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Tamoxifen 28

992 replies

Gigondas · 03/09/2012 13:36

Another shiny thread

OP posts:
KurriKurri · 15/09/2012 10:00

Morning all,

OTM - sorry you are feeling low, it's probably no comfort to know that feeling the way you do is as normal as a normal thing Grin there is so much to deal with physically and emotionally it leaves you wrung inside out. I would definitely have bitten DH's head off if he'd made the 'sit on our arses' remark' - I think its very hard for anyone not having chemo to appreciate quite how bloody awful it makes you feel (One of my chemo nurses said on one of their training courses they use something that reduces the amount of oxygen they are getting (a mask or something) then they tie weights to them, then they makes them attempt household task, like getting up to answer the door Grin - to give them an idea of how chemo patients feel.

But of course - your poor DH because he will be going through his own stresses and worries too, and I think spouses sometimes feel guilty that they are sometimes tired or snappy or whatever because its as if us having cancer, means anything they feel pales into insignificance. So their feelings get repressed. So actually probably a good thing that he snapped and said a shitty thing.

Also (nearly finished - promise Grin) one word - steroids, make you feel like hell, make your emotions all over the place, make you very snappy and aggro.
Be kind and gentle with yourself, take it bit by bit, as Gig says - living in the moment, and making the most of the times you feel a bit better, and allowing yourself time to feel lousy, is a good way to get through. And you will get through my love, you will. xx

As far as woo is concerned - I'm in favour of anything that helps the way you feel, I definitely have my woo things that keep me sane. But I think it must always be complementary rather than alternative, I woulddefinitely not give up the chemo.

Can you tell that I was one of those people who always found it hard to stick to the word allowance in essays Grin 'some good points but try to make your writing more concise KK' Grin

jane - kudos to you for teaching your kids to cook, they sound brilliant. My Ds has always been keen on cooking, and he and his partner totally share the cooking. DD likes baking and eating the results - she is less inclined to chop onions etc.

Gig - Barbie is a demanding girl IIRC, - one that talks/sings sounds like hell interesting. I had to knit a whole wardrobe for DD's Barbies, - (Knitted evening dress - the ultimate in chic), and I have had countless mindless conversations channelling Barbie thoughts 'shall I go shopping?, which shoes shall I wear?, Oh no I think I'll go to the beach I'll just change into my swimsuit. Hello Ken ' - Barbie is a stream of consciousness conversationalist in my experience. Plus she's in for a sad time when she discovers Ken has no bits just a flat area.

Love to all, hope everyone can get some peace and relaxation this weekend.

topsy I will make a list of what books I have and PM you over the weekend, then you can let me know which ones you want.

xx

overthemill · 15/09/2012 10:04

everybody, thank you so much I can't express how much all you say means to me. I am in awe of how much you all have to give despite your own very big struggles. I know it will get better because it always does but in the very epicentre of the storm it feels s lonely.

I went back to bed and lovely cuddle with dh and now although I am tired we are going to do the 2 hour drive to the very nearest seaside. I need ozone and a walk with dog on beach and fish and chips. I can always sleep in the car and dd can do her homework in the back! so love to all and don't worry if i'm not back today cos seaside may zonk me out Grin

MaryAnnSingleton · 15/09/2012 11:15

seaside sounds fab OTM - breathe in the fresh air,will do you loads of good.
How funny about the singing Barbie (not for gig I'm sure- we were talking about the talking Captain Scarlet which ds had only yesterday)

jchocchip · 15/09/2012 11:20

cherry blossom tree sounds awesome :)

a day at the seaside sounds like just the thing otm
kk knitted barbie evening dress :)
mas fraid it does make a mess. we do have a dishwasher but I haven't managed to get them to clean the kitchen afterwards.... it is not such a big job to straighten up once the dishwasher is loaded...
been for my run but didn't get up in time and in my rush forgot my barcode :( don't know if I will be able to get my run onto my list. Came 242th today, lots of runners!

Baskets45 · 15/09/2012 12:45

In a rush as have to get bus in 30 mins - ds's sodding drama which is a huge schlep. ds3 has refused to take him, which is fair enough.He's my child etc. He has studying to do - so far has watched film with father and bro. I'll be fuming if he does more of films while I am out. . But tiredness is just something to work through

graciesmall09 · 15/09/2012 12:51

I feel tired just thinking about a run jane lardy ass emotion. What a clever daughter you have. My lot are great at eating it but not so good at the preparing or in fact washing up.

kurri thinking of your friend awaiting tests. Don't know whether it is just me but that is all I seem to be hearing about. It was surgeon who said hemp oil was good for rads - he advised Body Shop. He said he thought it better than Aloe Vera but my chemo nurse didn't agree she doesn't like my surgeon. New hair sounds fab.

mas that is one of the drugs that lady is on, she is on an intravenous one as well due to her bone mets.

