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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
SnuggyBuggy · 16/10/2018 07:42

Is it possible to have his capacity reassessed? It may be he has deteriorated and a home would be more appropriate.

needsomehelpwiththisone · 16/10/2018 07:47

Again, as I've said several times: he's currently under the memory clinic and having the tests. But for now, I can't do a thing, because he still has capacity.

OP posts:
Juststopit · 16/10/2018 07:55

Your not going to like what I suggest but as a care manager with 25 years experience I’ve sort of seen it all.
I would increase your visits so that you are popping in every day or every other day. Just 15 mins to say hello and then make a cup of tea for him and leave. When he rings a firm thanks for ringing and don’t worry I ll see you later. Yes its inconvenient but it won’t be forever as it sounds like a move to a care home will be on the cards soon.

I think you ll probably disagree but you seem to be disagreeing with most suggestions on here.

needsomehelpwiththisone · 16/10/2018 07:58

Sorry, that's absolutely impossible. Once a week is pushing it. I am disabled, managing several health conditions, and trying to work to keep my own head above water.

If you think I'll just automatically disagree, why bother suggesting it - do you just want to feel smug?

OP posts:
needsomehelpwiththisone · 16/10/2018 08:00

And what am I supposed to do here? Saying that he will not allow care is not "disagreeing" with suggestions. That's the situation. He WILL NOT ALLOW IT. What would you like me to do, exactly? Hold him down and force him?

You may have "25 years experience" as a care manager, but I bet you've never once been in this situation with your own relative. If you had, you wouldn't be so glib and smug. People like you are part of the problem.

OP posts:
SnuggyBuggy · 16/10/2018 08:00

Save yourself OP. Why do you have to take him to appointments anyway? Many elderly don't have family nearby and still get taken to medical appointments. He isn't going to help you so help yourself, see him and talk on the phone as much as you can cope with and no more.

needsomehelpwiththisone · 16/10/2018 08:03

Well who else would take him? There is nobody. He can't even understand his own post - he wouldn't know if he HAD medical appointments if I didn't read his letters. He wouldn't even go to the GP. Of course he needs someone to take him.

OP posts:
Juststopit · 16/10/2018 08:05

Not being smug. Making a suggestion. Up the care hours privately then.

And yes I’ve had 4 relatives in care recently. I supported them and yes it was awful and hard.

Block him and never see him again? Not sure what you want people to suggest.

needsomehelpwiththisone · 16/10/2018 08:06

Up the care hours privately? With what, exactly? A magic money tree?

And what would be the point of that, exactly, when he won't even allow the care he does have? Half the time he just sends them straight away again.

OP posts:
ZaZathecat · 16/10/2018 08:06

Sorry I haven't read the whole thread but have a suggestion to make your visits more bearable.
This is something I used to do with my dm (who was lovely, but dementia made having a chat hard work): I would bring crossword books and read out the clues and write in the answers so we were doing it together, even though she couldn't see to do them herself. It passed the time quite well.

Juststopit · 16/10/2018 08:09

You want suggestions. You’ve had plenty on here.

SnuggyBuggy · 16/10/2018 08:11

Then get social services to do an assessment of his needs. My DGF was 100-200 miles from his family, there are systems in place to provide help for those without family. Why should you have to make yourself ill because he is too selfish to help himself?

PipGoesPop · 16/10/2018 08:11

Pick one of the many tv programmes that he watches and that is always on (so a soap or a quizz programme) watch it once a week or so and then gossip about it with him. It'll be half an hour of watching something you're not particularly bothered about but will give you something in common.

needsomehelpwiththisone · 16/10/2018 08:11

The crossword thing is a really good idea, I'm goign to do that. Several people have suggested it so I'll get a book of them before I go over next.

I was supposed to be going to see him today but I can't, I'm not well enough. He's not going to like this and I'm dreading phoning and telling him.

