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**Tamoxifen** 27

992 replies

Gigondas · 31/07/2012 01:43

New thread

OP posts:
Gigondas · 01/09/2012 22:10

Can you contingency plan for how you will cope? I used to have something I would do to distract me (eg music on iPad, get a tea , Read a book ) for wait then plan alternative routes home if needed . Used to do this a lot as had so many "bad scans" during pregnancy .

OP posts:
amberlight · 01/09/2012 22:51

Nope. Don't have that part of the brain.

topsyturner · 02/09/2012 00:10

If you are okay with meeting the Doc on your own Amber , maybe arrange to meet someone straight away afterwards to debrief with ?
And if your mobile has the Internet , then we will chat to you whilst you wait to see the Doc .

topsyturner · 02/09/2012 00:12

And random question of the evening - am watching Pride and Prejudice . The man playing Mr Collins , is he the Rev in BBC2s show Rev ???

topsyturner · 02/09/2012 00:13

Gig budge over , I'll join you and Montalbano if you'll share the cake ?

topsyturner · 02/09/2012 00:18

And yet another post from me !

Busy day today .
DD had horse riding at 9.30 . Then we went to a friends house for coffee .
Then DD had a "survival" themed birthday party to go to (lighting fires , building a shelter etc)
Whilst DD was getting rolled in mud at the party , a couple of the other mothers and I went out for afternoon tea !
Very civilised Grin

Then this evening it was round to another friends house for the evening .

I rarely go out , but when I do it all happens in one day !

Shattered now , so I think it's bed time fir me .
Sweet dreams to you all x

Laetissimus · 02/09/2012 08:22

Hi all,
Had my pre opinion Friday ...
Getting bit nervous today so Roast Lamb with all the trimmings to cook to take my mind off of it (and it's last family Sunday roast until christmas for Dd1 as she goes back to Uni on thursdaySad)
Sooo plenty of vino and I might as well help myself to everything on the trolley today - seeing as I was told at my pre op that I am officially - obese- !!!
Btw - have been following but could I ask. What does fbs trolley mean???
X
Have a good day all x
X

Laetissimus · 02/09/2012 08:45

Pre op - sorry predictive text x

MaryAnnSingleton · 02/09/2012 09:14

fbs trolley is the trolley we fill with fat boy snacks
I found the pre-op a bit wibbly making as it all seemed more real then.
topsy yes,that is the same Rev - if you're watching the film version !

Gigondas · 02/09/2012 09:19

I don't think I have been more scared than when I was waiting for my op so eat, drink and vent on here if it helps laetissimus

That sounds like quite a full day topsy - and hooray for a party that wasn't princessy.

OP posts:
overthemill · 02/09/2012 09:50

laetissmus definitely vent on here - god if i couldn't i'd be exploded by now and my poor family would be very much the worse for wear!

amber that's a dilemma you have, I think I suggest go with someone, make them wait outside docs room and then talk to them afterwards - or go totally alone, make notes, have someone at end of phone (or laptop if its us)?? I am so sorry you haveto do it alone though without a trusted lo with you.

thanks for asking about fbs i 'd made up all sorts of answer myself!

can you tell dd is off laptop (and not actually up yet)? She spent most of yesterday vomiting which is her reaction to stress. and its not about starting at new school - it's because of me. Crap crap crap. We did watch doctor who last night though and that was fun snuggled up on sofa and today we go out for lunch to very old friends (her oldest mate who she's known since she was 6 weeks old) so that will be lovely if exhausting.

love and hugs to all others especially if you are feeling rubbish

topsyturner · 02/09/2012 22:17

Another busy day .
Just popped on to say goodnight .
See you all in the morning x

invicta · 03/09/2012 00:32

I've just been prescribed tamoxifen after a summer where I found a lump, had various tasks, been identified with breast cancer, had an op and am due to start radiotherapy and tamoxifen soon. Reading all 39 pages will take ages, so can someone please sumarise this thread as there is no op, which would normally give you an indication of what the thread is about. Thanks.

Gigondas · 03/09/2012 05:21

It started as a support tread for those with bc and prescribed tamoxifen . But there are a few of us here who have other kinds of cancer or chronic illness. Will let other posters speak for themselves but there are people of different ages and treatment stage.

I am currently 4 rounds into 6 of chemo for a soft tissue sarcoma after having lump removed in feb and radiotherapy in April/may . Am also 39. Given spread of my cancer am likely to need further treatment in future to control it.

I post on here as find support (whether it is for practical stuff or emotional stuff) invaluable.

Oh and am up at silly o clock thanks to 7 month old dd.

OP posts:
Gigondas · 03/09/2012 05:22

Oh And it's 27th thread like this hence name - hope that helps .

How are you finding tamoxifen as I know side effects can vary a lot from here?

OP posts:
Gigondas · 03/09/2012 05:24

Sorry - reading with dd crawling on me as just realised not yet started tamoxifen and not 39 Blush

Sounds like your treatment quite similar to what mary Ann singleton had so she might be able to help.

