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**tamoxifen** number 15 ****

987 replies

MaryAnnSingleton · 25/10/2011 09:48

can you believe it ??!!

OP posts:
smee · 03/11/2011 19:58

Ooh, Sparkle. Really good luck to your DH for tomorrow. I will have everything crossed for him. x

Stars, that's good news about the transplant. When did you hear that then?? Must be both fantastic to think it's happening, but more than a bit scary too. What's the timescale, have they said? + does this mean all the worrying unknowns have been sort of diagnosed then? Really hope it does. Smile

On diets, I read a fair amount when I was diagnosed and came to the conclusion that nobody really knows, but it's sensible to cut down on sugars, alcohol and high levels of fat. I haven't cut anything out, and my Onc said she thought that was the right approach, alongside exercise and keeping weight down. Thing is they all say different. I'd bet if I met another Onc, they'd have a different take. Confused

Jane have fun in the pub. You deserve a beer or two. Smile

jchocchip · 03/11/2011 20:09

In pub drinking 'ratcatcher' and waiting to see if my friend turns up after yoga. I have my pint of tapwater too so I'll be more hydrated than usual :) Oh and nuts are good for you (aren't they?) so I have a bag of chilli peanuts on the side :)

Iamseeingstars · 03/11/2011 20:12

Sparkle - Passing on my positive thoughts for your DH too. This is additional stress you dont need.

I had confirmation this week although I knew a decision was getting closer but they have to cross so my Ts and dot so many Is that they wouldnt confirm anything definite. The doctors have been drip feeding information to me to get me prepared.

Treatment is 4mths but recovery is 1-2 years before I get back to where I am now. If all goes well because it is still high risk and not a definite solution because of specific condition but its the best option they can offer. Infection risk is critical and we will have to be really strict about visitors and hygiene.

They havent found out what is causing other issues and I think they are now kind of hoping that the transplant will fix it because they dont know what else to search for. Awaiting some results of recent tests they did as a final 'lets have a look and see if anything shows'

I dont do any exercise whatsover - this stopped when I got my diagnosis and now I struggle to do anything, even a little walk and my heart is beating dangerously fast. My condition means my oxygen levels get depleted very quickly and I suppose this has become an excuse and I should be getting fitter because I wont be doing much lying on a hospital bed for 6 weeks or so.

How are you feeling Smee?

I am finding it hard to keep track on everyone. It is getting to the point we all need our own blog just to keep track on what is happening with each other. Information is moving too quick.

Big hugs to everyone else

DeeScent · 03/11/2011 20:16

Hugs back to you stars Smile

topsyturner · 03/11/2011 20:30

When will you be going into hospital stars ? Have they given you a firm date or does it just depend on circumstances ?

sparkle will be lighting the candle for your DH tomorrow . Best positive thoughts coming your way .

jane

Re the diet/healthy eating subject . I think the trick is , moderation . I do induldge , probably too much at the minute . But meal wise I always cook from scratch , don't like the ready prepared meals . Couldn't afford to feed us all on them even if we liked them . I've never met a vegetable I don't like . And I do like my fruit too .
My main problem would be portion control . I can't help it , I'm a feeder !
The plate has to be full Grin

And as for exercise , it's just not an option for me right now . I get so damn breathless just going upstairs to the loo . God help me if I tried the gym !

jchocchip · 03/11/2011 20:38

Cheers Topsy, bottoms up [chinks glass]
I'm finding the timing of the rads appointments a little hard as they get in the way of family mealtimes. I may ask to change them to early morning but it would be more expensive as atm I get off peak tickets. Hence the junk food today. Keeping a food diary but hate to think what it will look like when I fill it in later!

Hugs to all. Feeling less emo now but still think could set off quite easily...

pinkstarlight · 03/11/2011 21:58

sending positive thoughts to stars, sparkle and her hubby.

jane..i had my rads appointments early morning suited me much better as i lose my energy in the afternoon,i would have found afternoon appointments really draining.

interesting reading about everyones diet in my case i have always ate a healthy diet like topsy cook everything from scratch and just love my fruit and veg.never really had a sweet tooth but funily enough craved lots of sweet things for a few months before diagnosis.my instinct tells me my bc was caused by stress and ive had a hell of alot of that over the last 6 years thanks to my x partner who has made my life hell since we split,im a really layed back person and laugh most things off but deep down i wonder now if i bottled everything up of course i might be wrong but thats still my gut instinct. i really need to start looking at ways to help me deal with stress as in exercise,yoga, meditation and putting myself first now and then.

KurriKurri · 03/11/2011 22:25

Good thoughts and hugs to stars, and to sparkle and MrSparkle for tomorrow.

I am trying zumba tomorrow, - I'm looking forward to it (it's zumba for the middle aged, so hopefully won't be too vigorous!)

amberlight · 03/11/2011 22:41

Oh knickers. Had to come home half way through evening out with friends because of silly herceptin-side-effect nosebleed Sad

Coped all the way through main chemo...now scuppered by this relatively mild drug. Grr.

jchocchip · 03/11/2011 22:54

oops 700 calories over my target today. But I did drink plenty :)

Pink - good to think about managing your stress levels. Trouble is being ill does not reduce them. My stress is through the roof at the moment. Aargh.

kk- They have zumba upstairs while dd is at guides. The building shakes.

