Tamoxifen 28

[Gigondas]

Another shiny thread

Ow, don't shout! Pass me those paracetamol, will you? And that coffee?? Yup, that was one heck of a party!
Now to get ds to Uni.

Invicta - have they done your measuring radiotherapy thingywhatsit yet? The one where you get free tattoos on the NHS? Takes ages, and your arm goes numb from holding it back above your head for a solid hour without moving. And their rulers are Very Cold on the Skin.

Radiotherapy - I hated it because of my own sensory/routine needs that only apply to me, not to others. But I had no problems - I used an aluminium free deodorant and very gentle soap, and used Aloe Vera gel on the boob every day rather than their aqueous cream (which was too oily for me). But I wouldn't recommend ignoring your specialists.
You'll notice they muck you about with appointment times every day.
You'll also get very used to stripping off in front of a wide variety of medical people, technicials, nuclear scientists, etc etc.
Ask for a blanket if you're cold.
Take plenty to do whilst you wait.

Aha, wondered why it'd gone quiet here. KK, [hugs]
I'll be somewhere else for a while

thanks kk and ned and topsy - it is like that..surreal.
Poor kk - read the thread- am so sorry you were upset though I know your dh was probably not aware that his tone and the urgency were wrong- I'd've been very freaked if I was ds.
Have just had a bit of a scary afternoon- quite funny in retrospect...we went for a walk on the chalk hills which are lovely and often grazed by cattle/sheep.There were cows up there today and someone's dog had spooked them and they came tearing after them and then us - we just ran like mad things,I fell over so dh had to pick me up - ds had run to the gate -then we discovered we'd dropped our wild flowers book and dh's sunglasses,so he bravely went back for them. They were lovely black Dexter cattle but quite chunky so wouldn't have relished being trampled.

Fuck me - 50 threads on is it ok to give a baby a bit of chocolate? There are some odd fold about and no mistake. kurri get the kurri mobile as we need to steam over and be the voice of reason. aibu

mas that must have been scary - and dh is brave to go back. Hope you are ok? Did you see my suggestion on a nano as has. Pedometer in it for walking? An happy to do a walkers companion with you as its my preferred form of exercise and I need to keep it up too.

topsy thanks for patronus offer (is it form of tom jones - you know there is a Tom tribute night this week on Friday). Actually cooking for friends, playing with the gigs and ESP dancing round kitchen with mini gig helped .

kurri I don't blame you for being upset but hope you had a lovely day. I totally agree about aspergers being more of a character thing- ex had brother who was high functioning but undiagnosed until late (and he had traits) and you just got used to it.

amber how is the Head and is ds settled?

it was scary ! I think I'll stick to walking in less wild places -though we've walked there a lot among cows and whatnot.
I think I will def. get a pedometer- I don't like listening to music or anything when I'm walking though- will take a look online. I prefer walking to anything else too gig.
I'm thinking maybe I need to buy a thermometer , for temperature monitoring ? what else might be useful- I expect the chemo nurse will tell me.

it's a character thing in the same way as a Blind person will continually fail to notice someone's new hairdo...or a Deaf person will continually fail to notice that someone sounds sad. We don't mean to blunder. We just don't have that bit of the brain. Yes, we can be an embarrassment, but heck I've spent a whole lifetime trying to see things I can't see and hear things I can't hear and embarrassing people by not being able to get it right for them, and apologising and apologising...and I'm often exhausted by it too :-( and I don't mean that in any sort of having-a-go way, it's just really scary when we get called f*wits etc. So I totally get how embarrassing we are, but I still get so sad when occasional people on threads are aggressive about it
Head ok. DS settled.

I don't think you have anything to apologise for -it is like me apologising for getting cancer or having brown eyes. Wasn't meant to be a dig as I can't imagine how hard it is for you amber and I admire all work you do. There are a fair few people at work with this issue and I feel for them as there is little help or understanding .

