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**TAMOXIFEN**22 !

999 replies

MaryAnnSingleton · 06/04/2012 14:39

yikes- here we go...

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MaryAnnSingleton · 26/04/2012 08:06

hope your head is not too fuzzy after beer jane - and hope your mum is settling in at home too.
olivo welcome - agree with gig - practical house and children help when she is not feeling so good and being there to talk /listen. Perhaps she might like to join us here ? Anyway, you are very welcome to stick around for hand holding yourself Smile
gig am off to look at your pm Grin
Hope poorly dogs are feeling perkier today.
Mum should be seeing GP this week,so fingers crossed for something to help her. Dad will be out on Tuesday so I will go and check on her. A friend was coming at the weekend to stay over after dad's concert on Saturday but has been put off as dad says mum is too depressed to deal with having company - I think her lack of mobility is so hard-she can't do anything without help Sad
Her eldest sister and niece are coming for a week soon (staying in a cottage nearby) which should be cheering though.

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MaryAnnSingleton · 26/04/2012 09:19

14k meant to say- good idea to let them know that you or BIL will be with your MIL - so if they ring with news she'll have people with her.Poor woman Sad

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smee · 26/04/2012 09:24

l4k, definitely call - 2 weeks is far too long. I wouldn't worry too much about micro calcifications and the lump well you can't know anything just yet. One step at a time is all you can do. Have you met a Breast Care Nurse yet? Even if not, you could ring the hospital and ask to speak to them - they're much better at understanding the emotional side imo and I'd bet will help you get results quicker.

Olivio, get to know as much about what she's going through as you can, that way she's got someone to talk to who understands it as much as her. Also, know when her appointments are and what they're for - don't bombard her, but just let her know you're around and thinking of her. And tell her about all of us, as we're all we're all still here. I'm two years post diagnosis now and totally fine. Smile

Jane, beer sounded essential given the circumstances. Hope your mum's okay now she's home.

Waving to Lime. Nice to see you. Smile

Gig, hope day 2 goes to plan. You'll be an old hand by Monday.

MAS, book club dumping sounds liberating. Does that mean you get nice nibbles all to yourself now? I've always thought that sounds like the best part of book clubs. Grin

Sparkle, hope Nikki dog's on the up today. Been thinking about her, poor old soul.

Got to go out in the rain to a meeting - was going to cycle, but it's chucking it down again. Better run, as it takes an age to get there on the bus..

MaryAnnSingleton · 26/04/2012 09:40

book club ladies are carrying on -they seemed v upset at the prospect of it stopping so I've decided to have my own sabbatical for a bit,to catch up on what I want to read. Yes,the crisps and wine are a major draw in book group !

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OneInEight · 26/04/2012 09:55

14K .- definitely try for phone call as two weeks is along time to worry. Results are a bit suspect but still far from a foregone conclusion so try not to be too pessismitic yet - easier said than done I know.

Welcome Olivio, I am three-quarters through chemo and things I have found helpful:

Someone to talk to - sometimes to stress out on but often just for a bit of normality when the bc seems to take over everything.
Someone who I can pick the kids up occassionally from school. Most of the time I have been able to do the school run but good to know there is a contingency plan.
I find I am very tired one weekend out of the three on each cycle so anyone willing to entertain the kids is gratefully received then.
You could try food gifts but remember on the first week of the chemo you often feel sick and not very much like food. I am back to chocolate by week three!
If the hospital allows then accompanging your sister to some/part of the chemo sessions as these can be boring and the first one a bit scary.

Gig - hope your session goes well today.

Planning very lazy day today as tiredness starting to kick in. Looks like rain again but at least got school-run done in the dry this morning.

Sometimesiwonder · 26/04/2012 10:12

Was just checking in for a chat but, honestly, Gig, those album covers are the funniest thing I've seen in ages Grin

Have spent far too much time sending them to everyone I know - so I'l be back later to catch up x

SparkleRainbow · 26/04/2012 10:16

14k I agree with the others, 2 weeks sounds an unnecessary agony to go through if she can get the results sooner and be supported by you, dh and BIL. I am so sorry, she is having such a rough time of it. Sad

olivio - hi, I am glad you found this thread and the lovely ladies on it, they are brill for answering questions, discussing se, etc and general hand holding. I am sure your SIL will really apprecoate having you in her corner.

Lime - How are you? Ds has had a fab birthday thank you. 9 seems so old it really does, last birthday before double digits! Make the most of the remaining 8 for ds2. Grin

Nikki update, she had me up at 11.30 and 1.30, telling me she needed to go outside, in the rain.......which actually just involved me standing in the rain with her whilst she did nothing!!!! Dh seemed to increase his snoring when she started crying to go out....I am suspicious Hmm Still very miserable and doing
a lot of crying, but the drugs have to start working soon surely.

