Immune/NK cells pred thread #32

[VenusStarr]

Hi everyone. The last thread is filling up. Have tried to tag everyone who posted on the last few pages, but feel free to join / tag anyone I missed.

@Gizmo1983
@fleur89
@Sunflower360
@MotherOfShihTzus
@lozzmax
@HopefulH
@kea1990
@Sprinkleofbabydust
@Newbeginnings22023
@star2022
@RumandSpinach
@Ems123456789
@MamaW05

Love to all ❤️

@VenusStarr I couldn't be more thrilled for you. I'm really praying this is your time ❤️🌈

Thank you @Rainbowsunshine81 ❤️ it's so hard wondering what's going on in there. When was your last scan? Hopefully the time passes quickly for you x

Thank you @lozzmax I really hope so 🙏

Have also got a 4BB frozen, so 3 good day 5 blastocysts 🥹 that's absolutely nuts. I hope it bodes well for the 2 we put back, they said they were the best ones, so I'm hopeful. Very crampy and bloated today which I know is meds and hormones but hoping it's a good sign xx

@VenusStarr I know, it is hard to know what's going on. I kept notes after my transfer to look back on. I had a scan in the epau and then one when I went for my intraplids, I got upset on the day with feeling anxious and they gave me a little scan and had a quick listen to the heartbeat. I just want everything to continue being OK ❤️ xx

I'm doing okay, thank you. Had my N K cell test last week and check for MTHFR mutation. Hubby had sperm frag so now just waiting for results in a week or two.

I'm keeping everything crossed for you that everything is continuing to be well @Rainbowsunshine81 ❤

@Carportforme I hope your tests bring you some clarity. Glad you're OK 🙂

@Gizmo1983 how are you getting on? I hope the migraine symptoms have gone now.

I've had a lot of mild cramping these last couple of days. I'm just hoping that because we got some blasts that the 2 we put back were able to keep going too. I keep doubting myself but I know that I made the right decision transfer to limit my anxiety. It's just a bit of a head🤬 isn't it.

Lots of love to all 💕 xx

@VenusStarr Thank you ❤️ I had mild cramping about 3 days past transfer and think it continued on and off in the two weeks wait. It is a head you know what at times. Lots of love ❤️

Hello my phone has not let me post the past couple of days didn’t realise I had to switch it off and back on again 🤪🤪🤪.
@VenusStarr I reckon crampy is good, I had funny popping sensations like trapped wind which was odd and then all my symptoms stopped and I felt totally normal and thought it was over. Don’t stress you’ve done everything for the best to the best of your knowledge. We can only ever do the best with the information we have ❤️❤️❤️.
on my way to Epson for 10 week stuff I really really really did not fancy this drive or even feel like a scan tbh just feel like being left alone for a bit
@Rainbowsunshine81 my really yucky feelings seem to have gone still get the gagging but the feeling terrible has defo faded hoping this is the placenta taking over. I’ve googled it and it seems to be common guess I’ll find out Tomorrow. Hope you’re ok xxx
love to all ❤️❤️❤️

@Gizmo1983 my head has been pounding, all day yesterday and the day before, thought it had eased off today, but seems to have started again. I have this horrible taste still which makes me still feel a bit gaggy, not as bad which I'm hoping because the placenta is taking over. How many weeks are you now? Hope you're OK. ❤️ xxx

Thinking of you this morning @Gizmo1983 what time is your appointment? It's a lot to be doing all the meds and the travel and being poked and prodded ❤️❤️
Thank you- you're right. I made the best decision for me at the time. Been less crampy. I slept terribly last night, but I'd slept until 10.30 on Sunday, so took my pred really late, so wondering if its that. I was allowing myself a bit of a daydream about it working last night, I've not been able to visualise anything like that for years. Don't want the hope bubble to burst xx

Hi everyone, sorry I’ve been MIA. Lots of different reasons - I took a little mental break over the summer, also used the time to try to sort out my latent TB infection but the medications were rough so I stopped them, then tech issues with my account made it impossible to log back on! The latter’s all sorted now though thankfully.

Gosh it looks like I missed so much. Hope everyone is doing well at all stages of your journey. Was thrilled to hear your news @VenusStarr, wishing you all the best in your tww. Feeling very hopeful for you :)

All being well I should be having my FET next month. I’ve decided to restrict the medication I will be taking and just stick with pred + blood thinners + Cyclogest because my TNF Alpha levels have dropped and yet Dr S insists that I get on the Humira. Rightly or wrongly I feel like doing the whole complex route hasn’t worked for me.

