Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Tamoxigang -the 39th thread ***

996 replies

MaryAnnSingleton · 04/07/2013 10:53

cooee ! we're over here - just in case the current thread hit 1000 without our noticing Grin Bring the trolley !

OP posts:
MaryAnnSingleton · 18/07/2013 10:29

oh,that does sound a bit impersonal- though am sure you can ask questions.
We have the Calypso Mickey Mouse ice pops as Simpson's ones sold out !

I feel even hotter today,despite fan. Am going to clean in a while.With lots of fan and refreshment breaks.
Hope poorly boy feels better soon malt and poor junior smee

OP posts:
Gigondas · 18/07/2013 10:58

I did smee but think it might be an ongoing battle.

Mini gig up in night wanting to play. Woke big gig early who is now in a filthy temper. It's going to be a long day.

Cried all over therapist this morning about how bad my pain is . She made me promise to ring dr lovely. I think I have been frightened to admit how awful it is or that they can help.

Smee how is nosebleed now? did you have to do nocturnal bed change too?

Malt sorry about poorly boy- heat wont help.

Mas don't over do it. Kurri- I am sorry mad sis true to form. Hope nice sis can help.

Was pleased(ish) Leah won but luisa did seem better in the interview. Agree dr Leah IdeA is dire.

What can we watch now tho?

Copt- you sleeping off the champagne? How was the exhibition?

MaryAnnSingleton · 18/07/2013 11:02

oh gig you poor love - I'm so sorry you are in so much pain Sad Really hope something can be done.

OP posts:
Gigondas · 18/07/2013 11:05

It's my legs now- once I move its ok ish but hurts like hell at first so don't like to move. Need to speak to dr lovely.

On the plus side I don't have to get up to mini gig

smee · 18/07/2013 11:14

Malt, I'm guessing the group bit is to give you all a tour of the unit. I'm sure there'll be a chance to ask questions. Seem to remember I was told just to nip up there and ask if I could look round, so was v.informal when I did it. Did mean i got baby nurse who didn't really know v.much, so you might find it better in a group as you'll get experienced person.

DS has a strange aversion to Mickey Mouse, MAS. He says he's 'just a mouse in pants'. Grin

Gig, so have you called Dr Lovely?? Therapist's right, pain's not acceptable. Do it now, or I'm coming over.

Didn't do nocturnal sheet change, as he was v.good at sitting up and yelling for me quickly. Just changed them now though, as hadn't realised some had splattered (yuk!)

ByeByeBoobies · 18/07/2013 12:10

I hope you all don't mind me gate crashing your thread, I'm after a bit of advice. I've started a thread in General Health Double mastectomy reconstruction? but a poster suggested I ask in here.

I am having consultations about having a preventative double mastectomy and would love to hear about anyones experience of it.

In particular I was wondering about the recovery time, whether to have the reconstruction or not, what prosthesis women wear if any, if they don't have the reconstruction done.

Also, not sure what my DC will think if they see me post-op and how you would explain it to young ones.

I know I'll get the chance to ask all these questions when I see the consultant it is another 2 weeks until I see them so I'd love any advice or information.

I don't know if I am being naive but I'm thinking that I won't have a reconstruction and just be flat but I'm not sure if I'll regret it because it seems most go for a reconstruction.

I feel like there is far less to go wrong with a straight mastectomy and anecdotally, all the complications I've heard of seem to be with the reconstruction side of it.

Has anyone had the bilateral mastectomy with no reconstruction? What is it like?

Sorry for the long post, sorry to gate crash Grin

Copthallresident · 18/07/2013 14:04

gigs Angry at pain. Have you rung Dr Lovely? I will be joining smee if not, and I bet we can rustle up some more of the gang.

Summer Exhibition was a lovely evening, Lots of amazing art but I liked Grayson Perry's tapestries best and was quite fun seeing them amidst some of the types they most take the piss out of (us included with our Guardian readers kitchen table www.victoria-miro.com/exhibitions/_429/). Some minor clebs and Emma Watson (Hermione) being marched around being told what to buy Wink Quite a lot of champagne may have been drunk, there may be some headaches this morning....

Dr Leah should have been fired for that dress and clash and match orange lipstick, not to mention the glistening smooth forehead Shock No way I am letting Dr Leah near me.

