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**tamoxifen the 13th**

988 replies

MaryAnnSingleton · 07/09/2011 14:03

here we are- anticipating halloween

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amberlight · 27/09/2011 12:12

Pink, I'm flabberghasted about your 'friends'. Blimey, if that's what they think friendship is about, they're wrong. I'm supposed to be rubbish at friendships but I've only had one friend shuffle off. The rest have been fab. Maybe because they're already used to me being mad as a bag of spanners/generally clumsy etc etc so something else added to it hasn't been very different Blush Grin

I haven't had any difficulties at all with wearing my wig. Others do find them hot, tis true, but mine is really nicely ventilated and it's been lovely.

KK, totally Shock re your RE teacher's comments, though I get that from some church people even now. Hmm.

Done a load of reports, read a load of papers, now drinking a nice Brew. Anyone else for a fresh one?

SparkleRainbow · 27/09/2011 12:20

Oh yes please.

I have vented on here before I think about how many of my "friends" disappeared when things were really bad with ds, and it wasn't like I was asking for help from them or anything, or even talking to them about ds. I think only two friends have ever offered to help me and have been fab all the way through. One of those is the lovely friend who lost her own little boy two years ago tomorrow. Difficult times really do show who your friends are...or perhaps more to the point who they aren't! Hmm

On a happy note, it is only three days to kitten time! Grin Dh has announced that as they will be so lonely for their litter mates, they will need to sleep with him, on our bed!!!!! Hmm

janemacer · 27/09/2011 12:37

Hi all. Have had two good friends advising me to eat brocolli and cauliflower etc but they mean well. Bit annoyed about advice re tamoxifen from one of same but i know she is just concerned about me and wants me to keep in control and be aware of what my options are... discussed it with gp and felt better. I know losing weght would be good for me but it is not easy. Spent morning in bed feeling flu -ey chesty. would have gone to work if hadn't been off sick. I am going to be less committed to work when I go back and take a day off if I feel this c**p. Need to be feeling better for rads planning appointment tomorrow and trip to pub on Thursday! Some people just don,t know what to say. I've been very lucky and had support from neighbour who had similar some years ago and 3 ladies at my church, one not much older than me.

janemacer · 27/09/2011 12:42

ooh sparkle kitten time. how lovely. i wouldn't be without my cat - got him in april as a rescue kitten but he was already about 6months old. He has stopped climbing the windows now but is great at catching spiders... :)

MaryAnnSingleton · 27/09/2011 12:48

we are besotted with our cat- we've had her for almost a year - she is my baby.
Have just done a bold thing and printed out an ad for my work and attached my business post card and put it through the letterboxes of neighbours with children/babies etc - chances are they or their friends might need cute original cards for babies or birthdays...I hope they won't be annoyed !

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KurriKurri · 27/09/2011 12:56

I don't see why they would be annoyed MAS, - I quite like getting ads for local businesses through my door, I hope you get a good response Smile

jane - you are lucky to have a spider catcher. My dog feels she has retired from her previous job as destroyer of arachnids. We used to find them killed and laid out on the floor, legs scattered, like tiny crime scenes, - now she lets them walk by without batting an eyelid Grin.

We managed to get a wee sample from her this morning (much to her surprise as DH whipped a little tray underneath her as she was squatting on the grass). It has come back clear for infection and protein, so that is good Smile

Sad to hear about all these fairweather friends.

SparkleRainbow · 27/09/2011 13:31

Grin at collecting wee sample from the dog kurri! I am glad she has not got an infection...but what are the vets looking for?

Our beautiful black Poppy cat was 6 months old when we got her, she had been hit by a car had a broken back leg, and had been a stray. She quickly progressed from spiders to all the birds in our neighbourhood, and now she hunts rabbits! She is 12 now....! She also "adopted our Dotty cat, who died earlier this year, when Dotty was 6 weeks old, another abandoned cat, she had such a badlt broken leg that they thought they were going to have to amputate, but she survived and lived a happy 12 years with us.See dh and I are soft touches for animals or fowl which need rescuing!

MAS I don't think your neighbours will mind, in my experience, they will keep the card if they think they might use your services, so heres to future business.

MaryAnnSingleton · 27/09/2011 13:33

oh that's good kk - glad there's no infection.

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KurriKurri · 27/09/2011 13:41

ThanKs MAS Smile
Sparkle - I think they are just trying to find out why she is drinking and weeing so much, and are just eliminating things atm. - it could be kidney related, but the vet said that doesn't show up on the tests until it's fairly bad.