Hmm-digital thermometer and then nice stuff to pamper yourself (a cushtie neck cushion is nice as helps if having to have long spells where in bed or resting) . I would avoid the pedometers with digital link in as frankly you lose interest. but biggest thing is nutrition as the focus has helped me (I love cooking) but is single most helpful thing in lifting how I feel.

Btw that was a great suggestion on cooking courses for big gig so will look into it .

Dh on phone to mil... I think he may need a drink

hello all back from a lovely outing, - the sun shone and we all enjoyed ourselves (even if I did slightly over indulge regarding the buffet )

Thanks for kind comments re my other thread - as I said it was a wobble, we are fine 99% of the time but dh has been a bit worked up over this outing - although he enjoyed himself thoroughly once we got there.
amber - I know how hard it is for DH, and being called names for something you can't help is cruel and unfair.

My DH find the world a very confusing place at times and life can be very tough for him, and yes sometimes he does something that upsets me, or says the wrong thing or is unintentionally hurtful. But he has so many positives, - he's honest, fair, kind, funny, totally loyal and trustworthy - that the little negatives pale into insignificance. His AS is part of the special person he is, and I love him dearly.
And I'm sure there are plenty of things about me that irritate him at times

I was just venting online so I didn't snap at him and say something in the heat of the moment that I didn't mean. I'm so sorry if my thread upset you, - you know I think you are a fabulous, amazing, strong woman, and a person I always feel I can turn to for advice and support. xx

MAS - stampeding cattle are scary beasts - some got out from the neighbouring field when I was at my sister's. They were all over the road and in her neighbours garden - getting very nervous and trampling all the plants.
Luckily DSIS (who has been farming for years before she moved, and is totally used to cattle) was able to round them up and guide them back to the field. I was terrified and useless, and trying hard not to jump onto the other side of a stone wall out of the way

Gig - babies and choc thread sounds mad - I must go and investigate
I'm going to have to do a lot of walking tomorrow - I think I have consumed my own weight in cheese this afternoon

'fraid I had to stick my twopenworth in the chocolate thread, it made me smile. I do think that women are under more pressure now the weaning guidance is 6 months. Not that I disagree with that, but 20 years ago the bounty weaning pack included a jar of marmite and peanut butter was recommended too...

Cows can be mighty scary, I remember turning back on a walk when the dcs were small.

kk well done for venting, thinking of the positives and going on to enjoy your day out.

I had a lovely afternoon drinking tea with my best friend - not seen her in ages but we always pick up where we broke off before.

dh defrosted two packets of smoked salmon so we had to eat them both for tea :) So much for his economy drive :)

Go jchoc voice of reason. Sounds like you had a nice day as there is nothing nicer than a friend like that when don't fill in the gaps.

kurri I seem to be cheese mad at the moment so will join you in walking it off.

topsy am conjuring tom jones patronus and sending you love/good thoughts and candles for tomorrow .

MAS, scary stuff. Good job you ran. I once sat in a tree for two hours with a friend's dog for similar. The farmer came and rescued us laughing lots.

Kurri, men are useless, but a man with Aspergers is more than a handful. Glad your day cheered.

Gig, have you posted on loopy-thread?? Will pile over later if I've time.

Amber glad DS is settled, but how's the house feeling without him? Hope feels okay. Must be quite a time for you emotionally. Party sounds ace though.

Jane, huge congrats on losing so much. Am ever so impressed. I'm lucky in that I keep slim pretty easily. Think I'd be useless at dieting, so I'm in awe.

Might have to get the paranoia box out again. It's probably connected to hearing about you MAS and Pink too. I'm betting we're all feeling a bit more edgy - selfish and self centred, but human and predictable am sure. Ever since the last op, I have been having all manner of problems with my new implant. It's too big, so needs to be swapped, but there's this weird pit - like a hollow below my clavicle (hugely attractive!). There's also a lot of lumpy bone there - I think it's the scapula, but am guessing. It feels like bone, but it nowhere near matches the other side, so have been stressing about it. Have just cracked and e-mailed BCN asking for an appt with my lovely surgeon. DH has just bought me a big bowl of crisps and a bottle of beer. G'ah to this bloody disease though. Never quite leaves your thoughts does it.

havent posted yet and downton on now. But hugs smee - I will do shift on the paranoia trunk as perfectly natural to worry esp with recent events. If I could just have the physical without the emotional fall out it would be a lot easier.