Amber that is annoying :(

Night night and positive vibes to everyone for tomorrow.

KurriKurri · 03/11/2011 22:58

amber - what a pain Sad if its any comfort, you may find the s/e's calm down a bit as you have more doses, - I hope they do Smile

jane - any building with me dancing in it is going to shake Grin

night all xx

MaryAnnSingleton · 03/11/2011 23:02

bah amber,that's rotten Sad
lots of good thoughts and hugs to stars
and loads of good luck to Mr Sparkle
Must go to bed - am v v tired

OP posts:
jchocchip · 04/11/2011 07:50

Morning people. Raining here :( Porridge and coffee on the go.

butterfliesinmytummy · 04/11/2011 08:53

Raining here too. No raspberry shoes in top shop but tried them on in black and realized that walking in them would be necessary so they're off my list now.... ah well.

4 kids here for playmate, they're all off in a minute, then homemade shepherds pie for tea....

Amber, sorry nosebleed scuppered your evening
Sparkle, candle lit for your DH

Talking about food, I think I should come off the fbs now that I got my benign result. Comfort eating is excellent when you need it, but trousers tight now so time to step away from the chocolate. Steri-strips coming off now and apparently I can swim again - might find a pilates class or DVD too.

Have a lovely day all x

topsyturner · 04/11/2011 09:18

Morning All , Happy Friday to you all .

Amber sorry to hear about the nosebleeds , I hope they don't continue .

Todays plans for me involve a friend coming round to visit . We have to decide what we want to do . She has offered to take me where ever I wish to go . I was thinking Bahahamas ...

I have to get photos taken for a pass thingy of mine . I hate having my photo taken when I look normal . Lord alone knows what these will turn out like . Sad

In other news , the new car was ordered last night . Won't be with us for 3 months probably , but at least it gives DH (complete car freak) something to look forward to .
The colour decision was black in the end Grin

smee · 04/11/2011 09:25

Porridge?! Jane's gone all hair shirt on us. Grin

Amber, hope you got lots of sleep. Shame about your night out.

Butterflies am sure Topsy'll have some replacement wish list suggestions for your feet.

Hope Sparkles DH has an unexpectedly good meet with his demon boss.

Raining here too and I have to go to Hygenist in a bit. Not my most favourite thing to do on a Friday.

Topsy, go enjoy yourself, though Bahama's maybe a bit too far to fit in before kids get home. Smile

jchocchip · 04/11/2011 09:30

You didn't see how much golden syrup I put on it :)

Found out it was a training day today so dds are still in bed. No one told me so I thought they were going to be late for school...

topsyturner · 04/11/2011 09:50

Got DC home today , still blardy half term over here isn't it .
Blardy school holidays < wanders off chuntering >

What can I have for breakfast today ?
Wanted toast , but found a full loaf of mouldy bread in the bread bin this morning . So I guess that's off the menu .
Have a real craving for Heinz Tomato soup , but have no bread . And you have to dip bread and butter in soup .
Aaaaagh , the dilemmas ...

smee · 04/11/2011 09:55

Send DC to the shop, Topsy. Tell them it's an adventure. Demand servitude. Grin

MaryAnnSingleton · 04/11/2011 10:07

good idea smee ! I adore tinned tom soup- so comforting- white proper bread is a must. hope hygienist isn't too poky and pricky.
Raining here,though brightening a bit. Must go to post office with latest offering- then try to get some work done- I am not complaining but I am inundated.
MIL gave dh some money so we're off out to lunch on Sunday -yay !
Shame about the walkability of the shoe butterflies.

OP posts:
cakesandale · 04/11/2011 10:10

Sparkles - a big hug and a candle from me for a good outcome for mr S.

Stars - You have a lot ahead of you. You seem massively strong and positive in the circumstances: my best to you as well.

I have just been to the GPs for my repeat prescription of tamoxifen. A random man told me I was looking terrific. Blimey. I have trackie bottoms and a hoodie on, and not a scrap of make-up. On the plus side I have had a shower and washed my hair. God bless that man, he is a saint!! Grin

SparkleRainbow · 04/11/2011 10:11

Thank you for your good thoughts, sorry I haven't read through properly....bad news I am afraid, dh has lost his job.

l4k · 04/11/2011 10:16

just checking in on you girls-I see you are all being fantastic as ever.Must admit to missing your amusing banter and still reading all your postsBlush
you are my guilty pleasure!!

got to say,I don't really feel over my 2 weeks of bc worry.silly when the results were ok.Sad

jchocchip · 04/11/2011 10:18

:) at random man. I'm on way to shops with dh, so at least I have got dressed today before lunch which feels good. Put old silkshirt on under bra today to see if it helps. Really don't like going braless but hot boob and uncomfortable bra don't mix.

jchocchip · 04/11/2011 10:19

Hugs to Sparkles. Bugger.

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