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Elderly parents

Caring for elderly parents? Drop in for support, hand holding and whatever you need

999 replies

CMOTDibbler · 16/09/2016 19:22

It doesn't matter whether you are a hands on carer, care from a distance, or are just contemplating the future. Join us for support from people who know the struggles of becoming your parents carer - we rant, cry, and pick each other up.

OP posts:
somethinginthecordelias · 31/01/2017 14:59

Oh Giles, I'm so sorry Flowers That is very sudden. I'm glad the home are sorting out her affairs so you can focus on yourself, you did such a lot for her.

Gileswithachainsaw · 31/01/2017 16:12

Thank you some & unmanned

I hope that I could even have half her spirit when I'm her age. It was a privilege to have known her. I'm going to miss our chats sooooo much. Who's going to tell me off now???

Hope everyone's ok here today.

Badders123 · 31/01/2017 17:31

Giles 💐

Badders123 · 31/01/2017 20:23

Handing my notice in tomorrow - I know it's the right thing to do but I'm still sad about it.
Hope everyone is ok

thesandwich · 31/01/2017 20:27

Oh Badders sorry to hear that. Do you have to tell DM? Please use the time to look after you.
Hope everyone else is doing ok.

Badders123 · 31/01/2017 22:18

I'm trying to put a positive spin on it to myself
More time for me
More time for exercise
More time for dh (who has been quite neglected tbh)

Gileswithachainsaw · 31/01/2017 22:51

BrewCakeWineGin for you badders

picklemepopcorn · 01/02/2017 06:56

Is it that you can't work now because the caring is taking up too much time, Badders? Would a period of unpaid leave be possible so you can go back later? Sorry, I looked back down the thread but couldn't find the context. It's a shame to leave if you don't want to.

Badders123 · 01/02/2017 07:08

Not exactly
But I'm just knackered and I work very pt anyway do the money isn't really an issue
I've just had to admit to myself that I can't do everything
Areas of my life are suffering because I'm stretched too thin
It's the right thing to do
But I'm sad about it
Dreading telling my colleagues

picklemepopcorn · 01/02/2017 07:41

That's a shame. I know that feeling. But think how much more flexible you'll feel when those part time hours are available to you again. I find it isn't the actual time, it's the flexibility I miss.

ZaZathecat · 01/02/2017 08:17

Badders it does sound like you need that extra time, but maybe you could keep contact with your colleagues and still socialise with them sometimes?

Unmanned · 01/02/2017 09:51

badders I also had to admit that I couldn't do everything and so I gave up work. Be kind to yourself and take time to smell the Flowers

MalletsMallets · 01/02/2017 10:55

Sorry to gatecrash lovely carers, but I heard something on radio 4 that may be of use to you.
If you care for 20 hours a week for someone you may be entitled to carers credit. This is a credit that is a top up on your pension so there aren't gaps in your contribution.

www.gov.uk/carers-credit/overview

Apologies if it's already well known.

Badders123 · 01/02/2017 17:16

I met up with a friend for lunch today who is in a similar situation and it was lovely
I'm going to continue volunteering at the school as I enjoy that
I hope to keep In touch with my colleagues but time will tell...
I take my hat off to those of you that do this whilst working and having young children.
It sucks 😞

somethinginthecordelias · 01/02/2017 18:49

Badders Flowers

DW is finding balancing everything with work incredibly difficult at the moment too, and I feel a bit helpless because there's nothing much more I can do to support her. Our schedules are so tightly arranged around childcare, work and MIL that there isn't any wriggle room.

Badders123 · 01/02/2017 19:10

I feel for you both.
It's so hard.
Dhs and my relationship is suffering, I'm not doing anything well iyswim? I'm just doing "enough" to get by and it can't go on.
Take the week Mum was taken to hospital...Dh was away in the US, my washing machine blew up and bathroom tap stopped working.
Doesn't sound too bad, does it? But, as you say, add to that 2 school age children, work, their activities (which seem to be taking up more and more evenings and weekends) and simply trying to keep the house clean and and food on the table is bloody hard work.
I felt quite wrung out by the time Dh got back!
Ds2 is only 8 so he needs a lot of my time and supervision still. Ds1 is 13 and going through picking his gcse options so there have been lots of school meetings in the evening to attend lately.
I feel like I'm floundering tbh, and I've felt like that for some time.

somethinginthecordelias · 01/02/2017 20:36

Our main problem is that we have two different nurseries in opposite directions - DS1 (nearly 4) has a hearing impairment and goes to a specific nursery because of that but it doesn't take kids under 1 so DS2 can't go there. Consequently we spend a lot of time running off in opposite directions.

DW has a more stressful job (though shorter hours on paper which seems to be all anyone assessing the care MIL will need sees) and I think it's always harder for the person who's parent it is.

somethinginthecordelias · 01/02/2017 20:43

Argh, I'm terrible for posting when I mean to preview!

All things considered it sounds like you are coping really well Badders, I think it's natural to feel you're floundering (I hope so at least, we definitely do too), but you are keeping everything afloat which is amazing! And you realised you can drop something to try to make it easier even though it's not what you'd ideally want, which I think is often a really hard realisation to come to.

