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Covid

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999 replies

WorriesomeDad · 21/04/2020 00:34

Thread for continuing long-term Coronavirus support

OP posts:
Moodgie · 21/04/2020 10:59

Every day I’m hoping the next morning will bring an improvement and I’m stuck in this rollercoaster for weeks. I’m so pleased hearing people get better and I feel like nothing is changing for the better here. And if it does then it follows with another dip.
Anyone with a story of long lasting symptoms and dips that can say it all got totally better in the end, their chest is normal and they are themselves again?

fedupofbed · 21/04/2020 11:19

@Schuyler thank you for posting. What you went through sounds terrifying, especially with your existing conditions, and I'm absolutely incredulous that despite how ill you were you still couldn't get a test!

So glad that you've been recovering well and back at work. It really is comforting to hear from people who are through the other side.

Sending best wishes to those who struggled last night and this morning, sounds like @WorriesomeDad and @baroqueandblue you are both having a particularly hard time 💐.

I had a better day yesterday and touch wood this has continued into this morning. I've had this before though so I'm trying not to get too excited. I've told myself I can get officially excited after a 4 day upward trajectory!

fedupofbed · 21/04/2020 11:32

@Moodgie just to add that my timeline and pattern of illness seems quite similar to yours, and sorry i can't bring much comfort right now. At the moment I'm on the up, still in bed but able to get up for drinks without completely relying on DH, helping DD with homework, etc. My breathing's better too. But yes it's a rollercoaster and previously I've had a day or so of this followed by a relapse where I find it difficult to do anything again. I'm crossing everything today. Sending best wishes to you.

changeofnametohidetgeshame · 21/04/2020 11:38

Hi, not posted on this thread though I was on another end March/ beginning of April.

I am currently on day 48 from onset of normal feeling sore throat which disappeared and then came back as a different dry throat, mucus streaming from back of nose and slightly funny tummy 38 days ago.

These symptoms then changed to very dry, burnt feeling windpipe, mucus in windpipe slightly congested chest, slight breathlessness which felt mainly windpipe and eased when I coughed/steamed and mucus dislodged. To help ease the congested chest I used some cupping exercises that I used to use on my childhood best friend who suffered from CF on front of chest and gentle tapping exercises around back of ribs, top of shoulders, I found these really helped with congestion and shift mucus. Although please take caution when practicing these and look online for guidance so you do not cause other injuries.

I have had cold sores, a bizarre episode of what I assume was an aura migraine and general feeling of not myself, the symptom I found hardest was like an internal shaking feeling, could not sit still and when I had to sit down had to shake legs to get some sense of peace, at these times I also felt a chill down my spine and honestly felt fearful with an impending sense of doom that I was going to die, I do not know what prompted this feeling because I had not experienced a lot of breathlessness or other major symptoms that some of you have been suffering.

All in all most other symptoms have been quite minor but are dragging out and I feel like it is systematically moving throughout my body, as something improves something else flares up.

I am generally feeling much better in myself now and breathing is much clearer, windpipe and throat/sinuses no longer feel inflamed dry or sore and I am more or less back to my usual daily routine without feeling tired - which actually hasn’t been all that bad, I have not been sleeping well at all but seem to be running on adrenaline somehow.

The only symptoms that I am now experiencing are constant mucus around throat voice box/ top of windpipe area and stomach problems which started out as Indigestion type pains but now seem more gastritis as I am feeling nauseous and have little appetite, I am not really experiencing diarrhoea though tbh I am kind of thinking that this is my next progress although hoping that may finally be the end as symptoms seem to be moving down and hopefully out of my body.

I hope this progress gives some of you hope that there is light at the end of the tunnel, although it has been a long winded journey I do feel like I am starting to finally feel myself again.

I have been taking Gaviscon which has been helping and I have noticed also clears the mucus in the throat so perhaps this is something that might help @Moodgie I think you have also mentioned suffering from throat mucus and tummy troubles.

If anyone has any other tips to deal with the irritated stomach I would really appreciate it, as my mum suffers with stomach ulcer and this is something I am really worried about.

