Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Tamoxigang -the 39th thread ***

996 replies

MaryAnnSingleton · 04/07/2013 10:53

cooee ! we're over here - just in case the current thread hit 1000 without our noticing Grin Bring the trolley !

OP posts:
jchocchip · 24/07/2013 08:48

Yes knitting would be more fun than work but doesn't pay the bills :( could go to work at 7 then go there from work for early lunch if organised but I'm not... maybe next week...
Mmmm Brew just what I need. Play date quiet day takes me back.

malteserzz · 24/07/2013 08:56

Appointment is 845 tomorrow and parking is a nightmare at the hospital so will go about 730, dh taking me. I've already had a little cry about it and it's not even 9 !
Anymore tips for the cold cap Kitkat ? I'll take conditioner, paracetamol before I go and will take a blanket
Quite reassured that you're going out for lunches still Smile

kitkat1967 · 24/07/2013 09:06

crikey Malt that is an early start.

The conditioner needs to be ph neutral one - eg Simple. Have they asked you to take a towel - I have to but they may be providing it for you (hair is wet)?
I think you have every thing else covered - remember it will hurt/be uncomfortable but stick with it as it just suddenly stops hurting altogether and you virtually forget it is there. I take a tablet and watch a film for last couple of hours. The thing for me is that the focus is all about my head and I pretty much forget about the cehmo aspect!!

malteserzz · 24/07/2013 09:12

Yes very early and I'm not a morning person ! Still better than waiting around for it I suppose
They didn't mention a towel but I'll put one in thanks

kitkat1967 · 24/07/2013 09:29

oooo Malt - i just remembered that is is recommended to use a silk pillowcase. If this is not something you have to hand I just ordered one off Amazon - came in a day I think (I got just 1 side silk).

smee · 24/07/2013 09:54

Dinner with your DH sounds good, Malt. I reckon good to get there early tomorrow. First one will take an age as they faff making sure they've got all your records right. Agree with kitkat on the cold cap. once your head's numbed by the cold all you notice is the weight and that you look like a teletubbie My unit never told me about conditioner. They used to just spray my hair with water. Wonder if that's why it didn't work too well. Hmm

Gig, did you have a better night?? Impressed you made it out to dinner. Should think it's the last thing you feel like doing.

Ruby, how are you today?? Hope a lot less sore. x

Yay on smear, Topsy!! Grin That must have been a mighty relief. What cake's DS having Grin

Slight shudder at the frogs here, Trice. I don't like slimy things, so hats off to you from me. Smile

I want to be on holiday with MAS - sounds so lovely. Do you think she'd mind?!

Last day of term here, so of course they break up at 2pm.. Got stacks to do before then. Am taking DS and a couple of his friends for a celebratory swim, then we're off with another mum for pizza. Smile

Copthallresident · 24/07/2013 09:58

Morning malt We will keep you distracted. I was in a real state the day before first chemo, upset and angry, had read up on all known side effects and wound them up into a melodramatic "chemo is going to wreck my life". Very silly,as you can tell from the rest of the chemo gang once you get one out of the way you get in the rhythm, and enjoy your good weeks, and from the rest of the Tamoxigang, life very much goes on afterwards. It is very hard to tell if chemo actually did have any long term side effects, aside from those associated with menopause which I am quite sure saved my life. Everybody gets older. Plenty of my friends appear to have started suffering from chemo brain, or senior moments as we prefer to call them. And two friends are suffering from the same low bone density as me, one as a result of a spontaneous early menopause and one because she is naturally very thin. In retrospect I think of it as six months of bad hangovers that were soon over and left me to get on with my life. The main side effect is the friends who still twelve years later head tilt and do the meaningful "How are you". Grin

Actually very impressed at how everyone is getting on with their cycles, so far side effects seem much better managed than when I was treated, we weren't given steroids, sickness meds or automatic anti biotics. They don't even give the A we were treated with now because of the side effects. And our experience is probably the basis of all the myths.

gigs yeah to getting out for dinner, are you still feeling nauseous from the pain meds? Envy of looking at cityscape.

