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38th tamoxifen - waiting for summer in the bus shelter

987 replies

Gigondas · 15/06/2013 12:01

New thread.

OP posts:
jchocchip · 20/06/2013 10:33

That dr beeching has a lot to answer for copt! My bus journey to secondary was horendous 3 buses if I missed the school special connection at acocks green ;). Sat on a bus mning on way to work...

MaryAnnSingleton · 20/06/2013 10:44

Margaret is the best- I name changed one year to Margaret Mountford in her honour.
Feeling a bit more normal today -waiting for T to return (have bought him a croissant) and hope that he has remembered PE kit and has returned all his textbooks (they can't get their prom ticket or have their exams results posted unless they do and various forms are signed) He'll still be going in for singing lessons and music theory class but that's it really. A whole long summer stretches ahead.

GoodbyeRubyTuesday · 20/06/2013 11:01

malt don't be afraid to ask for extra help if you do think you need it. It's normal to have dark moments but if it's getting too difficult then better to nip it in the bud with counselling or drugs than for it to get worse. Although you may find you feel much better after the appointment today :)

I'm lounging in bed. It is ridiculously humid. I had a very wakeful night so resting now, naughty tummy. I am planning things I need for halls, I love planning Grin

I hope everyone is having a lovely morning.

Copthallresident · 20/06/2013 11:26

mas she used to be in the British Library quite often. I just itched to ask her if she wanted to go for coffee and cake.....

I was sorry to see you had such a bad time with your support group yesterday but your reaction was entirely understandable and you were quite right to get out of there. It is there to do just that, support you.

I forgot to say that wil be sending virtual hugs to gigs for the radio, and for the journey, which isn't the easiest if feeling sore.

BetsyBoop · 20/06/2013 11:46

Just popped on while waiting on chest X-ray. (bone scan pt1 done, pt2 at 1430)

Sending big hugs to malt. Keep strong, waiting sucks, but you are nearly done with the waiting now.

Kitkat thinking of you too, hope it's going smoothly.

GoodbyeRubyTuesday · 20/06/2013 11:50

Best wishes to gigs and malt and kitkat and betsy, busy day today, I hope all goes well for everyone :) x

BetsyBoop · 20/06/2013 12:08

Sorry gigs I'd missed you were having radio today, hope all goes well.

Sitting in car eating my sarnies as nice comfy seat + peace & quiet! (tis raining here...)

topsyturner · 20/06/2013 12:18

I can't wait for the apprentice ep when they dissect their lies cvs !
I love that one !

Hope all the apts are going/will go smoothly today .

Be back later , am in HNDs car Smile

BetsyBoop · 20/06/2013 12:37

Oh yes I love the cv episode too, and there are bound to be loads of tall stories to be dissected this year judging by the calibre of the candidates this year.

topsyturner · 20/06/2013 14:31

Just had wholewheat toast with crunchy peanut butter and banana on it for lunch .
Was very nice .

Going to have a coffee and a custard slice after the school run .

Starting to think my life revolves around food ..... Grin

It's very warm here today . And sunny . I should be outside enjoying it , but onc doesn't want me getting too much sun still .

I'm just waffling whilst I wait for you all to get back from your hospital apts with good news !

Mas how are you today ?
I think you did the right thing at your support meeting . If its not helping you , get out of there !
You can always go back if you need to .

Gigs have the aches settled down any ? Hope you get some nice pain killers Smile

Right , off to pick up DD from school .
Don't get up to any mischief while I'm gone Grin

Gigondas · 20/06/2013 16:37

Back from hospital tour-first radio done but could have done without going into room of doom for a chat rather than sitting outside. Back killing me so can't stand or walk for more than a minute or two . Emailed onc as cant carry on like this.

anyway resting on bed now - candles lit for malt and hoping betsy all done.

OP posts:
kitkat1967 · 20/06/2013 16:51

Gigs - sorry you are still having a rough time - hopefully your onc will have some suggestions.

Malt - thinking of you - hopefully you didn't run away Grin

Betsy - well done on getting through your tests - when will you go back for your results?

Well my first chemo is over and i survived the cold cap - I hope it is worth it as it turned 45 mins of chemo into a 4 hr appointment. I had to have extra anti-sickness meds (already!!) as there is a strong link with pregnancy sickness and as I vomitted my way though 2 (and labours) they think I will be likely to suffer. Anyhow with 3 different types of meds (plus back-up supositories Shock I hope to manage - have sent DH out for ginger biscuits just in case!

GoodbyeRubyTuesday · 20/06/2013 17:04

kitkat glad first chemo went alright and hopefully the anti-sickness meds will do the trick :) I can recommend Lotus caramelised biscuits to help with nausea, I got them as I don't like ginger ones and they were very good.

gigs :( sounds horrible, I hope the onc gets back to you quickly. Good that first radio is over though.

MaryAnnSingleton · 20/06/2013 17:28

that's horrid gig - hope onc gets back to you quickly.
No word yet from malt ? fingers very crossed
Well done kitkat
I am ok today- yesterday was a bit of a rubbish day-I've done some dusting today but no work - I did lie on my bed for a while this pm, bought another stripy top and can offer a big bag of cheesy wotsits for the trolley,oh and some iced buns.
Hospital tomorrow for chemo prescription and really hoping for head onc

BetsyBoop · 20/06/2013 17:32

gigs - glad your radio is done, but sorry to hear your back is so painful :( I hope they can get it sorted asap.

kitkat glad your first chemo went okay. I had really bad m/s all the way through with both of mine too, so I'm already stocked up on gingery things and I've dug out my sea bands. The onc has also promised me extra anti-emetics too as` he said it is a common link

Hoping malt checks in soon, I've been thinking about her all afternoon

kitkat1967 · 20/06/2013 18:06

Betsy - I didn't tell the onc as I didn't know the link then (and he didn't ask) so all I can have is the max doses of what he already wrote up - if it doesn't work then will have to try something else next time.

topsyturner · 20/06/2013 18:45

Still no word from Malt ?
Hope everything's ok .

Gigs that sucks , big fat hairy ones !
Pain is the absolute pits .
Hope onc gives you the good stuff sharpish x

Shall come back in a bit to check if Malts been on .

BetsyBoop · 20/06/2013 18:50

I keep checking for news from malt too topsy

malteserzz · 20/06/2013 19:12

I'm back and gutted
They got clear margins which is good but some was in my node, so got to have chemo then a full clearance then radiotherapy then hormone treatment
Long haul
Think I'm in shock though I was expecting it
If it wasn't in my node it would be the same treatment apart from the op Hmm
Waiting for a letter from the oncologist now which they said would be a couple of weeks more waiting

MaryAnnSingleton · 20/06/2013 19:18

oh that's a bugger about the pesky node..am sorry to hear that, but be reassured that they'll be zapping the bugger with chemo and radio and tamox. Wine and chocolate are needed i think.

malteserzz · 20/06/2013 19:25

Thanks Mas
I feel like I've let everyone down all my family and friends waiting for some good news I know that's ridiculous

BetsyBoop · 20/06/2013 19:27

whoo for clear margins but bugger it's in your node. As MAS it will be getting smashed by all the blasting coming it's way.

BetsyBoop · 20/06/2013 19:28

malt you aren't letting anyone down, that's daft. Cancer is a git but it is most definitely NOT YOUR FAULT!

BetsyBoop · 20/06/2013 19:30
MaryAnnSingleton · 20/06/2013 19:31

crikey-you aren't letting everyone down - it's NOT YOUR FAULT ! Remember how well you did with the first op ? am sure you'll sail through the clearance and you will definitely feel better once your onc has sorted out your plan of action.