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General health

Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 4

958 replies

Ben10NeverAgain · 06/04/2012 19:43

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

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mrsm22 · 11/04/2012 21:05

Nannasylv - thanks for that. I might just give cranberry supplements a go! Anything is worth giving a shot.
Fengirl1 - I have had my urine tested a few times now to see if any underlying infection, but it has come back clear each time. Handy to know you can get the strips over the internet though. Thank you anyway. I'm due to see the uro-gyno next weds so will see what she says, and hopefully she will give me some different over-active bladder pills to try. And as i keep saying, i'm going to give it a whirl coming off the pill. It might be wishful thinking that it will work..but anything is worth a try in hope of feeling 'normal' again. Thanks again for your advice and comments.

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happy2beme · 11/04/2012 21:49

Hi All xxx
Huggy was also scared of the dying bit and was frightened to say it out loud , I think this is why I was so manic post op and did not sleep for 13hrs post op recovery xxx Just glad to be alive Grin
check up 6wks, driving at least 6wks ( this is what I was told ) as they cut into muscles used for emergency breaking and some insurers will not cover you xx
Back to work sedentary job 6wks , manual 12wks... I took longer because of complications xx
Absolutely no to lifting buggy even empty after 2wks and I was told not to push a shopping trolley ( no hoovering and this can involve similar motion to pushing/pulling buggy xx your stitches may not dissolve for at least 6wks (more if you are sure Grin) you dont want them going ping and nothing to be lifted over 3 lbs for first 6 wks xx then max 10kg wieght ever, so I was told ( I am a nurse so this may be dificult but I am gonna try). I do not have small children so this was never an issue to me , sorry to be so negative but mabe some of the other ladies might have some coping strategies. What about family ? x I must admit I very much under estimated the amount of recovery time (although I had several infections and a perforated womb) lol

Tazzle you are naughty lol slow down xx it was about 14/16wks before my cervix was normal had been all swollen inside up until then. So much so I could not differentiate the rim of my cervix from other tissue, just cause you cant see inside you, dont know whats going on Grin. I am going back to work :( so practicing my senior staff nurse vioce :). We really are our own worst enemies as we think we are superwomen xxx

Abitsnowy- dont know about hyst ?unless you have uterine prolapse?? or other issues involving your womb.
Dont think they tighten the tummy muscles lol x not with repair of anterior/posterior ( if you get one without paying for it lol I want the name of your surgeon xx I got an abdominal scan this will show up anything within your abdominal cavity that could be causing the swelling, something like a cyst ?. My referal took all in 3mths max from Gp to first surgery date offered x but I know things seem to move a little faster in Scotland in general xx

Hi to all new and old xx sorry for long post but things moving so fast again think it is the new post title as it is so inclusive which is fantastic xx Thanks Ben again xx

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tazzle · 11/04/2012 21:56

hi huggy

have several (((((0))))))

Have you not had any info from the hospital about post op care yet , I got some in the post with my date.

here is the royal college of gynaecologists ghuse to show DH

www.rcog.org.uk/information-for-you-after-pelvic-floor-repair-operation


but some examples used as not to do stuff before 6 week check

no lifting shopping baskets or pushing supermarket trolleys
no hoovering
no lifting children
no running / jogging


no driving for 3-4 weeks

Its hard not to do stuff after first week or two as legs / arms all work ok and the temptation to so things is immense.........but as many of us have found we do pay the price if we hurry along, we have to let our insides heal. If we had a cast on a broken arm we, and others, would have no issue with not doing stuff ,,, just because our stitches are inside / invisible its harder to remember we need to rest to heal and not put strain on the stitching.


I dont think that pushing a pushchair and getting it on and off buses will be wise in the first month post op.

Can you ask the hopsital to give you post op advice ......maybe even phone and ask them to email it to you so you can make arrangements explaining aobut children and that OH works away and you need to make arrangements for at least 6 weeks till post op check.


hi snowy

unless uterus falling out lots they not likely to take it out... and even less inclined if its "plump" Wink like mine and needing abdominal removal.

errrmm most repairs done through vagina ...... dont touch the tummy muscles ..... if they did would have certainly asked them to do mine Grin

lrgth of treatment.....well depends on what they diagnose / decide to so as treatment. The general requirement is that they treat within 18 weeks of firest appointment .......but if they trial with as pessary or you need more investigastion time to the actual op can take months. Have to say though that for me once the decision to operate was made the time to op was about 5 weeks.

good luck with op .(((0)))

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ABitSnowyOutside · 11/04/2012 22:06

Thank you. Smile

Yes, I had secretly hoped that they would throw in a tummytuck abdominal repair.

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fengirl1 · 12/04/2012 08:30

Huggy - mine's not until the 3rd and I'm already nervy! My experience of GA's (somewhere around 10, lost count!) is that they're a lot better these days and you generally feel quite well when you wake up, WHICH YOU WILL, so try not to worry.
Snowy - I'm with you on the tummy tuck and think it should be a normal part of the op!!! I can't remember if you have a uterine prolapse or not - if you do you may be offered repair or hysterectomy. I'm going for the latter as I reckon it'll be as much work to repair as take out and I won't be sad to say goodbye. I'm definitely keeping my ovaries (and will write it on my consent form) as I want to do the menopause naturally. Hth.