Will be keeping an eye on the thread and wishing everyone all the best xx

Hey @Newbeginnings22023 good to hear from you ❤️ I think the mental break was the best thing for me too. Its good news your TNF Alpha has dropped. I definitely think taking some control over what you're doing in terms of meds is helpful. We have so little control in everything else, anxiety can spiral, so these little things really help.
Keeping everything crossed for your FET 🙏

Thank you for your good wishes. Still in shock how it's all gone really. Just hoping and praying a lot 🙂 xx

Hi ladies bad news from me. Heartbeat has stopped I’m so suprised so we’re CRP. I’m going to take a break but will be popping in to check on you all and have my fingers crossed for each and every one of you ❤️

@Gizmo1983 I'm so sorry. Sending so much love ❤️ I hope you get some answers x

@lozzmax thanks so much think I’m in total shock xx

@VenusStarr I couldn’t agree more. We also learn so much about our bodies throughout this journey and feel we can be in control of what to do next and what may or may not work.

Really happy for you and praying this will be your time ❤️xx

@Gizmo1983 I’m so sorry to hear this. I hope you’re as ok as can be. Will be thinking of you xx

oh @Gizmo1983 I am so utterly sorry, heartbroken for you. sending so much love 💔

@Jecca88 @Newbeginnings22023 thank you so much your kind words mean a lot xxx
@VenusStarr remind me of your hcg test date as I am definitely coming back to cheer you on xxx

@Gizmo1983 I am so so sorry to hear this ❤️❤️ I'm so devastated to you. This is such a cruel, cruel thing to happen. I'm sending you a big hug and lots of love. You don't have to share, but are you seeing the hospital or staying with crp for any management?
There are no words but just know I'm here for you xx

Sorry @Gizmo1983 I saw you asked about the test, I'm having bloods done next Monday morning, so should get a call in the afternoon. Thank you for thinking of me xx ❤️

@VenusStarr i could never not know about your journey we’ve done so much through this together no way am i dropping out now.
I was with Mrs edge who was lovely and who said she was so so shocked everything looked so great. Geri was in the room and was crying I was hugging her. They brought mr shehata in who was so so so insistent about me doing the MVA with them I get it but i explained I probably couldn’t face a 7 hour drive there and back with the MVA in the middle for emotional and practical reasons he said well u can fly. I just said I needed to think. He was then saying if not genetic there’s other meds to try but one I would have to move closer to Epsom ( not happening) and the other we’d have to be down more often which we just can’t do with work etc. so not sure where we will go from here I’m still I’m shock I was so sure this is the one. I have the kit to collect the products if stuff happens before I get sorted with MVA/d and c. Any questions please ask it’s not a problem xxx

@Gizmo1983 I am so very sorry, there are no words. I'm sending lots of love ❤️ xxxx

Thank you @Gizmo1983 that's very kind of you ❤️

Miss Edge is so lovely and Geri really cares. I'm so sorry you've having to make these decisions. Could you see your local epu? They booked me in for surgery and tested our baby. The results do take longer, about 10 weeks at the time. But I agree, to travel down to crp for that procedure is a lot. I just wanted to be near home.
I don't think you need to make any decisions about what's next for now. I'm sorry you felt pushed earlier, you need time to process this, like you say its such a shock for you. How's your dh? Lots of love xxxx

Oh @Gizmo1983 that sounds so sad. I just can’t understand it - it’s so unfair, my heart it broken for you. I had a MVA in June with my local EPU, results took 10 weeks too. I chose to be awake as I wanted my husband to be there and didn’t want the GA again.
take your time to process, don’t feel pressured to have MVA with CRP - it’s also about £1800 and so far for you.
sending you so much strength in this horrendous time. ❤️

Hey guys I have an appt at epu tomorrow and they do mva so hopefully going for that.
Hope to be able to get genetic testing and best case for us is it was a genetic issue. So far I’ve had a blighted ovum, a chemical, a 15 week loss genetically fine and this 10 week loss. So far there is no trend for me. My best case is this was a genetic issue rather than my immunes as there’s no way I can travel down to Epsom more than I have been so that would be game over for me really. We are going to do another ivf cycle or 2 after Xmas and see what we get. I can get all the meds except hydroxy from my IVF clinic and I’m not convinced on intralipids anyway. Seems a bit daft planning my next cycle but I like a plan even though best get the MVA done first. This really is the worst club to be in isn’t it. I may try and go in antidepressants for a bit I can feel this one has just hit a new low for me I think it’s we threw the kitchen sink and it still failed so is there actually any hope plus I’m almost 41 and a half so time is not on my side 😬😬😬😬.
much love to everyone and thanks for reading my rant xxx

Sending you a big hug @Gizmo1983 rant away. It's so fucking unfair and cruel. I hope you do get some answers from testing your baby.

Definitely consider antidepressants, I was resistant for so long but now kind of regret not trying them sooner. The stresses haven't gone away, I just don't get as bogged down by them now. The first few weeks are rough, so I'd recommend being at home if you can, just to give yourself time.

There is definitely still hope, I'm holding it for you 💕 I think the hardest thing is we have no certainty in any of this, so it's a real leap of faith, but we're here with you xxx