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Conception

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Advice for Women That Have Come off the Pill - Share your Experience :)

971 replies

MintGreenLife · 16/06/2020 09:51

Hi all,

I came off the pill two months ago, and after having a completely haywire 2nd post-pill cycle, I've been doing a lot of research to try and understand what's going on.

I thought it would be nice to share my research and what I believe is happening to me, in hope it might help others. I also thought you might like to share your experience and how you found/are finding coming off the pill, as being able to read that other people experience similar can be really comforting. So here's me...

I'm 31 and TTC DC1.
I came off the pill early April, had my withdrawal bleed a few days later, then first natural AF came 30 days later, so a 30 day cycle. First AF was very light and started and finished with brown spotting. Only lasted 4 days.

I'm now in cycle2 currently on CD37. I didn't ovulate until CD33! The day after ovulation, my boobs and nipples were agony. I'm now 3DPO and the pain is worse.

I recalled this pain the last cycle too, which I wasn't tracking. I assumed it was a sign AF was coming, as it arrived 5 days later. But from this cycle I now know it's actually a sign I've ovulated, so this would mean an extremely short luteal phase on that first cycle.

My research has included reading 'Taking Charge of your Fertility'.
I also found this article extremely helpful in understanding what goes on in your body when you stop the pill, as well as learning things you can do to take charge of your cycle again: avivaromm.com/post-pill-reset/

My sore boobs and possible short luteal phase points to an oestrogen dominance, which causes low progesterone.

This sums up why this happens:

'While not a symptom in itself, nutritional deficiencies can cause a host of symptoms – including hormonal imbalances. They are also a problem for women who come off the pill hoping to get pregnant right away because low nutrient status has been associated with fertility problems, and low nutrients in mom can also mean low nutrients in baby. The pill has been associated with robbing a number of nutrients including B vitamins and magnesium.

Hormonal birth control pills can deplete the body’s stores of certain nutrients, including vitamins B2, B6, and B12; vitamins C and E; magnesium, selenium, zinc, and folate. Vitamin D levels may also drop after coming off the pill.'

Understanding what is going on with my body right now has made me feel so much better. If I were to have a normal luteal phase this cycle, I'd be on track to have a 48 day cycle! The sore boobs tell me I'm probably going to have a short luteal phase though.

I've also learnt how hormones control the whole cycle. With oestrogen being the important hormone during the first half. It builds up and when it reaches a certain threshold it triggers the LH surge. Once you've ovulated, then progesterone kicks in. This cycle I had three LH surges in total spaced 12 days apart until I finally ovulated. Oestrogen and Progesterone have to be perfectly balanced, and so I think the three LH surges could indicate that my oestrogen kept building up over and over until my body finally managed to ovulate, causing an oestrogen dominance. I finally confirmed ovulation after three high temps.

As of a few days ago, I'm following some of the steps in the article I linked, by taking a prenatal multivitamin to replace depleted nutrients. I already take probiotics, vitamin D and folic acid, so will continue with those and will add in vitamin C too. I've cut out low fat dairy instead choosing full fat, and am trying to focus on eating at least 2 pieces of fruit a day and extra veg with my lunch and dinner. I may also look into including a b6 supplement for my luteal phase next cycle if it does turn out to be short again this cycle, as this helps with progesterone and during the luteal phase progesterone spikes to dry up cervical fluid, change the cervix position, stop anymore eggs from being released and build up the lining, so is really crucial.

Hopefully this will help someone :) would love to hear how others are finding coming off the pill x

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Juno231 · 30/07/2020 10:19

@MintGreenLife I don't think it's meant to do much in the TWW. Conception isn't until 9DPO usually so I def don't care prior to that and then the foetus feeds off the yolk sac for a while so alcohol again won't have an impact until there's a placenta pretty much. By the time I test I'd like to know though as the weekend has the potential to get quite boozy.

Thinking about it - pretty sure it starts with the egg says alcohol doesn't seem to have an effect!