I am feeling a bit down today. Dh is drinking too much again, and is a bit grumpy and distant (probably as a result). Ds off at hospital later for orthotics appt, never ending for that child. Will feel better I am sure when the sun comes out.

Sometimesiwonder · 26/04/2012 10:47

Sparkles - sorry. Sounds tough. Poor dog, I expect she just couldn't sleep and needed to stretch her legs a bit. I am sure the drugs must start to make some difference soon, surely.
I hope ds's appt goes OK: orthotics can work wonders, so that's a positive at least. Thanks and Brew

Welcome to Olivo. You sound like a good friend in a crisis. Just be available to talk and give her a laugh, it's a total Godsend.

MAS - your poor Mum. Sad On the plus side, ditching the book club is very liberating. Don't feel guilty, just think what you can do with all that time that will be more life affirming.

Love to everyone I have missed out xxxx

MaryAnnSingleton · 26/04/2012 10:51

Waves to sometimes Smile
sparkle a hug for you and Nikki dog - so distressing when they aren't well.
gig hope your rads run to time etc today- have gathered some examples of my work to send you x

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Sometimesiwonder · 26/04/2012 10:55

Ooh Gig - have a picture, you know it makes sense!

MaryAnnSingleton · 26/04/2012 11:12

Grin @ sometimes

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Gigondas · 26/04/2012 11:21

Thanks Mas- rads were fine. Just took bit
Longer than normal as still some fiddling around on measurements.

Bottom part of scar /leg is sore - after I had discounted paranoia about return of lump (it wasn't in that area, that was just collateral damage when removed it), I can't work out If it's bruised from sitting/lieing on it , post op bruising or it's very sensitive to rads (highly unlikely). Will ask tomorrow (am meant to be referred to physio which I think will answer lots of questions as my back/Lats ache from leaning to one side so much).

sparkle thinking of you and nikki. It's hard sometimes when you have a lot on your mind- I know I withdraw from dh (and he certainly wants distraction and sometimes that involves a pint).

i4k how you doing?

j how you doing?

1in8 enjoy your lazy day

NedSchneebly · 26/04/2012 11:27

How much is the recommendation fee sometimes ? I got a MAS pic for my sis and it is fab. Do it gig, you won't regret it! Hope you get on OK with rads. Those album covers are a gem Smile Grin

gracie I have had problems with my guts throughout the FEC - my GP has put me on omeprazole, which is supposed to settle excess acid and bloatedness. Seems to be working, so might be worth asking if you can have something else to try? It does get easier, I promise. My second chemo was loads better than my first. Definitely second the vote for difflam if you get problems with your mouth (I didnt until the second cycle). Salt water just doesn't cut it in comparison to the lovely green-ness of difflam. . . Hand in there x x

Smee did you have any joy getting your tap fixed? Hope the smee household not flooded. . .

sparkle sending you big hugs. DHs drinking must be such a worry for you, on top of DS and everything else. Is DH having any help with his drinking? Good luck for DS at orthotics today. Hope it is a positive visit for you both x x

kurri complain, complain and complain a bit more and more loudly about Mr. Arse, I say. These bloody consultants think they know it all and actually know jack shit. Am very Angry Angry on your behalf.

eight another one down! three quarters sounds fabulous - am a bit Envy !

Amber sorry to hear your life is full of hard things at the moment. You are such a tower of strength and so positive for the rest of us, sounds like you need some Brew and hugs today. x x x x

MAS good for you resigning from your book club - this whole bc malarkey makes me think that life is too short to waste it doing stuff you don't want to do. Read more Patrick Gale instead Smile Hope your mum can get some more support from GP next week. What a worry for you and your dad. Big hugs to you all x x x

lime Good to see you, my love. Hope you're doing OK x x

14K definitely ring the clinic and get them to phone the results through to you. Then you can support MIL through whatever comes up. Sending you all big hugs and Thanks x

olivo welcome, although I am sorry that you find yourself here. This is absolutely the right place to post, as we are second to none in the advice and support stakes, though I do say so myself. Just stick with your SIL and follow her lead. She will need to cry, shout, rant and rave, cry some more, be distracted and have a laugh at various points on the journey. She will need emotional as well as practical support. I would second entertaining the DCs so that she can rest. My DSis lent me lots of DVD box sets of stuff, because I find that I can't concentrate on reading too much. Amazon or Itunes vouchers are nice too, so she can choose some indulgent things for herself. Favourite chocolate and other nice things too, for when she fancies it. My DSis sends me postcards too, with messages on the back, just to tell me she is there for me and thinking about me. How close do you live to her? Will you be able to see her regularly? Do feel free to stick around here, and send her over too, if she thinks it might be helpful.

