Hi everyone, thanks for tagging me in on this thread. Yesterday I went to A&E and had a bladder scan, bloods, neurological reflex tests, and heart/lungs listened to etc. They cannot understand why im getting such bad neurological symptoms other than “post viral myelinitis” this absolutely sent me spiralling into despair. My GP called me as I left hospital as she was going to get me to come to the surgery carpark for an examination. I told her that I cant cope with the symptoms at night, that im not sleeping and that when the buzzing/tremors etc start that its giving me a panic attack as its in the vertebrate of my neck now and distressing. She prescribed me some sleeping tablets but warned they were a short term solution.
The pharmacy was shut and i couldnt access them and so after consulting a nurse friend I opted to take half a diazepam that I had from a flight in July knowing my lungs/sats had been checked.
The tablet relaxed me and i slept 11-2,2-4 and dozed 4-7 but the sensations were all still there in my sleep. I was acutely aware of them just dozing through them a bit like being awake in a c section but you can feel them in your tummy.
That highlighted that i dont think the spasm/buzzing etc are from anxiety but genuine physiological thing. Rang the GP again and said if its myelinitis I cannot cope with the sensations of it. He has recommended I take amytriptiline instead as used to calm neurological firing etc, is a mild antedepressant as well as sedative and so thinks it might help more. Im starting that tonight.
I may be off the thread a bit whilst I just try to get stable because obviously having been to hospital friends and family keep asking for updates and im
On my phone reliving it all a lot.
On a positive note if it wasnt for the neurological side I would have been saying I was well. Although my glands are up and im tired out, I have no real covid symptoms at all.
What is A&E like if you choose to go?
So im sure loads of you have seen my journey with 111, GP’s, BUPA doctors and coronahub. It eventually got so that as I dozed yesterday to rest i couldnt relax into sleep due to the electrical impulses in my body. At 11.30 I drove to A&E.
When i got there there were literally no patients and all ambulances were merely parked up in all the bays of the hospital with paramedics/staff getting coffees etc in good spirits.
I had to knock and wait outside a portacabin where i was welcomed in by two people in ppe and seated on a chair in the middle of the room like an SAS interrogation. I burst into tears and explained i couldn't get any help and that i could barely feel my legs. They were amazing telling me that “forget anyone else in this hospital, today we are helping you, you are who we are with, what do you need?”
I was assessed as Covid and routed through the “blue” section rather than the “red” clean. A&E had temporary partitions erected across the areas and staff had to use designated doorways so as not to cross into “clean” areas. I was literally the only person there. They quickly did all sats, gave me a mask and a drink and then started my other tests. I had an examination room to myself other than waiting for bloods where i was in a waiting room with porters who had nothing to do.
There was one ambulance admission but I assume they were taken into the resus/trauma area of blue section rather than mine. One other guy came in with a facial injury with mask and gloves and i noted they asked him to remove the gloves and they didnt wear them unless physically examining me. I was there 11.30-4.30 ish and throughout that time I was being actively assessed except for blood results. Dh and the kids dropped me off and came back for me later. It was all very very very reassuring, please dont be scared to attend. Xx