MintGreenLife · 30/07/2020 10:21

@Juno231 OK awesome thanks, I might recap that book and make a call :) x

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StellaDelMare · 30/07/2020 10:44

Hi all, thanks for this thread it’s been an interesting read! I came off my pill late April this year after 10 years. We are going to start TTC in October/November time.

My two cycles have consistently been 32 days, but with a very late ovulation (days 22 and 24). This month my OPKs have been up and down (I use the premom app which I take a pic of the strip and it gives me a LH number for it). I’m on day 25 now and still no official positive. No idea what’s going on in this cycle and whether to expect my period around the usual time!

After doing research I cannot believe what us women do in terms of messing with our bodies with the pill! Often we start it at such a young age we don’t question it as it’s just ‘normal’ to go on the pill.
I do think that if men had the pill side effects that we do, then the pill industry would be working much harder to create a safer pill! I really noticed after coming off the pill how much I had lost my libido and also how ‘clouded’ I felt mentally whilst on the pill.

Flowerkm · 30/07/2020 11:01

@MintGreenLife I think you’re right and that you did probably ovulate but just had really short luteal phases and now your body is just coming to terms to having to do it all naturally and having longer luteal phases, it’s all really promising.
Well you never know, if you’re ovulating and had a good luteal phase you have every chance so that’s super exciting 😊
Just seen your smoothie you’re drinking and that sounds sooo yummy, I love mango!

Hey @StellaDelMare 😊 it’s all very confusing isn’t it? A few good consistent cycles and then it throws you off. I’m newly off the pill so I don’t have much to compare, but after listening to others journeys it’s so common for this so it’s nice you’ve given yourself plenty of time to get into a regular cycle before TTC. Hopefully you’ll get some positive OPKs this week.
I agree with the libido side of it, mine was non existent on the pill and that has changed since coming off! I know people said that but I didn’t think I’d feel it and I really do, I feel so much better off it. I didn’t feel like me on the pill but I was on it for so long I don’t think I remembered any different which is quite sad really. I really don’t think I’d rush back on it tbh xx

crabette · 30/07/2020 15:48

Hey guys, sorry I was out for a couple of days, just catching up and DELIGHTED for you @MintGreenLife and @Juno231 that you've both ovulated!! And also pleased for you that you've had AF @Flowerkm Smile

I have to ask - I did try to google - what's TWW stand for? Presume it's post ovulation pre-pregnancy test? I was wondering this as well, whether you shouldn't be drinking / eating certain things.

I've started temping now and done a couple of LH tests - all negative so far. Temp down this morning though to 36.07 from 36.25ish the past few days? And today is CD15. So see what the next few days bring!

Hi @StellaDelMare! I definitely agree with the libido too, hadn't really realised how much it was being affected until you stop!

crabette · 30/07/2020 16:00

TWO WEEK WAIT!

I've got it Grin

MintGreenLife · 30/07/2020 16:23

@StellaDelMare hi ☺️ That's great that you ovulated first cycle, and luteal phase isn't too short either. Have you been charting BBT at all? I would highly reccomend it to confirm ovulation, as you can easily miss your peak on OPKs and then may end up thinking you haven't ovulated when you have. I also check my cervix position daily which can be helpful. Think when you can line up several ovulation signs - BBT increase, EWCM, positive OPK and cervix position you end up feeling more confident that you know what's going on. Although that doesn't mean to say that's right for everyone as I'm sure some people would find checking these things daily too stressful! X

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MintGreenLife · 30/07/2020 16:24

@Flowerkm it's a pretty good little healthy breakfast ☺️ I believe I found the recipe on a blog about how to suport your body Post Pill, which is why I started having it xx

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MintGreenLife · 30/07/2020 16:31

@crabette haha he's, TWW is two week wait 😀 Well done on getting going with the temping! Hopefully you'll get a nice easy to read chart and a clear ovulation day ☺️ Xx

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crabette · 30/07/2020 16:49

@MintGreenLife I want the days to go faster already just so I can get a decent graph and see what's going on!! I need to try and not let this take over my life lol.

