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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 4

958 replies

Ben10NeverAgain · 06/04/2012 19:43

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happy2beme · 13/04/2012 20:47

Aaaww ((hug)) Snowy xx
Maybe physio will say no point as things are so bad (iyswim)...... but good news about the cervix lol xx Hopefully things will move quicker than you think. I was lucky no physio as I had had it 8yrs before just after birth of DD2 x

tinkxx65 · 13/04/2012 20:56

Thanks everyone for the kind words. It is such a shock when it happens and then you get into panic mode thinking it will happen again. Cant remember who said it (its on the previous page) think it was happy, and yes you might be right, it might be down to the tests yesterday. Well fingers crossed it doesnt happen again. But am going to buy some pads when I go shopping tomorrow and wear them for a bit, just to be on the safe side. And my jeans were clean on today, more damn washing :( .

xx

tazzle · 13/04/2012 21:08

well let us hope the "good rummage"does the trick then happy

There is certainly a range of attitudes with regard to fat / obesity and our non life threatening ops .......some trusts are refusing non essential surgery to anyone with BMI over 30 ( I am but am actually otherwise fit).

thats the way to go tink ........ get tooled up and get out there ........dont let it get to you!!!

tazzle · 13/04/2012 21:10

yupsnowy ....you might even get the delight of trying out a pessary as well !!!! Who knows, they might work , they do for some folk.

fengirl1 · 13/04/2012 21:32

Snowy - when you next see physio ask straight out if this will solve things. This happened to me and while strong muscles help hold things in place I went through a ridiculous charade of physio from oct onwards last year and only went on waiting list in jan, to then be told late feb I needed biopsy and ultrasound as well. Push for these to be sorted out and to go on waiting list for op while you're doing physio. Sorry I'm not more positive but I would hate anyone else to go through what I did.... Despite surgeon agreeing my op should be brought forward, I'm still only getting my op about three weeks inside 18 week limit. Information is power! Best wishes. X

happy2beme · 13/04/2012 22:35

Tink- I still wear a pad but have graduated to the panty liner kind because I very rarely leak , it is more a security blanket which I am happy to continue with xx. I usually only leak if I have had 2 venti americano's out of starbucks yum xx my drug of choice but 8 shots of coffee will do it everytime......really hate decaf yeuk!!

jackie62 · 14/04/2012 00:03

Hello all the new girls! I have lost track of everybody as there have been so many posts!

Nanna, brilliant news that they have spotted something, I know it doesn't feel good to have something unusual but at least you are on the right road now and like you said maybe they are ........ Bricks thinking of potential complaints and repercussions. It took too long and has been a miserable journey for you.

I spent yesterday trying to track down my date for the 'urgent' MRI that my consultant ordered, making about 20 phonecqlls in total. Today her secretary phoned to say she had spent a fair amount of time trying to do the same to discover the form has completely disappeared. At the time the receptionist was a complete cow and made me feel really stupid when I asked her if I had brought the form to the right place, having made me wait until she finished her personal conversation, and now seems to have spirited it away ( probably into the nearest dustbin??!). So, back to the drawing board...waiting, waiting!
In the meantime the haemotoma/hernia is large, painful and has stopped me in my tracks. I am back at work but on 'light' duties (plain clothes, completing statements and enquiries). Can't wait to be fit and well again and regain my normal quality of life and I know we all feel the same, patience is a virtue which I haven't got!

Tink, so sorry to hear about the wee thing. Like Tazzle says you need to 'be prepared' and then you can relax. Do the pelvic floor exercises on the Michelle ken way site and you will be doing the best you can in the meantime.at least then if you have an accident no-one need know and you can just change the pad and go forward, it's a pain but at least we have access to some pretty decent kit out there. Have you tried the Tena?? I never did, just tend to use a panty towel, although my pelvic floor seems quite strong at the moment and I have sneezed a few times without an issue, but you can never tell. My downfall is laughing.. If I really find something funny there is no stopping me I'm afraid and if I find it really funny I can't get it out of my head for quite while, I just lose it completely!!

