TTC after ectopic Part 2

[DoctorBambino]

Looks like we need a new thread!
I've added everyone who has posted recently 😊

@Sammyclaire22 @that90sgirl @ActonBell @NigellasMicrowave @Kate105 @Hlump1980 @ScottishStardust @littleeggcup @MrsB2019x @Chica1990 @Mumlili9 @Ivybutterfly @yesitcould @BasalGanglia

@Sweetbabydust1989 oh no!!! I had really hoped that this was going to be a straightforward pregnancy for you, how did they confirm the ectopic? Did they see it? I would try and look at it from another perspective, if you have to have surgery it may not be the worst thing - if the ectopic is in the same place then the only way to really be sure they've cleared the blockage is a laparoscopic and if you do have to have surgery the surgeon can also look at your other tube and ovaries - I was booked in for a routine lap but it's now been cancelled due to the time factor (old age!!) - you are clearly very fertile as you caught first month (unlike me who's only ever had one pregnancy in 18 months and it was a bloody ectopic) so you know what the issue is and blocked tubes are very treatable - I know none of this makes it any easier right now and I'm so so sorry - make sure that you request some sort of counselling or support from your GP after this you need to really take care of yourself and your mental health - sending you a big massive virtual hug xxx

@Luan82 thanks hun still awaiting bloods coming back.. spoken to my gp who has said they will refer me for a hycosy test if they save my tube.. when the doctor said potential surgery I asked if they would check my other tube and she said they don't check the tubes they just remove that's it... my ovaries looked fine according to the scan and they saw a small mass in my right tube again.. I am gutted I am worried my left tube is broken hence not picking it up xx

I wonder if it depends on the surgeon, HyCoSy is a good idea, it really reassured me. Your right ovary is usually the dominant one but it is possible for the other tube to pick up from the right if the tube has been removed, there have been plenty of ttc stories where ladies have had surgery and conceived from the side with no tube! However, as it is very early still and you haven't had really bad symptoms yet it may well be that the levels are low enough to treat with mexotrethate xxx

@Sweetbabydust1989 - oh no! I’m so, so sorry Are they going to give you more scans? It seems so early to get this news but it’s good they have caught it, though I’m so sad for you.
Hope you can find good support to help you through this. I had my right tube removed the first time as it ruptured. I’m convinced I ovulated on the right the cycle I conceived because of ovulation pain. Eggs can move over to the other Fallopian tube.
I don’t understand what the doctor said about not checking the tubes. My understanding was that if they are looking at removal (apart from after a rupture when there’s no choice) they check both sides to see whether there’s any damage on the other side. If there is, they try to save the tube and remove the pregnancy through other means if they can.
Hope you get a chance to talk all of this through and find a sympathetic doc who you can ask to clarify things.
Thinking of you x

@ActonBell it's ok I new it wasn't meant to be... my levels came back as 202 so doing the same boring treatment of just regular blood tests that's it.. iam booking a private hycosy test to find out why it's only my right tube picking the eggs up.. It took one cycle to conceive and 10 days for me to have bad news again.. my hospital is awful didnt take the time to speak to me about it all.. I tried to speak to my doctor about it and couldn't get hold of anyone.. honestly I do hate to say it but I think it just felt normal for bad news even at the scan I didn't cry as I was really expecting it since I had the numb arm etc the bleeding was kinda the icing on a really burnt cake xx

@Sweetbabydust1989 I am so sorry for you!! This must be so difficult. I think booking a hyscosy is a good idea- shame you have to do it privately tho! I hope your ok and take care of yourself xxx

@that90sgirl iam gutted 10 days ago I was excited and it's been snatched away in the cruelest way and to add insult to injury it's the same tube.. well I was under a bmi hospital for other reasons so hoping my gp can refer me back to same place if not me and my partner are going to pay for if...I just cannot understand what is wrong with my left one if my right one keeps picking them up... On the scan my ovaries look good... personally the scanning machines are amazing in private hospitals I had a pelvic scan due to suspected endo and I couldn't believe how clear they are.. it's such a shame that some gps don't refer women to the bmi hospitals.. I just cannot believe I have lost 2 babies in 4 months xx

@Sweetbabydust1989 I am so, so sorry Look after yourself lovely xx

I am so so sorry @Sweetbabydust1989 . Perhaps if you did lose the tube it might help the other one kick into gear?! Lots of people on here (including me) have managed ok with just the one tube.