I've worked out though I think... that if you don't conceive til 9DPO... (and assuming my cycle is normal just now, which I have no clue about,) my expected ovulation this month is between now and around 3rd August. So even if I miraculously DID conceive this cycle, 9DPO would would be about 12th August? So counting from then, I'd be just over 8 weeks pregnant by mid October, is that how that works?

Just thinking I don't think that 8 weeks pregnant would be at all visible (or affect my wedding dress!) - so maybe I can actively TTC just now without consequence!...... Shock

MintGreenLife · 30/07/2020 17:18

@crabette imagine how crazy you get when you get into CD40+ and you still have no idea what's going on 🙈 Only today did I finally decide I had most definitely ovulated 9 days ago - think I'm CD44 now 😂

Hmm this is where things get tricky! I think when dating pregnancies they go from the CD1, which can cause problems as that's going on the assumption that you ovulated around CD14, so for someone in my situation I would actually be a lot less further along than estimated. It might not help you much with working out how far along you'll be by the time you get married, but try googling 'due date calculator' may help a little bit! I think most women don't start showing until around the 12 week mark, so should think you'll be fine at 8 weeks ☺️ Although have read your boobs can get bigger pretty quickly!

Funnily enough my wedding dress arrived today, but I won't be wearing it until September next year now, got another dress for our small ceramony this year ☺️ Xx

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crabette · 30/07/2020 17:26

It's so hard to figure out! If counting from CD1, I'd be just over 12 weeks by our wedding. So think I'll try be careful for the next few days, just incase I'm one of the extra fertile post-pill folk - see how this cycle goes and whether or not I do actually ovulate and how long my cycle lasts! And then relax for next cycle into properly TTC. I'd love it if my boobs got bigger to be fair!!

CD44 is nuts.... are you going to test soon? How long do you have to wait? It's meant to be after your next AF due date isn't it... wonder how that works with crazy cycles!!

That's lovely your dress came! A small perk in postponing that you get two days and two dresses Smile

MintGreenLife · 30/07/2020 17:55

@TheDaydreamBelievers right am going through this book now and typing out some notes to you as I go, so sorry if this seams disjointed in anyway...

Book says about Post-pill PCOS:

  • causes can be: hormonal birth control can cause or worsen insulin resistance, which is a major contributor to PCOS. Coming off a 'low androgen index pill' can cause a temporary surge in androgens, which can also cause PCOS
  • it's temporary
  • with post pill PCOS you're likely to have high LH compared to FSH
  • it also says that Post-pill amenorrhea isn't always certainly caused by PCOS. There is a case study where someone didn't have a period for 5 months Post Pill, and the author perscribed Agnus Castus to kick start things again
  • there's another case study that does include someone with Post Pill PCOS, 30mg of zinc a day was prescribed (I'm taking this myself actually). In this case study the person was getting AF, but having long 50+ day cycles.

I know your original question was whether someone with post-pill PCOS would get AF or not. I think with PCOS you're more likely to have long cycles and get AF, whereas with post-pill amenorrhea the issue is that for whatever reason the pituitary gland and overies don't start communicating again as they should.

Did you have LH and FSH tested? Maybe look at those results, but by the sounds of things with post-pill PCOS you'd expect LH to be high, and I think from what I understand you take OPKs daily and mostly have negatives? X

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MintGreenLife · 30/07/2020 17:58

@crabette that sounds like a good plan. We took it easy and didn't TTC first cycle either. Oh gosh me too! I'm an A-B cup at best, B is being generous 😂

Haha I know so annoying. Well I know when I ovulated, so if I have a decent LP AF would be due 14 days later, and I'm now 8DPO. A small part of me wonders if I should take a test tomorrow at 9DPO as we have family visiting and I can't decided whether to have a glass of wine or two or not, but then 9DPO is mega early to test and I know if it's negative I'll just tell myself it's too easy and then that won't be helpful at all 🙈 X

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MintGreenLife · 30/07/2020 18:05

@TheDaydreamBelievers also what were your prolactin levels? The book explains what high, moderate and mildly high prolactin looks like and what can cause it x

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crabette · 30/07/2020 21:06

@MintGreenLife Ha! I saw another thread on here while trying to google 'TWW' - and someone had said they'd asked a fertility specialist about what to do drink-wise in the TWW...

