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**TAMOXIFEN** 26 !

990 replies

MaryAnnSingleton · 09/07/2012 21:14

Here we go !

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SparkleRainbow · 17/07/2012 17:27

Gracie I am impressed and Envy that you have a fascinator....I have always wanted to be able to wear one.....but definitely can not carry it off!

NedSchneebly · 17/07/2012 17:34

sparkle I can see that gettng back to Staffordshire by 3 might be pushing it a bit. . . Smile

Gigondas · 17/07/2012 17:34

gracie will you post photos as sounds lovely. Am holding up ok - can offer chocolate chip cake and slow roast pork as evidence of what i have been up to.

Also had onc sec phone to make appt and scan pre next chemo (which I think is routine to check okg- I don't think I am ever going to lose my fear and dread of onc/scans which is hard as can send me into a bit of a down spin.

kurriAngry about dr. But my dh also had big health worries (also due to feeling additionally responsible for kids) and has done various health checks (plus we had a phase of going obsessive about financial planning which whilst necessary was a bit Ott). Luckily he seems to have come through that partly helped by some good friends he has talked to- one of whom also has wife with cancer.

Lazy mum here as dss and his gf entertaining big gig- it's always close run who wears who out. I am definitely on the "I can't do that I am sick" when it comes to endless rounds of hide and seek with big gig.

Whilst we are on meet up does anyone fancy a London one while I am on my stay cation in August (obviously Olympic debacle allowing).

MaryAnnSingleton · 17/07/2012 17:40

am sure me and smee can meet up with you gig ! Am sadly too far away to nip to Poole for lunch though.
Waves to gracie !
Was thinking of jane too - not been about for a while- hope ok.

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MaryAnnSingleton · 17/07/2012 17:42

slow roast pork sounds heavenly - tonight we are having tuna and cannellini beans and salad -healthy ! (would rather have pork, mind)
My friend who is S's mum gave me a bottle of wine as an end of term thank you- aw.

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KurriKurri · 17/07/2012 17:45

Gig - I'd love to meet up - I'm only 2 hours from London on the train - and I do sometimes come down to go to a gallery or something - so count me in if I'm around during your staycation Smile

Interesting that you mention your DH has a friend who's wife has cancer, - it reminded me that my DH used to get a lot of support from a lovely woman at his work who's husband had cancer shortly before I did. - She was very helpful, but she's left now- took early redundancy and he doesn't see her very often. So maybe he misses their chats.

amberlight · 17/07/2012 17:50
smee · 17/07/2012 19:27

Gig, I'll meet. What a combo; you, MAS and Kurri. Grin

Just back from 8 year old's cinema/ Nando's party. Very low key, just 3 boys, birthday boy's mum and me. Plus wine. She said I had to keep her company..

graciesmall09 · 17/07/2012 19:28

Am impressed with the roast pork and chocolate chip cake gigs. I just about managed to pull together spag bol and only baked brownies as I had promised to do them on Sunday but wasn't able to stand that long Sad. Glad you are ok. I do think scans mid way through are routine for some.

MaryAnnSingleton · 17/07/2012 19:32

am very excited by a meet up !

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graciesmall09 · 17/07/2012 19:35

Oops pressed post too soon.

smee glad birthday party wasn't too manic and combined with wine - perfect.

On the subject of scans just thought I would share a girl who befriended me on Macmillan had a huge bc and had a coil inserted before her chemo started. She has had 3 tax so far and had a scan last week which showed the tumour had disappeared. So pleased for her but just shows the power of chemo.

mas that was nice of the mum giving you wine - enjoy.

Waves to amber and anyone else about.

bitweepy · 17/07/2012 20:41

Hello hope I am posting in the right place, please tell me if i am not. A very very dear friend, aged 43, was diagnosed with breast cancer earlier in the year. She has had chemo, op to remove what remained of the lump and is due to start radiotherapy shortly. She has been very strong and positive all along but have just spoken to her today and she upset as has been told she will need Tamoxifen for 5 years although reviewed after 2 (had initially been told she wouldn't need it). I think it feels to her like yet another treatment she will have to have, when she had thought it would all be behind her when the radio finishes. Obviously she has been told about possible side-effects as she needs to give informed consent, but is there anything I can say about these to help/reassure her - she is convinced that she will get every side-effect going to the most extreme degree. As I say, if this is the wrong forum please let me know but any help gratefully received.

graciesmall09 · 17/07/2012 20:53

Hi bitweepy, what a good friend you are. I am due to have Tamoxifen after my chemo, radiotherapy and herceptin and whilst I am not looking forward to the side effects I am trying to look at it as perhaps another way to keep this awful disease away. Tamoxifen is given to hormone sensitive breast cancer and I think it stops oestrogen production. My surgeon told me before I got my results that going on Tamoxifen was a good thing. Hope this has helped a bit but I'm sure some of the more knowledgeable girls will be along shortly to help.

smee · 17/07/2012 21:03

Hello bitweepy. I'm on Tamoxifen. I'm not sure how much you know, but Tamoxifen is only given to women who have hormone positive tumours. The Tamoxifen interrupts the hormones which feed any dividing cancer cells. If you think of a plant not being watered, it will die and that's the basic theory behind Tamoxifen too, so if you don't feed the cancer cell, it can't grow. In other words, a sanity inducing way to approach Tamoxifen, is to see it as a huge positive, as it's another layer of defence after Op/ chemo/ rads.

