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Tamoxigang -the 39th thread ***

996 replies

MaryAnnSingleton · 04/07/2013 10:53

cooee ! we're over here - just in case the current thread hit 1000 without our noticing Grin Bring the trolley !

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trice · 18/07/2013 23:45

Mango is the answer I found to sore mouth and taste changes. Mind you, I also obsessed about mango during both my pregnancies (it may be why both my dcs have mango coloured hair). I love mango.

My family are back! I picked them up from the airport this afternoon. I have had lots of cuddles and enjoyed watching all their videos and looking at hundreds of photos. We had crispy duck for tea to celebrate.

jchocchip · 19/07/2013 06:22

Mmmmm mango! My first thought was red or green hair but I guess you mean the smashing orangy bit in the middle :)
Yay for cuddles and photos and crispy duck.
Going to work soon. Will try and get my hours in and finish early :)

Lilymaid · 19/07/2013 07:41

Mango! Great I love mango so no problem there! I switched off the usual breakfast OJ last cycle so have been drinking pineapple juice (someone recommended this on an earlier thread) and mixed tropical juice that includes mango. I'll get in some mangoes at supermarket this weekend and gorge!

Gigondas · 19/07/2013 07:44

Yay that your family home trice Grin.

Jchoc will it be too hot for paddling if get out early?

Malt- on eating , my dietician said anything goes but avoid anything likely to give you food poisoning (dirty salad, shellfish of unknown provenance etc). As I never eat that anyway it wasn't hard!

Lily- my taste changed too on chemo. For example Tea never tasted strong enough- it is a pain tho.

Smee- is freezer reviving? Ours broke in big hot spell too when mini gig was baby so I was worried about stored milk.

Spoke to dr pain- have to try all the drugs I have at minute at regular intervals then review on Monday. Thing is its odd as "pain" is horrendous cramps/spasms on my legs when I move of been sat for a while (thank god Back pain eased). So I don't know if pain killers are the fix.

Lilymaid · 19/07/2013 08:01

Gig - I had very bad cramp in the first week of my last chemo cycle - worst cramp ever in my legs so was wondering whether I was a little dehydrated. But my pain was not on your scale and went away by 2nd week. This time round I'm trying to drink and drink and drink.

MaryAnnSingleton · 19/07/2013 08:02

how lovely to have them back trice and crispy duck too !

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MaryAnnSingleton · 19/07/2013 08:03

I do need to drink more but water -still v difficult- even bottled tasted like horrid boiled water. Am having lots of melon which is watery though !

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malteserzz · 19/07/2013 08:05

Morning all
Trice must be great to have the family back Grin
I did read about avoiding sugar as that feeds the cancer do you think that's rubbish ? I love mango too though it's a faff to prepare
Just fell down the bloody stairs going down to check on ds, only slipped and fell on my bum but bit sore. He's fast asleep hasn't been sick all night so Ive come back to bed
Gigs hope the pain improves
Looks like another scorcher here

Lilymaid · 19/07/2013 08:12

Yes melon is also good (also on shopping list). Tea tastes odd, I've not had coffee for a while - though a good iced coffee might still be good - and I'm drinking more Ribena and elderflower cordial. Even lightly sparkling drinks are a rather metallic tasting. And as for my usual lovely glass of white wine in the evening ... A distant memory as wine tastes dreadful now. Sad

Copthallresident · 19/07/2013 08:32

gigs glad back pain has eased. Could cramp be started by sitting awkwardly to ease back. It is certain positions that sets mine off, or even wearing certain shoes, and it is definitely worse when I am unfit. And was an absolute pain when having chemo, and pregnant, but still have to leap out of bed periodically in the night with everything from my knee down contorted. And the same during the day when i wear certain shoes. Stretching out the muscle is the only way to relieve it. Although Mum comes out with old wives tale that body needs salt /minerals? Can you see the muscles spasm? I wonder if it is worth seeing your GP? I know you have a great team but if this isn't Cancer related they often are not good at other stuff. If it is your hamstrings that may well be back related, shortened hamstrings are the most common cause of back problems, that is why it is so important to stretch them properly. I also notice that muscles seem to want to tighten up these days, at the merest excuse, let alone all your poor body has been through.

trice must be lovely to have them home. I must have eaten lots of carrots when pregnant with Little Copt, and clearly with Big Copt it was the chocolate....... My Mum must have been into eating mice Hmm

Must move myself as driving oop north this morning. Mum and Dad still trying to party like its 1979 with wrinkly friends and are having their annual do today but Mum in late 70s has got herself in a tiz preparing.

smee · 19/07/2013 12:16

How lovely that they're back, Trice. Smile Smile How's your arm? Any less swollen??

