DH phoned lymphoma ward to see if he should still go in for lumbar puncture which was delayed 2 plus weeks ago because of my early symptoms. We were hoping they’d say to leave it but they want him in. Dr - I think - on phone was surprised that I still have symptoms 20 days in and didn’t seem to know much about the virus but be going on government stats about 7 days. I suppose he’s not working with it directly.
I’m now very shaky and anxious about DH. If I do have cv he has almost certainly been exposed even though I’ve tried to keep away. He had lassitude and headaches and fluey feelings on and off for a few days so I’m hoping that was it for him. If he hasn’t had it I really worry about him going to the hospital. The dr was clear that they can’t manage social distancing in the hospital environment. We don’t have any masks.
I’m also very worried about the next two weeks waiting for results and waiting to see also if he’s caught cv there. The background - for people new to the thread - he had lymphoma from 2017, was given the final all clear this summer, then had an episode of lost memories when we were on holiday. Hospital to which he was taken found a brain lesion and put him on steroids to shrink it. When home he had a brain biopsy but they only got t-cells out of it as steroids had shrunk it so much. It still shows up on scans only as an empty space, which is good news, but each subsequent scan has shown something else indeterminate in a different place (stuff in second scan gone in third but something new somewhere else). The new things are too deep to biopsy. He has no other symptoms. He’s under care of lymphoma team as he had not quite been discharged but they have no idea if it is secondary lymphoma. If it is, chances of a cure are not good. Lumbar puncture is to see if any sign of it in spinal column. I think it’s a long shot as you would expect more symptoms if it’s there. It was first found 7 months ago so the fact that it hasn’t caused any more issues must be hopeful. He’s 71.
So on one hand good that they are still investigating but worried about what happens if he needs chemo during this virus. Worried about all of it basically. Not the subject of the thread,I know, but helpful to get it out.
Meanwhile, I managed a two hour online class and about to have an online meeting of my book club though not sure how much of it I’ll manage. Really wish I was able to have a glass of something alcoholic right now.