We're going away for a week on Sat. (just down to my parents) but when e get back, the dog is going to have tests for something called Cushing's disease which old dogs get (and it makes them drink/wee a lot and have very itchy skin - which she has)

Does your cat catch the rabbits? - my sister's cats catch all sorts and arrange them on her doorstep in a rather gruesome display. I think we are supposed to be delighted with their gifts Grin

smee · 27/09/2011 13:44

Bloody hell, Stars - tell us her address and we'll all pile round and stuff her full of vegetables. Grin I've been lucky with friends who really have been brilliant, but one friend has been odd - hasn't called/ written and we didn't even get a Christmas card from her this year. Must be a conscious decision because she's in touch with other friends and I know she's well.

Sorry can't catch up for now with all as have deadlines to meet, but on a quick skim noticed LittleGreenFrog, so am waving enthusiastically. So v.pleased to see you back. Smile

MaryAnnSingleton · 27/09/2011 15:10

RWU sends her love- she's fine and dandy and having an MN break, but will be back...

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smee · 27/09/2011 15:35

That's good MAS. I was wondering how she was only the other day. I was in a shop trying to buy a new bag and remembered her buying three in one go. Grin

KurriKurri · 27/09/2011 15:47

I'm glad she's fine MAS, sending love back to her Smile

Figgyroll · 27/09/2011 20:15

Thank you for all your good luck wishes for today. I got to the rads department at 2 and left at 5 so, as you can imagine, not at all straight forward. My pre-planning CT scan wasn't much use today because, as I was drained yesterday and the surgeon went in at a different place along the scar line, which has left the scar looking like a mountain range, it doesn't bear any resemblance to the scan images they had. So I had another CT scan, more sitting around while the physics people looked at it. Eventually they decided I needed a new treatment plan which will hopefully be ready for tomorrow's appointment. They did manage to treat the shoulder/neck area but not the chest so I've had a 'part-treatment'. Fingers crossed tomorrow's appointment will be straight forward. I was in that horrible 'arm up' in stirrup position for nearly an hour and feel very stiff now.

Stars, I'm another one who hasn't had counselling although I am seriously considering it. Over the last week or so I have felt close to tears on several occasions for silly reasons and think that the stress of it all has finally got to me. It might help to talk to someone.

Amber, where are you going, have you decided yet? You deserve a break after all you've been through.

KK, glad you got the wee sample. Fingers crossed the vet's can find out what the problem is.

MAS, I'm pleased it's a false alarm for your friend. What a worry for her though.

Janemacer, good luck at your rads appointment tomorrow. I hope you feel better tomorrow.

Talking about fairweather friends, I've had a couple of eye-opening experiences. Two very good friends who I considered 'best friends' have been noticeably absent from my life recently - no phone calls, visits for coffee. Luckily I have four other 'besties' who have been marvellous. Another surprise has been a lady I know in the village. We see each other walking the dogs and she has two younger children. She's turned into a dear friend and has several times taken DS2 out swimming with her two, or to the park or the beach for the day. Sometimes it's practical help like that that means the most. It's all very well people telling me not to bother with the cooking, ironing, housework etc. but they don't offer any practical help. Too busy I suppose. Oh, and I had one friend who said, when DS2 was born, that God was paying me back for something I'd done in this or a previous life. Very Christian, not. I never saw her again after that.

MaryAnnSingleton · 27/09/2011 22:21

Shock at all these loons - figgy-what an awful thing for that 'friend' to say when ds2 was born. Sorry that today was a bit of a trial for you- hope tomorrow is better.
jane - hope you get on ok tomorrow -will be thinking of you

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smee · 27/09/2011 22:29

Me too Jane. Fingers crossed it goes smoothly tomorrow and that you recover enough to enjoy the pub on Thursday. Smile

Figgy, am Shock. Honestly what is wrong with these people?! And what a pain (literally!) that your first rads wasn't straightforward. Once they've got you sorted, it's honestly usually easy and quick.

By the by this, but it always amused me as the Rads machines at my hospital were named after planets. I was usually sent to Jupiter, but sometimes Mars and once got as far as Venus. Anyone else had a themed dose of radiation?

How was GBB Mas? I still haven't managed to catch up with it.