I am really hoping that soon we all get answers as to if this has all been CV as I have honestly never experienced anything that has affected me so badly. I usually have a good immune system, I have worked with large groups of very young children for the last 28 years and as you can imagine have come into contact with lots of different viruses/bugs and normally shake them off pretty easy, I have not needed to see gp for over 20 years in regard to any kind of bug/illness and that is what I find quite alarming. I am also worried that if this is not CV and I come into contact with it after this illness I am going to suffer.

Moodgie · 21/04/2020 11:39

@fedupofbed Thank you so much. Sorry to hear you are still struggling too. Sending lots and lots of love.

OneDayAtATime123 · 21/04/2020 11:42

@Schuyler
Thanks for posting . We needed to hear that.

WorriesomeDad · 21/04/2020 11:49

@Schuyler I absolutely love posts like yours. Thanks so much for sharing. After a truly hellish night and early morning of symptoms I’m now left just feeling tired and fuzzy with a very very tight chest. Just back from local Corona hub. Apparently my chest X-ray from yesterday is clear as a whistle, doesn’t bloody feel like it but that’s quite a relief. Physical exam also showed no concerns whatsoever.

The overall message from the gp was that I (and you lot from the sounds of things) are doing exactly the right thing. There is no real solution to the discomfort apart from time. We will get better but it might not be quick.

OP posts:
Moodgie · 21/04/2020 11:53

@WorriesomeDad That is such great news! What were your symptoms at the time of X-ray? We have been pretty similar throughout I think (I never had a cough or fever though - not sure if you did).

WorriesomeDad · 21/04/2020 11:59

Cheers for all the well wishes. @TheDrsWife46 @baroqueandblue, I was so so close to just rocking up at A+E last night/this morning. I really hope you got the treatment you needed and are feeling a bit better.

OP posts:
Lightsabre · 21/04/2020 11:59

@changeofnametohidetgeshame, thanks for posting your timeline of symptoms- familiar to all of us. I think quite a few people seem to be having gastric issues. I take Gaviscon (but did before for heartburn). Some people are taking Omeprazole.

@WorriesomeDad, thanks for sharing your results - it must be reassuring to know your signs are good. However, I think only a CT scan can pick up more detailed lung issues which we won't get any time soon I suppose.

WorriesomeDad · 21/04/2020 12:01

@Moodgie various stuff but the main thing bugging me is really really tight uncomfortable chest. Airways feel raw and constricted with all the non productive coughing (has got much worse recently).

OP posts:
OneDayAtATime123 · 21/04/2020 12:01

Based on the youtube video tip posted by @stayathomegardener, it was mentioned that in most cases the virus leaves the body in approx. 4 weeks. They did have a rare case that extended till 52 days, probably because the person might have had weak immunity.
IMO, what we might be dealing with are the effects of inflammation as part of post-recovery , that will take time to subside. Any thoughts ?

baroqueandblue · 21/04/2020 12:06

Hello again and thank you to those who've been asking after me. Apologies for this quick post, I hope to post again by this evening but just wanted to update you.

I waited 3 hours to be seen after I arrived at A&E, despite it being just me and 3 others waiting over those 3 hours (and I was the second one in). On the way in they checked my pulse and oxygen levels and temperature (under 35 I think). No cause for concern from those readings. Oxygen was 98.

The doctor took my blood pressure, which was around 130 over 80-something. He asked me about development of symptoms, listened to my chest (clear), prodded my spine and ribs and gave me an option. Either I could go back through A&E to the Covid ward and wait to be seen again there with a view to having x-rays, or I could take antibiotics away and give it 4 or 5 days. If by then things haven't improved, or have worsened, then I'll have to be seen on the Covid ward. I took the antibiotics (Doxycycline) and ran! He thinks I've had/got it, but couldn't say for certain without testing, and thought it was unlikely (based on my sats) that I'd be kept in long enough to warrant testing if I did go on the Covid ward today. Well, unless my condition drastically worsened, but he said that was highly unlikely at this point. And he also told me that if by some chance I didn't already have it, I'd be putting myself at risk if I had the x-rays today.

