, don't like asking for help but sometimes we just need to be looked after.

Remember those awe inspiring manifestos. Positive mental attitude lol. You are eating away at those days. :0)

Noordinarygirl · 25/11/2013 20:11

Yes definitely after today - I WOULD rather be sitting at home with stitched lady parts than at work with a dumb-ass idiot as my line manager. Don't worry I have a cunning plan. I am aiming to actively look for work whilst I'm off recovering. Just at what's out there to begin with then when I can get around OK I shall actually apply for any jobs I think are OK.

Happylilme - what a brilliant idea about the chocolate calendar. Love it. Hadn't started counting - but I will now! 38 days to go. Woo hoo! I seem to have been 'broken' in one way or another for AAAAGES now. I want the old ME back. I want to enjoy sex again. I want to actually WANT sex again.....

I had to leave work about half an hour early today as I was SO uncomfortable sitting on my chair - I either had to lie down or do a great big poo (TMI sorry). It gets very horrible if I can't empty my bowels soon enough. It's a bit of a catch 22 situation. I love walking and it helps to get things moving but to go walking in the first place is sometimes pretty sore in itself. Does anyone else have this problem?

flouncymcflouncerson · 25/11/2013 23:17

Hello. Popping in to catch up. I'm now almost two weeks post op. I'm not convinced it's worked well at all. I braved a look with a mirror and although the huge bladder bulge is gospel I can see my cervix only an inch or so inside (tmi!!) . Surgeon did say my womb had dropped but he hadn't repaired it which I really cannot get my head around. I'll be so upset of I continue having problems after all this.

Cancellations do happen unfortunately. On the day of surgery there were two woman who had been cancelled two weeks previous and were coming in again and had us all panicking that ours would be cancelled. This wasn't helped when the nurse came out and told us they didn't have any beds. I'm not sure if we were all done in the end.

I am having issues leaking urine which I've never really had except on coughing or sneezing before the surgery. Concerned this won't rectify but keep reminding myself I'm not even two weeks post op.

I keep bleeding on and off which I think related to how upright I've been that day. I've finding the burning pain uncomfortable but not unbearable.

BMs are tricky. I can't take the laxado I was prescribed and have just been taking senna.

Hope all the upcoming ops go well.

happylilme · 27/11/2013 15:53

9 days to surgery, going through the motions of Do I really need this op? could I struggle through life just aiding my poo out? Of course the answer is yes I need the op. Im 36 yrs old and I have to improve the quality of my life.
My lower back is in a lot of pain is this one of the symptoms?? And do other peoples prolapse feel worse during time if month.? Soooo nervous.

gottagetthroughthis · 27/11/2013 16:10

footle if you r about could I ask a question - is it possible to return to work after surgery (me being a bit older than most of the ladies on her) if so how long approx. after and does it improve the quality of your life? I am waiting to see gynae who incidently have never diagnosed my rectocele (that was my physio - thank god for her) but they did say I had a "very tiny" prolapse of my uterus. when I see them I would like to try a pessary first before any surgery. I just wonder will I ever get my life back although 53 am perfectly fit and healthy otherwise. :-)

Noordinarygirl · 27/11/2013 17:42

Gottagett I am now 46 and have a pessary. Having sacrocolpopexy on 2nd Jan. I have grade 3 prolapse of cervix (had uterus out last year so there's nothing left to hold it up!) and a grade 1 to 2 rectocele. I've had a pessary in since May. It's really not been great for me - although I have had it changed for different sizes twice, it just won't stay up where it can't be felt. If you do get one that stays put I would think it'd be quite good (as long as your partner is OK with it too IYKWIM) It's SO uncomfortable at times and I have to keep pushing it back up as far as I can. Sad I can't live like this (I'm used to mountain walking, riding, running and gardening). I didn't have to 'persuade' my consultant either. There were 3 different surgical options but, after a monthly consultants meeting, they put forward my op to me. Apparently if I 'behave' for 6 months afterwards, it should be the strongest and best repair for me. I can't lift more than 1.5kgs for the first 6 weeks then no more than 5kgs for 6 months! 35 days to go........

