Page 4 | ***TAMOXIFEN number 19***

SparkleRainbow · 02/02/2012 14:10

Just popping in, but didn't want to pop out again without acknowledging Gigondas. I am glad you have found us, but so sorry that you had to. Congratulations of your beautiful dd2. I think, as others have said, we have all done, and still do the....I am going to die and leave my babies panic, but also as others have said there is so much drs can do now, and so many successful treatments. You will feel, if not a bit better, then certainly in more control when you know more, and have a treatment plan. If I can offer any words of wisdom at the mo, it would be to stay away from Google for the time being.

Kurri - I love your mum!

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MaryAnnSingleton · 02/02/2012 14:12

arf at sex life talk sometimes !!

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amberlight · 02/02/2012 14:15

re sex life talk! Lie back and think of England!!

BackforGood · 02/02/2012 14:19

MAS - still, nice that they asked you, eh? Even if not your 'thing'

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MaryAnnSingleton · 02/02/2012 14:24

yes, v nice of them to ask - will be seeing them at another neighbour's party the weekend after, but still feel a bit wimpy about not going. I am v shy and self conscious with people I don't know that well

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Sometimesiwonder · 02/02/2012 14:26

A hamper for your Mum sounds a lovely idea, KK. Bless her going through the diaries, that must be so bittersweet.

MAS - it was nice of them to invite you, I bet you'd have fun. Go with your instinct though, there's no point if it is going to be stressful....

NedSchneebly · 02/02/2012 14:35

Wow ladies- lots of post for catch up on!

Welcome gigondas but sort you have to be here, iyswim.i'm a fairly newbie here too, diagnosed with beast cancer January 5th, had surgery 2 weeks ago, and seeing my surgeon this afternoon to get all results.

Fear of dying very natural - I convinced myself that I had had my last Christmas and that I would never see my son grow up. . . Still do, on a down day, but this is definitely the best place to hang out on days like that. . . Welcome, and feel free to share, shout, rant, cry, eat fbs (fat boy snacks) with us here x x

Thanks for all the positive vibes ladies- appointment at 4pm, so will fill you all in later.

Will read rest of posts properly later x x

Driftwood999 · 02/02/2012 15:03

Sometimesiwonder - at the sex talk!!!! thanks for the warning!
Backforgood - good luck with your follow up.
MAS - go on, be a devil, go out and do something different. I don't hold with all this generation gap stuff, they just might be wanting you Don't over think it.

jchocchip · 02/02/2012 15:08

Hello everyone. Morning at work and I'm exhausted. Having a lie down now to regroup.
gigondas, congratulations on your new baby. You shouldn't have to deal with this now. Being in hospital a few weeks after I had my third (13 years ago) was difficult as I was breastfeeding and I refused to send her home with her dad - he had enough on with the older two without having to bring baby in for feeds. In the end I ended up with baby in a childrens ward because they wouldn't let her on the chest ward. I guess its early days for you and until you know what treatment you will have it's normal to alternate between scared witless and believing it will all be ok. Eat plenty of chocolate and have as many sofa days as you can.

I had my radiotheraphy in Leeds. We drove to one appointment. Never drive to Leeds is my motto. Fortunately we are just a 20 min train ride away, and the College of Art not too far from the station.

Lots been happening on here, sorry excuse me if I pass on commenting on everyone, I just can't. Do still love you all, just can't get brain into gear. Hugs to everyone who needs and chocolate biscuits and a on the go.

amberlight · 02/02/2012 15:09

Urk - just back from GP and my blood pressure is up 20 points since starting this herceptin thingy and she's Not Happy. More tests coming up.

KurriKurri · 02/02/2012 15:12

Invitations are nice MAS, - but no need to do anything you aren't comfortable with.

Drift - I never had sort of scan/test at the end of my treatment (apart from bloods IIRC) - just had my follow up mammogram when it was due (I think you get them yearly if you've had lumpectomy, 2 yearly if mastectomy).

Good luck with consultant chasing amber.

Good luck for 4pm Ned.

at the sex talk Sometimes - I didn't get that thank God - they probably looked at me and thought I was so old it didn't much matter any more

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MaryAnnSingleton · 02/02/2012 15:39

I rather like it that ned called it beast cancer
Ds very disgruntled that he has to go to choreography thing again after school - can't blame him really.
Car has a fault on the throttle housing - not sure what,but the part isn't in stock so will have to wait until tomorrow until it's ready. Cute little courtesy car though.

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Original poster

MaryAnnSingleton · 02/02/2012 15:39

urk indeed amber - this herceptin is damned pesky.