Am off to meet friend and her lovely DD over from US and show them London Town. Doing Hampton Court today, DD apparently desperate to see it, wonder if that is "The Tudors", if so may be disappointed by Fat Henry Grin

KurriKurri · 24/07/2013 10:03

Morning all, glad you enjoyed your dinner Gig - sounds posh! - enjoy the playdate and quiet day, good that you are a bit more comfortable.

Well done on clear smear topsy, hope you didn't bite anyone last night Grin

malt - that is an early start, but they can be good in a way - you get going before you've really woken up, and still have a reasonable amount of the day left when its finished. First one always takes a little bit longer, but you may well be one of the first in, so shouldn't be any hanging about in the waiting room reading the 'sorry we are running an hour late' updates on the TV screen!!

enjoy your dinner KitKat - cold cap seems to be doing a good job for you, - that's great Smile

What are you crocheting/knitting jchoc? - I've just finished knitting a rather loud cushion cover (sort of patchwork knitted triangles - got the pattern from 'Simply Knitting' magazine which is my monthly treat!)

Committee meeting was rater long winded last night - we had a lot of business to get through. But the hostess' DD had made some pretty impressive cupcakes, which I broke my diet to sample Grin

malteserzz · 24/07/2013 10:29

Got a silk pillowcase Kitkat thank you also from good old amazon
Copt my onc said over her career the biggest advance has been managing side effects from chemo which is good. Sounds like you have a lovely day planned, enjoy
Kk yes good it's early really I would only be awake worrying anyway !
Smee enjoy the swim and pizza Smile

Waves to everyone else ruby hope you had a good nights sleep, lily and Betsy hope youre ok? Amber looks like you had a lovely break Smile

Nipping to sainsburys later on my list I have simple conditioner, sucky sweets, anything with ginger in, cortisol mouthwash, anything else ?

KurriKurri · 24/07/2013 10:38

malt - I found slightly fizzy drink helped settle my stomach after chemo (apple flavoured Lucozade was my fav.) - but whatever you choose make sure you have plenty to drink afterwards throughout the day - so have some cordials or juices that you enjoy to hand Smile
peppermints can also be good - you can get a bit of an odd taste in your mouth sometimes and they help, I would be wary of anything very acidy in the sweet line (sherbet lemons e.g.) as they can make your mouth sore.

It sounds as if you are well prepared, - the first one is the worse because of the apprehension and going into the unknown, but I think you have done brilliantly so far with coping with it all, and you will be fine Smile xx

kitkat1967 · 24/07/2013 10:54

Malt - I got mouthwash prescribed so you may not need to buy that. Get Simple shampoo as well as you will need that when you wash your hair (not for at least 2 days though!!).

Lilymaid · 24/07/2013 11:00

malteserzz
For mouthwash make sure you have an alcohol free one (unless someone more expert has told you otherwise) that is nice and mild. I've used an Oral D sensitive and that was pleasant.
If you like melon and mango get some into stock (nicely chilled) - seem to be the nicest fruits to eat when 48 hours in you start to feel rather dopey and your mouth is metallic.
Have plenty of nice drinks/cordials in stock. I find that fizzy drinks seem too sharp when feeling after effects of chemo, but elderflower cordial perks up plain water (and iced tea is fine too). And make sure you keep well stocked up with ice in the freezer.
If it wasn't so damned hot, a few portions of soup would be good for meals when you aren't feeling too hungry and your mouth/throat may (or may not) be sore).
Don't plan on doing anything much from 48 hours after chemo until Day 9 - give yourself plenty of time to rest during the day.
I'm looking forward to Day 8 of Round 2 tomorrow and a bit more energy when the antibiotics start working.

kitkat1967 · 24/07/2013 11:05

Lily - why do you get antibotics on day 8 - is that as a result of a problem i nthe last cycle or standard practice where you are?