Lily, I hated all hot drinks and wine too. Seem to remember in the end I just filled 2x litre bottles of water to make sure I was drinking enough, then made myself drink it. Bit grim though. Sad

Gig, pain easing must be a relief. I haven't a clue if this helps, but when my back was at its worst I couldn't lie down for longer than a couple of hours, as it would cramp up/ go into spasm. Sounds similar to you. Only relief I found was to make sure I walked round and kept it from seizing up. Real sod in the middle of the night.

Freezer's now down to -5, so had to throw away almost everything. DH is going to clean it all over the weekend and hope maybe doing that might fix it.

malteserzz · 19/07/2013 12:28

Copt hope your journey is going ok and it's not too hot and stuffy in the car
Smee pain about the freezer and having to throw stuff out
Just had a copy of the letter my surgeon sent to my onc describing me as a nice 41 year old lady lol

smee · 19/07/2013 12:31

Waving to Malt. 'Nice' is their way of saying not yet a pita. Grin

Sorry Copt, missed your trek. Have fun. Hope the oldies behave..

Gigondas · 19/07/2013 15:07

It's not the oldies.. But Copt I worry about.

Smee- the not moving issue is exactly it. But have been making myself gently exercise and stretch. Hydration point is a good one too but just spoken to my dietician who has suggested various other things to drink as thinks electrolytes could be low. This does seem to help as I have been feeling appalling with nausea in the heat and not much appetite.

smee · 19/07/2013 15:13

Electrolytes might well sort it, Gigs. Hope they do. This weather's hard work without pain added on top. Hmm

Gigondas · 19/07/2013 15:18

True enough smee. I think I might just need to try and keep moving . You got a new freezer sorted?

Copthallresident · 19/07/2013 15:46

Safely arrived though had to stop frequently to give poor goondog water as worried sun on him in back window and not sure aircon was reaching him. Needed one of those shades you have for babies Grin He enjoyed the attention....

Now got battling parents in a tiz to calm down. Not sure what gigs thinks I am going to get up to with a bunch of 80 year olds, most of whom I call Auntie and Uncle since they have been around all my life, and my old Sunday School Teacher, but I am sure I can think of something...

malt I hate it when they do that, so patronising, a woman doctor would never write that. I remember the gynae register who did my colposcopy wrote that on my note to the doctor, though how he worked out I was nice or a lady when I had been monosyllabic with fear and then passed out cold I don't know.

Lilymaid · 19/07/2013 15:58

Nice - does that mean will put up with anything and not complain? A friend who is a GP said that as a trainee in the late 70s in a surgery in Wisbech Norfolk, they used the acronym NFN "normal for Norfolk".

malteserzz · 19/07/2013 16:43

Surprised he didn't put over emotional think I've cried every time I've seen him !

graciesmall09 · 19/07/2013 17:01

Trying to catch up but failing miserably but waving to you all. gigs hope dr lovely manages to sort out your pain.

malt glad you have finally got your date for chemo. You will feel better once it gets underway.

lily onc arranged for me to have extra half hour infusion of saline before each chemo to try and avoid dehydration as that definitely didn't help my sickness.

Really didn't want to come home from holiday Sad. We had such a lovely time although tinged with a little sadness as it was one of my dad's favourite places and I could tell why he loved it.

emin hope they get your meds sorted quickly, will be thinking of you.

Am I the only one loving but struggling in this heat?

ByeByeBoobies · 19/07/2013 17:27

Thanks all for the replies, I really appreciate it. I haven't had a chance to properly read them all yet, having a hectic few days, but once the DC are in bed I will come back and post later.

MaryAnnSingleton · 19/07/2013 18:25

waving to gracie - glad you had a lovely time,though bittersweet. Am liking it sunshine but the heat is a bit much for me Smile

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graciesmall09 · 19/07/2013 19:02

Waving back mas are you heading away soon?

ByeByeBoobies · 19/07/2013 20:33

Copthallresident Thanks for that, I am a wimp too and like you, my boobs (or my looks) have never been that important to me either. I'm hoping I'd be happy flat and use a prothesis as and when I want to.

My DC are a little younger, 3 and 4, I think something matter of fact in explanation will be all they need. Hopefully having it done whilst they are still young will mean that for them it will just be normal, they won't remember that I was different and it will just be what mummy looks like.

Trice I don't want to keep my nipples, I just want everything gone really. I don't know if I have the BRCA genes or not, they wouldn't test as there are no surviving women in the family so just going on family history alone. I don't know if they will test later as I have daughters and would like to be able to tell them if they are likely to be carriers or not. I had genetic counselling but not the testing if that makes sense.

Smee Interesting that your surgeon urged you to have reconstruction, any idea why? Should I expect pressure to have it done if I choose not to? Is it just that most do so they assume most want it doing?

MaryAnnSingleton · 19/07/2013 20:41

tomorrow gracie Smile

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