I saw my oncologist yesterday, and it was all fine. He was very sympathetic about my docetaxol wobble and was very diplomatic about the fact that I needed metaclopramide on top of the Emend. although he was a bit surprised. I said "maybe I'm just a big fat wimp then" to which he kindly responded "no, maybe you're just more sensitive than others" Smile Blush He said that rads would start minimum 3 weeks after the last chemo, and completely understood that I wanted to get on with it, which was positive.

Do I win the prize for the longest post ever? Grin

MaryAnnSingleton · 26/04/2012 12:28

can I pay you in fbs ned & sometimes ?

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Sometimesiwonder · 26/04/2012 12:40

as long is it's chocolate that's going to work for me....

graciesmall09 · 26/04/2012 12:53

Quick pop on as need to head out soon for school run. As usual I have so much to catch up on.

Thanks for all the heads up and tips on chemo and remedies (even the pointy stick).

ned I'm already on Omeprazole but perhaps I need them upped. If your consultant thought you were sensitive on Emend and Metaclopromide don't know what he would think of me as I had Emend, Aloxi and Lanasopam and they are talking about upping it next time Blush.

sparkler hugs to you and Nikki dog. Hope DS hospital appointment goes well.

14k thinking of you and your mil. Totally agree 2 weeks is a lifetime when your waiting for results. I can't see why the consultant wouldn't agree to phoning you.

gigs glad rads appointment went well Shock at wanting to take a photo.

amber will have a look at the Lactoferrin, etc. Hope you are feeling ok, it sounds like things are pretty hectic with you.

olvio what a lovely sister you are. I'm only starting chemo so am only going on what things would help me. Definitely a help with school pick ups or entertaining the childen for a while. I wouldn't appreciate food although would love if someone brought a ready made lasagne or something for everyone else.

kurri I am mad for you and that ignorant doctor. That is just not on and I would definitely be making a complaint. A lot of doctors just don't seem to have the interest/time to listen to what their patients are saying which is just wrong. My mum has been running back and forward to our gp for a few months now with actually quite worrying symptoms and they are doing nothing. They haven't done blood tests, only an x-ray. Make me sound ancient but doctors aren't what they used to be

oops mega post again that's what I get for missing so much. 1in8 another one ticked off the list Grin

Sometimesiwonder · 26/04/2012 13:09

Vent alert - fee free to skip over this one -

So I've written a new website for a new client. I send them an initial draft, making it clear that it is a starter for 10, because we've only met once, sometimes these things need to be pondered and refined a bit to fit with the culture of the business etc. Heard nothing, phoned today, find out that they have used it, the website is live - but they don't think it reads well. Well why not come back to me and tell me which bits they want changed, so I can bloody finish it, then?

Aren't people odd?

Sorry, I just needed to vent, feel a bit better now Wink

MaryAnnSingleton · 26/04/2012 13:30

grrrr-bloody clients

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amberlight · 26/04/2012 16:17

Hi all. Reading through and nodding in a supportive way.

Brew all round.

Rubbish day here.

Portacath flush tomorrow (oh joy).

SparkleRainbow · 26/04/2012 16:29

Oo amber you are leading the high life! How long will it take to do the flush? I will have another Brew thank you.

Sometimes - that is so frustrating, are they going to pay you to do some fine tuning to their needs...what plonkers!

Ned - I award you Brew Thanks and Wine for later, for the longest post, never mind the best memory for being able to write so much!

thegreylady · 26/04/2012 16:30

Hi all hope every one is coping with stuff and having lots of Wine or Brew and chocolate as required.
I am still a bit chesty but it feels a bit hayfevery now.I never know what's 'normal' for me now.Isn't there a thread somewhere[here or bcc] about the 'land of the new normal'?I must say the old normal was fine by me!

cherabel · 26/04/2012 16:35

Hello ladies

I hope you don't mind me posting on this thread. I had a little lurk yesterday as I was waiting for the results of a biopsy following a suspicious mammogram.

I am one of the lucky ones as mine turned out to be a fibroadenoma, but I feel like I experienced just a tiny bit of the awful fear and paranoia which some of you must live with on a daily basis - a humbling experience.

I just wanted to wish you all the best on the road back to recovery. I'll be making a donation to one of the breast cancer charities today.

SparkleRainbow · 26/04/2012 16:37

We have difinitely talked about the new normal.....I too preferred to old normal, but I would be prepared to settle for less dramas in the new normal as a compromise Wink

I am glad you are feeling a little better greylady.

SparkleRainbow · 26/04/2012 16:38

xpost cherabel - what a lovely post. I am so glad it has all turned out well for you. It is a very honourable thing to do to make a donation, it is good people like you who will make a huge difference.

MaryAnnSingleton · 26/04/2012 17:00

cherabel lovely post - so pleased that it was nothing too nasty for you Smile

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