hi does anyone get vertigo?

[sweetness86]

hi i suffer vertigo i feel dizzy most of the day and its been like this 20months. Ive had numerous tests and im about to see a neuro again soon. I get dizzy rolling over looking down up etc and generally giddy all day some days better than others. One doctor thought i had migraine disorder one thought menieres disease but i have no hearing loss.
I dont take anything for it at all just put up with it but my life is shitty with this i havent had a drink in 18 months and have 2 young sons.
I honestly dont know how i go to work i do it for the money but somedays just want go home and cry and not wake up each morning .

Does anyone get this? what meds are you on im at my witts end

essexgirl, that's great news that you are getting better, even though it doesn't feel like it. I know it seems a long time, but its good that you know you will recover from it. I hope you start having a lot more better days.

I am still mixed about the medication, some days I seem a lot better and then it hits me again. I am not sure if the meds should be working immediately or if they will take some time iykwim.

Hope everyone is having a dizzy free weekend.

Hi i'm new to vertigo :( just come on suddenly no cause that I know off. I had just recovered from mastitis, gp said my ears are ok and made me watch his finger with my eyes whilst he moved it about. He gave me some tablets but I can only take them for 3 days max and I'm bf so its not ideal taking them full stop but short term it's ok he said. I'm on my last day and I'm still getting it bad. Worse when I lie down but generally wobbly all day.

Sorry, PinkyP. What did the dr say? Stugeron etc sometimes helps some people. It never seems to help me but it sometimes seems to make me nap which is better than being awake and dizzy/ spinning.

I have my MRI on Thursday. I have no-one to go with me and have never had one before so am having a mild panic about it.

He said my ears were fine and he's not overally worried and that was pretty much it really. Is it normal to feel hot/ clammy aswell? Although this could just be from panicking about dizzy ness. Hope the MRI goes well, is that the scan on your brain to see what's happening? I've read alot on google about vertigo (I know ) BUT they all said having a MRI was fine, one lady put a towel over face her to help her relax and stop any dizziness.

I find it all scary ESP with my baby n ds to look after and my panic attacks I get from it.

I sometimes get very hot too.

My ears are always ok when they check but apparently I have hearing loss in 1 ear (i was unaware of that til They did a hearing test)

Hope you feel better soon, pinky.

Anyone know how to get relief from tinnitus? It's so bloody loud.

Well today I'm still spinning if not more. I still feel a light pressure I my head/ears, gonna book another dr appointment with a diff dr

Interestingly, I went back to work today and was wooshy and lightheaded most of the day. It hasn't been that bad all summer.

Hope your Dr appointment goes well, Pinky.

Sorry for going AWOL. Both DSs have been unwell. I am so sleep deprived which is not helping my dizziness. Had a better couple of days and then they got unwell! Aaarrh. Really trying to stay positive. You are so right RichTea - I know I will recover. I certainly got the impression it was permenant although he didn't actually say those words.

How are you feeling today Grockle? Try not to panic about the MRI. It's noisy and you are in a confined space but it doesn't last long.

And how are you Pinky? I get a pressure in my ears when I am bad. I know that scared feeling so well. DS1 was 2 and DS 2 months when mine all started. I still get it now. It really is rotten

I've got a drs appointment for thurs. It seems a bit better but also worse if that makes sense. The bad dizzy spells don't seem as bad but are triggered easily than normal. I'm also sleep deprived, and feeling guilty as I think my baby has got some of my tablets in his system (I've stopped taking them 2 days ago) and that's when he started not being right so i'm not going to be able to take them again. Hope everyone Is ok and having a good day

Good luck Grockle and Pinky today with your appointments.

Grockle - I hope you are not worrying too much about it. They really aren't that bad. I'm sure mine was only about 10 mins long.

Good luck Grockle and Pinky - hope your appointments go well.

Pinky let us know how you get on today.

Grockle, you will be fine with the mri, mine took about half an hour, you just lie still and go into the scanner. Its a bit noisy but they give you headphones with music on to dim the noise a bit. Good luck.

Hello,

I had my MRI. It was awful Everyone told me that I wouldn't be restricted, other than my head squashed in and that it wouldn't hurt. But I had the cage thing over my face which made me claustrophobic and was horrible and the noise & reverberations hurt my ears so much. I still have earache now, 24 hours later and the pain is going down my neck. It feels horrible. Plus, I googled Acoustic Neuroma, which is what they are checking for and it scared me. I know, I know, never google...

So, now I just wait. Am feeling exhausted all the time and very 'wooshy' for much of the day. I wish I didn't have to work because I just want to curl up and sleep. My tinnitus is loud and horrid too. So, I'm not feeling great tbh.

But thank you for the good wishes. I hope everyone else is feeling a little less pathetic than I am

Pinky, how did yours go?

Grockle - hope you are feeling rested and that the tinnitus has subsided today

Grockle - you poor poor thing. I really hope you are feeling a bit better today

I have heard of acoustic neuroma - don't know too much about it though. Step away from google!!

Thank you. I am feeling brighter although my ears still hurt and I've had a massive headache since Friday which I just can't shift. I don't know how to get rid of it. I'm less panicky about potentially having a brain tumour but am slightly hysterical at times! I'm not good at waiting at the best of times and patience is not my strong point.

