What an awful time for your daughter and such a stressful situation for you too.
The approach and understanding to bladder and bowel conditions in this country is WOEFUL. In my experience, as an ex primary teacher and parent of a child with chronic bowel and bladder issues, there is an assumption issues are caused by parenting. The way in which it impacts on a child’s quality of life is not understood by education settings or many medical professionals, in my experience.
Your daughter needs an individual healthcare plan at school ASAP based on the medical info you’ve supplied and I would use ERIC and Bladder and Bowel to help inform this. ERIC especially has amazing templates. If she is diagnosed with Hirschsprung's then she will have a disability and the school will need to meet her needs. Putting children in nappies is not a recommendation the NHS make in this country. Many children do use pads to help discretely deal with overflow or leaks during school. However, the school then has a responsibility to provide a private toilet for those children to use so they can safely dispose of pads and wipes. Depending on their age and level of independence, they may need a member of staff to check on them or even assist which should be put in a separate intimate care plan. Children’s privacy and dignity should be paramount.
When your daughter’s school is suggesting for her to wear nappies not only are they ignoring her right to dignity but it seems to me they’ve not considered how or where she will change her nappies or how to dispose of them or who the member of staff will be to keep an eye on her. It seems as if they are prioritising her attendance over her wellbeing.
I don’t understand how school called the ‘child in need’ card as that would mean they have safeguarding concerns and would have to do a referral (which needs your consent, unless the concern and risk is so great they can bypass this). This is completely unprofessional. I understand schools have to check in on attendance and welfare and check on those with long-term and chronic illness, as children do fall through the cracks. However, your child is awaiting surgery, had a medical diagnosis for a bowel obstruction and is awaiting further potential diagnosis. You’re not just keeping her off because you feel like it. If the school are that concerned then a referral to social services may go through but I doubt it would be escalated to social care and it would go through early help first.
If the school want information from medical professionals then they need to organise a meeting between these professionals, the school and you so you can create a plan for your daughter together. I think the LA and SEND service being involved would be helpful to as it sounds like tutoring or hospital school may be good alternatives for your daughter at the moment. I think any planning you’re doing, particularly after the surgery and biopsy results, need to have that transition to secondary school considered.
Arm yourself with the school’s policies, medical guidance and don’t be afraid to escalate to governors, the LA and your MP. Have you spoken to ERIC yet? They are SO helpful and it really prepared me for a school meeting for my child.
I hope your daughter’s surgery comes through soon and I’m sure you’ve been advocating for her here. It’s such a long wait for anything. Your daughter sounds like an absolute trooper and I really hope the surgery brings her a much better quality of life. 🤍