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38th tamoxifen - waiting for summer in the bus shelter

987 replies

Gigondas · 15/06/2013 12:01

New thread.

OP posts:
swallowedAfly · 29/06/2013 09:53

sorry mad multiple posts. realise now he said LCIS and i heard DCIS somehow. but the letter says neoplasia rather than carcenoma and that makes sense as i remember him saying something about them not liking to use the word. he talked to me as the intelligent professional SAF but tbh she had left the building fairly on leaving scared little baby saf to try and understand what was going on Hmm

malteserzz · 29/06/2013 09:53

Mas glad your boy had a good time tooSmile
Swallowed it all sounds positive Smile try not to speculate too much and wait till your doctor talks you all through everything. Sounds like they will just be keeping an eye on you which is a good thing. Keep busy that will help

swallowedAfly · 29/06/2013 09:59

it says i've been referred to a consultant in the breast clinic so yes i have to just chill the hell out as much as i can and wait for the appointment to come through. then cross everything that they find nothing else in tests.

i already go through all of this with my cervix so you'd think i'd be used to it. just feels a bit like my body is determined to kill itself one way or another.

drama lama'ing.

sorry. and thanks.

jchocchip · 29/06/2013 10:01

Hi swallowed. It sounds like you need a breast care nurse to talk to, have you got one yet? Its been found be accident but that is a good thing - better than leaving it to brew unnoticed. Lobular can be hard to spot I think. Uncertainty is the hard bit so grab some chocolate off the trolley and have a nice Brew while you are waiting for a plan.

jchocchip · 29/06/2013 10:09

neoplasia can be non malignant, saf. I prescribe chocolate and distractions.

topsyturner · 29/06/2013 10:19

Morning All

HND did try to suggest yesterday , that it might have been a virus .
But when I managed to Hoover up a big dirty burger and chips for dinner , I think I put paid to that suggestion Grin

Smee hope you are doing ok , and its just unreliable hospital wifi that's keeping you quiet !

Glad T and Young Lady Malt had great proms .
Mas my friend with the same surname as you , who also lives in the same area ! , was posting pics of her DD at prom last night .
I wonder if it was the same one as T ?

SAF it's bloody hard isn't it ?
No matter what we do for a living , when you go into that little room all sense goes straight out of the window .
That's why we recommend taking a sensible friend/family member with you to apts . They can remember the stuff that flies from your brain !
Hang out here , we can help !

Jane glad to hear the Piss Up In. Brewery went well , and you made it home unscathed !
HOW'S THE HEAD THIS MORNING Grin

Erm , the night I had my stomache bug , was I chatting to Mr Gigs ?
How does that bugger always know when I'm hammered sick ???

Elibean · 29/06/2013 10:23

Swallow, I agree with JChoc - uncertainty and confusion are the hardest things to deal with, so be nice to yourself: not a drama lama Wink

I have a friend who had lobular BC (7 years ago, still fine btw) and it is harder to find - so in a sense, once adapted to, maybe a positive that you will get extra screening.

I've been dismissed for 12 months by consultant, so am happy. I do have to go every year, instead of every 3 as per normal NHS procedure, for mammos - because of history of lumpiness - but I've been doing that for 10 years now, so nothing new.

Thanks again, Tamoxigang, you are a superlative bunch of women FlowersFlowersFlowers and I will pop in from time to time if that's ok.

Elibean · 29/06/2013 10:26

Trice, dh has terrible time with ulcers - he has something wonderful that covers them and stops the pain immediately. I'll check the name and let you know - it does sting badly for a few seconds, but then immediate relief.

When I had awful ulcers all over soft palate/throat (I had a sort of chemo for liver disease years ago, and it messed with my immune system) I found gargling with soluble aspirin, then spitting it out, soothed them long enough for me to eat.

They are horrid, and exhausting, and I'm sorry you have them x

swallowedAfly · 29/06/2013 10:36

you are all great! rationally, given the potential alternatives, it is lucky it has been found. i'm only 37 so a lot of years off of routine screening which is a lot of years something nasty could've been developing.

Elibean · 29/06/2013 10:43

Absolutely. But baby-saf is allowed some space in the adapting process, while professional-saf gets rational Wink

Now go pack Grin

swallowedAfly · 29/06/2013 10:52

if i'd have had insurance i would not be going. as it is i'm hoping if i can somehow get through the last days at work, sorting out animals, packing, getting currency ya da ya da ya da and then sit down on that plane and order my first drink i will be glad of it. if not at least you can buy valium over the counter in egypt Wink

MaryAnnSingleton · 29/06/2013 11:09

Tamoxigang is a brilliant name for us !!
Hope you manage to have a most lovely holiday saf without too much anxt.
topsy do you know what school ? there seemed to be another school promming at a local hotel too...

smee · 29/06/2013 14:05

Tamoxigang's fab !! As is valium over the counter - have a great holiday saf - impossible not to be stressed, but hope the sun helps. Smile

I'm home.. Yay!! Though v.big risk of another op next week. G'ah.. Thanks for your lovely posts. They think it's a massive haematoma, so blood pooled due to ruptured blood vessel. Look a bit like the elephant man, so not a good look..! Was quite dramatic as swelled up within an hour. Most painful thing I've ever had - even worse than childbirth. Only good thing atm, is the swelling has gone down a bit so not in so much pain. Hospital were lovely, so that helped. DH is feeding me chocolate and treats, so that helps too. Smile

How are you all? I will try and read back and find out.