So we are all going to ambers party. Wonder what I should wear? Can't believe no-one told me wine during chemo was good. I thought I wasn't allowed any until about 5 days after. There was DH celebrating his birthday with a bit of fizz and I was sitting with sparkling water with lemon.

otm honestly pet it does get easier. I was queen of moans during chemo. I really thought I wouldn't come out the other side. Everyone here spurred me along and its done. As for shouting at DH well I was queen of that as well and my DH is so easy going. I even had a major blow up with him the night before his birthday as he 'dared' to go downstairs as he had left the window open and I told him he had just spoiled everything all because I had Happy 50th banners up. Be like me blame the steroids.

I miss my laptop. I am having serious mumsnet withdrawals.

jchocchip · 15/09/2012 16:37

I still have a lardy ass, which is why I need to run and earn some calories for the weekend because of my myfitnesspal net calories diet :) Did I tell you that I have lost some more weight this week? I'm quite excited to be only 1lb off 18 stone... Blush Will soon have lost 50lbs.

I do remember my Dad being grouchy on steroids, too.

graciesmall09 · 15/09/2012 17:17

50 lbs wow jane that is immense. I have 5 stone to lose. Am umming and aaing about whether to go back to slimmingworld or go to a dietician. I have the name of a dietician/nutrionist so I may give her a go. Did you just use myfitnesspal. I used it a while ago but I was pretty rubbish at keeping it up to date.

KurriKurri · 15/09/2012 18:08

jane - 50lbs is an incredible achievement - congratulations, you must have worked so hard, and you sound like a very active healthy woman Smile (totally in awe of your running - I have been doing a little bit of jogging and I am so slow and have to keep stopping because I'm puffed out Blush)

gracie - I'll look out for that body shop hemp oil, - am going shopping on monday.

I'm off on a boat trip on the Broads tomorrow - really looking forward to it, DH, DD, DS and DDIL are all coming too, it is this paddle steamer - there's going to be a buffet and jazz band, and loads of friends are going too, so should be a very fun day Smile

jchocchip · 15/09/2012 19:13

Well I lost a stone during the year before my dx, then after my op started thinking that I really needed to lose weight. I joined myfitnesspal through a thread on here mfpsupportthread and then joined a january couch to 5k thread doing nhsc25kpodcasts then when I finished the c25k plan I did parkrun to celebrate. Now I am a bit hooked on the party atmosphere at my local parkrun and go most weeks.
Gracie I need to lose another 5 stone, that would take me to 13 stone which I know I can carry (at my 5' 10" height) This is the first time I have tried to diet as such (I lost weight after dd1 by exercise and weight training) It works for me, and of course it is credit to the tamoxifen thread that I joined mumsnet and found mfp etc so thanks ladies - especially mas

kk paddle steamer looks super, and will be very atmospheric with jazz band.

jchocchip · 15/09/2012 19:16

kk I wouldn't have believed anyone last year who said that I would voluntarily run 3 miles at 9am on a Saturday morning, but it is doable - started with one minute at a time with walking in between and it was an incredible buzz to run for 8 minutes the first time :) in about week 5.

invicta · 15/09/2012 19:25

I 'm attempting the NHS 'Couch to 5' running plan also. I've completed one week. So far, so good.

Please could I ask for some tips on radiotherapy. Mine starts next week. I've forgotten some of the 'do's and don'ts of radiotherapy that I was told. ( I've got breast cancer, or technically haven't as the lump has been removed).

Also, has anyone got experience of Zoladex( goserelin) which has been recomended for me?

Thanks.

jchocchip · 15/09/2012 19:34

well done invicta

radiotherapy - no aluminium deodorant, slather on plenty of aqueous cream and avoid bras that rub. Don't know about zoladex, sorry.

MaryAnnSingleton · 15/09/2012 19:50

drink lots too (not wine !) (though wine is obviously good) - plenty of fluids- um,can't think of anything else...don't know about zoladex

overthemill · 15/09/2012 22:48

back from seaside! went to Heacham, Hunstanton and Brancaster. All glorious tho slightly spoiled by over-amorous mutt (mine)attempting to shag glamorous pooch...he broke his collar escaping from dd Blush

anyway it was fab and i feel human again though very very tired. off to bed now

MaryAnnSingleton · 15/09/2012 22:58

Heacham ! I've been there ! so glad it was fab. We've had nice dinner out and am stuffed- also a bottle of prosecco. Have been feeling a bit weird,as if this is all not real - I keep thinking they may have made a mistake...is that normal ?

smee · 16/09/2012 00:02

Hooray for Prosecco.. Smile I'd say v normal, MAS. Life must feel surreal atm. Treats are most definitely in order (classic British understatement..!) Hugs from me xx

Will post more tomorrow once I've caught up. I went on a zip wire today. Was a dare from DS and his 10 year old friend. Had a bit of a collision with a tree and screamed like a banshee, but I reckon you'd all have been proud of me. Grin

jchocchip · 16/09/2012 06:39

Ouch smee zip wire sounds great, hitting tree not so!

I've managed to sleep until 6.30, I wonder what is wrong with the cat?

