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Original poster

38th tamoxifen - waiting for summer in the bus shelter

987 replies

Gigondas · 15/06/2013 12:01

New thread.

OP posts:
malteserzz · 20/06/2013 19:34

Wine and chocolate accepted thanksSmile
I know I'm being stupid

notJenkins · 20/06/2013 19:42

You are not letting anyone down malt

I had some in one of my nodes too so snap.

At least you know the plan now.

coorong · 20/06/2013 19:43

hey malt have been stalking you for your results - sorry to hear you have to have chemo - but very good news they got clear margins - what did they say about the type of tumor - must be ER positive - which by far is the best of all types to have. How long did they say for chemo? You might be back at school sooner than you think - don't write yourself off just yet!

am throwing poppy seed cup cakes on the trolley - apparently the poppy seed retain traces of morphine ... so go get high ladies!
gigs sorry to hear about your back - hope it gets sorted soon -
hello to everyone else - heres's hoping for a lovely long summer and very much looking forward to the start of the Tour De France.

topsyturner · 20/06/2013 19:43

Definitely NOT your fault Malt
It's a bugger , but you can do this .
Try and concentrate on the good parts . Clear margins is brilliant news . You will get through this , I promise you x

Original poster
Gigondas · 20/06/2013 19:43

More wine and chocolate for malt- there is no right way to think about all this And i can certainly relate to the feeling of upsetting your family.

But you have better idea of plan now do focus on that.

Kitkat- sending you nice calm vibes. I don't feel sick now but took lovely nanny feeding me and huge long lie in bed to fix me.

Onc replied - if back pain is due to mets should be fixed by rads quite soon. If not, we look at pain relief/working out cause.

I may rewatch apprentice with dh.

OP posts:
Original poster
Gigondas · 20/06/2013 19:45

Does this mean there Is a cool girls corner in the bus stop where you can drink southern comfort with others who had nodes?

OP posts:
topsyturner · 20/06/2013 19:47

Eek kitkat !
Suppositories ???
Think I'd rather be sick Grin
total lie , I hate being sick

Gigs are you on daily rads ?
How long for .

topsyturner · 20/06/2013 19:48

I had nodes !
Bagsy I get the best seat in the cool girls corner Grin
I'll bring some Tia Maria ...

notJenkins · 20/06/2013 19:54

I'll bring some rough cider.

Original poster
Gigondas · 20/06/2013 19:55

Every week day for another 9 days.

I am feeling sick myself so think you can have cool girls corner yourself.

OP posts:
kitkat1967 · 20/06/2013 19:57

sorry about your news Malt - like everyone else says the chemo will blast it and the op will remove everything. I'm also guessing that you are ER+ due to you mentioning the hormone therapy - remember that they have this covered and know exactly how to manage it now and long-term.

I feel awful - headache which I think is from the cold cap and stress, and terrible nausea - anyone any idea how long that will last? I am hoping if I can sleep tonight I will at least get rid of the headache.
I have been told to drink loads but can't as it makes me feel sick Sad

Topsy - I feel eek about the suppositories too - they've given me 2 boxes of them - hopefully it won't come to that.

malteserzz · 20/06/2013 20:00

It was a lot to take in, he wanted to examine me I asked for the results first!
Yes he said it was positive and overall was grade 3, it was a 23mm lump. They were talking about making sure it was all gone so I could live to 80 which I think may be a bit optimistic but nice to hear
Hope everyone else is ok sorry to be all me me me x

malteserzz · 20/06/2013 20:04

Kitkat and gigs sorry you both feel sick :(
Have told my best friend as nothing will happen for a few weeks we will go to see robbie and olly next week at wembley weve had the tickets for ages but I didn't know if I'd be able to go, sure nobody shares my musical tastes but I'm excited !

graciesmall09 · 20/06/2013 20:08

Popping to to check on you all. malt clear margins is a great result. Bugger about node but chemo will zap that before your clearance. You have nothing to feel guilty about. You didn't ask for this and you didn't cause it. Hope your letter comes through quickly.

mas glad you are feeling a bit better today. Hugs to you and well done to T getting through his exams. DS still has one more to go on Monday - Physics and then he's done.

gigs hope you get your pain meds sorted and that the rads don't leave you too drained.