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amberlight · 02/02/2012 16:55

Consultant chasing has paid off. Have now spoken with breast care nurse and she has reassured me and I will be staying on the herceptin for the time being. They reckon they can't think of anyone whose numbness has been a real long term problem, so we're chancing it. If it is, it is.

Throttle housing fault, eh? It's a crack in the box that has the throttle in it. Costs about £25 for a replacement. Don't ask me how I know this.

smee · 02/02/2012 16:59

at the sex talk, Sometimes. My lot did a big number about egg conservation and fertility but didn't get onto sex.

MAS, totally get why you've said no. I've just done similar, as some of the more shishy parents at DS's school are hiring a hall for a party soon and I'm avoiding that. Bit silly of me really, but feels right.

Amber, g'ah indeed for that pesky Herceptin. High BP's the last thing you need.

Kurri, a hamper for your mum sounds good - could you organise a weekly delivery from Waitrose or something? The diaries sound interesting - have you ever read them?

Drift, I have 3 monthly checks, but they're just physical, so they feel for lumps, check the scar, etc. I had a ct scan at end of Rads as I had some rib pain which I was worried about and nagged them into it. They don't routinely give scans as far as I know. You should have a mammogram too a year after diagnosis.

Thinking of Ned as she should be there or even out about now. Fingers crossed for the best news possible.

smee · 02/02/2012 17:00

x=posted Amber. That sounds reassuring. You are a woman of many talents knowing the cost of a box with a throttle.

Driftwood999 · 02/02/2012 17:10

Yes - hoping good news for Ned. That is a truly horrible appointment.

SparkleRainbow · 02/02/2012 17:17

Positive thoughts for Ned.

and at Sometimes and her sex talk!

SparkleRainbow · 02/02/2012 17:20

amber - I had very confused moment there re your Consultant, herceptin and cracked throttle housing, being replaceable for the grand sum of £25. I think I may have cracked throttle housing.....

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MaryAnnSingleton · 02/02/2012 17:29

It may be something else though amber as they're charging me £200 + !
I analyse and fret in advance too much about social things -I can't help it.But thanks smee -I feel less silly. Dh went to a similar thing with the menfolk of these ladies and had a good time,though he says he felt shy too ! Gah !
drift it seems that hospitals vary a lot in their after care -some see people more frequently than others (ours does 6 monthly check ups for the first 3 years,then that's it) Some people seem to go once a year at other hospitals.
Hope ned is ok,thought of her at 4pm.

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topsyturner · 02/02/2012 17:58

Just bobbing back in to check if ned has come back yet ?
Nope ?
Ok , be back later .

amberlight · 02/02/2012 18:06

MAS, they might well be charging you £200+ but you'll possibly find the throttle housing is £25 cost price marked up to £100 and the labour is £100 This is why I did my own car repairs up to the day when they made it all computerised so you can't any more.
I think I need a new throttle housing too

KurriKurri · 02/02/2012 18:33

I generally do go to social type things - I'm not shy -but I tend to be the quiet one in most groups, - I'm happy to sit and listen, - there's always someone who is the type who talks a lot to make up for it

I've read some of the diaries Smee, - I'd never seen them before Dad died, I imagine mum felt they were private while he was still alive. But I looked at some while I was down at mum's. They are very sweet - written when he was in late teens, then a big gap while he was a POW, then after the war for a few years. He describes how he met mum, he called her 'a sweet country girl' with a 'very neat figure' and he liked her because she could keep up with him when he went out walking, and didn't complain when he got them lost! (One of her first gifts to him was a compass )

Hope all is well with Ned.

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MaryAnnSingleton · 02/02/2012 19:01

you are right there amber - respect to your motor mechanic skills!!
kk how lovely the diaries sound - romantic and sweet.
I usually do push myself to go to social things and manage pretty well-it's just the anxiety beforehand that is horrid.
Will check in again later to see if ned's been

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NedSchneebly · 02/02/2012 19:11

beast cancer MAS - oops!

Hey all- rubbish long wait at hospital, didn't see surgeon til 5.45. . .

Anyway, all good news, as far as it can be! Margins clear, nodes clear, Her2 negative, ER positive, scar healing nicely, bit of fluid on breast, but nothing to worry about. Declined surgeons kind offer of sticking it with a needle to drain it. . .

Been signed off by surgeon, to await oncologist appointment within next 2 weeks, then chemo, rads and Tamoxifen. . .

Feeling quite pleased with self. . . .sorry, bit selfish with others getting not so good results this week.

Fbs anyone? Have a Creme egg in my bag. . . !