Morning all, when I get up I'll put a Brew on. What shall I have for breakfast?

Gigondas · 16/09/2012 07:32

Ouch but impressed smee

Cat has found and eaten your breakfast (bitter experience of cat that could open the fridge Wink).

mas that is quite usual- along with not thinking about it and then suddenly remembering.

otm so glad that you had a good day. Ime a day out or seeing friends is one of best antidotes to the down spells. Even if doesn't feel like it is right thing to do- I had a big wobble last night as think got too tired and also made mistake of opening consultants letter (nothing new in it but the language and form of these have always scared me so usually I let dh file them- so much for feeling brave Hmm).

Envy of boat trip kk

Got friends and their lovely boys coming for lunch so will be noisy here today.

OP posts:
MaryAnnSingleton · 16/09/2012 08:59

ouch smee but very brave ! What was your breakfast jane ? I've just had plain yogurt which is my current fad,and nice strong coffee.
Hope you have a lovely day with friends gig - have emailed you a preview of your card...
Two of my friends rang yesterday and it was odd talking to them about it-as if it wasn;t about me . Think we might go for a walk somewhere this afternoon and parents are making shepherd's pie for supper ~(my favourite!)

jchocchip · 16/09/2012 09:10

I fell asleep again despite dh snoring and have only just woken up again. Must be catching up on last week. Will get up now and may poach an egg to go will my belated Brew. Yoghurt sounds nice, we may walk too and look for blacberries.

topsyturner · 16/09/2012 09:32

Mas I still wake up and think it was all a dream , so you are perfectly normal !
I think till you start treatment and feel like you are doing something , it's all a bit surreal .

I have a big pot of Greek yoghurt with honey , and a punnet of plums that I think will be nice for brekkie today .
Anyone care to join me ?
Have fresh coffee in the perc aswell ?

topsyturner · 16/09/2012 09:41

Well done Smee on the zip wire banshee screaming !
Any video footage ? Grin

KK paddle steamer sounds fab , you should wear a floaty dress and drink cocktails whilst calling everyone Dahrling !

Gigs you ok ? Wobble over ?

I noticed lots of blackberries in our hedgerows Jane so you should be in luck !

Grin

SHOUTS GOOD MORNING LOUDLY AT AMBER WHO IS HOPEFULLY VERY HUNGOVER AFTER HER PARTY YESTERDAY !!!
Grin

Off to granny's in a couple of hours for lunch , then it's trainer shopping for DD who's blardy feet won't stop growing !

Later Ladies Grin

NedSchneebly · 16/09/2012 09:51

Coffee, plums and yogurt sounds great topsy - hope horse pills went down without too much of a fight?

MAS be gentle with yourself and give yourself time to let things settle and new stuff sink in. ThinkIng of you lots, my lovely x x

kurri paddle boat sounds lovely. Hope you have fun time with your family x x

smee collision with a tree? Hope you are still intact and in one piece?

OTM glad you had a nice day yesterday. It's such a hard time and it's easy to feel down sometimes. Take it easy and be good to yourself. Sending you some big hugs and chocolate buttons x

jchoc great weight loss! I lost 3lbs this week, so still some way to go!

amber hope party was a great success? Bet you had a lovely time with your friends and family x

Waves to others - hope everyone got some good plans for an enjoyable Sunday x x

KurriKurri · 16/09/2012 10:26

morning all - however early I manage to get up, you all manage to beat me to it!

MAS - I'm sure it all feels very surreal, that kind of information must take a while to sink in, and I'm sure you will go through all sorts of different kinds of emotional reactions to it. I know the people on here who have been through the same thing will be a tower of strength for you, and any time you want to shout, cry, whatever - there'll always be an ear on here to listen xx

Smee - well done on zip wire! - I'm very impressed, - sounds scary though, glad you are still more or less in one piece!

I'm looking forward to the trip this afternoon. DD is insisting on calling it 'Showboat' and saying we need to practice our Showboat faces complete with jazz hands Grin

Had a rather tearful night last night, - DH did something a bit daft (one of his Asperger's things) and everyone got a bit upset. I posted in chat and some lovely ladies cheered me up, will link to my thread here rather than write it all out again.here and take up loads of space.

Anyway I'm OK now and looking forward to a nice family day out.

OTM - your beach walks sound lovely - N Norfolk coast is beautiful (I am in Norfolk too Smile) I always found walking and fresh air was one of the best things when you are feeling a bit down, - I know others swear by it too, - I think it releases natural thingies (technical scientific term!) which improve your mood.

topsy I will have some of that yogurt, and some of jane's blackberries (I love blackberries) I have some nice peaches and plums to offer (and croissants but I am being good and not having them).

Also topsy - DS is bringing me some detective books/ audiobooks I gave him a while back that he's finished, so will try to compile a list of some sort tonight (after Downton Grin - will Bates still be in jail and talking in tones so hushed you can barely hear them? will Matthew's miraculously cured bruised bum 'broken back' give him jip?)

Love to all x