OP posts:
needsomehelpwiththisone · 16/10/2018 08:14

Snuggybuggy - they've already DONE an assessment of his needs, hence why he has the carers going in once a day. They say he needs help remembering to wear clean clothes, prompting for his medication and help cleaning his bedsit. Tha's what they say he needs, but he won't even allow the care he does have - what am I meant to do? Get them in there to say he needs more care that he won't allow? There's nothing else for them to do anyway - he has his meals cooked for him at the place he lives at. He is already having the memory tests at the memory clinic and last week had the brain scan they sent him for. I don't know why people aren't listening, I've explained this so many times.

OP posts:
needsomehelpwiththisone · 16/10/2018 08:15

Juststopit - may I suggest you take a hint from your own username? Your suggestions are not helpful. Try seeing it from the other side of the fence instead of your "25 years experience" (which, if you really had, you would realise your suggestions were untenable anyway).

OP posts:
SnuggyBuggy · 16/10/2018 08:17

Walk away, let him face the consequences of his actions. Do the absolute minimum to avoid too much guilt but stop being responsible for him.

Ihaventgottimeforthis · 16/10/2018 08:19

It sounds like all you can do OP is try to find some new activities like the crossword, & then try to change your own reactions & feelings.
He won’t change, so look into ways to help you manage your situation- like the above, instead of mulling over & ‘dreading’ telling him, come up with the phrase that you are going to say, some stock responses and then a way to disengage - I am very sorry Dad but I am not well enough & now I need to lie down. I will call you this evening to let you know I feel better and to arrange my next visit, when I have an idea for something we can do together. Then just put the phone down, mute and steel yourself for seeing twenty missed calls later.

Urbanbeetler · 16/10/2018 08:20

Don’t be cross with people who are trying to help. Honestly, be aware of those traits of hi which you are allowing to get under your skin and emulate.

You are in an almost impossible situation. This phase is the hardest - when they still have capacity but it is diminished and they are dragging you down with them. My dad shouted my mum awake 20 times in the night just because he was ‘worried’.

This stage will pass. He will not change other than going downhill now of his own accord - the sole ammo you have in your bag is to change your own attitude/behaviour with regard to him. How this works is an unknown - all you can do is try different things (or rather, continue to try different things - you have obviously tried so many already) but with a strong emphasis on detachment and your own survivial being pushed forward. You need some real life support combing through:

What you have to do for him without being able to leave it
What you need to survive
What you can change about your own position in this

Who can help you? Have you tried Age Concern, Alzheimer’s support worker, social services assessment team? I’m sure there are more - we have had some great help from various sources.

Lastly, I do feel massively for you and don’t blame you if you just want a rant. The situation is so very, very difficult for you.

Ihaventgottimeforthis · 16/10/2018 08:27

OP have you thought about getting counselling or therapy to help you deal with this situation? It seems here like it is seriously affecting your health as well, beyond the challenges you already have.

needsomehelpwiththisone · 16/10/2018 08:34

Then just put the phone down, mute and steel yourself for seeing twenty missed calls later.

That's it in a nutshell. That's my life. I'm trying to work around my own disabilities and health conditions and having to deal with this on top of it and I just want to scream and tell everyone to fuck off and leave me the fuck alone :(

Thanks @Urbanbeetler, I appreciate that. I think the trouble is that there isn't anyone else to do this stuff for him so I have to do it. Things like:

  • taking him to the shop - he gets two meals a day at the sheltered accommodation but still has to shop for the rest of his stuff (toiletries, snacks, breakfast foods, etc) - he can't get there on his own so I have to do it
  • reading his mail, but it's not just the reading of it, it's the calming him down when he's had a perfectly normal letter from someone and he calls me panicking that he's "had a nasty letter". For example he recently got the one from the council about voter registration and called me in a panic thinking he was going to go to prison because it said something about a 1000 pound fine if he didn't fill it in
  • keeping on top of his finances - he panics if he doesn't receive his bank statement on the day he thinks he will (even though the day he thinks it comes isn't the day it does come - I have to explain to him every week when he phones me thinking that the fact he hasn't received his bank statement means he's got no money left)
  • dealing with the hospitals/doctors/care agency - last week the district nurse said he needed to see a doctor about his foot (he has it dressed twice a week), but instead of using their brain and contacting the doctor, they told the sheltered accommodation staff, who then rang me, who then had to deal with getting a doctor out to see him

