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Elderly parents

Caring for elderly parents? Drop in for support, hand holding and whatever you need

999 replies

CMOTDibbler · 16/09/2016 19:22

It doesn't matter whether you are a hands on carer, care from a distance, or are just contemplating the future. Join us for support from people who know the struggles of becoming your parents carer - we rant, cry, and pick each other up.

OP posts:
PettsWoodParadise · 08/11/2016 21:43

Hello checking in. I haven't read all the thread (sorry) but what I have makes me realise I have very small problems with my mother in comparison. I have developed new skills recently like how to clean out hearing aids, devise ways to get mum's house clean without her realising as she is too proud to accept help and deal with rehabilitation after a long stay in hospital for her - whilst working full time. I joked recently that my handbag that once had nappies and spare knickers in for DD now has hearing aid batteries and incontinence pads for my mum. Grin

Bowednotbroken · 09/11/2016 09:25

Zaza and CMOT sorry to hear that things are getting more complicated. My DM's legs leaked too but the district nurses seemed to manage it on their own. Anyway, she's out of hospital thank goodness although she has sworn never to go in again. The news this morning has pulled me out of my little world where the horizons seem to have got narrower and narrower over the last few months - just don't care what is going on. However, today it is hard not to care. Am off over to mum's shortly through the snow!

Badders123 · 09/11/2016 14:19

Hello all
I hope things are improving cmot?
I'm feeling very low for several reasons - global politics aside! - dr started me on HRT today so we shall see if that helps me
Mum is as ever
My siblings are useless - I was supposed to see my sister today after work
Went to her house
She has gone out
"Oh I forgot"
Why do I let them do this!?
Gah
So I end up angry with them and angry at myself!
I feel like maybe I need to get more selfish - I'm not sure how you do it though?
Sad

CMOTDibbler · 09/11/2016 21:41

Dads legs still not good, but otoh he's got through the clotting issue, and the DNs are taking his blood for the warfarin service rather than him having a weekly problem getting a blood test appointment/getting parked there/getting to the room and so on so thats a win.

Petts, you should see my Amazon history! It suggests all sorts of things like old man pants, incontinence pants and pill splitters

Good news Bowed, hope your mum manages to stay out

Badders, how about just trying the odd 'no, that doesn't work for me', or having one day a week where you are Not Available? Hard though

OP posts:
Badders123 · 09/11/2016 21:46

That's good cmot
I'm going to try that tomorrow...

CMOTDibbler · 09/11/2016 21:58

Good luck - just keep saying it. You don't need to excuse yourself, or justify why

OP posts:
ZaZathecat · 09/11/2016 23:02

Hi PettsWood, I'm not a million miles from you!
Bowed , I hope your dm stays out of hospital longer than mine did (8 whole days). She's 'ok' again now but we're waiting for an appropriate care package to be put in place before she goes back to Extra Care. She's very keen to get out, but sadly thinks she'll be going 'home to her family'.
Badders , sorry your sister let you down.
CMOT, my latest buy for dm (for xmas) is a purring, breathing, sleeping cat toy for her to stroke. Apparently they are popular with dementia sufferers.

bigTillyMint · 10/11/2016 07:07

Afraid I have no clue about leaky legs - hope you/the professionals find a solution.

Badders, I agree with CMOT - you need to put yourself first and say no or I can't do that Flowers

Zaza, where did you find the cat? I have just bought a Twiddlemitt for DM!

My DM continues to moan/wish she was dead, etc - said same to her brother when he phoned. It's horrid that she can't choose what she wants for her life Confused

PettsWood, your name makes me think of footy - DS's old team used to play Petts Wood!

Badders123 · 10/11/2016 07:09

Well...I've text Mum and told her I won't be popping in today - and I've cancelled
Our shopping trip tomorrow
I just don't feel well enough - it's going to take all my energy to go to work

thesandwich · 10/11/2016 07:13

Badders- you need esssential downtime for self maintenance!

bigTillyMint · 10/11/2016 07:15

Well done Badders! Wine Chocolate Flowers

Badders123 · 10/11/2016 07:19

Oooh that makes me sound like a cyborg!
Grin
I wish I was some days!! Confused

ZaZathecat · 10/11/2016 08:03

Good for youBadders!
BTM, I googled 'dementia shop' and the first one that came up had them.

CMOTDibbler · 10/11/2016 09:03

What a good idea ZaZa. I've bought mum some really nice pyjamas, and Andre Rieu has delivered with another DVD for dad (I can't stand the man, but dad gets so much pleasure from the DVDs)

Good for you Badders! Make sure you do something for you in that time, even if that is hiding under the duvet

OP posts:
Badders123 · 10/11/2016 17:15

Day didn't quite go to plan tbh
Spent all morning on the sofa watching f tv Blush
Then went to work and was supposed to meet a friend after

  • except she bailed on me (got a better offer!)
Not the first time she has done this But it will be the last
CMOTDibbler · 10/11/2016 18:26

All morning on the sofa sounds like exactly what you need. And someone who bails for a better offer isn't a friend!

OP posts:
thesandwich · 10/11/2016 18:37

Badders well done for the sofa stay! Make it a regular thing.... cyborgs need maintenance.
The purring cats sound like a brilliant idea.
Fil just been readmitted to hospital- dh has gone over again on a 3 hour round trip. Dehydration, blood in wee .... it is so sad. Won't drink, not eating.... so hard.
Hope all the other elderlies and and all you carers/ champions are doing ok.

