Tamoxifen 28

[Gigondas]

Another shiny thread

Smee, I agree with you about the need for the paranoia box - had my first sleepless night for ages - it is not a coincidence that I have a mammogram this morning! Seems selfish when others on here have real things to worry about.

Kurri and Amber - it is reassuring to hear how well people with aspergers/ASD cope with life most of the time as school believe my twins both are on the spectrum. I still wonder if the behaviour is due to the stress over the past year but we have a CAMHS appointment coming up (finally) who may shed more light and touch wood we have had no meltdowns at school so far this term.

Just seen it is MAS's birthday today - so happy birthday MAS.

Waves to everyone else And good luck for those with appointments this week - sorry have become definitely a lurker - I am back at work now and we are doing a cosmetic job on the house with a view to selling and re-locating. Poor dh is really suffering now I've get my energy back!!

I'm still here. KK it wasn't your fault in any way - it's the people who wade in with words like 'f*witted" to describe our clumsiness and mistakes that is the scary thing. And of course NT people are sometimes embarassed by the seemingly weird responses from us. Don't know if it helps, but have a peruse of www.flickr.com/photos/46385073@N03/7589618648/in/photostream which is how my brain processes supermarkets, big indoor social events etc. Who's who? What are they doing? Where is stuff? Add in a blast of perfumes and aftershaves that seems like we're standing in a bucket of the stuff....and noise that is absolutely deafening (with no idea whose voice is which)...and our brain wiring overheats more and more until it fuses. Literally. Then we either can't talk, or can't make the words join up. It's horribly scary, and even worse when people then get angry with us, or disappointed with us that we're not remembering all our politenesses for them correctly. I think if their brains did this to them, they'd struggle to say the right thing to the right person too. So much easier in a quiet, still, peaceful place where just one person is chatting to us.

DS is a bit scared. He's in the foothills of the autism spectrum, but his main disabilities are dyspraxia and short term memory deficits, both of which make it hugely hard for him to adapt fast. I'm SO proud of him and what he's achieved in life, and really really hope that this will be a success for him.

And none of this has anything to do with BC really, except to say that handling all of it on top of this little lot has been eek and sometimes my ability to not-get-scared is rubbish. So big apologies for me running away.

Morning all seeing them off to uni is eek making, without anything else going on. Phoned dd this morning and she was sick with nerves. She texted that she had caught the bus, so I have to let her get on with it. Off to work now

hi 1in8 good luck for the mamo. do you have to wait for your results? let us know how you get on.

happy birthday mas !

hello eeryone, waiting for sister to come to take me to get my wig - dd has told me that I am beginning to look like a chemo lady with very little hair left so i need to start with the scarves i reckon

At least your dd not likely to burst into tears when sees the wig- just went to get mini up from her nap and we had tears and grumpy face until I took the wig off (big gig on the other hand loves it).

Good luck for oneineight

Morning All

Floors hoovered .
Floors washed .
Laundry in the machine .
Going to go and eat my own body weight in junk food now , and find something crappy to watch on the tv .

Amber my next door neighbour has an aspie son , and she holds you up as her finest example of what aspies can achieve . She (and the rest of us) thinks that you are a wonderful person with so many great achievements !

How are we all today ?
Gracie is this last chemo being good to you ?
Gigs are you cooking anything cakey interesting today ?
Mas is it your birthday today ?

Much love to all the mums with empty nest syndrome today . All the babies flew off to university this weekend , must be strange for you all .

Right love to the rest of you , but I'm off in search of food now

I was probably going to do chocolate cake for big gig (It is milky chocolate one with chocolate chips in and Horlicks in the mix which sounds sickly but is actually very nice and gooey). I don't know what is on dinner menu yet- it probably should involve the broccoli mountain in the freezer.

Is a new place home or away on topsy? That is always good as where they find people that wish to move abroad to somewhere they have usually never been or where they dont speak the language amazes me.

And surely if all else that thing with David Dickinson where they have to decide if they will auction or sell tat antiques must be on. It's like a 30 minute morality tale on greed.

Gawd , am not desperate enough to watch sell your grandpas medals antiques shows

I have the whole back catalogue of Jeremy Brett as Sherlock Holmes on the sky box !

Here's hoping mammo's not too squishy and that they tell you it's clear there and then. Am sure it will be xx

Thought you were saving up Downton, Topsy. That'll kill an hour. I have a bar of delish organic choc for you. Hugely posh and decadent. Tried to give it to DH's Great Aunt we visited on Sunday, but she gave it back. Apparently only Dairy Milk will do..

Gig, how you feeling today?? Bugger that the kids have opposing views on the wig. Soon be hat weather, so that'll be another option. I loved it when that kicked in. Beanies were my hat of choice.

OTM, side effects waning, or still a bit stuck in them? Hope you're feeling not too bad. x

Gracie, where are you amidst it all. Are you in a slump of exhaustion still?

Amber, I am in awe of all you achieve too and it's ever so interesting to hear how you feel and see the world. You are one strong woman.

Jane, did DD manage to get up on time?

Where's MAS. need to know if there's any birthday cake left if we're celebrating her birthday or not.

Ooh what a jet setter I am. Just back from Ireland - phew!

I am so late catching up with everyone's news, so I'll just say, 'bugger, bugger, bugger' for all those struggling with dxs and treatments. I'm here for all of you.