Good luck to you all, keep laughing if you can but hold your pelvic floor up first!! Xx

fengirl1 · 15/04/2012 08:58

Jackie -that's rotten about the MRI. Don't be surprised if its at a weird time of day when it comes - dd1 had one in jan at
7pm!

jackie62 · 15/04/2012 23:54

Fen, thanks for the warning! To be honest I would be quite happy to go in at midnight if it meant getting sorted! I expect it will be on Tuesday morning as I am needed at home to oversee my neighbour's irritating Leylandii trees finally coming down. Can't wait as my garden is going to be bathed in sunshine, although we are contributing £100 to help him along the way ( I'm buying sunshine). I know that might sound mad but there is no way we would have got this far if I hadn't started the ball rolling and when you are going through this sort of crisis health wise it is important to have some light every day.
Would rather, I haven't been able to dig since the rectocele repair but I try and do everything on my hands and knees on a kneeler. It takes much longer and is a bit frustrating but at least it means you are in control again, good luck with it!
Xxx

fengirl1 · 16/04/2012 15:08

Jackie - money well spent I'd say!

Did anyone have to have blood thinners at home? Apparently I have to have them and have to decide whether or not I will inject myself! :-/ I've also been told I might not have anterior repair or hysterectomy depending on what is found and may have sacrospinous fixation which has never been mentioned before. So the rectocele repair is the only thing definite at this point.... I'll also be transferred to the main hospital on the Friday night as the ward I'll be in is not staffed over the weekend. Is it me or is this starting to sound a bit worrying???? They even took blood to crossmatch when I know my blood group and it's in my notes. Is there an exasperated face emoticon on here????

Littlefish · 16/04/2012 18:35

Fen, I'm having the sacrohysteropexy rather than hysterectomy. I'm also having the posterior repair. My uncertain procedure is the anterior repair. My consultant is hoping to avoid that one if at all possible.

Ben10NeverAgain · 16/04/2012 19:01

Fen - They injected me every night in hospital with them but none for home. They also have to do the blood test thing to make sure you have no special blood groups etc as I do, I said I was special Grin

Both of you, my surgeon did both while he was there although the cystocele was only mild.

Been to see the surgeon today as a followup to my dramaticness last week. Swab results confirm that there was an infection and that the anti-bs were the right ones to fix it. I'm pleased as they made me feel so dreadful that I'd have been cross if they haven't.

Good news is that the infection/blood loss/clot situation didn't damage any of his handy work. Also the blood loss has gone to hardly anything thanks to them and the tranexmic acid. Worked my way up to the heady heights of 15 minutes walking today before I sat down on the old lady chairs in Sainsburys. Grin

Bad news is that he is convinced that my constipation caused the rectocele and I have failed to manage to have a BM when I try to reduce the Laxido sachets due to my existing medication. I am banned from ever being constipated again. Looks like they will be a regular part of my diet then - oh joy....

OP posts:
tazzle · 16/04/2012 19:08

yiipppeeeeeeeeeeeeeeeeeeee ben10 at the good news.......... corner turned in the road to recovery I sincerely hope.

Constipation will be the enemy of us all forever .......I am glad prune juice works for me Wink

I only had the blood thinners in hospital ..... and did not even have the third one prescribed as I went home early !

fengirl1 · 16/04/2012 22:02

I know you are special, Ben! Sadly I am very ordinary - O negative. It's good news you're on the road to recovery.
Interesting that no-one else had injections at home... Apparently I can save the stockings for flights!
I was a bit perplexed (and a bit queasy) when the lady showed me the tool that's used for the sacrospinous fixation.
Apparently I too will have a buttress although I'm not sure bits of a castle belong in my fanjo.... Grin

Ben10NeverAgain · 17/04/2012 07:00

Now you will have the special fanjo. Battlements and all Grin

OP posts:
dudrop2362 · 17/04/2012 10:37

Glad to hear alls well now Ben10 Smile and you found out for definate what it was(i never did), but i'll asume now it was an infection. The antibiotics they gave me made me feel terrible too, there wasn't the smell that a lot of the others got which made me think it must be a haematoma.
I only had bloood thinners for the three days i was in hospital Fengirl.
Don't know if my cocktail to keep constipation at bay will help any of you but i have a glass of warm water first thing, lemon in it is good (but i can't touch because of migraines) and loads of water all day, Movicol morning and night, Prunes Apricots or Rhubarb in juice, i've just dicovered Jan De Vries Bowel Essence 5 drops in water last thing, and if all else fails Boots Suppositories.
oh! and Jackie told us way back about the nuts and seeds she takes (they're good).
For someone else who was asking i had my op in Sep but did't go back for post exam till Dec, it didn't seem unusual to most of us at the time.
(((((hugs)))))) to you all.