Keep us posted. Sending hugs xxx

@Kate105 they wouldn't take it out because my hcg level was only 202 I am so angry and frustrated at them because it's the second time in the same tube you would of thought they would of removed it and now because they haven't it will be deemed as a elective surgery which as we all no can take months even years to get it removed due to this pandemic... before my bloods came back the doctor said if she did take the tube out pending blood results then they wouldn't even look at the other tube they would just take it out the one with the ectopic in it without looking at my other one... I was unable to ask any questions as I was shoved out the door so fast I am surprised they gave me enough time to put my jeans back on. I have woke up to not being pregnant it's so upsetting... loads of questions and all doctors too busy to answer them.. we have decided to go private for a hycosy test once hcg levels are zero and my bleeding has subsided xx

Oh @Sweetbabydust1989 I'm devastated for you. I'm sorry you're going through this again. How have you been doing since? We're all here for you 💐

I had a bit of a scare last few days but turned out to be a BFN and a uti.

Just catching up, @Luan82 I'm gutted for you, that must have been hard. Hope you're doing ok

Oh @Lililou a BFN and a UTI is the ultimate kick in the teeth. I’m sorry - I hope you are feeling more comfortable now.

I’m also really sorry @Sweetbabydust1989 thank goodness it has been caught early and that you are safe.

Also @Luan82 I think we are cycle day twins. You must have been really disappointed, it’s hard not to be even if you have a pragmatic head. I hope you are ok.

I am 9dpo and have the most horrendous PMS imaginable. I stupidly took a FRER earlier and have spent the morning squinting why do we do this to ourselves!

@NigellasMicrowave oh bless you !!! I know that feeling well. I've had a bad day today - my period should have arrived on Thursday but it came extra early today which was a shock - this puts my luteal phase at 11 days currently which is just too short and something else I'm concerned about - am finally accepting I need a little bit of help to conceive now, grateful that I have the nurses appointment at the end of the week to discuss meds ready for IVF x

@DoctorBambino - just checking in to see how you are? I have my nurses appointment Sunday afternoon and am quite nervous - and excited - no idea what to expect or how many drugs they are going to put me on!! Second day of new cycle today and because I'll be nearly a week in I was wondering if they gave you any guidance on TTC the last cycle before you start meds? Unsure if we can try one last time or not? 😃 you've got to admire my optimism esp after 18 months!!! 🤣
@Sweetbabydust1989- also thinking of you honey - hope you are looking after yourself x

@Luan82 oh wow hope things are going ok hun... well it's a never ending nightmare... my levels have dropped dramatically which is amazing 202-86 in 48 hours... the lady I spoke to at the epu was the First Lady I had scan me who was lovely then I got doctor doom on the second scan who was awful and didn't give a crap she just wanted to get me out the room so quickly as she was running behind but the First Lady was disgusted with the way I was treated on both occasions my first being in January so she is raising a complaint on my behalf i told her I didn't have the strength to do it as I was mentally drained and angry... I have to go to see her next week about it all I basically told her I was unhappy with the fact there is no follow up once you loose a baby you kinda get left to deal with alone and no plan is Put in place to support us unless we fight for it and she agreed... I also told her I was unhappy with the fact they told me I was having my tube removed told to go home and fast then told 6 hours later no you aren't going to have it removed so I starved all day for no reason... i was also told my iron levels would be check as I was so poorly on Saturday night loosing clots and feeling very weird so on Sunday when I went for my bloods they should have been done but nope they wasn't... I am back for more bloods on Friday iron levels included I hope they're zero so I never have to attend there again... my GP was amazing she has already referred me to the recurrent miscarriage unit at a different hospital my app for that is end of June and she has also booked me into the bmi hospital I went to have my hycosy test done on my next cycle so things are moving... i am happy I was listened too finally as for it to happen one I can accept but twice in the same tube there must be an issue just so sad us ladies have to fight for the help we deserve xx

@sweetbabydust1989 I'm so pleased to hear things seem to be moving in a positive direction for you after such a horrendous time! I'm so sorry for your loss 😞

@luan82 how exciting! Your fine to ttc before starting (at least you are on my protocol, I guess could be different for others) I just couldn't as I was having my mmr vaccine.

