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***Tamoxigang - thread number 40!***

992 replies

GoodbyeRubyTuesday · 26/07/2013 22:08

Hello all! New thread as we have almost filled the last one. Help yourself to chocolate chip muffins from the trolley! :)

OP posts:
MaryAnnSingleton · 17/08/2013 09:54

you'll have loads of birthdays to come dear malt ! It's almost a year since my secondaries diagnosis and I'm thinking yay ! that's sort of scary as I was told 2 years prognosis wise but obviously everyone is different and my drugs are working- it all feels a bit weird though.
Think we're back to normal ish here after dh's week off- was lovely, but I sort of need my routines !

malteserzz · 17/08/2013 10:08

I'm just being maudlin ignore me I'm fine !
Mas you look like you've had a lovely week, enjoyed looking at your pics there are never any of you though ! And you're doing really well health wise that is great Smile

jchocchip · 17/08/2013 10:36

Morning all. Brew time. Is it too early for Cake? Went back to sleep after mning for a while and missed half the morning :( Hey ho. Dh just brought me the Brew in bed Grin
Which year did you have your lumpectomy mas? How did they discover the secondaries? I'm having a mammogram on Wednesday and then my 2 year check at the beginning of September. I have a small lump on the other side that surgeon said was a thickening and not to worry as I am on tamoxifen. Except of course I do worry as it is still there and it could be a different sort of lump :(
Must get up soon and sort more junk. Exciting trip to the tip planned :)
Must stop being down. I know I am lucky - lost two friends this last year, one who was dx far too late and another with sudep. Neither had time to do stuff on their bucket lists. :( Been quite a sad week clearing out dhs nan's house. I know I don't want to get dementia, that is so sad.
Ignore me. I'm rambling! Hope your plans are more exciting. Glad topsy has set off :)

Shootingatpigeons · 17/08/2013 12:16

jchoc it must be tough trying to deal with ds, that does sound like depression. The worst thing about depression is the being incapable of getting the help you need to find a way out. It is frustrating because it is hard to distinguish the illness from the person IYSWIM. When we faced this problem with friend we ended up getting the doctor to come to her but she was in a very bad way by that stage. I do think however lovely the medical profession they are not good at mental as opposed to physical illness. I have enjoyed your pics of clearing out the 70s kitchen, been a trip down memory lane Grin If the surgeon is relaxed I wouldn't worry, they are focused on worse scenario but at least you will soon have reassurance.

gigs it must be hard on Mr gigs finding dss being off but last week having dn here reminded me how your relationship comes out better if you stay out of the games, also can't say much but we can chew it over at next coffee. Had a lovely time with her. Glad you are going to be bionically coffeeing.

KK I am sorry DH was such an arse yesterday. I have to say though that if amber says future planning is a particular issue I can understand a little. I am incapable of remembering birthdays. After 50 plus years I have an approximate idea of mum and dads birthdays but still couldn't be sure of exact date, somehow diversionary dates have crept into my hardrive, and if you add into the mix that most of the time I don't know what day it is unless it is written down in front of me, I do forget and people assume I don't care, which isn't the case at all. I really struggle to understand how people retain all this information, so I can see why they might be unable to understand that I cannot. Still once it is pointed out that I have forgotten I am suitably mortified, but I know DH would probably react in the same way because he genuinely doesn't get the whole excuse for some romance, candlelit dinner etc thing.

Topsy have a great holiday. I imagine this was the scene at Topsy Towers this morning www.youtube.com/watch?v=Gbajf_rHzys

ruby Glad you had a good time with ex and that hurt has receded a little. Even if you are reminded of worst scenario assessment must mark getting back to uni more real and imminent.

Looking forward to malt hitting end of series 2 of Downton when it veres into comedy so we can have a good laugh about it.

Hope no one is in swooney sicky corner this nice day....

MaryAnnSingleton · 17/08/2013 12:17

never too early for Cake jchoc !
I had lumpectomy 4 years ago - secondaries discovered after I went to GP with very bad pain in my chest just before we went on holiday last year (in fact I wouldn't have gone to GP if we'd been not going away- though it was a pretty awful pain,unlike anything I've felt in my chest before) She sent me for a blood test and x ray as she thought maybe a blood clot. When we got back from Suffolk I had a letter saying that there wwere shadows on my lungs and was being referred to chest clinic. Saw consultant at urgent clinic and he sent me for CT which showed about 9 pulmonary nodules across both lung...they then referred me to onc..all fairly speedy. I'd convinced myself maybe it was pleurisy or TB.

MaryAnnSingleton · 17/08/2013 12:18

was the comedy bit Matthew singing pigeon ??

jchocchip · 17/08/2013 12:33

Thanks for that mas. I will be looking out for chest pain. I had a pulmonary embolism 15 years ago felt breathless for almost a week then started coughing up blood. Benefit of hindsight would have called doctor 4 days earlier...
Dh did cooked brunch. I really should be doing stuff.
I'm not the only one bad at dates then pidgeons! Although my latest strategy is putting a yearly appointment in my phone with a weeks reminder...

Gigondas · 17/08/2013 12:46

Been out and tho tiring , walking actually seemed easier with no pain Smile. Got some new lippy when out too. But think it will be quiet afternoon after the effort.

Mini gig stole my stick ( tho dont really need it) , took great interest in all the cords but didn't cause an incident. Big gig was a bit grumpy after busy play date so think she can have early night.

Am sure will be tons more birthdays malt . I try not to focus too far ahead but one thing about getting op done soon is maybe be ok for birthday with my birthday buddy topsy.

