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**tamoxifen** number 15 ****

987 replies

MaryAnnSingleton · 25/10/2011 09:48

can you believe it ??!!

OP posts:
DeeScent · 01/11/2011 17:26

Rofl at German Shepherd Nose Art Grin There is a rather artistic set of dds footprints on the bedroom window that I have been too lazy to clean off that are actually quite cute.

MAS, I love that coat - it's very me... I have a lovely mid-blue velvet coat already - I love the texture.

I took two Nurofen plus tabs as I've got really fed up with the pain, so am now somewhat woozy but the pain is sadly pretty much the same.

Can the hosptial issue a prescription for a better painkiller or will they refer me to the GP? Do they have hospital pharmacies Confused

topsyturner · 01/11/2011 17:29

Amber you are going to have a heck of a load . Is there anyone that can help at all with your workload ? I was told today that they like the rads appointments to start within 3 weeks of finishing chemo etc . I have my planning apt next week on Thursday and they have booked me to start rads on the 28th of November .

They have booked me in for 25 sessions , does that sound like a lot ?
Will be having treatment over Christmas unfortunately , but I suppose that can't be helped .

Cleaning all done . Just have to iron the DCs tai jitsu gi for tonight and that's me done .

DD is making "potions" in the kitchen with her friend , be afraid ...

amberlight · 01/11/2011 17:40

Topsy, I think after surgery it's 8 weeks max wait time. Might be different after chemo, but I had chemo first then surgery then the radiotherapy. 25 sessions sounds like a reasonable number. I'm having 18. Good luck with those potions...
Deescent, most hospitals have a pharmacy in-house, yes. Worth asking.

Figgyroll · 01/11/2011 17:41

Love the coat, MAS and I think you could wear practically any colour with it. I have been thinking about your friend this afternoon and wishing that things improve for her.

Amber, I've replied on FB but I had a thought. I much preferred the late afternoon appointments because that gave me time to work in the mornings, do some housey stuff in the afternoons and then, when I got home from my appointment, I'd cheat and stick a ready-made type meal in the oven (not every day, only the days I was exhausted from it all) and that left the evenings to recover. Maybe you would consider asking for late appointments - that way you could get some work things done during the morning. What a lot on your plate, though.

14k, I can totally understand why you'd be worried and trying to work it all out in your head. I think taking someone with you would help, as would writing down any questions beforehand. If you're anything like me, as soon as I get in the consulting room, my brain seems to go on strike.

KK, that's a worry about the cuts - fingers are crossed your son won't be affected. The uncertaintly must be a terrible worry for people worried about their jobs.

Oh dear Pink, I will put on hex on those yobs boys. My fingers nails are still awful too - it's amazing what you use them for.

Mr.Boilerman has gone. Everything is very clean and tidy but no hot water or heating. I've overdosed on daytime tv. How many antiques shows can they come up with, and house buying programmes? Tomorrow I will mainly be reading Smile

KurriKurri · 01/11/2011 18:23

oooowwweee - , that wasn't much fun, the doc. said they usually give a local anaesthetic, but I'm allergic to the one they use so had to have it without. He kept making sort of sympathetic ouch faces while he was doing it - which didn't help Grin anyway if it works it'll be worth it, and DH has brought pringles and mince pies for a treat - yum!

MAS - lovely coat, and turquoise will be perfect with it.

amber - hope you can get your rads brought forward, - although I think with a bit of luck, you will manage even if there is a bit of an overlap - I found the tiredness kicked in after I'd finished the rads. Good luck to your dh for his ops.

topsy - 25 sounds about right to me, (it varies slightly from person to person )

pink - nasty boys Sad

poor you dee - hope you can get something stronger for the pain.

figgy - it is a worry about jobs - especially as his dp also works there, so it is both their incomes, she's been looking round at other jobs i think.
when are you likely to get your heating back ? - hope you have a hot water bottle to cuddle.

sorry i've abandoned capital letters, - not using left hand atm.

Figgyroll · 01/11/2011 18:40

Ouch, KK - that sounds an ordeal. I'm glad it's over and that you've got some treats lined up. I didn't realise it was ds and his dp both working at the same place - double worry, in that case. Sad Heating and hot water should be back on Thursday.

Iamseeingstars · 01/11/2011 18:46

HI to everyone.

Sorry I am not answering to anyone specific, I do read everything but my brain forgets by the time I come to write a reply.

It is such a turmoil and so much uncertainty that we are all going through. I am due to start a seriously high dosage of chemo soon and starting to dread it. I will be in hospital for weeks

Figgyroll · 01/11/2011 19:47

Crikey, Iamseeingstars, that sounds scary. While you are in hospital will you have access to the internet via your phone or a laptop? It's a great help being in touch with the outside world and you'll be able to visit us here to let us know how you're getting on and we'll supply you with lots of Brew and cake. Have you got a date for the start of your treatment? Please don't worry about not replaying to specific posts - we all struggle when we've got lots on our mind, I know I do.

janechocchip · 01/11/2011 19:57

rads went well, apart from missing the bus stop and having to get extra bus and run for train home...

Driftwood999 · 01/11/2011 20:01

Have a big warm teddybear hug, Iamseeingstars, I'm frightened too so need to hold hands with others like you. I need to go back on this thread, were you unhappy with the nursing before?

topsyturner · 01/11/2011 20:13

stars please tell me you will have internet access in hospital ? We will be with you every day whilst you are in there . PM me and I will give you my email address if you want it too . You must be so scared

Oh good , my rads seem normal then . That's always good to hear . The lady I spoke to on the phone today sounded lovely . And also DHs family are consultant radiologists in the same hospital (Uncle and Cousins) and my good friend and neighbour works for the Medical Physics Agency over here , and has the ear of the head of department . So I am sure I will be very well looked after !