Badders123 · 01/02/2017 20:49

Yes it is and sadly I always think I can do it all
And now I'm getting on a bit it's all getting that much harder 😀
Luckily my sons schools are local and when dh is in the U.K. He is fairly close too

EddSimcox · 01/02/2017 21:31

It's been so hectic here I've just come on here for the first time in ages. giles how are you feeling now? It seemed really sudden, I hope you're doing ok? Flowers you were such a good friend to her.

badders sorry you have to give up work. I know how hard it is to do everything, but actually work is one of the things that keeps me sane, but it's so difficult to juggle it all sometimes.

pickle how you doing?

My DPs are still here obviously. I went to see a lovely retirement village last weekend, with really good flexible care available, but they won't hear of it. Plan is to buy a 4/5 bed house near me, mainly just because they can't bear to part with anything. Sigh. They should be ok with a part time 'housekeeper' for now; and I suppose we'll cross the bridge of more care as and when. So far nothing's is right though, too comfy here I suppose!

Needmoresleep · 02/02/2017 07:43

Badders, I completely understand. My dad became ill about 8 years ago when DC were 11 and 13, and both transferring to secondary. I was working full time and running a small business. Luckily DH's work does not involve too much travel, and he did more than his share of housework, but we were barely coping.

We had a couple of summers where each weekend we seemed to crisscross the country dropping kids with grandparents, at sports camps and so on. At one point we packed a 12 year old on a Euro Star on her own (to be met at the other end!). And a 14 year old, without a word of German, on a flight to Hamburg. The same 14 year old managed found his own way back from Cirencester, armed with taxi money, coach ticket and tube pass.

I hung on for the first three years, then voluntary redundancy was offered across the organisation I worked for. I realised I would probably not get another chance and that my mum was on the brink of needing a lot more help.

It was in many ways a perfect job for me, and I was good at it.

I find it difficult when my mother complains about how I don't do anything for her. It is the dementia talking, but I face another decade of caring for her. My in laws are now getting to the stage where they may need help, but are not looking ahead. (I understand the denial, as looking ahead would be grim, but I dread us having to go in and pick up the pieces again.)

It probably did DC no harm to realise they were not the sole centre of their parents universe. But I wish I had not been so tired through key teenage years and could have enjoyed them more. In my mother's case, caring is complicated by the fact most of her assets are in property. I accept it provides a useful income, but resent the fact I had to spend a month of my daughter's last summer at home, 150 miles away, trying to bring her old home up to an acceptable rental standard. (And she still complained each time I saw her, that I did nothing.)

When I gave up work I also found I needed to rebuild social networks. Old NCT friends, say, were used to meeting up without me, and I needed to take the initiative in organising things with them. I was also very tired, and spent a lot of time in the first six months doing nothing more than watching day time TV. In retrospect I probably needed it but I worried at the time. I was supposed to be doing so many other things.

It's OK, we have found a few silver linings in having to spend part of our lives near my mum, and I could not have carried on. And things are much easier now both DC have left school. But I still struggle with the fact that my life is hold.

Badders123 · 02/02/2017 07:53

Need....I'm sorry. That sound so very stressful.
My mother is not remotely grateful for what I do and there is no dementia involved!
I think you have hit the Nail on the head....I'm not enjoying my kids, I'm not enjoying anything in fact.
Ds1 has just been invited to join a badminton club (he is very good) and instead of feeling proud and happy i am just worried about the extra time it will take up in our already busy week.
i think my first month after leaving will be spent just playing catch up with everything
Ds1 had his asthma check yesterday spand the nurse wants him to have some steroids at home in case of exacerbation again and I completely forgot to speak to the dr about it 😖
I will have to phone this morning and try and speak to someone...that's always fun trying to get through!
Hope everyone has a good day x

Unmanned · 02/02/2017 10:04

I'm fortunate in that my kids are grown up I've no idea how you guys manage with young ones!! Flowers

Currently waiting for the district nurse to come and fit a catheter as mum can no longer mobilise to the commode.

I literally have no idea how I coped before giving up work. There's only me to see to mum, organise nurses, carers, financial stuff and everything else as siblings love be abroad. I too feel as though my life is on hold....

Here's to a better day for all!

Badders123 · 02/02/2017 16:16

Hello all
Spent most of the morning with mum at the dr - she has had chest pain again but st least made a dr appt this time!
Sadly we were over an hour late going in so I had to phone work and was 20 mins late
Anyway- she has worsening angina and the dr is chasing up the cardiology referral
Back next week
Sigh.....

Gileswithachainsaw · 02/02/2017 16:27

Oh badders that sounds heavy going and very frustrating

Here- Gin

Well my "services" are officially over I picked up her stuff from the home and put it back in the house and the local council people have been and taken a load of paperwork and letters etc to cancel everything and to try and find any sign of a will. They also took her key and my key to her house.

They have her phone book and will try amdtrack down any family/notify people etc Which of course means they could do anything with regards to a funeral and there's a good chance I might not even hear about it let alone be able to attend

I just have to hope that they choose to contact me.

If they don't then well... I still have the times we chatted and our shopping trips etc and I said good bye at the nursing home so not end of the world I suppose but I would love to go and give her a send off.

I shall be having a Wine tonight fir sure.

Good luck to the rest of you Flowers