I'm on short protocol so started meds on cycle day 2. I'm taking ovaleap and fyremadel. Two injections a day. Now on day 8 of stims and had another scan this morning. Slowly getting there and have another scan on Friday. She thinks egg collection will be on Mon or Tues next week. I keep reminding myself it only takes one! No idea how many eggs we will get at this stage. I've felt absolutely fine though and the injections don't hurt. Well the fyremadel stings a bit but it's fine! Good luck for Sunday!!

@DoctorBambino thanks lovely I am ok now just a little down but need to carry on... I am kinda in 2 minds wether to try one last time then if that fails get some investigations done it's a hard one really... I can get a hycosy test as early as my next cycle i am just scared of the tube testing outcome xx

@DoctorBambino thanks so much for the info, very exciting !! (Pleased the injections don't seem too bad too!!) im wishing you all the best with the egg collection !! 🤞🏼🤞🏼🤞🏼xx

@Sweetbabydust1989 - I think a HSG or HyCoSy is a great idea, it made me feel so much better once I knew the tubes were clear- they do warn you that although it proves the tubes are clear it doesn't prove they are functioning. It might be an idea to look into Serrapeptase and castor oil pack massage. I did this the month before the HyCoSy and am convinced it helps clear any blockages esp if you are worried about the scan being painful x

@Luan82 what's the oil pack thing?? I am just so scared to have it done but I think if I have some idea on what's wrong I can have a plan x

@Sweetbabydust1989 I did one last night, as I'm also working with an acupuncturist now - all you need is castor oil which you can buy online, an old towel, and small hand towel that you don't need anymore and a hot water bottle : www.healthline.com/health/natural-treatment-for-blocked-fallopian-tubes

My heart breaks for you @Sweetbabydust1989, so awful you have to go through it again and that you have to fight so much. I'm glad you found some good people that are willing to help and do care.

I got my response back from the complaint I put in at my hospital. Mostly it was around the poor treatment I'd had from a particular consultant who was really awful to me. They've apologised for that.

There's a part of it that is irritating me though. Part of my complaint included the fact that they didn't offer me a transvaginal scan when they first told me it was a pregnancy of unknown location so they missed it. It was picked up immediately on a private transvaginal scan a few days later). They've responded saying that scans alone aren't used to diagnose, they also take bloods. This just seems like a nonsense answer to me and is kind of avoiding my question.

I've also noticed that some trusts actually define PUL as when it cannot be seen on a transvaginal. Should I go back and insist they update their practices to at least offer women a travsgainal scan for a PUL?

If they'd have picked it up at the first scan on the Wed, I wouldn't have had to do so much fighting to be seen on the weekend. They refused to accept the results of the private scan, said they needed to do their own scan, but then refused to do it on the weekend. All the while I was 9 weeks gone and my HCG levels were so high that surgery was my only option, I felt like a ticking time bomb.

So, should I go back to them? I have 30 days to respond.

In other news AF is due today, I think I can feel her coming. All tests have been stark white so far, don't think I'll bother testing today as I'm pretty sure it's on its way. Trying to see it as a good thing as I've had the uti this week which can be risky when you're pregnant.

@Lililou that sounds absolutely ridiculous! So how did they diagnose you with a PUL without scanning you? Yes bloods are important but not more so than the bloody scan! How many weeks were you when you were diagnosed with your ectopic? So did they diagnose you with a PUL and just leave you waiting? Sorry you've probably been through all this but everyone's stories get a little mixed it my head. I would certainly go back to them!

@that90sgirl they did do a transabdominal scan, which didn't pick it up. Sorry I probably wasn't clear in that message. I was 8 1/2 weeks at that first scan. I'd been bleeding heavily the night before and passed a large clot. I think because of that they'd assumed miscarriage and didn't bother with transvaginal. In the leaflet they have me, it said PUL. When I was there they said it sounded like a miscarriage but they couldn't be sure yet.