MaryAnnSingleton · 17/08/2013 12:50

Ooh, what lipstick ? Am always buying lipsticks and balms and glosses..new ones are a CLarins one and an Origins lip balm in a nice pinky colour..
Many more bdays for us all I'm sure Smile

Gigondas · 17/08/2013 13:10

I love origins stuff . It's a Nars one in pinky red as fancied something funky. Also got some lovely face oil.

malteserzz · 17/08/2013 13:28

Gigs you are doing really well to be out and walking Smile lipstick great idea to cheer yourself up. Got my look good feel better session on September 3rd wonder what freebies I will get

kitkat1967 · 17/08/2013 16:03

Hello - back from hols and have caught up on posts.

Topsy - bugger about node but looks like they are not too concerned for now.

Gig - well done on making it through Op - can't believe you are out and about already.

All who had chemo whilst I was away you are one nearer finishing.

Hello to the newbies - shame you have to be here but ladies are a minefield of helpful info.

HND - so one boob is done - fingers crossed the other one gets on and heals now.

I had my MRI on Thursday - nothing to report yet as get results on Tuesday but I think the lump feels significantly smaller all of a sudden so will be interested to get the results.
Nausea finally gone but developed an annoying dry cough - think I over did things on hols so basically grounded for a few days to get some rest.
Also found out that the teeth staining was due to the mouthwash so stopped using that now.

Apologies to anyone I missed.

malteserzz · 17/08/2013 16:47

Hi Kitkat good holiday ? Nice to see you back
How's your hair ? Mine coming out lots now, no bald patches but when I touch it lots comes out and it's all on my shoulders, down my top etc Hmm knew the bloody cold cap wasn't cold enough! They are getting the better system at my hospital soon the one which plugs in but will be after ive finished I think

Gigondas · 17/08/2013 17:34

Bugger malt - maybe you just thin tho rather than lose it?

Nice you are back kitkat.

Had very restful afternoon with radio on and book etc. except for when the wanna be consultant surgeons appeared and asked if they could practice examining me for their exams. Let them play on proviso they didn't disturb my Brew drinking. It's interesting that there was a really different communication style between them and the brighter one was letting herself down by too much jargon.

MaryAnnSingleton · 17/08/2013 17:47

guinea pig gig...interesting about the communication styles
hope hair doesn't shed too much malt - but your wig is very pretty..
waving to kitkat !

malteserzz · 17/08/2013 17:58

I'm sure you could have done without that gigs but glad you've had a relaxing afternoon. I've just finished a book, the Yorkshire pudding club by milly Johnson very light and easy reading Smile
The hair is really going, feel like if I gave it a good brush it would just come out. It's a bit depressing finding it everywhere. Friends 4 year old just came to visit and thought it was the cat moulting bless her
It's only hair isn't it and it will grow back. Is tax as bad for hair loss as fec ?

GoodbyeRubyTuesday · 17/08/2013 18:15

gigs kind of you to let them practise on you! Glad you've managed some retail therapy :)

malt don't lose hope yet, I had a similar amount of hair falling out all over me but it only thinned slightly.

kitkat welcome back! Did you have a good holiday? Will be thinking of you on Tuesday :) good news that you can feel a difference

Waving to everyone :) went for a walk at a NT house this afternoon, rather nice. It feels so autumnal now! Rainy and leaves starting to drop already.

OP posts:
kitkat1967 · 17/08/2013 18:38

Holiday was so so - kids had a fantastic time though. Good thing for me was a complete break from work.

Shame about the hair malt. Mine is hanging in - looks ok with a hair band or scarf covering the top but I reckon it will be mostly gone by the end. Mind you I only wash it once every 3 weeks and never brush it so it is hardly a glorious mane!!!!

BTW have just looked and am on 75% FEC - no idea how that was determined. Mind you the info sheet said moderate to high sickness in the side effects so malt you must have the constitution of an ox !!

sparklesunshine · 17/08/2013 18:52

Malt - my hair started to grow back since I've been on tax, so that's hopeful. I've got a receding hairline which is more than a little odd (and matches just about every make relative I have), but I trust it will all come back in time.

Chemo's done! I went by myself for the last one and kept telling the nurses. I feel like having a party whenever I can get up the energy for it and my big daughter wants to take photos with silly faces in the cancer book we got. Good riddance and hopefully not to be needed again. (Crosses all extremities. Please please please.)

MAS - happy to hear your treatment is working and hope it gets you many more birthdays as well.

sparklesunshine · 17/08/2013 18:54

That's male relatives, not make ones. They're not made out of play dough or something Grin

Gigondas · 17/08/2013 19:21

Yay for end of chemo. It was a bit bleurgh tho as I was too done in too enjoy either sparkle.
Malt if you do lose it (and keep in mind what ruby said) mine grew back much thicker and very quickly.

Going to settle into watch some Harry potter now .

malteserzz · 17/08/2013 19:45

Thanks for that ruby I'll have to see if mine hangs in there too, glad you had a nice walk it's so windy here today

Gigs Harry potter sounds a good plan, enjoy

Sparkle yay for end of chemo that must feel great !

Kitkat sorry your holiday was only so so buy like you say it's a break

Watching a DVD in a bit, extremely loud and incredibly close it looks good,about a boy whose dad died in the twin towers so not sure it will be the most cheery film !

malteserzz · 17/08/2013 19:47

Oh and Kitkat think I've just got the body of an ox !

amberlight · 17/08/2013 21:13

Well put it back before the farmer misses it! Shock

Gigondas · 17/08/2013 21:37

GrinAt amber.