Byebye You are welcome over here, we are all very happy to share our experiences to help others. I had a mastectomy without reconstruction. I had a nasty lump and couldn't face the added trauma of dealing with reconstruction, the idea being I would do it later. It been twelve years now and I just haven't ever felt it was worth going through the trauma of surgery and the side effects. I would qualify that by saying I am a wimp and that my boobs have never been that important to me, my self esteem resides elsewhere (and I really should get around to finding it). There are times I wish I had had it done but mostly to do with asymmetry and the depression where my lymph nodes were removed, which you obviously wouldn't have to worry about.

The mastectomy alone is a very simple operation, they do not remove any muscle so there's little pain. You get the prosthesis on the NHS but this website gives you an idea what they are like and the bras and swimwear you can get www.amoena.co.uk/ We are not really a beach holiday family but I do happily sunbathe round the pool in a swimming costume, just have to watch not bending over but there is tape you can buy to prevent gaping tops if that bothers you.

Girls were 6 and 9 and we told them what was going on in terms they could understand and cope with, that I had a nasty lump in my breast and that I was having it removed, a little more detail for the nine year old who is sharp and was already a Scientist. I never hid anything from them, indeed they enjoyed playing with my prosthesis, and they are totally at ease with my body shape, it is, as they say, just me. They have inherited my flat chest genes and are not girly girls so they not that bothered about breasts either. They six year old was still in the Princess phase and had more of an issue with having a bald mum, more obvious and therefore potentially embarrassing in front of her friends, but that was temporary and balanced out by being able to play with the wig Grin.

KK Hope you survive your bike ride. Goondog is suffering in this heat as well, not the weather to have a thick fur coat......

As I may be suffering a little today I am even more thinking of those feeling grotty but not in a self inflicted way....

coorong · 18/07/2013 14:10

hello bye bye, I had a single mx (cancer) and a reconstruction using my back muscle. I'm now slightly uneven. I thought I would be okay without a reconstruction, but I'm actually very glad I did have the reconstruction. It does look different from the other breast, it feels different, but you can't tell unless you're naked. I was offered an implant, but declined, but they are very popular, it was just not my cup of tea.

The operation plus reconstruction was 4 hours, that's just for one side. I had 5 weeks off work. I no problems with scarring, but had a seroma on my back that needed draining several times (quite common). My surgeon was good, my breast care nurse excellent. It was all done on the NHS.

coorong · 18/07/2013 14:13

Oh and bye bye told my daughters (5 and 7) I had a lump in my breast and it had to be removed but that I woul dget a new one. They were fine with that. Very matter of fact.

waves hello to one and all going through chemo etc - look after yourselves - I have been lurking, but am generally fine, apart from the tamoxifen which seems to have aged me over night

trice · 18/07/2013 14:14

Hi Bbb, I have had mx on one side five years ago and am not tempted to have a reconstruction. It healed much more quickly than I expected (about three weeks). I wear a prosthetic boob when I go out. I think it would be easier if both sides were the same, I probably would go without. Also having half a cleavage looks strange, if I were flat on both sides it would look more normal iyswim.

You could go for a very small reconstruction and end up pretty flat chested which would stop the problems associated with skin grafting etc. Are you keeping your nipples? I know Angelina did but I am not sure if it would be extra risk or not if you are brac2.

Copthallresident · 18/07/2013 14:57

malt Forgot to add, perhaps a group tour is also a good thing in terms of meeting some of the other women going through this together / having some familiar faces to say hello to. We have had mixed experiences of support groups on here but my informal support group was amazing, we really did laugh and cry our way through it together.

malteserzz · 18/07/2013 15:36

Gigs hows mini gigs today hope shes not bitten anyone ?
Copt your evening sounds great
Coorong nice to see you here
How's everyone else ? Ruby, Betsy etc if you're reading hoof you're doing ok
Ds still poorly, not eaten at all today but had some water, he's lying on the sofa feeling sorry for himself
Dd made cheese scones so I'll throw a few on the trolley while they're warm
Hope I meet some nice people on Monday though without sounding awful most of the people at the oncology appointment last week were twice my age and looked really poorly

Lilymaid · 18/07/2013 15:58

I dropped in at one local cancer support centre yesterday and walked straight out ... everyone seemed much older than me and it seemed like a retirement club (and I am definitely no spring chicken).
I just wanted to know about massage sessions, but all they seemed to offer was coffee mornings (what, to talk about your symptons?), art classes (no talent or interest) and the sort of complementary therapies I would consider to be woo.
2nd chemo today, so metal mouth now much increased despite drinking as much fluid as humanly possible.

malteserzz · 18/07/2013 17:29

Hope metal mouth improves lily
The support group sounds pretty dire I'm still surprised at the lack of support out there, don't know how I'd have got through this without the Internet

kitkat1967 · 18/07/2013 17:46

Hi everyone - I've had a nice day today - been out with DD for lunch and shopping. All is well except bleeding when doing a poo (I assume nothing is TMI here?) - apparently it's probably piles and nothing to worry about.