lollylou1 · 27/11/2013 17:43

happylilme sorry not seemed to have had time to catch up on the laptop! My surgeon told me not to exercise till after christmas other than walking, i'm into week 7 recovery now. My DH only had the 2 days off that I was in hospital for but luckily my mum only lives 5 minutes away and she helped for pretty much 3 weeks. I also employed a cleaner for 6 weeks as I probably would have stressed out even more at the 'dirty house'. I was private and didn't shave or take my own towels but you will obviously need them for when you come out. I found my bleeding slowed after first week. I hope it goes all ok for you x love the chocolate advent countdown btw Smile
lotsofquestions how are things with you now? i've only just noticed, what i think must be some of my stitches coming out this weekend. Felt a bit uncomfortable but generally alot better. Not so 'lumpy and hard' now! Haven't braved doing the 'deed' yet, think that can wait..... maybe for christmasGrin I do feel I have a little more energy this week so far, also trying to shift some of the lb's I have put on before christmas.

lollylou1 · 27/11/2013 17:48

oh and btw happy I think the doubting is natural. I did exactly the same thing, I even felt like it in about week 4/5 but feeling bit more positive now. x

lollylou1 · 27/11/2013 17:50

happy I also suffered with alot of back pain before any of my ops, I used to see an oesteopath once a week for a while but since both my ops seems to be alot better.

happylilme · 27/11/2013 19:33

nordinary - I know what you mean about feeling broken. I was like before I started the ball rolling for surgery. I am very nervous but im hoping 6 months down the line ill be back to the person I was before. I think I felt worse about the whole situation as it was the one part of my body that is very personal. I don't feel sexually attractive down there so did not want sex. I'm hoping this will improve or it's the convent for me.

Lollylou - I'm glad you are on the road to recovery and thank you so much for all the advice. I guess hospitals can only tell you so much, it's just so reassuring that other people out there share their experiences.
I am going through the doubts and the what if's but like you said that is natural. I really hope it does ease my back ache. not sounding mean its kind of reassuring other people feel this as well, if you know what I mean.

As for the chocolate calendar lol because we're worth it. Stressful, busy life, no sex so I read somewhere how chocolate releases serotonin, our happy hormone, if it's what the experts say then that's gospel truth for me lol.

lotsofquestions000 · 28/11/2013 20:10

having trouble posting at the mo so this is a test!!!

lotsofquestions000 · 28/11/2013 20:16

Ahh its worked now!!?! Hi lolly Im doing quite good went back to work this week and had a bad start (work is rubbish anyway) so was a bit tearful and emotional for a few days but have been cheering myself up with some xmas retail therapy so feel a whole lot like Im getting back to normal now. things look good down there - keep getting thoughts of 'oh im normal down there now' which is quite exciting!!! Havent DTD yet think that might be an xmas pressie. Hope things will have improved - that side of things had dimished a lot cos of my disgust of myself and knowing he didn't really get much out of it all either so I hope that things will be better now I hope so things feel a bit tighter now in a good way! and it will help us to feel emotionally closer again if we can get that side of things back on track I hope!.
Am religiously doing PFE now too! BMs getting a bit better now - feel like I can push a bit more without undoing anything. How about you?

lollylou1 · 29/11/2013 09:55

lotsofquestions BM's definately better now, hardly taking lactulose now and so far seems ok. I really should be doing more PFE's but I keep forgetting. Def looking more 'normal' now and starting to feel lot better. although am terrified to actually have a 'feel' IYKWIM!! Over did it yesterday sorting christmas decs and stuff out and felt bit sore, suppose body reminding me i'm still supposed to be recovering. Well here's hoping we're all sorted by 2014 eh x

lotsofquestions000 · 29/11/2013 22:42

lolly over doing things is a bit hard not to do, its just quite nice to get back to feeling more normal but I know what you mean as I have felt twinges which help to remind me too. Just read my last post and I think I missed a few commas out!!! I had typed the same thing about three times and it wouldn't post so was fed up by then!!! What are your thoughts about exercise now are you going to do much before xmas or leave it a while longer?