MAS - Happy, happy birthday for today. The shepherds pie and wine sounds delicious: keep going with the treats.

In answer to Gig's question a page or two ago - I think you definitely may be the only person I know who gave up wine during chemo. Doh! indeed! Wine is a godsend during chemo - and it's my biggest piece of advice for you, MAS - keep glugging. And I am so glad you get to keep your hair too. x

How was the wedding, Sometimes?? Fab, or hard work. I always think weddings fall in one camp or the other..

Smee I just remembered Downton , am watching it now and planning a prison break out for Mr Bates ...

How was Ireland Sometimes ?
Did you survive all the mad rellies ?

Oh four letter words - DS hasn't coped on day 1 and has already phoned in distress. Disability support helping handle it.

all round, I think.

PS I am not awesome. I am just as mad as a box of frogs and I do too much. But thank you.

PPS frizzy hair a year after stopping chemo. Hair straighteners - do they work??

hello- passes chocolate birthday cake to everyone... thank you for kind wishes,'tis my bday today and I am ancient ! Am being taken out to lunch by old school friend and then will go and buy nice treats for our supper tonight. Have had really long chat with old friend on the phone too.
Thinking of you eight - hope mammo is tolerable- and lots of good thoughts to topsy. Welcome back sometimes !

amber poor ds - will just be a hiccup I'm sure,until things become familiar and routine- it's a huge step after all.

Mad as a box of frogs mean you fit right in here, Amber. Still think you awesome and nothing you can say will persuade me you're not. Poor DS. So very hard for you too though. is the least you deserve.

Happy Birthday to MAS. Have a treat filled day.

I'm back. All clear - yippee! - can put lid back on paranoia box now. I did not drink wine on chemo but only because it tasted foul - like everything else - my boss (clinical professor) -told me there was no reason to stop drinking alcohol on chemo. Jane - very impressed by weight loss - having to watch what I eat after finishing chemo as I seem to be permanently hungry - but did celebrate my negative results with coffee and chocolate this morning. Amber - hugs - horrid for you to be worrying about your ds - but the student support at universities is much better these days than it used to be - so I hope they can help him overcome these initial days - which to be honest is stressful for everyone never mind those with additional problems. On a totally irrelevant note does anyone have any bright ideas to help ds2 stop chewing his school tie before it is totally destroyed - I think he is doing it out of stress and to be honest a bit of tie chewing is a probably a preferred option to what he was doing last term - but a bit worried he will get teased because of it.

hooray eight !! xxx

Wa-hey for being clear, OneIn Eight!!!!

NO IDEA on the tie thing though. Poor lamb....

The wedding was good, thanks, and a lot of fun. The rellies do just keep getting madder though. When we arrived one of the families had made us some food - very nice of them, but there was enough to feed an army. We hardly made a dent in it. The next day when we dropped round it had all been heated up and was put out again. And when we left, they bagged it all up and sent us away with it to reheat for breakfast the following day Luckily we found a large empty bin, and only one of our party had to make a quick visit to hospital with food poisoning, so the rest of us got off lightly

DH's Mum is now such a bad combination of weird and deaf that it is next to impossible to have a conversation with her . Bit wearing.....

Eight, yippeeeeee!!!!!!!!

Eight - hooray for everything clear

amber - hooray for being back with us and being mad as a box of frogs
sorry DS had a bit of a hiccup - I'm sure he will find his feet, - it's a big step for youngsters and very scary, so good luck to all the DC starting Uni.

Eight - no idea about the tie chewing, - my DD used to chew her cuffs - we got through rather a lot of sweat shirts! - would something like a little stress ball he could carry in his pocket to squeeze in times of stress help? - or some other sort of 'fiddle' object. I find even now she's grown up, DD still likes to have something in her hands to fiddle with.

Sometimes - well done for surviving the mad rellies although eek at food poisoning - did you manage to sight see at all, or was it all wedding shenanigans?

Happy birthday MAS , did you get any nice prezzies? - your supper treats sound good, - and I'm glad you had a nice chat with your friend

My friend has sent me photos of her new grand daughter (9.5 pounds at birth, now three weeks old) she is just gorgeous such a beautiful little girl, I am beside myself with jealousy

I didn't drink wine during chemo - but only because of the taste thing, (I didn't drink tea or coffee either) but I would certainly have quaffed some if I'd felt like it.

Have been to yoga this morning, and got some exercise DVD's out of the library - DD and I are going to do them together.

sorry been absent, laptop still at laptop hospital and desktop is as slow as bejiggins so just popping on quickly before school run and dancing (not me DD).

Thinking of you today topsy hope appointment goes well.

Yippee to 1 in 8 fab news.

Welcome back sometimes, glad wedding went well and you survived reheated food escapade.

Hugs to amber. It is likely first day wobbles for DS. It is bound to be stressful for him being away and you worrying about him.

Happy, happy birthday mas. I will just have a teeny tiny piece of cake as I stepped on scales this morning and nearly had a heart attack.

Been super busy this morning. We are having a new floor put down in the hall so DH and I ripped up the old one, I've done mountain of ironing and washing is currently having a soft water rinse on the line .

Huge waves to everyone. I will hopefully get on later inbetween homeworks. I miss my laptop