He catastrophises everything and I'm the one who has to deal with the fallout. A good example of that - he had to go to A&E last year about an infection in his foot and it was six hours of dealing with him crying that if he had to go into hospital he wouldn't be able to phone me or be in contact with me and then what what he do? Nobody had said anything about him going into hospital, they were just looking at it and dressing it. It's absolutley bloody exhausting, mentally.

It's all very well people saying "walk away" but who the hell would do all this stuff if I didn't, when he won't accept care, and when the care he does have is provided by social services and not very thorough anyway?

On top of all this I've got him on the phone every day saying "when are you coming to see me" and I just want to scream and hide. And now I have to phone him and tell him I'm not coming today and it's all going to start all over again.

OP posts:
PandorasBag · 16/10/2018 08:46

I think with my father-in-law who used to live in sheltered accommodation with brief caring visits got easier to cope with when we moved him to a nursing home. (Continence problems developed)

He had dementia but could present in a fairly rational way for short periods. I think the question of capacity is quite complex. If someone is refusing to look after their personal hygiene and so not have the ability to carry out simple tasks do they really have capacity. (You might get good advice from the Talking Point - Alzheimer's Society forum.)

In the care home we know that my father in law is not isolated, and that he is kept clean and safe. As was said above, the staff are good at dealing with residents who are initially reluctant to accept help.

The key questions - not sure if they've come up above - are whether you have Power of Attorney, or can get this. If not, it's going to be really tricky. And of course there is the issue of whether there are funds to cover your father's care.

I think the focus needs to be on trying to access the help your father really needs - which should be given by professionals. That will set you free.

(In a care home he won't have access to a personal landline, so the calls will stop)

NB My father in law is much happier in the care home than he was in sheltered accommodation. There are some good providers around, and I'd recommend that you start looking.

SnuggyBuggy · 16/10/2018 08:48

I think you should try to get out of this I have to do it mindset. Many elderly have no children to look after them, they cope or as steps in. Have you heard of FOG (fear, obligation and guilt)?

If he refuses to accept help it's not your fault. You deserve better than to be his punching bag.

needsomehelpwiththisone · 16/10/2018 08:53

OP have you thought about getting counselling or therapy to help you deal with this situation? It seems here like it is seriously affecting your health as well, beyond the challenges you already have.

I probably should, yes. But honestly, it's just one.more.thing to add to the mental load and oh god. I don't think I can cope with any more things I have to do right now, even though I know it would be helpful

I've been trying to get a doctor's appointment for weeks to discuss some other stuff, but every time I manage to get one I end up having to cancel it because someone books me for work and I'm not in a position to turn it down.

OP posts:
needsomehelpwiththisone · 16/10/2018 08:59

@PandorasBag - thank you.

The whole point of moving him to where he is now was, apart from that he'd be near to me and not at the opposite end of the country, was so that he wouldn't be so isolated. When he lived at home he was still in sheltered accommodation, but had his own flat, which he was just sitting in alone all day. This place has bedsitting rooms plus communal dining, so he's not isolated, but he refuses to take part in any of the social activities or even to socialise with the other residents. He even sits on a table alone in the dining room.

Honestly, I would be happier if he was in a care home at this point, for safety as much as anything else (his balance is not great) but he will not hear of it. If I could even get him into one near me that would be better, as it would cut out the half hour drive each way and make visiting easier (I know, half an hour isn't much, but again, I'm trying to manage my own health conditions and it's overwhelming sometimes).

And no, there's no money for care. We're relying on social services/the council.

I'm hoping that if he gets a dementia diagnosis from the memory clinic, some of this stuff will be sorted out.

OP posts:
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