Hope everyone else is feeling ok. I think it's going to be a lovely day.

Grockle, so sorry you had a bad time with your MRI. I hope that your headache goes too, maybe a lot of it is pressure and stress - I know that my migraines are 20 times worse when I am stressed.

I understand what you say about a brain tumour - I was abolutely convinced I had one when I had my MRI and follow up appt with neurologist - I had gone from being fine and healthy, having a very busy life to being floored with dizziness, couldn't do a thing to stop it and had the most awful headaches and pains in my head/neck. When I got the results back to say it wasn't a tumour I could almost feel the relief slip away from my body.

Do stay away from google, I can't even begin to tell you how much it frightened me when I started googling.

I hope you feel better soon and hope everyone else is having a nice weekend.

I am going on holiday in 3 weeks - the first time since over a year ago. I have been too ill to go but really need a break. I am already starting to panic though, its a 9.5 hour flight and I am worried how I will cope with it. I'm also scared I am going to ruin the holiday by being ill. The awful anxiety feeling we all get is creeping in. I so want to enjoy this holiday and have a break from the worst year of my life so need to calm down.

Hi vertigo is worse, happens randomly during the day now! Is it normal to change? Dr gave me sturgeon (sp) I think they help but not positive. How is everyone?

Oh no pinky, sorry to hear that. I hope the sturgeon start to work for you soon. Mine got worse as time went on when it started so it could be normal.

Thanks Richtea - I am sure the headache was at least in part due to stress. Strangely, I didn't feel worried before I had the MRI. My headache has gone (after 5 days ) and I am beginning to feel human again.

My vertigo also changed - initially it was occasional but long (many hours), severe attacks of vertigo that completely floored me. Then I began to be dizzy on & off and that gradually got worse. Now I am dizzy at some point every day and on bad days, for the entire day. Today was horrible and I was at work. I am beginning to feel very anxious about it & about driving - what happens if I get bad vertigo at work and can't get home to collect DS? What happens if I get so dizzy I can't stand up when I am alone with children (I work in a school)? I think I'm just fretting about everything. And the tinnitus is SO bad

Pinkyp, are you going back to the dr?

I'm going to give it a couple of weeks and see how things go b4 i see my gp again, he thinks it will get better on its own. I've heard vertigo is often brought on by stress? That would fit in with me if it did. I'm trying to keep myself calm when the attacks happen I've never been paralised by it luckly only for a few seconds.

Try not to panic about 'what if's. If something did happen at school I'm sure another member of staff would pick dc up or be able to drive you and pick dc up together. Please try not to panic these things you panic about won't happen!! I panic about everything and fineally after years if it I'm trying to stop it baby steps but were getting there. Hope everyone is well

Grickle, that is exactly what mine is like. Also I do panic about all the things you said above and I am sure it makes it worse.

Well I went back to gp yesterday - my dizziness is a bit better but the meds (beta blockers) are making my blood pressure very low. That in itself can cause dizziness but I am also having some chest pain and strange pins and needles and tingling in legs. He says this is all part of the meds and he wants to monitor it and see me again in 2 weeks. He doesnt want me to come off or reduce the meds yet because they seem to be working. I am now worried about blood pressure as I am feeling quite ill on the meds and it must be that. He said if I faint or collapse to go back to him immediately - great, now I am scared about that happening.

Oh, richtea, that's awful. Stress and worrying does make this all worse but it makes us worry and feel stressed so it's a bit of vicous cycle, isn't it? And it IS a worry, whether or not you're going to suddenly appear quite drunk when you're at work. I'm meant to be a responsible adult not the bumbling drunken idiot I appear to be. It's embarrassing. I am beginning to wonder if I should be driving which, to me, says I probably shouldn't. But I have to go to work...

I feel so spacey all the time and as if a balloon is inflated inside my head - where does that come from? Do you get pins and needles usually RT? I get it when the dizziness is bad but usually only in my fingers, toes and face. Can you take it easy for the next couple of weeks?

Thanks Grockle, it is awful yes. I too worry about the driving but to me that is the last straw, if I cant drive then I am housebound. You just feel so useless don't you?

I get that balloon feeling - it is like a pressure building up isn't it. I dont usually get pins and needles, just on these meds. I wonder if it is linked to the dizziness.

I will take it easy and see how I go for a few days.

Hello

I had an awful day yesterday to the point of crying in the toilet and having to crawl to open the front door. DP has never seen me like that before so rushed me to the emergency GP who chekced to see if I was having a heart attack then gave me different meds- Buccastem. It seems to work quicker than the Stemetil I had before. He said the pressure is probably not pressure at all but just feels like it becuase vertigo makes you feel so hideous and sends such strange messages to your body.

That attack lasted about 6 hours before I felt relatively human again and I've been exhausted today, although had to go to work. All I wanted to do was sleep. I hate this. It's beginning to make me feel quite miserable.

How's everyone else?

Another bad day here feel like I'm on a ferry today, feeling breathless too don't know if it's connected or just me panicking. I bet that was frightening having to go to hospital, how ru feeling now? I hope u feel better asap. Get as much rest as you can x