MaryAnnSingleton · 29/06/2013 14:11

smee hooray for being home and having chocolate treats - it all sounds mighty scary though...fingers crossed that you won't need another op xxx

Elibean · 29/06/2013 16:12

trice - dh's thing is called OralMedic (one word). He gets it online, and it is a bit pricey but you can use it just on the worst ones...and it lasts until the ulcer has healed (says it helps the healing process too).

Smee - hurrah for being home, and forthcoming treats, but it sounds awful Shock Are you traumatised? Definitely chocolate and rest...

smee · 29/06/2013 16:17

Waving to MAS and Elibean. Not traumatised, just a bit exhausted and shocked by the speed of it all. Saving grace was a wonderful junior surgeon who stayed with me for two hours as she thought they'd have to do emergency op. I think without her it would have been far more scary.

Trice, I had awful mouth problems on chemo. Gargling aspirin helped, plus a strong mouth wash. Hope it's only temporary. Sad

topsyturner · 29/06/2013 16:28

Smee glad to see you home !
Hope you don't need any more ops .

Mas not sure what school friends DD goes to , but they live in Badshot Lea .

Tesco run done .
Present for the party DD is going to tomorrow , done .
Bacon baps for the family , done .

Can I have a little lie down now ?
Still feeling a little delicate ...

Copthallresident · 29/06/2013 16:48

smee Glad you got Dr Caring and hope you avoid another op, what bad luck though, I wouldn't have thought they even did much messing with veins inserting implants

swallowed a holiday sounds just the distraction you need. I've know a couple of people go off when waiting for results they know may well be really nasty but apparently were able to forget it all once away.

I am going bog-eyed on Expedia trying to fix a trip for Little Copt and I to get back at DH and Big Copt looking at hotels. It's like when you want to paint a wall beige and you suddenly realise there are a million shades of beige and NONE of them is right................

topsyturner · 29/06/2013 19:20

Where do you fancy going Copt ?
It's gotta be somewhere special to beat their trip !
There's a hotel I once saw on Masterchef , was in India .
It looked soooo luxurious , I'd love to go there .

Can't believe I'm still suffering today .
I have such bad rib pain , from all my vomiting Blush

Elibean · 29/06/2013 19:43

Copt, when there is no right shade of beige, it's time to go scarlet Wink

Topsy, I think I have a new theme for our Word games Grin

I'm glad you're not traumatized, Smee, guess shock is preferable....I wonder if they nicked a blood vessel by mistake during op? Though I suppose even messing about in there is enough to weaken blood vessels ?

Copthallresident · 29/06/2013 19:59

Eli Do you know how many shades of Scarlet there are? Shock

Topsy Agreed but sadly it is the monsoon in India, and the rainy season in Asia, Africa is too expensive, or you might get murdered by Somalians, the current plan is to head west, to look at art and ancient temples and be murdered by drug gangs..........

Are you sure you didn't eat something, another of Copt's laws is that hangovers clear up at 4pm the next day.

smee · 29/06/2013 20:27

Beige sorted, Copt? Where exactly is the western beige? Smile

Don't think blood vessel can have been caught during surgery as that was two weeks ago. Must have been a sudden rupture as the swelling was so rapid. Apparently it can happen, but v.unusual.. Confused

Topsy, rib pain sounds grim. Would Wine relax you? Smile

amberlight · 29/06/2013 20:36

'Evening Tamoxigang!

Tipsy, more water with it next time Wink

Smee, blimey! Not enjoyable.

Swallowed, your diagnosis means a very slightly higher risk than normal of ever developing a form of cancer. Odds of dying any time in the next ten years would be about the same as being run over by a passing milk float driven by the remaining Beatles. Fret ye not. Mr Consultant will explain all.

MaryAnnSingleton · 29/06/2013 20:37

am full of Pimms...
topsy that's a bit Surrey wards -so different school...
Fish and chips for supper - hope dh doesn't forget my gherkins...

smee · 29/06/2013 21:21

Gotta love Dr Amber. Though who would be driving; Ringo or Paul? Grin

Pass the Pimms, MAS. I am in need of summer cheer. Though DH has ordered us our favourite Thai curry, so am looking forward to that arriving anytime now.. Smile

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