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**Tamoxifen** 27

992 replies

Gigondas · 31/07/2012 01:43

New thread

OP posts:
MaryAnnSingleton · 29/08/2012 20:55

meant to say sorry to hear about sister's sil topsy Sad
I guess I have to wait for consultant to see the results

topsyturner · 30/08/2012 08:19

Morning All

Nice sunny day here so far .
Think I might be (slowly) getting used to this getting up early to get DD off to school .

I was on the phone to my sister yesterday . And she told me that because of my cancer her GP had referred her for an early mammo (she's 45)
She's all clear , thank goodness . But I am thankful that this is one positive outcome of me having cancer .
Family and friends are being much much more aware and checking themselves !

Plans for today ?
I think I might do my nails .
What are the rest of you up to ?

overthemill · 30/08/2012 08:30

morning all. sorry i didn't check again yesterday as totally exhausted by 2 mates coming round to cheer me up and then going to get daughter from Heathrow. And OMG! She has shot up, got completely different colour hair (sun bleached mouse strawberry blonde Grin) and suddenly has burning ambition to learn Dutch (she went to Italay btw...Hmm])
So I fel asleep on the sofa 30 mins after we got back.

topsy so sorry about sil - this disease just keeps on doesn't it? I fantasize that in 50 years time people will look back at us nowadays and will be in horror of how little we knew and how brutal our treatment was, bit like when we see WW1 movies of soldiers having legs amputated in the field...

mas well done for not weeing Grin
gracie sorry you feel rubbish, hope today is better
gigs get lots of sleep
laetismus i am so sorry, sounds awful, hope it is bearable. good luck

Gigondas · 30/08/2012 09:03

I like that idea too otm -bit like
When HIV was a death sentence.

I am planning to try to clean out the cupboard under the stairs and some of
Kitchen cupboards. I am not ESP Tidy but even I feel that time has come to sort
Them out . Now seems time to do it as on my low period til about Sunday.

Am paranoid about getting taken back into hospital - assume this is quite normal when you have had prolonged stay you didn't anticipate. I feel fine, no temp etc just bit of a runny nose and tired .

OP posts:
Gigondas · 30/08/2012 09:04

Dutch otm? Wink who could she have met.

Fruit cake from yesterday if anyone wants it on fbs trolley.

OP posts:
MaryAnnSingleton · 30/08/2012 10:37

hooray for the return of dd otm !

Look after yourself gig - bound to be fearful of being sent back to hosp...eat more cake to ward off germs.

pinkstarlight · 30/08/2012 11:12

some of you will remember me from having BC last year,after months of pain and being fobbed off that i have IBS.eventually had some tests done which have shown im now diabetic,need surgery for a big gall stone but even worse several cancerous cells on my liver and adrinal gland attached to my kidney.

im waiting to see the oncologist so i guess i will know more then,im not sure i want to know.

i feel so bad putting my family through this again.

topsyturner · 30/08/2012 11:16

Hi Pink

I'm sorry to hear about your latest diagnosis .
But it's not you putting your family through this . It's bastard cancer .
It's never your fault sweetie (un mumsnetty hugs)

MaryAnnSingleton · 30/08/2012 11:37

oh pink -what a bugger for you- certainly none of your doing though,as topsy says. A big hug xxxx

Gigondas · 30/08/2012 12:31

pink another Mn hug. I am so sorry but ad topsy said its the disease not you my lovely.

Although it will be scary the onc should give you some focus on what's next x

OP posts:
pinkstarlight · 30/08/2012 13:10

aww thanks,still i cant help but feel guilty i feel more worried for my kids than i do for myself if that makes sense.

ive tried to make light of it by telling them im not going anywhere and do they really think im going to leave them 3 on there own to kill each other,i would never rest in peace.also told them if anything did happen to sue their asses for the rubbish after care i have recieved which made them laugh and the fact its took me all this time to grow my hair back.

life is not always easy is it,hello to all the newbies

Sometimesiwonder · 30/08/2012 16:14

Pink - Hi. That bastard, bastard thing.