GoodbyeRubyTuesday · 24/07/2013 11:40

malt I got mouthwash prescribed too, I had Difflam but they had Corsodyl available too depending how you get on. So if it's pricey I'd hold off buying any and get it free! Grin I can recommend Lotus caramelised biscuits for when you're feeling nauseous, they come in individual packets of two biscuits so perfect to have in handbag, car etc just in case :)

gigs glad you managed dinner, hope you have a relaxing day today.

I've only recently woken up, I had a much better night, pain was tolerable, and hopefully it'll be even better tomorrow and day after as it builds up in my system. Only problem is that I had to stop my domperidone to take the amitripyline, which I said okay to thinking I hadn't had any nausea for ages, but of course the domperidone was keeping it at bay Grin cyclizine seems to have sorted it though :)

I'm just popping in very quickly as got HOPE course soon so must dash! Have a lovely day everyone, hugs to those who need them

malteserzz · 24/07/2013 11:48

Just had a lovely delivery, really soft cushion and burts bees set from gigs. I'm really touched that's so nice of you and has brightened up my day. Thank you so much it's all gorgeous x x x x

Ruby glad you had a better night

Lilymaid · 24/07/2013 12:14

KitKat - don't know why I get antibiotics for Day 8 (and antifungal). I'm taking the T before the FEC though. Last time round I certainly felt much better when I was taking them. Perhaps it is what my oncologist thinks works best?

smee · 24/07/2013 12:35

Lily, I'd guess they're trying to stop potential infection. Day 8's about when your levels dip alarmingly. Have you just one Tax left? That must feel a bit more manageable, even if a way to go.

Gigondas · 24/07/2013 12:40

Glad it arrived malt- cushion is good for arm or neck when doing chemo if they get sore and stiff.

My dietician suggested a variety of snacks as if you get fixated on one thing you end up associating it with chemo/nausea.

Glad pain bit better ruby but does take a couple of days to work. Am taking domperidone with Nortrytptiline so could ask to switch if it is a real issue.

Kitkat - good that hair seems ok.

Play date done- resting my bruised behind in bed now.

topsyturner · 24/07/2013 14:26

Afternoon All

Just slipped a couple of home made quiches into the oven . So if anyone fancies a warm slice , stick around for 1/2 an hour and I'll sling some on the trolley .

Glad your apt is early tomorrow Malt
Not only does it give you less time to worry , it also gives them less time to run late !

Sounds like you have everything covered . Just remember to take all anti sickness meds , wether you feel sick or not .
And try not to take steroids too late in the day as they can keep you awake .

Has anyone warned you about the steroid tingle yet ?
At the end of FEC they give you a syringe of steroids (through the cannula) and this can give you a tingly sensation in your under carriage !!!

Will be thinking of you tomorrow x

malteserzz · 24/07/2013 14:47

It's really lovely gigs x have stocked up on lots of nice ( non alcoholic ) drinks and bits and pieces.
Topsy yes please to quiche. Steroids sound interesting ! Been told I don't get them with the fec only with the tax is that right or is my hospital just penny pinching ? Don't think I get antibiotics either unless they've just not mentioned it I do hope they know what they're doing

topsyturner · 24/07/2013 14:52

I was all FEC Malt and I had steroids .
It was part of my chemo infusion , and then I had oral dexamethazone for a few days afterwards .
They were part of my anti sickness drugs .

Gigondas · 24/07/2013 15:18

I luff dexamethazone but only as it is painkiller now. I think precautionary antibiotics tends to vary by onc. Bit like which anti sick they start you on.

Quiche looks yum on FB topsy.

kitkat1967 · 24/07/2013 15:20

same as Topsy - get steroids with the FEC and then in the anti-sickness meds (didn't realise that in 1st cycle).

malteserzz · 24/07/2013 15:36

Who knows then I'll wait and see ! Ill be such a wreck bet i wont know what ive had lol
Quiche does look yummy topsy
Are you on Facebook Kitkat ?

smee · 24/07/2013 16:01

I didn't get steroids until Tax and no antib's. quiche sounds yum. Waiting for boys to change after their swim. So hot here..