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Littlefish · 12/04/2012 09:38

Huggy - mine's on the 23rd. If you look up the thread a bit, you'll see a list I posted of all the things I'm scared about. I think it's entirely normal to feel like this. As one of the lovely ladies on this thread said, feelings like this are what stop us taking silly, rash decisions at other times.

Ever since I got my surgery date, I've been feeling a lot better, with fewer bowel and abdominal pain symptoms. I was beginning to think that I'd made a mistake, and didn't need the surgery at all. However, yesterday, I had horrible feelings of constipation, combined with apalling wind. It reminded me why I'm having this done!

Abitsnowy - I was offered the option of either a hysterectomy or a sacrohysteropexy, where they put a mesh sling under the uterus and support it. My uterus has dropped about half the way down, so something needed to be done. I've opted for the sacrohysteropexy as there's nothing atually wrong with my uterus - it's just the support structure that's gone AWOL! In terms of recovery, I don't think there's that much difference, but I'm quite fond of my uterus, and wanted to keep it if at all possible. Smile

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Nannasylv · 12/04/2012 13:01

Hi folks, I've just been reading all your posts, and I'm a little jealous (sad cow! lol). You're in pain, etc., but you're nearly there! I chased up the Urogynae, on Tuesday, and said I was not happy to go to the bottom of anyone's pile, this time, as I'd already been on the bottom of so many! I've politely asked that they speed up the process, and today (when I rang), his lovely secretary (she really is!) told me she'd got him to sign the reports/letters, and he said he's emailed the colorectal surgeon, and faxed all the history to him! She is faxing the new report to my GP TODAY, and I have a telephone appointment with my GP tomorrow! I am doing my best to ensure that NO grass is growing under any of them! I am finally being heard, and my DH thinks they are probably s***g bricks, having found out that I was telling the truth, that I'm not insane, and what I described really IS there! I'm sticking with what I know has worked for me thus far, and trying to get the cavity clear, and as comfortable as possible, whilst I wait. I am continuing with the exercising, both to shift the debris, and regain muscle, where this has reduced it (buttocks, thighs), and my legs are losing some of the lumpiness (it's quite disfiguring, all down my buttocks and rear of thighs). I wish mine had turned out to be what you all have/had, so you can see why I'm so envious, I hope.
Hugs and best wishes to all!
XX

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fengirl1 · 12/04/2012 14:06

Keep your chin up Nannasylv! If you check how long I've been posting, while I don't beat your record, I do understand how you feel. Things definitely seem to be on the move now and your DH is right - they know they've messed up. I'm sure you will find you get good care now. Stay determined and do all you can do to look after yourself. X

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Nannasylv · 12/04/2012 14:32

fengirl1 - thanks. It's nice having people out there, who know how it feels, both physically, and mentally.
XX

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Ben10NeverAgain · 12/04/2012 17:17

I'm sorry for you Nanny :( I really hope that they now work on finding out what is the problem quickly so that whatever treatment/surgery can be sorted out. You must be very strong to have coped all of this time. I do count myself very lucky that 1) this was a routine problem for me 2) it got dxed very quickly and 3) surgery was within a few weeks of dx. Some of the stories from people like you, fengirl jackie and surewoman sound like you have really had a really difficult time :(

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justlemonade · 12/04/2012 17:54

Hi. I've just read through all the posts here but have some questions for you all...

I'm currently 29 weeks PG and for some weeks have noticed things are not quite 'right' down there. When I squat or sit on the toilet, or even just sit with my legs apart it feels like there is bulging coming from my fanjo. It's painful when I bear down to go for a wee and it's been progressively getting worse. I have mild incontinence issues (weeing when I sneeze etc).

Does this sound like symptoms of a prolapse? I was waiting to see a midwife at my regular pregnancy appointment next Wednesday, but is there need to go earlier?

I've not been able to wear tampons since my DD was born 3 years ago. She was a difficult Keilands forceps birth and I've just put the discomfort down to that so far.

I don't know whether I'm being naive or alarmist??? Any advice is most welcome.

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Ben10NeverAgain · 12/04/2012 17:59

Just I don't think that you are being alarmist. It feels horrid doesn't it. I wouldn't say that there is any need to panic - I wouldn't have thought that they'd treat with surgery before the birth. I'd get the midwife to have a look and see what she says. :)

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tinkxx65 · 13/04/2012 10:38

Hi

Just a quick update. Had my "date" yesterday and as dates go it was pretty crap. Had things inserted that ranged from straw size to Broom handle size! None of it was nice, and it was embarassing but at least it is over with. Have to wait four weeks for the results now.