Not your fault though, love. When's your appointment? I hope it's not long.

Hugs to you in the meantime. xxx

overthemill · 30/08/2012 17:14

pink what a crap thing to happen. so sorry

have spent all day staring at beautiful daughter while she says 'you're weird' so good to have her home!

thegreylady · 30/08/2012 17:35

Hi everyone-just having a quick read x

jchocchip · 30/08/2012 18:06

Hello pink its a bugger isn't it. Waiting for appointments sends me wobbly, so pull up a chair and have some fbs and a Brew or, is that the time? a nice glass of Wine !

Hello grey I'm not on here much these days. You ok?

jchocchip · 30/08/2012 18:12

I am already in a wobble about tomorrow's mammogram. Surgeon says he can feel the 'thickening' I've been worrying about and thinks it is nothing to worry about. But, hey, what does he know, he said the lump on the other side was almost deffo a cyst! I know I won't get results tomorrow, and actually being on tamox makes anything sinister unlikely, but all the same...

So I've arranged to go for a beer with a friend after work to debrief after the mamo - as good excuse as any!! Waahay.

dh on his way home after grannie sitting for his mum. Popped in at my mums for a Brew. Its her 89th birthday tomorrow and then dh's 50th on Saturday. And guess what - I've just remembered what I was supposed to go shopping for, aargh... sorry long rambling post, very self centred, I know.

jchocchip · 30/08/2012 18:13

87th

Gigondas · 30/08/2012 18:34

Am neutropenic so had hospital calling telling me to be careful - how daft do they think I am? I am going nowhere that is not within reach of my biscuit cupboard til I feel better .

OP posts:
MaryAnnSingleton · 30/08/2012 19:39

loads of good thoughts for tomorrow jane
Waving to greylady - lovely to see you.
Do stay near the safety of the biscuit cupboard gig
Am shocked about Alex's dx on our Tamoxifen ten group (on fb for those not on facebook) I 'met' her on the BCC forum and have stayed in touch- we had exactly the same dx and treatment -have also done several pictures and cards for her and her dds too,so feel a strong link. Don't know anything about leukaemia Sad

Gigondas · 30/08/2012 20:20

Good thoughts for tomorrow jchoc

I think blood cancers are treatable but can be an ongoing thing - I suppose what you never expect is something newZ

Sending lots of love and willing to do my turn on the paranoia chest for anyone who feels the need.

OP posts:
jchocchip · 30/08/2012 23:08

My Dad was dx with leukaemia when I was about 16, they kept it under control with tablets and blood transfusions (magic)though I do remember that he had to have his spleen removed. The leukaemia wasn't what killed him, fwiw. I don't know about the different types and treatments have advanced loads over the last 25 years.

Thanks for all the thoughts for tomorrow, I'm sure I will be fine, if emo, and I have a beer to look forward to afterwards with a friend!

Made a load of chewy ginger biscuits (with cristalised ginger) scatters some on the trolly... nighty night.

MaryAnnSingleton · 31/08/2012 07:39

grabs biscuits,and sends jane a hug for today.
A's spleen was enlarged,so maybe they might remove it ? though the disadvantages might outweigh the advantages in terms of infection control.

topsyturner · 31/08/2012 08:31

Good luck for today Jane , hope all goes well .

topsyturner · 31/08/2012 08:36

Morning All

Off to hospital this morning .
Wound check time . Seems like good timing as I think it might be slightly weepy Sad

Then it's my appointment with the new booby nurse .
I hope they let me have my new prosthesis , as I'm not in a proper mastectomy bra . They are very strict about you needing to have properly measured mastectomy bras .
But I am still wearing my crop top style ones (though they do have pockets in them) as my wound is still ongoing . And judging by today , it could be like this for some time yet .

Anyhow , off the Internet Topsy and get your butt into gear !

MaryAnnSingleton · 31/08/2012 10:21

good luck with that topsy xxx