I agree about not being keen on support groups but through friends I have been put in touch with someone of a simliar age living very near me so there must be loads of us 'youngsters' around. It was very helpful to talk to someone who is 'out the other side' - the timing was just right for me as it was all beginning to look like too big an obstacle.

I have to bake tomorrow as DS needs to take 'home baking' on a Cub camp - goodness knows what will keep in this heat - nothing chocolate that's for sure.

Lilymaid · 18/07/2013 18:10

There are plenty of women out there of my age (and with children in their 20s I am probably older than nearly all of you) and most of those I know of are busy trying to hold down jobs, dealing with grown up/almost grown up children, holding marriages together etc to have much time for coffee mornings!
Anyway all of you on this thread are great so I shall stick around with you lot on the ether whilst searching for a gentle massage in RL.

Copthallresident · 18/07/2013 18:32

kitkat I've only had bad piles twice in my life, once having pushed out a 10.5 lb baby, the other whilst having chemo, sometimes going to the loo took an hour and that was with every laxative going. I used to have to stifle constipation tourettes when the head tilters asked "how are you* So yes perfectly normal.

It was pretty awful that I was diagnosed a month after another mother at DDs school and then Big Copts friend,s mum who had a family history who had pointed us at the best consultant etc. was then diagnosed herself, and then another mum at friends anti natal group also got diagnosed but the silver lining was that we had so much in common and were able to support each other, more binge drinking evenings than coffee mornings though! But I do think shared humour can be a powerful coping mechanism, and there is plenty of it on offer here.

smee · 18/07/2013 18:53

Hope metal mouth goes soon, Lily. How long did it last last time? Maybe there's another more suitable group. Ask your BCN? I agree though, this thread I've found where I've felt at home. Smile

KitKat, god how annoying. Can you get some cream or ointment to soothe them? chemo's so undignified.

BBB, I've had double mastectomy, but not at same time. First was due to cancer, second a year later was preventative. I've got silicon implants. Lots of faffing to get them right, but the op's a lot smaller than the bigger reconstruction options. I was going to go flat, but my surgeon urged me to give an implant a go. Ask anything you want. Tricky decision to make I know.

Still so hot..! Thought it was supposed to drop a bit today, but it's still baking in London. Freezer's dying.. it's dropped from -18 to -11 and the alarm keeps going off. Hmm

Lilymaid · 18/07/2013 19:10

Last time round the metal mouthwash worst until Day 8 when I started the antibiotics and antifungal. But all cycle my mouth was rather metallic. Plenty of fluids and decent tooth brushing and gentle mouthwash helped. More unpleasant was the unspeakable itchy groin area - I used aloe Vera gel to soothe but again the meds from Day 8 sorted it out.

smee · 18/07/2013 22:17

8 days is a bit of a slog, Lily. Does anything help? I seem to remember finding even water feeling wrong. Hmm

Lilymaid · 18/07/2013 22:24

Smee - I think that now I'm on my 2nd cycle I shall be a little more aware of what is going on and be prepared to ask for help. As I didn't have any scary symptoms - raised temperature for example - I just presumed I should put up and shut up. This time I reserve the right to whine ad lib!

malteserzz · 18/07/2013 22:33

I think you're right lily, if you ask there might be something they can suggest to help
Dh been googling what you can eat during chemo I did point out that he was on some dodgy sites and not to believe it all !

smee · 18/07/2013 22:58

Eat whatever gets you through I reckon, Malt. Most people find that taste changes, so it's hard to know until you're amidst it.

That mouth thing is vile. Not everyone gets it, Lily so you're unlucky. Hope they can help and definitely ask, but tick off the days. Each day's a teeny bit closer to feeling better. Each cycle's another one closer to the end. x

Hope everyone sleeps. Wishing you all zzz Smile

jchocchip · 18/07/2013 23:43

Yes nighty night. Still warm here. On that link, Tescos are only asking for tshirt and shoes which seems a little underdressed to me!
Been for a walk and seen the marquees set up for the show Saturday. Quite different from last year when cancelled as show field too soggy...
Cat seems rather warm, poor thing.
Sweet dreams and comfy night vibes to you all.