TTC after pregnancy loss - tread 28 - Bfp will be coming

[Lilimum6]

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Here's the new thread. This is a lovely supportive thread for anyone who has suffered the loss of a much wanted baby. Affectionately known as the penguin huddle- this is the place to survive the ups and downs of this crazy journey.

Welcome to any new ladies and sorry for your loss.

Let's have a roll call ladies

Well the appointment was great consultant was lovely and understanding. My scan how ever was not good new I have products of conception remaining so had blood test to test for hcg levels and may have to go back Friday for yet another erpc. I could cry I'm really fed up now

He also did not recommend the use of asprin unless you have a clotting problem. And said taking it when it's not needed can actually increase the risk of miscarriage by making the uterus wall unstable

So it intirely possible that I might not have lost this one if I'd not taken asprin. For clotting issues he recommended only after 6-7 weeks before that it could cause harm not good

He also said after my first af we should keep trying even before rmc appointment because we might get lucky and have a good pregnancy. Also he sees more early mc's back to back when couples don't wait between pregnancy's something to do with the uterus lining not being thick enough in some cases.

@Lilimum6 I'm so sorry that you might have to have another ERPC, that really is rubbish.

Good news your consultant was lovely. It's interesting about aspirin, I also took this for pregnancy number 3 :/ how long did he recommend to wait between pregnancies? I guess it does all make sense in a way, but still is rubbish!!

@POP1234 He said two af is best then you clear any tiny remaining bit of products left that you can't always pick up on ultrasound

@TinyPaws It's always a tough one, whether you want them to find something or not. On the one hand if they find something, they might be able to fix it, and it's at least a reason; but on the other, no news should be good news - at least there isn't anything glaringly obviously wrong.
Hugs xxx

@Lilimum6 I'm really pleased you were happy with the outcome of the appointment, although it really sucks that you might need yet another ERPC!!!

I rang the gynae secretary today and she said I haven't slipped through any nets but that there's a back-log of appointments still following someone being off sick; which is what I was told last time. The other consultants are still trying to squeeze RMC appointments in when they have availability. So still twiddling my thumbs and playing the waiting game again. I know the staff all work their butts off and I imagine whoever was off sick really needed that time off, which I don't begrudge them at all, but it does suck being in this limbo.

@TinyPaws I agree with @KnitKitty. It's good news on one hand but get you want a reason to fix it. I'm also upping my vit D, what strength are you taking?

@Lilimum6 sorry you have to have another erpc but glad the consultation went well. Thank you for sharing the advice - helpful for all of us.

@KnitKitty I hope your appointment comes through soon.

@Lilimum6 Sorry that is shite.

@KnitKitty On balance I feel happy they didn't find anything. But it's a tough one. I hope you get your appointment soon, lovely to hear from you.

@InDreamland I'm taking 2 3000iu sprays per day (so 6000iu). I started out on a much lower dose and gradually upped it as I wasn't seeing much improvement in my levels. I've also been cautiously using sunbeds. I actually feel much better for it, although my vit D levels are still suboptimal! Once I hit the optimal range I will reduce this as it's not recommend to take more than 4000iu per day without medical supervision.

@Lilimum6 hugs. So pleased you are finally getting good treatment.

@KnitKitty that's really hard, if you are willing to travel could they refer you to another unit so you can be seen more quickly?

@TinyPaws as others have said it's so hard. At least you are doing something though with the vitamin D and prednisone

@InDreamland hopefully you get a static soon. Do remember as frustrating as it is you can have a cycle where you don't ovulate and that is normal for most women once or twice a year from what I've read. Hopefully it's just eggy getting properly ripe though and you'll get your static soon.

I'm not doing very well with not symptom spotting.,,no way I'll wait till Tuesday to test at this rate. So Saturday at 11dpo is poas day I think...frer of course!

Wow @TinyPaws that's high. I've got 75ug tablets I'm taking, just off the shelf. Hopefully though you get to the levels you should be at soon.

@Laney79 thank you. I hope it goes static very soon as I'm so anxious. Have you bought the 3 for 2 FRERs 2 pack in Boots? They have an offer on at the moment so I caved and bought 3 packs so now have 6 FRERs 😳 fx you get a BFP!

