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Original poster

I knew things were going too well.

240 replies

misdee · 12/11/2005 20:37

peters vad site is leaking a lot of fluid. indication of bad infection, he has pain in his back and feels rotton. swabs have been taken. am hoping infection doesnt get a grip too quickly as last time it set his ICD off 5times in 24hours, and its horrible. i have to phone in the morning to find out whats happening and if i can take the kids in or not.

OP posts:
Original poster
misdee · 13/11/2005 15:04

think its like a build up, he had one where a clot was removed. the bleeding is from where they injected him with herparin.

OP posts:
hub2dee · 13/11/2005 19:08

How was your afternoon, misdee ? Better news on the bleeding ?

ScummyMummy · 13/11/2005 19:13

Hope the bleeding has died down, misdee. So agree with blu's earlier post- please don't feel guilty about being a good mum as well as a good partner. It must feel like such a clash of needs sometimes but you juggle it all brilliantly it seems to me.

Original poster
misdee · 13/11/2005 20:12

he is really bad apparently, didnt really know his mum was there.

OP posts:
CountessCadburyOfBournville · 13/11/2005 20:27

oh misdee I am sorry to hear this. My prayers are with Peter and you and the kids. xxxx

hub2dee · 13/11/2005 20:39

Sounds scary, misdee. Have you had a chance to speak to his doctors to learn about how they are handling things ?

Are you OK tonight ?

sobernow · 13/11/2005 20:43

This reply has been deleted

Message withdrawn at poster's request.

sassy · 13/11/2005 20:46

Sorry to hear this.

Hope tomorrow brings better news.

Miaou · 13/11/2005 20:48

misdee, so sorry to hear all this. Keep strong.

doormat · 13/11/2005 20:51

so sorry to hear this misdee
hugs
xxx

Original poster
misdee · 13/11/2005 20:58

Just spoken to him, he seems very tired and not with it. no antibiotics given yet apparently, as they are waiting for the docs to come in in the morning, has been given paracetamol and i belive he is waiting for some morphine as well. is i na lot of pain, and just wants it all to stop. and so do i. its too much now, we both want an end to this somehow, sounmds awful, but its been too long, i dont know how much more we can both take, i feel helpless being here, he feels useless and a burdan (which he isnt) and just wants a transplant or.... i cant say it.

OP posts:
hub2dee · 13/11/2005 21:15

He sounds a but out if it on the pain, hey.

It has been an impossibly long journey, misdee, for both of you and for your children too, I know. I guess all you can do is plod on.

Is there anything concrete any of your friends on MN can do to help out ? Can you afford any childcare you need / taxis etc. ?

You are definitely not being useless at home, looking after three kids and Peter's main emotional 'carer'.

And of course, he's not a burden, but a victim of his disease.

I hope you both have an OK night and that there's some good progress in his condition and pain relief etc. tomorrow.

X

Let me know if I can do anything to help, OK ?

sobernow · 13/11/2005 21:33

This reply has been deleted

Message withdrawn at poster's request.

coppertop · 13/11/2005 21:37

I wish I could say/do something to make things better for you and Peter, misdee.

Posey · 13/11/2005 21:43

You're in my thoughts tonight/tomorrow Misdee. Wish I was near enogh to be able to help in a more concrete way but hoping mine (and everyone else's) good wishes can give you some strength now.
xxxxxxxxxxxx

MrsSpoon · 13/11/2005 21:48

Thinking of you all.

Original poster
misdee · 13/11/2005 22:25

Just be more at ease once lab results are through hand docs have decided next step.

OP posts:
Callmemadam · 13/11/2005 22:29

Oh Misdee, am thinking of you and your family now............my mum is going through end stage heart failure atm, but our strain cannot be compared to what you must feel. You are doing everything you can, and Peter feels your love every day. If only we could work miracles. My love and support and admiration for you. Tell us all if we can help.

Original poster
misdee · 13/11/2005 22:44

callmemamdam, i'm so sorry about your mum. end stage heart failure is awful. a machine is keeping peter alive through this, he is also in end stage heart failure. all drugs were exhausted in june, LVAD was the last option other than transplant, and its so awful watching them struggle through this.

OP posts:
puff · 13/11/2005 22:47

Thinking of you all misdee.

xx

kid · 13/11/2005 22:52

How sad for you all Misdee, I am thinking of you all XXX

You have been so strong thoughout all of this, hang on in there for a little bit longer.

sallyhollyberry · 13/11/2005 23:28

This reply has been deleted

Message withdrawn at poster's request.

suedonim · 13/11/2005 23:31

I'm so sorry about this latest downer, Misdee, and hope Peter is on the mend v soon.

One of the local papers has been running a donor campaign and I was surprised at their figures for heart transplants - they reckoned 9 out of 10 patients have a successful transplant. I'd imagined it was much lower than that so I can see they must be very skilled nowadays at this type of thing.

swedishmum · 13/11/2005 23:32

Thinking of you all

collision · 13/11/2005 23:34

Thinking of you Misdee.