40+

[MilesJuppIsMyBitch]

A thread for people with CV19 symptoms that have lasted for more than a couple of weeks.

First thread here

(Called 40+ to keep a rough tab on when the first symptoms started being reported on MN).

Feeling phlegmy and wheezy again today. Really hope it's a temporary thing

Hi all, day 26ish here and still having dip with breathlessness... going to ring Gp today and will report back if I hear anything useful! Mine is definitely manageable so maybe I just need to wait it out. Am worried it’s been going on for so long though.

Thanks @mymoonmyman2020 - you know we are all hanging on for any medical feedback!

Morning all! So after being really scared to sleep I went back to what helped me in week 1. Went back to the sofa, with body sized hot water bottle, bundled in the quilt with the little dog.

I sweated profusely but I slept from 11.30-4.30 (woke up coughing) went off again 4.30-7.00 and

Without taking Kalms!!! And I wasnt disturbed by the buzzing/fizzing. Maybe because I was so bloody hot!

That, today, is a win. 👍🏻

Morning all, day 30 (sigh), low grade fever still this morning. Chest not too bad so far (touch wood as it seems able to change through the day) but now sinuses inflamed again. Sore throat has been on and off throughout but it hasn’t gone to my sinuses for a while.

If only they would test so we could know if it’s still the virus at this late stage or post-viral/recovery from inflammation. It feels like it moves from place to place as if my body beats one bit but it just relocates. I’m terrified it’s just chipping away at me and would feel so reassured to know if it’s gone. As others, I know I’ve had it, nothing else is like this, I just want to know if I still do.
Does anyone else worry they could be reinfecting even? I can’t clean my house properly (and when I do bits, I feel the effect after) and my husband has been great looking after me and the kids but cleaning is not his forte..

Hope everyone gets a ‘good’ day today.

@TheDrsWife46 glad you got some sleep, hopefully sets you up for a better day

Im feeling odd again today, the adrenaline feeling. Not sure if it's anxiety but I've not had it for days.

@godhelpusall I have been feeling phlegmy too. Like something stuck in my throat and can’t get rid of it. Anyone else like this?

Morning everyone. Day 30 here.

Sorry, too tired to name-check everyone, but Egghead I'm going to risk the occasional morning walk if/when I get over this. (Shielded here too).

My main symptoms are a horribly productive cough - especially when I wake up, and general fatigue. I've got visible dark circles under my eyes, and I really don't look well.

I can't do any housework or, in fact, anything, except pretty much lie in bed or on the sofa. I drag myself out to the garden once a day.

Honestly, I'm pretty worried. I'm starting to think that maybe the virus has made my lymphoma return, as it has a nasty effect on the lymphatic system.

My GP is calling again tomorrow, and is going to send me to the local corona hub for testing if I'm no better. I don't think I will be better, so I should have lots of juicy HCP advice for you all by tomorrow evening.

So very, very fed-up.

Day 34 here. For the last week I've really struggled to sleep - wake up continually with my heart racing and stomach churning, having panic attacks and horrible dreams. Maybe getting three hours a night of not very restful sleep. Feel like my whole body is stuck in adrenalin rush/anxiety mode.

@Needsomegoodnews Blue Horizon Medical are doing private testing but it's £199.

Feel like I've been hit by a bus after insomnia again.

Have a cold, inflamed feeling in chest, like a cold burning hole. Anyone else have that?

@TheDrsWife46

I totally understand your fears and how you feel. I am going through very similar as my lungs are so much better than they were a few weeks ago, but I am still very very ill and it is mostly neurological symptoms now.

Under normal circumstances I think I would probably be in hospital for this, but the focus is so very much on breathing and lung symptoms (understandably as these seem to be the people who are dying).

I am convinced that I am mostly over the lung infection, but it has just moved elsewhere in my body. I strongly suspect I now have viral meningitis (I had it a few years ago and it felt identical). I am mostly scared about the potential for there to be any lasting damage.