lotsofquestions000 · 01/12/2013 10:24

Not sure what to think today! have got a it bunged up over the weekend (I cant seem to do anything to prevent it - it just happens that way) but consequently have had to push quite a bit (despite glugging lactulose) and I can feel a bit of a lump higher up in my fanjo - rather than before where it was visable outside but thinking that maybe it hasn't totally sorted things and that the surgery probably wont last for that long (bit depressing) and it is so nice to feel more normal than before and things down there are tighter but in a good way. I really don't want to have to go back to how things were before - just going to obsess about PFE!!

lollylou1 · 01/12/2013 12:38

lotsof Think it might be pretty normal to feel like that if you had to strain abit. Happened to me few weeks back and i felt quite sore and very uncomfortable,even bled a little, but was ok after a few days! Bare with it, hopefully you will be ok. I'm not excercising at all until after christmas, just few little walks here and there.
Feeling pretty fed up today as I am quite uncomfortable again and a bit sore (stingy). feel bit teary Sad, I am hoping its just where i've 'overdone it' for few days. Well say overdone it, just what i would have normally done this time of year! Decs up and normal housework!

kianaidan · 01/12/2013 18:04

Hi all, for those of u under physio. Could I ask if u.ve been told a level for your pelvic floor. I have been upset as they.ve said level 2 and I.m only 29. Is there any hope for improvement?

Footle · 01/12/2013 20:14

This reply has been deleted

Message withdrawn at poster's request.

Dragonroad · 01/12/2013 21:48

Hi. Been having a tough time waiting for op which is due next week. Got so anxious about it all I couldn't sleep or stop thinking about it. My GP gave me some beta blockers which have really helped. Still obsessed with the idea they may cancel it but at least I am sleeping again.
Someone mentioned an up side of this might be having a break from work. If they cancel the op I might need some time to get over that!
Happy - you must be due to go in this week. Best of luck to you and I shall keep an eye out for updates on your progress.

happylilme · 01/12/2013 22:10

Yes Dragon due on Friday, like you nervous about cancellation but I guess if they do it will be to someone more needy than me. I think thinking like that helps me through. Seems very surreal at the mo I know its going to happen, it's just the waiting.
I'll keep you posted x

mrsclairet · 03/12/2013 08:39

happylilme the waiting is almost the worst part, the bit afterwards isn't pleasant but at least you feel relief that it's all over and I did actually quite enjoy just lying around watching tv for a few weeks (even though it's frustrating not being able to do anything).

I have got an appointment through finally to see a consultant on the NHS, I paid to see him privately and he agreed he would do a 2nd operation for me on the NHS so I have now got a 3 month wait for my next op. It isnt such a big op this time so hopefully it shouldn't be as bad in terms of recovery time. Then I want to get my pile sorted then hopefully I should be able to get my life back!!

mrsclairet · 03/12/2013 08:40

dragonroad just seen you are waiting too, good luck, hope all goes well x

lotsofquestions000 · 03/12/2013 08:44

lolly I too have felt a bit stingy again in the past few days, for same reason as you - just trying to do stuff again, so I know what you mean. think Im going to try and wean myself off the laxitives cos I don't think that they carry on having the same affect if you take them all the time and then when you really need them its more of a problem. I have started eating pickled onions instead - it has the same affect!!!!!
Its surprising how it affects you emotionally for so long isn't it. Im not exercising other than walking til after xmas for fear of over doing things too but I keep getting really high days where glad to be normal and down days where worries come back so it is nice to still have support from here x
Dragon I felt just the same as you about cancelling but glad I didn't so hang on in there. Its a double edge sword cos you know you would be devastated if hospital cancel (I was worried about that too) but you also know that mentally you are prepared as you are going to be by the time of your date and to have to go backwards would be really hard, so I hope it all works out. I will say though that despite my ongoing worries I am glad I had it done and this time of year it is much easier to enjoy sitting about and being lazy in front of the TV than if weather was nice