On side effects, well some women have none, others have lots. Most of us seem to have menopausal type symptoms. I was 44 when diagnosed (46 now) and have hot flushes and all manner of aches, but I've dealt with it by trying to see Tamoxifen as reducing my risk against recurrence. Let's face it we'll all be menopausal at some point, so mine's just a bit earlier than it would have been.

Sorry for ramble, but hope that helps. Tell your friend to come and say hi if she'd like to. It really helps to talk to other women who've been through it all. This place kept me (relatively!) sane when I was going through treatment. She must be exhausted, but she's on the home run if she's onto rads. Smile

smee · 17/07/2012 21:03

x-posted with Gracie. You put it so much more succinctly than me! Smile

Baskets45 · 17/07/2012 21:05

You are a lovely friend, bitweepy. I'm sure others will be along in a while, but the option of Tamoxifen seems quite positive in that it'd be another thing to chuck at the disease. Your friend might find it helpful to talk her concerns through with her breast care nurse. i think it's quite normal to feel 'not another bloody thing' with any serious illness, esp after lots of treatment already.

graciesmall09 · 17/07/2012 21:07

Think you explained that much better than me smee. I have now learnt something because all I knew was the bit about the oestrogen.

KurriKurri · 17/07/2012 21:09

Hi bitweepy, it is great that your friend has you to support her - it makes such a difference Smile

I think it always knocks you a bit when you are told about a treatment and it comes as a surprise. I have been on Tamoxifen for 3 years now and have had no really major side effects - nothing I couldn't cope with and nothing that stopped me getting on with my normal life. The main S/E's are menopausal symptoms - they vary in intensity from person to person, and aren't particularly pleasant, but they are manageable on the whole. And I found them to be worse in the first year I was on the drug, - now they have tailed off almost completely.

As gracie says - its another thing to help fight BC, and I find it gives me a sense of security to know I am taking a anti cancer drug. There are also alternatives to tamoxifen - and if your friend doesn't get on with it, her oncologist may suggest changing her drug.

The main thing is that she'll see her onc. regularly and she can stay in an ongoing discussion with him/her about how she is coping with the drug.

best of luck to her - she'd be very welcome on this thread if forums are her kind of thing Smile

Baskets45 · 17/07/2012 21:12

Want to wish kurri 'bon voyage' for the trip to Dorset. And, lucky you, meeting up with ned. I had to laugh though, after all the talk of toilets earlier, smee then mentioned 'windy walks' . My best wishes to all. Reading and following your stories. You are all doing so well. I hope janechoc is okay too, and others who are 'awol'. Sorry kurri's dh not so good - hope break will help. agree with others on seeing usual doc on return. The locum should eb reminded her job involves excluding serious illness and offering help and reassurance. She is paid for that. Silly fool. Desperate to post before I am 'timed out' again. BWs, all. xxx

bitweepy · 17/07/2012 21:14

Thank you, you are all very kind with some very helpful points. I will certainly think about suggesting she comes onto here. I think to be honest it's the "surprise" of it suddenly being mentioned now when she really thought that all she had left to deal with was the radio, and the worry about the side-effects being long term as opposed to the chemo ones which she coped with really well and which are now easing. had a quick look at the Lavender Trust website which seems to have some good advice and info, although am a bit wary of pointing her in the direction of people/places which may tell her about new stuff she hasn't started to worry about yet IYSWIM....

Baskets45 · 17/07/2012 21:16

Gracie! Enjoy the wedding. I am getting kitted out for nephew#s wedding next month. V stressful!! And 4 sons too,almost sorted the. DH dresses like a tramp ad thinks he'sll be fine. Reader, I am only married to him, I am not responsible for every aspect of his behaviour. See my plea for help on Style and whatnot later. I want a fascinator too, but keep nearly calling it a vibrator and jsut know I will say that at wedding, which is very posh affair,at just the wrong moment.

Baskets45 · 17/07/2012 21:17

Oh dear, more hurry less speed, baskets. pls excuse typos above!

Baskets45 · 17/07/2012 21:18

Oh, x posted with lots of you. Hello everyone!

topsyturner · 17/07/2012 22:21

Sweet Holy Mother Of God !!!

What us going on with my botty ???
Have no Imodium in the house , anyone got any home style remedies I can use tonight ???

Sorry will read back later and reply to you all , just feeling so crappy right now .

MaryAnnSingleton · 17/07/2012 22:44

a gentle hug to you topsy xx
bitweepy I started this thread almost 3 years ago because I was terrified of having tamoxifen - I hate the thought of anything which might mean I'm not in control and it seemed to me that tamoxifen would be like that. I put it off until after my radiotherapy (having spoken to my bcn who checked with onc) as I felt happier dealing with one thing at a time. I have to say that it's been a lot less traumatic than I'd anticipated- no big side effects, just those that smee mentioned. You might suggest your friend asks her team about the percentage of benefit that tamoxifen might offer her. I think that if it's recommended it's wise to go along with it,though I know of one person who has refused it.

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