Yesterday I spoke to my GP again who prescribed another round of antibiotics (in case I am getting secondary infection) and also told me to check in with 111.

I called 111 in the afternoon and had a clinician call back for assessment and they sent out paramedics to check me over. Unfortunately this wasn’t reassuring at all as the paramedics were focused on lungs and breathing (even though I told them that I wasn’t concerned about this anymore). They checked me over and said that there are no longer any signs of pneumonia (which I already knew) but didn’t seem to understand my concerns about the neuro symptoms and didn’t do a neuro assessment.

It’s frustrating because I know that in non-covid circumstances this would have been different, but the focus is very much on checking whether oxygenation and breathing is ok in suspected covid patients and seemingly ignoring anything else.

I know this makes sense for the majority of cases (and the lung problems are the most dangerous part for the vast majority of people), but I fear that atypical cases, like you and I, where we get past the worst of the lung problems but still have significant infection elsewhere, are being ignored.

I am scared and I don’t know what to do and worry that we are slipping through the system.

@Dorual

The cold feeling in the chest you describe sounds like what I was experiencing a few weeks ago. I was told it is pleurisy and I have also had it before when I had a chest infection in the past.

I would describe it as a feeling like being stabbed in the lungs by a huge icicle on the end of each breath in. Does this sound familiar?

@MilesJuppIsMyBitch

Are you in the UK? I ask because you mention a local testing hub and I understood that the rules say only patients admitted to hospital for more than one night (or front line NHS workers) can be tested here.

@notanotherusernumber not so much when I breathe in. Just there all the time. Like this icy pit in my chest. Like when ypu do have a chest cold and you go outside on an icy day and breathe in the air, and there's a cold burn in your chest.

@TheDrsWife46 great you managed a good sleep hopefully that's helped your body.

Yes I do actually have an oxometer but I can't get it to work.

Having spoken to a doctor the only way I can be seen by someone is to go to the COVID section of A&E, I'm not sure I want to do that due to the stress and fatigue of getting there plus possibility of picking up extra infections there.

Would it be worth asking GP when I'm no longer considered contagious given that symptoms started on 23 March?

NotAnotherUserNumber it's not a testing hub. The local GPS are using a very small local hospital as a place to assess local suspected corona cases who aren't acute but need to be seen.

I'm in the shielded group, and they prob want to give me blood tests and poss a chest x-ray.

(I'm in the UK).

@Needsomegoodnews

I felt that it’s doing the same and am convinced I still have it after 5 weeks still. :(

Could it be that the virus is latent but never goes like herpes? Anyone seen anything that suggests that?

@godhelpusall no but my friend in Italy a
Said it has the ability to lie dormant in the blood for weeks. She hasn’t had it and is currently pregnant so hope she doesn’t get it.

I think she is explaining what we already know though, as it goes quiet a few day and then hassles is again and it has been several weeks since we got infected

How many weeks? When does it finally go?!

Does low blood sugar, or bloat affect oxygen levels? My spo2 hovering around 94/95 for an hour. Started to get worried. Drank a Complan shake and tmi, went to toilet, and it increased to 99. What improved it?

Just a moan to say I am so fed up of people saying “stay well” “stay safe” and “glad you are well” when i have texted that I am still ill. It’s like they can’t be bothered to read the texts or don’t take them seriously. Rant over.

@NotAnotherUserNumber im tagging @EMichel102 into this because she is the same. You’ve articulated exactly as I feel. Whilst Ive had the lung symptoms and passed through those (still have the feeling of a brick in my chest and a lump in my throat) its the fatigue/tingle/shakes and fatigue that is impacting on my life. I read an article that said something like not treating people as a breathing organism in a chair but holistically. And thats how I feel, that so long as I’m a breathing organism I tick a box. But currently im left with no quality of life at all.

@Egghead68
“Maybe you should be in hospital”
“Sorry to hear that”
“Have you tried calling 111”

Rant over