Hugs to all those who need it. Miss catching up with you all.

kurri any news on your mum's house?

coorong · 20/06/2013 20:10

Malt, you have a plan .... and yes, tonight it's you you you, but that's what happens

graciesmall09 · 20/06/2013 20:11

x-post with kitkat sorry you are feeling yuck. Remember to take all the anti-sickness things you get.

jchocchip · 20/06/2013 20:39

Hugs to malt good news about the clear margins, pain that you have to have node clearance but living to 80 sounds a good plan!
Kitkat Shock suppositories! 2 boxes! Hope the headache goes soon.
gigs let's hope the rads sorts the back pain. Rads is very tiring just having to travel every day so hope littlegigs let you have a gold night tonight.
mas hope your wobble is over and you have chosen more stripy tops :)
Down to Mum tomorrow.

coorong · 20/06/2013 20:41

whoops malt that came out wrong - I meant - you need time to take in the plan - and everyone's batting for you --
can't join you at the node party - but will pass the ice cubes for the southern comfort - god that takes me back about 30 years .....boarding school staple, "comfort and coke"

amberlight · 20/06/2013 20:54

Bringing some ginger biscuits and a pile of assorted crisps to the party trolley.

Malt, believe it or not it hardly changes your odds, having it in the nodes. V annoying, yes, since it's more treatment - but the more treatment with the modern stuff brings the odds back to very good. So, not the news you wanted, but still very good long term prospects. Have a cider. Or two.

Gigs, lots of rest for you. And a hug.

Kitkat, rather you than me with the Unusual AntiNausea Option!!

MAS, glad you are having a better day than yesterday.

Gracie, hurrah re end of exams in your household too. Here, DS has been to Uni for a whole day of statistics testing. It's tested all of us, I think...

malteserzz · 20/06/2013 20:57

I'm getting all the sympathy texts now sometimes wish I'd not told anyone it's like the day I found out all over again
I know they mean well Smile
Black cherry cider anyone ? Sounds wrong but tastes so right

amberlight · 20/06/2013 21:04

yup, that'll do for me...

malteserzz · 20/06/2013 21:16

Amber I cross posted with you thanks for your kind words, you do all normalise things for me Smile
Cider is lovely

kitkat1967 · 20/06/2013 21:34

just popped back to say that i am feeling much better - able to each ginger cookies (posh version of ginger biscuits!!) and drink.
I think a lot of my problem was that the treatment started at 11 and finished at 3 and I was not able to eat during it - next time I will make sure I tuck into something substantial before I go in Grin.

Malt - is your next appointment with the onc then?

smee · 20/06/2013 21:37

Malt, I'll join the node party. Was in 4 out of 22 with me. It's a sod, but when I was despairing about it, a nurse friend told me in a way it was good as they'd definitely chuck everything at it. Hard to hear at the time, but am so glad now. Smile

Still can't catch up. Been out all day and at DS's show tonight. Will try and do better tomorrow. Waving to all. Am drinking a toast to you in a bit, Malt. xx

Copthallresident · 20/06/2013 21:49

Malt welcome to the stage 3 and nodes bench in the bus shelter, group hug, which will become extreme and maudlin after all the retro adolescent drinks. I can back up what Amber said, but from experience, four of us qualified for that bench 12 years ago, a couple had many more than one node involved, weren't ER+ and were Her 2 Neu. We are all still very much alive. I was horrified when I discovered a node was involved but it was a horror born of my preconceptions about Cancer not the reality. And now you have a plan, get the next six months or so over with and then life will go back to normal

gigs I hope the onc can help with your back, backs are painful things when they go wrong. I remember the delight of helping DH pee and poo in a pot when he literally couldn't move at all without shrieking in agony. (I am really not appreciated sufficiently) DH does suffer from man ailments but I have to concede the back was clearly bad even by womanly standards Grin.

kitkat sorry you are in the very urggghhh phase. It will get better over the next few days. I practically survived on miso soup, but I guess it is a matter of personal taste. Beware, apart from miso soup, don't eat any foods you are fond of as your body may blame them for your current predicament, took years before I could eat dumplings or Asparagus. By the end of my treatment my body was flailing around so much for something to blame that I felt nauseous just driving past the hospital.

So DH and Big Copt are in the lounge ringing up with minute by minute accounts, and they are able to facetime from the bloody plane......