KurriKurri · 27/09/2011 23:02

Good luck for rads appointment jane (take a book just in case there's waiting about Smile)

Figgy - am left speechless at your 'unfriend's' comment about your DS2, people can be so bloody bizarre in their ideas.
I hope you don't have to hang around for so long when you have your rads tomorrow, - fingers crossed for a quick in, zap, and out Smile

I remember when I had my rads, I got shingles the day they were planned to start, so had to wait in a little room on my own, and I always had to be the last person of the day on the machine so they could fumigate after me I think Grin

How did yesterday go Smee?, - hope you had a nice train journey (am rather Envy I love a long train journey - I even look forward to buying a horrible cup of tea and a kit kat from the trolley Grin)

I sat down for a minute on my bed at about sixish this evening, - when I next looked at the clock it was twenty to eight - I'd dropped asleep again Blush - hadn't made a meal or anything (luckily DD had taken over, deciding to leave me snoring!)

Iamseeingstars · 27/09/2011 23:30

just reading about all the waiting around. Why is it that doctors/hospitals think we are quite happy to sit around all day and wait, and then go back and do it all again, on a regular basis. I dont mind if I am getting treatment, but just the waiting really annoys me. THen you have to pay for the priveledge of parking.

They make appointments for loads of people at the same time, this also really annoys me.

Thinking of you all. Take care

MaryAnnSingleton · 28/09/2011 07:33

GBBO was fab though shockingly vast amounts of butter used (I may think twice about random croissant eating)
Our radiotherapy machines weren't named,what a good idea though. I always got the same one-it broke down a few times so my rads were postponed.

OP posts:
pinkstarlight · 28/09/2011 09:43

amber...my wig has also been ok apart from when i have one of my hot flushes then i just yank it off.it even stayed on my head when i went down for my op quite funny as i was coming round i was very concerned about it staying on my head the lovely nurses kept putting it back straight once i realised it was just me and the nurses apparently i threw it across the room.

sparkle..really sorry to hear about your friends loss,what a amazing person to give you support after everything shes gone through.oh nearly kitten time your kids are going to be so surprised i bet you cant wait to see their faces.

jane...hope your feeling better today and your gp has put your mind at rest.your kittys doing well mine is 12 and still climbs the christmas tree her eyes light up every year when we get it out.

mas..im sure your neighbours wont mind,will make a nice change from the normal burger menu.

kurri..ha ha your hubby sounds genius at collecting wee samples.the sleep thing i do it all the time how nice of your dd to leave you,mine would be poking me saying wheres my dinner.

smee..people can be strange but then again its better to know who your real friends are.i also have my dates for rads and they have names,the first 13 are the same and the last 2 are a different name.do they all do the same thing.

figgy..oh no about the arm up position how horrible,when i had my planning appointment i really struggled with that and it wasnt for very long and it had to be supported on some kind of arm rest. im still having terrible trouble with my arm.unbelievable what a so called friend said about your ds,how do they call themselves a christian.

im sat here drinking coffee and really enjoying it,funny to think not so long ago i thought i would never be able to drink coffee again as the very thought turned my stomach.just a little thing but a sign im getting better.

MaryAnnSingleton · 28/09/2011 10:51

yay for coffee pink !
Kitten time - how exciting !!
Am having a lot of gloomy thoughts,for no reason in particular,ruminations-horrible- need to stop it.

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cakesandale · 28/09/2011 11:00

Mindfulness MAS, mindfulness. I am not sure if it will help, but it is all i can think of. I am sorry you are having a bad time, I don't know what starts these little spells of gloom, I have them too -but I hope yours passes quickly.

I am swinging through quickly as I have a work blip but have read everything. Shock at all the crazy loony non-friends.

Good wishes to those having rads today. Take a good book!

KK I am glad that your little dog's tests come back free from infection. Who is looking after her when you go away? Someone who will spoil her rotten, I trust!

Kittens soon sparkles! Envy

Love to all x

janemacer · 28/09/2011 11:15

still waiting for 10.30 appointment butat least hospital has free wifi!

cakesandale · 28/09/2011 11:32

oh the hours I have sat in the rads dept! Sigh Grin

pinkstarlight · 28/09/2011 11:47

mas...hey were all here if you want to offload or if you prefer give one of us a pm.

jane..i hope they hurry up and get you sorted,i hate all the hanging round that goes with the treatment.

topsy..thanks for the mail.hope your ok as you have usually popped on by now.

cakes..i hoping to avoid that when i start rads as they have given me early appointments.