Chicken and chips for tea tonight . Just preheating the oven and when I've finished waffling I shall go pop them in the oven .

Bought DS main Christmas pressy today . Was on a cheap(er) offer in Tesco and I got 1000 extra points .

Extra Tesco points will get doubled up and spent on lovely Christmas wine !

I am a genius am I not ? Grin

Doc Martin in The Bahamas is on the tv tonight (Death in Paradise)

Iamseeingstars · 01/11/2011 20:19

HI. I had intended writing a lot more but DC was looking over my shoulder and reading.

I had a night in the ward and wasnt impressed so this has increased my anxiety, although I am told that actually the ward is very good and that the staff are brilliant. MIght have been because I was a newbie and not an established patient.

I go in in a couple of weeks and then go through months of hell. Infections are my greatest risk and puts the risk of survival at a very low percentage but I dont have a choice, so damned if I do, damned if I dont. The natural germs and bugs on your body are the biggest danger! Have been told the risk of death is very high. (Doctors having to give their statistics)

I also made the mistake of reading up on the drugs they are giving me.

I will have internet access but I am getting bored now. Seemed to have spent too much time on it recently.

There are so many people going through so much and I know we are all going through the same anxieties and concerns. Getting people to really understand this is hard and I am finding I have to shut down and not speak to anyone at home. I have been going to group cancer meetings, but they have so many speakers we dont ever have time to actually talk to each other.

Thanks everyone, I am thinking of you all and pass on my hugs

KurriKurri · 01/11/2011 20:24

Iamseeingstars - that must feel very daunting for you, - its not surprising you feel scared, you've been through such a lot with your treatment.

I hope you are able to have internet access, and plenty of other things to pass the time (if you like reading, audiobooks on an MP3 player are good for when you are feeling too tired to do anything - you can just lie back and have someone read you a story Smile)

We'll all be thinking of you, and if you feel up to it, just pop on and give us a wave (don't worry at all about not keeping up, I think most of us struggle Smile)

Big hug also for Driftwood, it is frightening, - we're all here to hold your hand and try to help you through itSmile

good thoughts for everyone having results tomorrow.

I'm also going to watch Death in Paradise topsy Smile

topsyturner · 01/11/2011 20:30

My hand wavered over the mince pies in Tesco this evening kk . But I couldn't bring myself to buy any just yet mainly because they didnt have my fave puff pastry ones and I was sulking

stars don't feel like there is anything you HAVE to do . Whatever way you react to your disease and your treatment is the right way . You have to do it the way that works for you . But if/when you want to talk , we will be here .

Iamseeingstars · 01/11/2011 20:31

I put out a separate thread about needing to drink 3 ltres of fluid a day - this is because of the medication. Have also been told I will have permanent drips attached to me for quite a long while. Cant wait.

I havent been through chemo or rads so I truthfully cant say I know how you feel but I can imagine and it is a huge turmoil on your lives. It is good to read so much positivity though.

Iamseeingstars · 01/11/2011 20:32

How many of you have lost weight since your diagnosis? Was it deliberate or were you tryng?

topsyturner · 01/11/2011 21:37

I lost about 2 stone after I was initially diagnosed , all down to worry I am sure . I wasn't trying to lose weight , I think I just shut down !
I haven't lost any more since having treatment , and I haven't gained any either .

l4k · 01/11/2011 21:48

Hi,just wondered if smee is about? tiredteddy with a thread about her preventative double mastectomy on health has had her operation and smee replied to her before.I thought she might like to know its done and she has posted again. I hope she doesn't mind me saying.

cat64 · 01/11/2011 22:12

This reply has been deleted

Message withdrawn

DeeScent · 01/11/2011 22:13

Iamseeingstars, so much good advice from the more experienced ladies on this thread, but I just wanted to say I will be thinking of you and hope so much that you get a good outcome from the treatment.

For you: Brew Thanks Biscuit Wine [choc] and [hugs] and whatever other treats make you feel good.

Dh having a bit of an emotional melt-down about tomorrow's clinic results. I keep telling him it might be "good" news (i.e. only rads). We'll see.

DeeScent · 01/11/2011 22:21

Have you tried the Ecclefechan tarts in Sainsburys? Like mince pies, but on speed - utterly, utterly delicious (I am addicted). yum

Sainsburys own brand have four small sized tarts in the pack at Christmas.

KurriKurri · 01/11/2011 22:32

Ooh Ecclefechan tarts, - last time I had those was when I was staying with my dsis in Scotland, - I didn't know you could get them down here, ----clear a path, I'm coming through!! Grin

janechocchip · 01/11/2011 22:34

Can't believe Jimmy Saville and the Queen's Hotel! Bet Leeds will be busy next week!

What time is your clinic, Dee? Will keep everything crossed.

I'm really tired now so night night all...

MaryAnnSingleton · 01/11/2011 22:36

stars a huge hug to you- it must be so scary - please stay in touch with us if you can/feel like it-we'll be here and will be thinking of you.
dee wishing you loads of good luck tomorrow
I've heard of those tarts...

OP posts:
DeeScent · 01/11/2011 23:01

Clinic at 11.20 tho they often (understandably) run late. Thanks for all your good wishes. Smile