"She said carry on as normal - her advice was to drink like a European, but don't binge like a Brit." Grin

www.mumsnet.com/Talk/conception/2807987-do-you-eat-drink-and-be-merry-in-the-tww

MintGreenLife · 30/07/2020 21:14

@crabette haha that's amazing 😂 Thanks so much for sharing that xx

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TheDaydreamBelievers · 30/07/2020 21:16

Thanks @MintGreenLife - super interesting.

So regarding insulin resistance, my blood sugars were tested around CD90 and look okay.

In terms of androgen surge, my androgens look okay, but testosterone on upper limit (testosterone 1.5, androstenedion 4.7, progesterone 1.4).

LH compared to FSH - LH was 4.5, FSH 5.7. As you said, my OPKs are mostly low, sometimes literally blank, only once ever a 'positive' (CD67).

Prolactin was 77?

TheDaydreamBelievers · 30/07/2020 21:27

To clarify, i know the prolactin is high- that's in the pregnant range.

I also have a history of an 'atypicality' beside my pituitary gland. At the time they were sure it wasnt growing or changing, but I'm going to push to have it checked again.

MintGreenLife · 31/07/2020 10:15

Morning everyone ☺️ my temp increased again this morn so did a FRER at 9DPO! Of course came back negative. Thought if i saw a faint line I would know not to have a drink tonight, but now I feel like I haven't helped myself at all as still not sure whether to have a drink or two 🤦🏻‍♀️ Think I'll just see how I feel later and if I really fancy it I will have a glass of wine. Am not going to test again now unless my period is late.

How is everyone today?

@TheDaydreamBelievers I will have a look at what the book says about high prolactin later for you x

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Juno231 · 31/07/2020 10:31

@MintGreenLife ha well I'm still of the opinion to drink until it's pink!
@TheDaydreamBelievers what was your prolactin measure in? My NHS test results said normal was between 0-495 mU/L. Mine came back as 418 so I don't like how it's on the higher end of the spectrum. I would appreciate any info you book has on that @mintgreenlife !

MintGreenLife · 31/07/2020 10:37

@Juno231 course ☺️ I'll grab it shortly to recap and let you know what it says x

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crabette · 31/07/2020 11:18

@Juno231 "drink until it's pink", I love that!!

My temp back to 36.3 this morning Sad Wanted to see something happening!

MintGreenLife · 31/07/2020 12:52

@Juno231 @TheDaydreamBelievers ok so the book says...

Very High Prolactin: greater than 1000 mIU/L or 50ng/mL - not sure if this applies to either of you? Think probably not?

Moderately high prolactin: greater than 480mIU/L or 23ng/mL - caused by prolactinoma, thyroid problems or medications such as hormonal birth control. Requires medical diagnosis and management.

Mildly high prolactin: around 480mIU/L or 23 no/mL is common and cannot be dismissed by a single result as various things can impact it such as alcohol, dehydration, sleep, stress, during luteal phase, the pill etc.

Diet and lifestyle to lower prolactin:

  • reduce alcohol, especially beer. No more than 4 drinks per week.
  • reduce stress
  • Agnus Castus best herbal option to reduce prolactin

Not sure if any of that helps. Have just typed out the key points xx

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TheDaydreamBelievers · 31/07/2020 12:56

Great thanks @MintGreenLife- I have normal thyroid bloods but am approaching docs about my brain atypicality next to pituitary. I dont drink at the moment. It's likely hormonal birth control and stress that's the issue (assuming the pituitary thing isnt an issue!)

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