So I'm home. Fortunately the hospital is a 10 minute bus ride from me, so although they sent me a taxi to get me there they did warn me I'd have to make my own way home, which was fine. I'm shattered. I've eaten and watched some tv and taken a double dose of the antibiotic and am going to try to get some sleep now. Doc also recommended I up my cocodamol intake for the time being and even take tramadol if the pain gets any worse. I hate tramadol though, so am hoping it doesn't come to that. He said diazepam isn't recommended because it can affect the breathing.

More later, but I'm thinking of you all and hoping you get some respite yourselves today Flowers

Countingsheeps · 21/04/2020 12:09

Thank you @Schuyler and @changeofnametohidetgeshame these stories give us hope! Currently on day 30 ish in the worst dip I have had so far. Back in bed with the shaky feeling and the worst tummy I have had yet, 3 trips to the loo so far.... I feel really nauseous for the first time too, it really feels like I need to vomit!

Sending hugs to everyone who needs them today xx

Moodgie · 21/04/2020 12:10

@OneDayAtATime123 I have been hoping this is post viral and would accept the fatigue as that, but the respiratory symptoms make me doubt that. Maybe the body is so thrown out of its routine that it reacts with all this madness, I don’t know and there seems to be no evidence anywhere of anything like that.
@WorriesomeDad Thank you. Is your cough a newish thing or have you had it from the early days?

Porcupineinwaiting · 21/04/2020 12:14

I must admit I dont think that I am suffering from post viral fatigue, I think I am still fighting the virus. Sad

WorriesomeDad · 21/04/2020 12:18

@OneDayAtATime123 tbh I’m struggling to see how I’ve got rid of it yet even at 40 days from very first onset with brand new symptoms (metallic taste in mouth) still appearing in the last 48 hours.

OP posts:
godhelpusall · 21/04/2020 12:19

I spoke to gp about my dd this morning and he was useless. I said she's been ill for 5 weeks and when I went through all the symptoms he said it sounds like she's fighting more than one virus but the lack of cough suggests not CV. I said she's been at home for 5 weeks and I've had it with much same symptoms. He said if she gets so breathless she can't talk then call 111. She's not breathless at all, but dizzy and nauseous with sore throat and blocked ears. No idea.

WorriesomeDad · 21/04/2020 12:20

@Moodgie coughs been here from the early days but has got a lot worse in the last week.

OP posts:
fedupofbed · 21/04/2020 12:58

@OneDayAtATime123 yes I'm thinking that too. I'm wondering if something in the virus has triggered an abnormal immune response in us and sent our bodies into haywire and this is continuing even after the virus has gone?

This is all guesswork though - I have a very unscientific brain Hmm. Blood test tomorrow, will be helpful to get results.

OneDayAtATime123 · 21/04/2020 13:01

www.nbcnews.com/health/health-news/what-renowned-infectious-diseases-doctor-learned-when-he-got-covid-n1186451
I had posted this link earlier.

The specialist states this :
^These cytokines can be released in prodigious amounts. And when they are released, that's what causes the symptoms of the infection. And the cytokines are released into the body. And those are the things that in my opinion, are causing the other symptoms such as cognitive dysfunction, neurologic sequela, heart trouble, kidney failure, maybe even the diarrhea that we see.
And it's not until those cytokines come back under control, that the body starts to heal.^

Tangledyarn · 21/04/2020 13:11

I had to speak to my gp again this morning as needed another sick note. It was no surprise to her that I still had symptoms at 6.5 weeks. I think it takes a while for the body to clear the virus and then we are left very run down with lots of inflammation so likely for me that things like chest pain, fatigue, shortness of breath and sore throat may well continue for another few weeks.

Dorual · 21/04/2020 13:19

So how do we get the cytokines back under control?

@Worriesomedad I hear you with the non productive cough. It feels like I need to clear my chest so bad, but nothing comes. Arghhh! Such an uncomfy feeling. I just want to be well, and not feel on the brink of my own immune system wiping me out.

Dorual · 21/04/2020 13:21

@thedrwife48 how are you?

godhelpusall · 21/04/2020 13:23

I think it's a case of supporting the body while it does what it needs to

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