Nannasylv · 17/04/2012 16:03

Hi all,
I finally got a date for the colorectal chap (after chasing it up). They had booked it for the week my niece is taking me away, but, when I explained that I had already informed them (the receptionist didn't appear to be listening!), the surgeon's secretary brought it forward, to the 2nd May - yee ha!!!!!, at last I appear to be starting the right journey! Whatever the diagnosis, at least this time it should be based on hard evidence, not GUESSWORK!

I also had my DWP appointment, at the jobcentre, this morning, and guess what?????, the advisor said he had been told I was only suffering from stress! Apparently ATOS interviewers ignore physical problems, and just pick the easiest to dismiss! He said that it was obvious I am not fit to engage in any work related activities, until I have diagnosis/treatment, and he won't call me until June 2013, at the earliest! Thank God for sanity (at last!). He was really nice.
Perhaps this will end up being a good, fruitful, successful year, hopefully for all of us!
I'm just waiting for the diagnosis, to begin discussions with the solicitor.

Hugs to all!!
XX

Footle · 17/04/2012 16:38

This reply has been deleted

Message withdrawn at poster's request.

fengirl1 · 17/04/2012 16:40

That's fabulous news on two fronts Nannasylv! It must be a huge weight off your mind to finally be listened to. X

tazzle · 17/04/2012 17:24

well this week does seem to be going generally in a good direction...... lets hope it continues !

thanks dudrop. twas me asking. I think I will just go to my GP re when I go back to work. Wink

Ben10NeverAgain · 17/04/2012 17:48

Well done Nanny. All sounding positive :)

ATOS are dreadful. I've been on ESA now nearly a year and it is about to be withdrawn thanks to Dave C. I was shocked to actually get awarded ESA but my medical went really well as the doc understood my other condition well.

OP posts:
fengirl1 · 17/04/2012 21:34

How are you doing Sure? Haven't heard from you in a while and wondering.... X

tinkxx65 · 18/04/2012 09:08

Hi everyone, hope your all good xx

Another question, I am doing a uni course which finishes soon, and then I would have been looking for a job. But two things are now worrying me, I got thinking about my problem with BMs and I realise that I spend a alot of time in the bathroom :-( but as I do not have to be out the house for work, it is not so much of a problem. I was wondering how did you ladies manage if you worked and secondly do you think I would qualify for ESA while I wait for my operation.

Oh and have not leaked again :), I cant remember who said the Americano's gave them a problem when they drank them, but the day it happened to me I had had two as well......wont be drinking them again.

HuggyPomBear · 19/04/2012 08:37

Hello all. Had my op on tues, a posterior and anterior repair. I'm alive! I was not even awake to get the anaesthetic the pre op med knocked me sideways and it was meant to just give me a feeling of well being...

I was discharged yesterday and have managed well on paracetamol and diclofenac as I am determined not to have any constipating codeine based products! The surgeon was quite dismissive about my rectocele saying it was very small. I was very anxious that he had repaired it anyway as thats been the cause of all my probs and not the cystocele which was larger but symptomless. He said he'd done it but my problems may not have been down to the rectocele...I asked him rather sarcastically what it was that was causing my poo to do a u bend tour my vagina on its way out if not the rectocele. He looked a bit lost for words....

For those due to have the op I had packing in and a catheter and it felt ok. The worst thing was the catheter as anything catching the bag felt really sore on my bits. They removed the packing yesterday morning and then the catheter came out a couple of hours later. I went for a wee straight away. I made sure I drank loads as they measure your wee for the first 3 wees and scan your bladder to make sure you're evacuating ok.

Drumroll...I have just had my first poo! Not a surprise as my bowels cleared themselves totally on Tuesday morning in a pre op panic! I have been eating bran flakes with prunes on top. It went ok! I just relaxed and read and leaned forward a little (the things you share with strangers)....

Off to relax a little before I have a shower. Thank you all for the (((((((0)))))) and support. Hopefully I no longer have a ((8))!! Xx

Footle · 19/04/2012 09:33

This reply has been deleted

Message withdrawn at poster's request.