the 16th ***TAMOXIFEN***thread

[MaryAnnSingleton]

...here we go again

That sounds fun, smee - the Xmas games and the dormouse activities

Our Xmas Fair is big but the same every flipping year. It needs some good new games but all suggestions fall on deaf ears. It was good just to do a bit and come away (that's how i saw the lonely shoe box though, I happened to be there doing my good turn pre-event). Ho hum.

MAS - I hate turning work down too, you never know when it'll be there again. No point running yourself into the ground, though. They'll come back I am sure. Like me

Cakes, we're quite new to doing such things and are pretty useless at fundraising, but very good at having fun. One school near us has an ice rink this year.

MAS, I think you're working too hard. You have the whole of December to get through yet.

Wonder how Topsy's getting on. Hope she's alright.

Ice rink? Bloody hell!

Got to go to the school in a mo but I'll be back for AMber and Topsy's news later - all is crossed

All clear !
Well , not all clear , but no new growth
And lung spots have reduced to what they call "insignificant amounts" !
Still on 3 monthly CT scans , but they are very happy .

Rads haven't signed off on my plan yet , should have apts through in about a week and half .

Panic over !

Hi topsytinselturner - so glad that you have got the best results, all things considered, very, very encouraging news.

YEAY AND TRIPLE YEAY !!! Topsy, hooray for you. What a relief.

That is good news Topsy - long may it last.

That is fantastic news Topsy. I am so very relieved, I bet you are glad you have two new cases of wine now, aren't you? all round. I'll pop a cork

fab news topsy yay !!! toasted crumpets all round...

Topsy, yippppeeeee!!!!

Here, much arrgh re rads. 3 hrs again. turns out they were 1cm out because They Can't Take Away One Number from Another Without a Calculator. 89 minus 12 is too difficult. Shaky, tired, cold, fed up. 17 more to go.

Oh amberlight - how do you get to know their stuff ups this stuff? Do they actually admit to it? Poor you, hope your having the appropriate treatment for "Shaky, tired, cold, fed up"

TopsyTinsel that is the best shiney news for the start of advent :) :)

Oh dear at the long rads session Amber, but at least you have started and they should get it right quickly tomorrow...

Done some Christmas shopping this afternoon, so at least I've started it!

Heck, Amber you need more than toasted crumpets for that. Have they promised it will be okay from now on??

grrrr amber - I have dry sherry -no wine.

Does anyone here attend Exeter hospital?

Amber that is just shite ! Can't believe they got it wrong again .
Better luck tomorrow .

Am on first glass of wine .
Lamb cutlets are finishing off in the oven , veggy rice made .
tinsel topsy is a very happy woman tonight
(Despite yet another row with tax credits on the phone this morning . They now owe me 13 weeks of money . All been approved , just sitting on someones desk waiting to have the "process" button pressed . And has been in this same place for the last 6 weeks ! Grrr !)

Not me drift , but I know people who live locally to it .
Any questions I can help you with , I will ask my friends ?

Yayyyy for brilliant news, topsytinselturner. You go right ahead and celebrate, you deserve it. Boo to the tax credits people, hopefully you will get your money before Christmas.

Poor you Amber, nothing is straightforward at your hospital. I hope everything goes much more smoothly tomorrow.

Well done on the Christmas shopping, Jane. I have a list so I've started at least .

Cakes boo to school for not sending off the shoebox. I hope they felt suitably embarrassed. Our school fair is usually very well attended and raises lots of money. All the children are involved in one way or another, it's great fun and even though my boys haven't gone there for years, I always help out if I can.

Smee, sounds like a lovely day. Hope you've warmed up. I usually do 'Bash the Rat' . It's very popular amongst the staff - I wonder why?

How does 'Bash The Rat' work [ignorant emoticon]

Smee's might be different, but ours is a wooden box with a hole at the top and a slide at the bottom. The rat (ours are knitted) is dropped through the hole, slides out at the speed of knots and has to be bashed on the head and stopped before it reaches the end of the slide. It's very hard to stop it, it travels so fast. Last year it was 50p for 3 goes and we have two of them (courtesy of our local scout group).

Driftwood, I advise PCTs, so I know the lingo and listen to what they're saying to each other in there. Chief radiographer v unimpressed with her colleagues.
I don't know if I can do this 17 more times...the sensory stuff is so difficult for me...better have a big talk with them tomorrow...
So sorry that I'm being cr*p at supporting others at the moment

amberlight - After seeing the Onc last week, it has dawned on me the benefits of having Radiotherapy. I know it's not going to be a breeze, but I'm committed to it now. So sorry you are having such a rough time, tell me what you mean by "the sensory stuff", I'm guessing just the whole physical experience? You are, just by expressing yourself, a support to others/me. Hus to you, hope you are resting, as others suggest, during rads.

amberlight - that was "hugs" to you! & I repeat, please just say it as it is...

Sensory processing disorder...often goes with autism. Hypersensitive to sound, touch, flickering light, smell, cold, pressure etc.
Thanks...hugs to everyone else too

Bash the Rat sounds fun.

Amber, I did find that I prefered the lights to be left down low when I was being zapped. Some of them turned them on before they left, but others left the lights down. It did seem daunting at first, but somewhere in the middle I lost count and once I realised that I was over half way it went quickly. Explain how you feel and see if there is anything they can do to help.

Night night all. Going to sleep better than last night, I hope!