**TAMOXIFEN 17 **

[MaryAnnSingleton]

blimey- we're almost up to our limit...so brand new shiny,sparkling thread.

Hear, hear MAS. Cakes, I think the button is stupid too and definitely wouldn't want to press it but it wont stop me posting on here. I wish MN would get rid of it.

Amber, sorry to hear it wasn't plain sailing - hope everything goes well for you today.

Smee, have a lovely time with your brother and his family.

Topsy, hope DH is in a better mood today. Have the Baileys ready just in case though (if there's any left .

Waves to everyone else.

Still seeing the nurses at our local health centre so they can dress the bit of my scar that hasn't healed properly. Yesterday she ran out of the usual dressing so improvised with a rubbish one so I've bought a couple of the adhesive ones (£1.99 each) just in case they don't have any. They seem very short of supplies generally, rummaging around for everything - either bad ordering practice or they've run out of money.

Just had a brie and sliced gherkin roll for lunch much to DS1's horror. It was lovely.

brie and gherkin sounds delicious actually ! I so look forward to cheese at Christmas - yum.
Pesky about the dressings too figgy grrr
Shall I ask about the fb button then ? I would hate to feel people might be put off posting on the thread,and really sad that cakes feels driven away

have written them an email..

Well done MAS, - I hope they will take the like button off our thread, I think they have for other sensitive threads, and as you say it would be awful if people felt they couldn't ask for help and support.
I am awfully sad that Cakes has felt driven away by it, - cakes you are an absolute star on this thread, and we all love you dearly. xx

Figgy your sandwich has made me feel rather peckish,

Lots of people do seem very eek about the FB button, I have to say. Though I think the argument is that it's always been there in some form anyway, and people have always been able to cut and paste/link to mumsnet pages anyway. But yes, I wish there were better 'slightly hidden' bits on here. Off the Beaten Track disappears after 30 days which isn't a lot of use for health reference type discussions really. All tricky.
Today was lots better. The very nice young deputy manager spent a long time learning about autism. She said they get zero autism training, ever, which is why they were making so many errors. So they're getting me to teach them.

amber - I'm glad it went better today, and you got a chance to talk to someone. I don't know what happened yesterday, but it obviously distressed you very much, so I'm glad they are listening now. It's a shame you had to suffer for them to realise they need to know more about autism, but hopefully now you and no one else with autism will have to go through the same experience again.

Autism - extreme need for minimal sensory pain from noise/rough materials/very cold materials/manual handling. And desperate need for predictability on what to do and where to go and when. And desperate need for really totally clear language/picture instructions.

So they moved me to a new machine in a new area with new changing protocols and new staff - all without explaining it - and the machine is ice cold and rests on the skin, and is very noisy and very scary, and they kept me waiting an hour beforehand and I was tired and cold and hungry and bewildered....and unable to cope properly for hours afterwards. They had no idea that autism has sensory and routine and communication needs.

You poor thing - that must have been awful and frightening for you, in fact I'm sure the whole radiotherapy experience has been very hard for you, I'm glad they did better today xx

Cat, heck...likewise a peaceful and wonderful Christmas to you xx

Cat - I'm so sorry you are leaving too - I wish a wonderful Christmas, and a Peaceful new Year full of good health. We will miss you xx

oh cat I am so sorry you are being driven away too- this is really not on bloody fb button. Lots of luck and love to you and a very happy Christmas x

amber well done- I'm sure they will benefit hugely from your help.

O dear I am also very sad that friends are moving away from here due to the FB thing which I don't actually understand. Cakes - if you're lurking, I am really sorry you've had to leave - you've been a great friend to me on here.

KK - can you do anything to get the link removed???

Amber - I'm so sorry about your recent experience and hope things will be better for you soon. What an example of staff not thinking about the whole person.

SR - MAS has e-mailed HQ to ask if they will remove the link from our thread, - so we will have to keep fingers crossed.

Like you I don't really understand the FB thing (or even what 'liking' is to be honest) but I get the general idea that people feel it compromises privacy and anonimity - and no one should have to worry about that on a thread like this

Cat64 - I don't know enought about this FB issue, but am taking your concerns seriously. Will be not to banter with you here. I briefly joined fb a couple of years ago, but basically it did nothing for me was bloody hard work and I found it superficial and shallow (others do not, I know) and that is fine by me. I left fb,that is the upshot of that and people still phone and email. Wishing you the best of everything X

FB can be very secure indeed, but people have to know how to set their settings on it. For me, it's been a lifeline.

I love fb but quite understand that the 'like' button does feel very wrong in a thread like ours. I am very sad that our friends are leaving us- cakes answered my original thread back in 2009 so I feel quite gutted that she's been made to feel so uncomfortable. I would be so lost without you all.

It's sad that people are leaving mumsnet . I must admit to prefering facebook as I feel more in control over there. I've only recently joined mumsnet and have loved the chat on this thread, but it is a big timewaster and long term I am more likely to keep up with the tamoxifen group on facebook...

Waves to cat and cakes - if you are lurking - sorry you have left, hope you have a happy Christmas and all the best for the New Year.

I've not posted for the last couple of days as I had work Christmas lunch then travelled to dh's Gran's. Joined in carols around village Christmas tree last night and have been walking to try and ward off the mince pies. Going to try and find a swimming pool today - need some exercise!

dh forgot to bring his blood pressure pills with him, so he is off to the doctor. I managed to drive to a swimming pool and back without incident and got in a few lengths. Feel a bit lazy as all the jobs that need doing are at home.

Time for a anyone?

yes please jane - am about to make more cranberry and chocolate cookie dough...

Finished my radiotherapy!!!!!!!

Waving as am back from my brother's. Was fun if brief. Am about Cakes and Cat leaving due to FB though. Why don't we all get in touch with MNHQ and tell them our thoughts. The more that do, I'm guessing the more notice they might take. Why are they doing it anyway? Are they getting some sort of income from it? I will e-mail them now.

Amber, YEAY and double YEAY for finishing rads. Totally brilliant news..

Hope all others are well. Am off to shops as might finally make the Christmas Cake tonight..

Have sent my rant well reasoned request for fb button to be removed.

Hello lovely ladies,

Just wondering if I can hang out with you for a while. I posted a couple of weeks ago on general health (waves shyly to smee kk and MaryAnn) but has taken me a while to get here!

I found my lump about 8 weeks ago. They initially thought it was a galactocele, but I got my biopsy results today and it's cancerous - around 3.5cm, fast growing and has spread to my lymph nodes . I'm sure there are technical terms for this but haven't learned then yet (although if I manage to plough through the huge weight of booklets the nurse has given me I shall expect an oncology diploma!). They have recommended a full mastectomy as I apparently have calcifications which they feel could also be suspicious. Am waiting for a date but the earliest appointments they have are 18/19 Jan.

Just wondering whether I should be expecting any treatment in the meantime?? it seems like a long time to wait - in the 8/9 weeks I've been waiting the lump does seem to have grown a bit and I'm worried that it could be spreading. I intend to make contact with the nurse to discuss this in the next day or so, but wondered if anyone could offer thoughts.

Sorry this is so long! I seem to specialise in lengthy threads. Only found out this morning and have two very young children. Am still in shock and feel quite frightened .

xx