Glad you have taken steps to follow up and enjoy the beer and crisps.

Though actually I feel a bit ridiculous. After all I had a bone scan in March, so rationally it's probably a bit early to feel quite a big lump. I've only recently felt able to touch where the last mastectomy was - not through pain, just couldn't quite bring myself to. Means I have no idea if it's a new lump or has been there all the time. Weird what all this does to us.

Hope Downton's on form. That's another one I have never watched. I am useless at tele. News is my thing.

It's as contrived and obvious as ever but I still love it to the extent I nearly tipped over the playmobil love nest big gig set up for Bradley wiggins (cyclist figure) and the Christmas angel .

I can't touch my lump sight either really so I have no idea what is scar, radiation damage or whatever else.

Amber, thanks for posting that comment about having AS conditions. i think it's good for us alleged NTs to see how it is from your POV. I know, as a mother of aspie, also probably wife of aspie (though DH has never been assessed and it's not something we'd look for now anyway - i actually feel v sad he didn't get the help he needed as a youngster, as he's had a lot of problems as a result), I do get exasperated at times, and find it all very difficult. But that is offset by having some very lovely and witty people in my life too. And so far I haven't felt the need to leave permanently. Have you seen the thread on Chat about a mother dropping her AS son off at uni for the first time? It lightens the heart.

Hasn't it got Shirley Maclaine in this time round? Bet she's fab with Maggie Smith. Love her even more ever since I heard she's had BC.

Odd the whole post operative psychology. On a good day I'm quite interested in it, but it's tricky to navigate. I made myself look in the mirror yesterday. Have done way too much prodding, so it's sore.

Waving to Baskets. Have a meeting in town tomorrow, so might duck into a book shop to the first of that trilogy.

And, I should say, Amber, they all get pissed off at me too, at times. Just they don't post about it on social networking sites, not as far as I know anyway.

I LOL at bradley w and xmas angel love nest . She's some girl, Big gig.

Hugs to all of you, and well done on the scary wire (smee), terrific weight loss (jchoc), and escaping the scary coos (Mas). And everything else. You are all doing great.

I read that thread on the mum sending her aspie son off to uni , and I must admit it brought a lump to my throat !

Gigs thanks for summoning the Tom Jones Patronus !
Now that's gonna make me giggle in the Oncs office tomorrow .
Apt not till 3pm , so will prob be on here lots tomorrow for distraction .

Have recorded Downton as DH wanted to watch George Gently , and Downton is my guilty pleasure !

Off to bed now ladies , hope you all slee the sleep of the righteous

hugs for amber and hope ds is settling happily. smee am sure all the recent stuff on here has been unnerving - quite natural, best to have your mind put at rest by appt. with surgeon.
Have just had lovely birthday supper with parents- dad had bought champagne and mum had made shepherd's pie - all lovely, with pudding and cake too ! Am so very lucky.

gig cookery school for big gig

Mas is it your birthday ???

Yes, MAS have we missed your birthday?? If so, we must celebrate tomorrow.

Topsy, will be about in the morning to distract you. Sleep well zzz

Night all xx

Happy Birthday, Mas. and

And very best of luck for tomorrow's results, Topsy. YOu'll not see me on MN tomorrow - I think I need to do housework and maybe get my to do list out of my bag .....

Yay, I can do emoticons.

Happy birthday for tomorrow mas love the cake :)

fingers crossed for you topsy

nnight all - have to phone dd1 at 7am to make sure she hasn't slept through her alarm...

fingers crossed and good vibes for you tomorrow topsy xx

Happy birthday for tomorrow dear MAS xx

amber - come back sweetie and tell me I haven't scared you off with my whining about DH, - am panicking because I have made you feel bad, - and it's the last thing in the world I would ever want to do xx