Badders123 · 10/11/2016 18:50

Oh sandwich!!!
Sad
At least I'm local to Mum - a 3 hour round trip sounds horrendous!
I have worked with elderly people (many years ago) and utis and dehydration are so so common sadly - along with the congruent mental deterioration...
I shall probably do the same tomorrow as today....
Awful day at work today..Poorly children, swearing children, upset children...ugh
And it rained! Confused

Badders123 · 10/11/2016 18:51

Cmot - at least this time she did text!
Last time she just didn't turn up Hmm

permanentlyexhaustedpigeon · 11/11/2016 08:40

Badders, sounds like a sofa day is exactly what you needed!
Sandwich, a 3 hour-round trip sounds horrendous! You poor thing!

Big hugs and a lot of Cake to you all.

I'm shattered, upset and furious on a fairly continuous loop since the CHC assessment meeting on Tuesday. The social worker did acknowledge that "it must be hard for you to hear this, but he has lost a lot of weight" - that bit wasn't especially difficult to be honest. What was harder - and which nobody really seemed at all sensitive to - was the litany of interventions she described in gory detail about Dad's aggressive behaviour, damaging equipment in hospital, punching members of staff, grabbing visitors, wandering into the women's ward, pissing in corridors, multiple complaints about him from visitors.... it was all I could do not to cry. I do my level best when I'm there but I know I can't overpower him, and stopping him from getting into other people's rooms is nigh on impossible.

I was also told that any knowledge of his condition - or even what it is - would be pointless, so I have no idea of prognosis, triggers or anything. His whole personality is gone, but he could live for another 20 years like this for all I know. It's all I can do not to give him a jar of poteen and let him have one last hurrah before he goes.

I worry about the toll this has taken on my mental health as well as his to be honest. God knows where will take him - again, I've been told it's very unlikely that anywhere in the area will, but "not to worry" because "I ought to get some help in finding somewhere". Another list, I imagine - and since the social worker and CHC assessor kindly refused to provide their last names or any contact details, I have no way of asking for help...

thesandwich · 11/11/2016 09:21

Dh home at 11 and now back to hospital today before going back to teach... dfil very dehydrated and confused. Poor chap.
Pigeon- that sounds awful. I am so sorry. Could pals or age uk help? It sounds terrible. Flowers

ZaZathecat · 11/11/2016 09:51

Pigeon are you personally responsible for finding somewhere to take him? I really thought Social Services would do that. If not , why is that? So sorry for all you're going through.

CMOTDibbler · 11/11/2016 10:50

Pigeon, that must have been massively distressing to hear.

I wonder if someone like Headway could provide some information and support for you? After all, your dad seems to have most likely been affected by Wernickes Encepthalophy which would seem to fall into their remit.

OP posts:
bigTillyMint · 11/11/2016 10:56

Pigeon it sounds awful - like the are blaming you and passing all responsibility onto you. Surely if he has a CHC they shold be escalating support for him? He can't be the only elderly person with agressive behaviour, etc - there must be a provision that could meet his needs Angry for you.
And yet another person with Dementia who is not enjoying life but who will be kept alive by the medical profession till the bitter end Sad

Badder, hope you are getting some more time to yourself.

Sandwich - sympathies to your DH - it's very hard going back into class whilst dealing with a major stress. It's not like "just" sitting with a pile of paperwork.

My DMs Christmas presents arrived yesterday - a fabulous Twiddlemitt with loads of bits attached to it and a pompom inside, and a book of nature photos taken in the area where she lives. Hopefully she might get some enjoyment from themSmile

Needmoresleep · 11/11/2016 12:11

Hello everyone. It is nice to see new people, though I am sure this is not where you want to be. After the big crisis three and a half years ago which took a good year to sort out, things have been reasonably stable. But I am feeling unaccountably flat. It just goes on and on. And could quite possibly do so for a decade or more.

I realised on one day I was in contact with three different lawyers. One to do with my mother employing a carer, another regarding an eviction from one of my mothers properties (it turns out the former tenant is wanted for a multi million pound fraud - the good news is that it means he won't be back!) and a third to do with a complex right to light case, where my mum and neighbours are threatening an injunction against the developer next door. I am in the process organising a plumber, electrician, handyman and kitchen fitter, have my mums accountant chasing me for her tax figures, need to sort out work on a shower which is under guarantee, sort out my claim against the deposit, and probably more that I have forgotten about. Plus I probably need to pursue appointments for a couple of non urgent health issues, and other things related to my mums care, pay bills and so on. And when I see my mother I can expect a frosty welcome and complaints that I never visit or do anything for her. I know it is irrational but my prevailing emotion when I see her is anger.

I had hoped that there would be a point when it was all under control but am realising that this point will never be reached and indeed the relative stability won't go on for ever. I need to insist to DB that the properties are sold, and that care is paid for out of capital not income, but lack the energy to do that.

But this is nothing to what it was like when things were at their worst. And Pigeon, that sounds really awful. I absolutely hate it when told off about my mother's behaviour, which is far from as tricky as your father's. It relates to her illness, what do they suggest I do?

If you have a nice GP I would be tempted to go to him and cry. Tell him you are drowning. You are not depressed, you certainly do not need pills, you are a strong person, but you are overwhelmed and can't manage this on your own. I don't know how the system works but perhaps he could write in strong terms to the relevant social services saying that there is a significant danger of carer breakdown and that they need to engage proactively. Or perhaps give you access to some form of counselling which gives you the change to talk things through and see some wood as well as trees.

I think the comment about your dad losing weight is absolutely unacceptable. These things really hurt.

I hope one outcome is that you feel more selfish. You cannot be judged or held accountable. You can only do you best, and some of that depends on you putting yourself first and making sure you stay well. Your fathers situation is very sad, but you can't make it right.

And keep the poteen as a Plan B!