OP posts:
MaryAnnSingleton · 03/09/2012 07:33

hello invicta and welcome.. I started this thread three years ago after I was prescribed tamoxifen and was very unsure about whether I wanted to take it -(main reasons being that I was afraid of it affecting my mental balance,which sounds dramatic, but I have ocd and being in control is a major factor for me.
Anyway,I decided to take it and this thread blossomed into a really helpful and lovely support thread for everything to do with breast and other cancers,and for people waiting for tests and diagnoses.

I was diagnosed in 2009 with 24mm grade 2 invasive ductal carcinoma, no nodes- so had radiotherapy and tamox.

amberlight · 03/09/2012 07:43

Hi Invicta. Yup, it's a sort of a general cancer-themed support thread in which we chat about bloomin' anything really. Lovely people.

Me...they found breast cancer at the start of last year. Reasonable size lump, grade 3, HER2+ so one of the rudely behaved sorts. They whacked it with 4 loads of FEC chemo and then 4 loads of Docetaxel, then lumpectomy ('cos the chemo worked, and weirdly it rather liked me, so I was able to work through it), 18 blasts of radiotherapy, and some herceptin (which hated me so much that they had to stop it). Just coming up to my first year after surgery mammogram and checkup so a bit eek. Oh, and I do too much and am continually being told off for it. And seem to be quite mad. Grin Blush

Can we offer you a Brew and a sit on the comfy sofa for a while?

All - thanks re the thoughts. It's such a s*d that my consultant only does appointment times in the evening, when my most sensible friend isn't available to go with me. DH is wonderful but panicks himself absolutely silly and I end up looking after him and driving him home after my appointments, which defeats the object. DS will be at Uni. Dsis is another Top Panicker. And I have other friends who are fantastic but who are very 'Jolly Hockey Sticks' or very huggy and emotional, and those are fantastic things a lot of the time, but for this I need someone who is calmer than a proverbial millpond. Why don't I ask the consultant to change to a different appointment time...hmm....

overthemill · 03/09/2012 08:22

amber yes change the apt time if you can! Is that possible? talking to an old friend yesterday about how much of a 'number' i feel now i am through the interesting stage of them working out what is wrong with me. i do feel that i am now just on a production line

invicta welcome, i have hodgkins lymphoma diagnosed august and just about to start my second cycle of 6. i can't work because i teach and am too open to infection so am very lost really, after a lifetime of busy-ness. while i don't want my cancer to define me i feel like it is inevitable until i feel better as have been totally knocked out by the chemo. i have kids but older - 13, 16 and 19 and a complete star of a dh who does far too much

Gigondas · 03/09/2012 08:39

otm about teaching, what age do you teach? Was wondering if there is anything you could do at home (marking,lesson prep or reading up on subject ) to help fill time.
I completely get about illness not defining you ( I worked out that by time my chemo finishes I will have been doing hospital appt every week or two since last July if you factor in I was going in a lot due to pregnancy) but I think it helped me to do other things to balance that. So have been in touch with work, catching up with friends and doing stuff at home that havent got round to (the cupboard under the stairs tho remains unsorted despite my best intentions). However I have to factor in my attention span is quite patchy while I am on chemo.

I am back in bed now having a rest after my early start. Mini gig seems unaffected Wink

OP posts:
overthemill · 03/09/2012 09:11

gig i teach yr 5 - yr 8 (middle school system here) and marking other people's classes wouldn't be possible - i am too slow! - and i'm too far away for anybody to drop stuff over. i was given a project by my Head to do if i felt up to it but since chemo started i'm simply not up to it. She is fine about it and it isn't any thing essential.

tbh I can't imagine even being in the school building at the moment - it seems another world.

My form is being looked after by another teacher, school have got in a supply teacher for a term to cover my teaching hours and we shall take it from there.

I do miss the kids but in many ways i have been lucky as i became very sick only 2 weeks before term ended. i'd had masses of odd days off for minor illnesses that totally laid me flat and was absolutely exhausted the entire time but it took probably 18 months for me to get myself to a doctor. I'd simply assumed that the pgce, starting a new job (because i retrained part time to get my qualification) and having 3 kids one with chronic ill health was why i was so pathetic. never occurred to me i was ill! I am very lucky that my school is fantastic (small church school) and very very kind. i will get full pay until end of sept and then half pay until end of dec (being a new teacher at this grand old age). then money gets a big issue!

MaryAnnSingleton · 03/09/2012 09:44

quickly dashing by - amber it seems sensible to try to change the appointment so that millpond like person can go with you Grin

amberlight · 03/09/2012 09:48

Changed it!!! Thanks

Gigondas · 03/09/2012 09:52

That sounds best plan. Is it this week ?

I have CRT scan on Friday and kidney function check and ECG on wednesday (precaution of this type of chemo).

OP posts:
amberlight · 03/09/2012 10:11

It's next Thurs 13th. Shall be keeping everything crossed for your barrage of tests, Gig.

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