I think I might change my username to Fuckingoffwithmybootson.
The boots arrived today and they are gorgeous – the website doesn’t really do them justice – the leather is so soft and they are the most luxurious thing I own. I’m definitely wearing them to appointment #2, whatever the weather – I need them as a reminder that I can get through it.
Dentistry is being mentioned a lot in recent posts and my phobia extends to this too – mainly due to needles but I also have a massive fear of extractions. I went 14 years without ever seeing a dentist due to my fear but eventually found an amazing practice which specialises in phobic patients. I’d be happy to share details in PMs just in case it turns out that anyone here is in a nearby area. The website Dental Fear Central is also really good – full of helpful moderators, tips and success stories. It’s a really supportive place which doesn’t feed the fear and that’s a difficult line to walk. I had identified this particular dental practice and used to drive up and weekends and days off just to scope it out. Then I worked up the courage to email them but still couldn’t bring myself to make an appointment. They were so patient and we had an email relationship for about six months before I was ready to take that step. Early appointment were difficult. I ran away, crying, from the waiting room once and most of the time would hyperventilate as soon as I saw the chair but they took things really slowly and now, more than ten years on I genuinely consider my dental surgery to be one of my safe spaces – even to the extent that when I was freaking out in the vaccination centre and then doing deep breathing exercises, I was actually imagining myself in the dentist’s chair because I know that that’s where people take care of me and are gentle and understanding. A while back, there were some reports that dental practices might offer the covid vaccine and I was actually really happy about this, knowing that my dentist was literally the only person on earth whom I’m trust to inject me. I really hoped this would happen but they obviously went down the mass centre route instead, which is understandable but doesn’t work so well for me.
I had been attending dental appointments and building up confidence for some time before I had to face my first properly invasive treatment and I immediately went to pieces and lost all confidence I had. It was my dentist who suggested getting additional help and even helped me rehearse what to say to my GP to ensure that this was taken seriously. I ended up in a CBT programme and it was useful to get me over the immediate hurdle of my forthcoming treatment but as I mentioned upthread, did not touch my more general needle phobia at all. My therapist was really lovely but when I couldn’t move on from certain stages (e.g. we agreed that I’d look at a picture of a needle but when it came to it, I kept my eyes closed, panicked, cried and tried to leave the room) she kept saying that it was up to me to put the work in and move myself forward and it was in my gift to learn how to control these responses. I absolutely understand the theory around this but I found it so demoralising because the reality to me was that this didn’t seem to be in my gift at all so I was feeling more defective than ever. We were supposed to end the programme with me giving blood but after crying, paralysed with fear for 45 minutes outside the donor centre and then fighting to get away once I did get inside, one of the staff said that they thought it would be dangerous for them and me to proceed. It was a hollow victory – just made me feel that I’ll never be able to deal with this phobia.
I know that one of the main reasons the dental stuff has clicked for me is the continuity and familiarity of care and I know that they go to enormous lengths to make the experience comfortable for me and even when some slightly nasty stuff has had to happen, I can cope with it because I know that they are trying so hard not to hurt me and to minimise all sounds and sensations around me. The difference with medical stuff and injections in general is the lack of continuity – if I have to face an injection or blood test, the person will be a stranger to me and although I’ve had some amazing experiences with wonderful, caring and sympathetic NHS staff, I’ve also met some brusque horrors who seem to enjoy torturing patients. A few years ago, I developed a dental abscess which really took hold on a Friday evening. I was in an extraordinary amount of pain yet I held on to see my normal dentist on the Monday rather than go to the emergency dental hospital at the weekend. That is the extent of my fear – not even being out of my face in agony could have persuaded me to submit to treatment from a stranger. This “how to cope with emergencies” is something I’m still exploring with my dentist but to me, every medical situation is treated like an emergency and that’s the problem. It’s obviously not the way medicine works (and obviously I understand this), even if I had a good relationship with my GP, I can’t just go there for all treatment. Even within the GP practice though, the staff – locums and nurses seem to change all the time. The hope that I can see the same nurse vaccinator for my second appointment is the one thing giving me the most confidence for dealing with that. I’m already starting to panic though that this won’t work out and I’ll fall apart if faced with a new person/environment.
On that note, I’ll admit that the panic is already starting to set in. Despite what I was told on Sunday, several people have told me that their second appointment was not the same day of the week as the first. I had been calm about this and had planned to call the Centre when I got my letter to ask if there would be any option to move to a Sunday appointment, explain the situation and give the vaccinator’s name and the importance – endorsed by her – of seeing her again. Last night though, I read a report on the Scottish Government’s attempt at vaccine passport evidence and it seems that it doesn’t work for people who did not receive a blue letter (i.e. NHS staff who got it through work) or who changed the date without getting a new letter. I’m now getting myself really worked up that I’ll go through this but won’t have the evidence and might therefore have to be re-vaccinated. Also, DSis said on Sunday that if the second is not done within the 12 week period, the effects will be invalidated and a third will be needed – so now I’m worried that I’ll be given a date right on the 12-week boundary but to change it to a time when the lovely nurse is available will take me beyond.
QueenofDuisburg I feel so touched that this thread has inspired you, despite my constant backtracking back into panic mode. I absolutely understand why you can’t tell your husband. I was hoping against hope that DH and I would get different slots and wish we had the English system so I could have engineered it that way, because I really didn’t want to do this in front of him, nor have the shame of possibly backing out. I really don’t want to go down the “if I can do it anyone can” route because I know from experience that this isn’t helpful but I do want to say that you shouldn’t be afraid to ask for support at the Centre and that with the right level of support, I do believe it is achievable. The numerous posts here which said that it’s in everyone’s best interests for the staff to be helpful and supportive, really helped me. I’m sure you will find lovely people at your Centre. Like you, I have avoided needles my entire life – unlike you, this meant I avoided pregnancy. There’s a bit more to it than that – I was always ambivalent about having children and needle-phobia was just one factor in the decision not to go down that route, but it was there and that is something I find really shameful in myself. I’ve also avoided needles in ways I’m not proud of. Was once in an accident and got so worked up in a&e when they tried to give me a tetanus booster that they refused to do it and told me to get it done at my GP surgery within 48 hours. I had no intention of ever submitting to that – but I lied to DH and told him I had. I know I can’t continue through life like this, especially as I get older and really want to give myself good experiences with these vaccines so that I can build on this to get to a point where I might still panic but at least I won’t actively avoid medical treatment. I realise your appoint is/was this morning – please do let me know how you got on and it’s absolutely fine if you backed out and decided to take the time to get into a more resilient state on another day.