Take care everyone xxx

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fengirl1 · 13/04/2012 11:57

Console yourself with the fact you're highly unlikely to ever have to go through it again, Tink.

I'm really annoyed with myself and upset today. I moved some furniture two days ago and my rectocele is now visibly worse. Sad I know I'm getting it fixed but it's made me realise how much I'm going to have to ask for help in future. I've always (had to) been very independent and I don't really want to give that up but looks like I have no choice. Sad

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wouldratherbeskiing · 13/04/2012 13:58

Fengirl1 - I know exactly where you are coming from. Not only have we all had to deal with the symptoms of our bodies slipping and sliding but we also have to face the future knowing other bits can go, or not be successful etc. It is so unknown and that is hard to deal with.

I am 4 weeks post-op for rectocele repair and have really turned a corner this week as feel nearly back to normal. I'm being really sensible and building up my strength gradually walking and am back driving. I have decided that once back to some sort of normality I will have to be aware of lifting but will not be putting my life on hold - we can't wrap ourselves in cotton wool. I hope I can find a balance but it is depressing to think I may not be up to digging the vege garden and am going to have to rely on other people at times when I would have coped myself. Big hug to you. You are nearly there with the op.

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tazzle · 13/04/2012 18:41

glad to hear your recovery is going so well skiing .... it can be very hard to be sensible though Hmm . Agree we cant wrap ourselves in cotton wool and my work involves manual handling people / wheelchairs so its gonna be hard to draw the line Confused ....or decide even where the line is ...... also got to get saddle on my horse Grin


absolutely brill tink that you are now the other side .. you survived that dreaded day intact .... whooopeeee.


totally empathise fengirl.... my OH is actually being more sensible than me telling me off on a daily basis when I try to do summat / anything remotely connected with lifting / pushing / pulling moe than his dinner on a plate Grin

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tinkxx65 · 13/04/2012 20:07

Hi again,

Just a quick question. I am sat here and my knickers and jeans are damp, like I have leaked urine, but I had no idea it had happened. I have a bad cough and was in the car coughing and coughing. But I didnt feel anything, just got in and was sitting here at the computer and thought I feel a bit damp!!! and I am. What the hell is going on, never had this happen before....Is it possible to leak and not feel it.

Want to cry :(

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fengirl1 · 13/04/2012 20:17

Poor you Tink. Have you been checked for a cystocele or uterine prolapse? Just wondering as maybe you have one/ both. It is possible to leak without knowing. Depending on when your next appointment is, it might be wise to call the hospital. I don't have this problem but many of the ladies in this thread do - just didn't want to leave you waiting. Take care.

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tazzle · 13/04/2012 20:25

(((fengirl)))

if you are cough cough coughing then you might not notice the leak although usually one does .....maybe each individual leak was very small but the effect cumulative.

I know it feels grim right now ........but it IS fixable !!!!

maybe the furiture moving tweaked more than the rectocele ???

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tazzle · 13/04/2012 20:27

blimming heck I did not look .properly....above meant for tink ..... note to self put glasses back on and pay attention to who poating what !!!

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fengirl1 · 13/04/2012 20:29

Lol Tazzle! Smile

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tazzle · 13/04/2012 20:32

posting even !!!!

(((((tink)))



It might just be a one of because of a bad cough if you never had it before........ I'd mention it next time you see doc since you not at an op stage yet but it might make them re evaluate your circumstances espeically if it recurs

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happy2beme · 13/04/2012 20:33

Hi Tink ... very possible to leak and not know, I did it on regular basis, something as simple as bending would be enough for me to leak I would stand up and pants would be wet but I would not have had the sensation.
Dont forget someone has just had a good rummage down there and upset the status quo so to speak , maybe it will settle in a few days . I think some of the other girls had similar experience after first real physical exam I know I did xxx dont be too disheartened x

Well I have my date in for 4th may, as consultant says "for a good rumage" and the fixing/stretching of my TVTO plus ablation of my womb. Got a date for day surgery ( cause I asked for it as did not want to be in too long) Kinda wish I had just went in too ward getting that anxious feeling again :(. He did say this may be a problem to the anaesthatist as I am obese Blush boy did I feel bad, but he has obviously slotted me in ... what if I get there and anaesthatist refuses to do me I will be horrified. Funny how you dont feel too then someone points out the obvious lol furious diet until op xx and I have no idea how he stretches TVTO after it has been in there for 5mths lol Hmm.
I had just resummed to work now I have this date for 3 wks and ward manager gonna love me. Oh well back on the merry go round lol xx

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happy2beme · 13/04/2012 20:36

LOL missed out too FAT xx

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ABitSnowyOutside · 13/04/2012 20:36

I've read the whole thread and ((hug))

Saw female doc today and she thinks it is a retrocele, cystocele, prolapsed uterus and fibroids.
The good news is that the cervix is healthy. Smile
They tend to go for the physiotherapy route first here so they begin by working on the completely knackered pelvic floor muscles first then on to ultrasound scan etc next.
It is going to take ages, isn't it? Sad

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