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the 16th ***TAMOXIFEN***thread

989 replies

MaryAnnSingleton · 10/11/2011 16:58

...here we go again

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MaryAnnSingleton · 23/11/2011 22:22

hope headache/migraine is very soon gone topsy and that you sleep well.
Lots of luck tomorrow with onc drift - you'll probably be told how many fractions you'll be having - (and these vary from hospital to hospital - some do fewer at a higher dose and vice versa.) There is negligible risk to heart/lungs/ribs - remember they have to mention every single teeny thing as they do when you sign for surgery consent...as for burning, it happens -some people fare better than others. I burned towards the end of my rads but with dressings and keeping the skin dry it healed very quickly. They will also probably say that radiotherapy can make the breast larger or smaller and it will probably feel different too- mine two years on still has areas which are hard. That's it really.

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Driftwood999 · 23/11/2011 22:42

Thanks for that MAS as well as for everything else. - will chat tomorrow

cat64 · 23/11/2011 23:57

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seventimesseven · 24/11/2011 09:40

May I join you wonderfully positive folk? Had clinic appointment yesterday, three lumps found, one (fortunately the smallest) is suspicious looking. Will get results of biopsy next week. Finding hard to get the balance between being upbeat, 'I can get through this', and thinking of worst case scenarios.

jchocchip · 24/11/2011 09:56

Morning 7x7. Sorry you are in that worrying place waiting for a biopsy result. The odds are on your side that it will be benign but even if not it is treatable. Have a Brew and some chocolate while you are waiting and feel free to ask any questions on here.

amberlight · 24/11/2011 09:57

Hi Seven! Welcome to this corner of mumsnet, though sad to hear of the stressful situation you've found yourself in at the moment. The waiting is hell, I found. Easier when we find out for sure whether it's good news or not. Odds of it being something truly awful are 100-1 these days by the way (9 out of 10 lumps are benign, and 9 out of 10 of the rudely behaved ones can be made to behave). Not a lot of consolation for the person who turns out to be the 1 in 100, of course, but it's a starting point. Have a Brew.

Morning everyone else. Full of cough and cold so I'd better stay away from you a bit.

cakesandale · 24/11/2011 09:58

Cat - an appointment that tells you nothing new is great, in my book. Try to think of it as a positive: you didn't learn more, but the oncologist has met you, presumably had a bit of a look and found it to be as the surgeon said (sometimes that isn't the case), and will have made some judgements about how to deal with you (as a person I mean, not as a case). it was worth it, really - possibly not for DH, though, I agree. He may have wasted his time a bit Hmm

Seventimesseven. Welcome Sad. We always say this, but the waiting is the hardest part. Just please try not to Google or go onto cancer websites. You don't know if you have it yet and, speaking as someone who HAS had it, those places can scare the beejasus out of you. And they don't offer such good cake as we do here. But you can ask us anything, we have no embarrassment or shame, and we do quite good hand holding too. Be good to yourself.

cakesandale · 24/11/2011 10:01

Drift - sorry you had a sad day yesterday. Hope it has done you some good and you can dust yourself off a bit today. x

jchocchip · 24/11/2011 10:01

Hi Amber Hope your cold feels better soon. lemsip and Brew and sofa day maybe? If it was my cold you caught, it didn't last too long! ;)

cakesandale · 24/11/2011 10:08

By the way, seven - I love Amber's stats! The way she tells it (and she is right) sounds most positive! Smile Hold onto that, my love.

amberlight · 24/11/2011 10:12

Driftwood ((((hugs)))) (and plenty for anyone else who needs one) *

*guaranteed entirely mumsnet-compliant and non-threatening

MaryAnnSingleton · 24/11/2011 11:32

keep warm and topped up with treats amber
cat wise words there from cakes - don't be despondent !
Hope all is going well with drift's appointment today
And seven -you are welcome- amber's advice is sound - we are here to see you through the horrible waiting.
Righto,off to work for me

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smee · 24/11/2011 12:20

cat, cakes is wise. It's a tilt to being in control, as you know what's what now and cancer's on the back foot. Smile

Missed Drift. Not that I had any advice, but still. Hope she's alright today.

Seven, welcome from me too. Really hope you don't need us for very long. Amber's stats are spot on. Smile

Amber, you on the sofa?

I have tediously sloooww broadband.

smee · 24/11/2011 12:29

Where's Sparkle?? Haven't seen her for days Hmm am beginning to worry about her..

cakesandale · 24/11/2011 12:46

OI SPARKLES!!!!!!

Anyone hear anything?

MaryAnnSingleton · 24/11/2011 13:17

shall call her on fb ?

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cakesandale · 24/11/2011 13:25

Please do, I am a bit worried too Sad

I suppose she may just be having a proper life Envy

amberlight · 24/11/2011 13:43

Sofa? Er...ummm........not quite....?

cat64 · 24/11/2011 14:22

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Driftwood999 · 24/11/2011 14:32

Hello everyone, saw the Oncologist this morning. He went through all the information in meticulous detail, and really just pulled it all together. and was very dishy Learned a bit more about the tumour. Where as the surgeon told that it was removed "with nice clean margins" the ONC said the back of it just made it in that regard, as it was next to chest wall the margin was only .7 of a mm. Apparently they like it to be a margin of 1 cm. So I'm absolutely committed to the idea of having Rads now. He also examined me and was quite impressed (or so I like to think) Grin by the now reducing seroma. We also talked about the burning pain in the back of my arm (shoulder to elbow) neuroppathic pain, I was looking for reassurance that it will go, given time as stamping my little foot at home is just not working He said it should reduce, of course they can never commit themselves. I came away with a script for Amitriptyline to take at night. (I'm not depressed though) have been looking it up and it is widely used for this type of pain, though may take a while, 2/3 weeks to kick in. Hope you're all doing OK, given the circumstances. As others have said, sorry you've got the anxious wait, fingers crossed that you will have good news, many do. Also, that you can express anything here and ask as many questions and as often as you want.

Driftwood999 · 24/11/2011 14:34

That should be, "they like it to be a margin of 1mm !!!!!!!!

cakesandale · 24/11/2011 14:37

Welocme back, drift. Sounds good to me, well done. I think you are right to for rads, I'd always recommend it even thought it's a pain going in every day.

Envy over the dishy oncologist. Mine is very kind and thorough but inclined to be a bit personal he said I had put on weight

pinkstarlight · 24/11/2011 14:42

kk..ive lit a candle for your dear dad.

topsy...hope your ok your headaches gone and your just busy today.

sparkles...am also thinking of you and hope you and your family are all ok.

seven...welcome the waiting is just horrible and really plays with your mind,heres hoping it turns out to be nothing sinister.

some good news i have now made it to the 6 month mark and have been given the all clear to come off my daily daltaparin injections,so chuffed no more bruised bleeding lumpy stomach yippeee.also been told that the injections are most likely causing my enflamed stomach as normally people only have them for short period then go on to warfarin but i had to have them for 6 months as i was at higher risk of developing more clots because of treatment.

also got gp to check out a bump i could feel thats been worrying me,omg the shame turns out to be part of my rib cage lol.im such a daft bat.

Driftwood999 · 24/11/2011 14:43

Just wanted to add, in case anyone has not discovered it, that having a diagnosis of cancer entitles you to free prescriptions. The form you need is FP92A, I got mine from GP's surgery. It's the only thing I'll qualify for but I'm having that at least, cancer's not cheap is it?

pinkstarlight · 24/11/2011 14:45

drift... i also had that burning pain your talking about back of my arm felt like it had been badly burnt,its now 3 months since my op i can still feel it a bit but no where near as painful as it once was.