@Lilimum6 you can't dwell on what has been with the asprin, you just have to take that knowledge into TTC the next. Absolutely rubbish about the retained material, but you've got a plan going forwards and something to work towards. Xxx

@InDreamland 75ug is the same as 3000iu so not that different. I had been on 25ug/1000iu for a few months when I first tested and was low (and it was August) so upped it to 75ug/3000iu which brought up my levels a little but not as much as I'd like, so I recently doubled the dose. I've got a 2 week trip somewhere sunny coming up so hopefully that will help!

@TinyPaws yeah guess it's half of what you're on at the moment. I've been on them since first mc in July as blood showed I was low. Hope you enjoy your sunny trip.

@lilimum6 glad your ok with appointment outcomes, I struggle to understand though how you keep ending up with retained products, that’s 3 Erpc now is that right? Can they offer you any other method or meds to force a period, clear out the whole lining?

Re Aspirin I can only assume there is new research that supports your consultants view as it’s the opposite of current published advice. But research into rmc in general is new and limited. You weren’t on it for very long and given your history it’s hnmijrky. you could go through the tests and discover you do have a clotting issue that does require aspirin. Until they test they don’t know.

Keep swimming, it’s good you are at least under consultant care now xx

@InDreamland I still have three frers so not caved and bought anymore yet-I but then online from a site called home health-uk -get my opks cheapies from there too.

@TinyPaws if you don't mind me asking what were your vit d levels and how much did they improve? I've been taking an extra supplement so now on 25ug a day...on 15ug my level was 58nmol/l but I've read that 75nmol/l is optimal hence the extra supplement. Gp says it'll take three months to show any increase so need to wait another 6 weeks before testing again.

@Yukka is onto something there @Lilimum6 - if poss would they give you meds? May save another operation. Guess it depends on your hcg.

The aspirin advice is so confusing. I've seen several people so far this year reporting their drs have said not to take it due to new evidence, but no amount of googling has found that research/evidence! I've emailed my early preg nurse to ask as I was advised to take it from bfp by my consultant last nov. I still feel that it could help me but so scared of harming a future bubba too! Argh!

@Laney79 is the vitamin d test included in a full blood count test. As I had one yesterday just wondering if they could tell me my levels

@Yukka I've had retained for the last two mmc's. October mmc I had medial, surgical and medical again then surgical
January mmc I've had surgical and now another surgical, I can't have medical anymore because it makes me bleed to much and makes me badly anemic

@Laney79 it was 50nmol/l in August. At that point I had already been taking 1000IU/25ng per day for 3 months and had also had more sun than usual (we went to Lanzarote in March right before getting my first BFP then it was a ridiculously warm and sunny spring/summer). I dread to think what my levels were before!

In September I increased to 3000IU/75ng, when I had it retested in January it'd only gone up to 63nmol/l. So getting there, I guess, but more slowly that I would like. I would like it to be >75nmol/l and ideally around 100nmol/l. I'm planning to test again in April prior to trying again, hopefully the extra supplements and a 2 week trip to South Africa will do the job!

There's also some interesting evidence around vitamin D levels improving thyroid auto-antibodies so it's something I'm keen to address. www.ncbi.nlm.nih.gov/pmc/articles/PMC4855971/

Sorry for the level of detail I'm a complete geek and that's not even close to all the research I've done on the subject.

@Lilimum6 Sorry X-posted. The vitamin D test is not included in full blood count but your GP would probably do it for you, just tell them you feel tired all the time and you're worried about your levels because you don't get much sunshine or vitamin D in the diet. I get them done using an at home kit because getting a GP appointment is a complete nightmare.

I sympathise with the anaemia I was mildly anaemic after my first (medically managed) loss, I had bled heavily. I was worried I would be anaemic again as I had a lot of bleeding with the last loss even though it was only 5 weeks, but my haemoglobin levels were fine.

I'm sorry you've had so many complications and gone through this so many times it's utterly rubbish and really not fair.

As @TinyPaws says @Lilimum6 the vitamin D test is a separate one. My GP had no problem checking it for me, nor giving me a form to recheck in three months. One word of warning though, technically anything above 50nmol/l seems to considered adequate by the nhs (i asked for a copy of my test results and it shows "normal" ranges next to your numbers) so you'd need to ask for the actual number not just wether the level is ok or not. It was me and my own research that decided that my level wasn't high enough-the GP wouldn't have flagged it otherwise as mine is over the nhs guideline range.

@TinyPaws thanks for the info chick -very handy. Which home test do you use? Tempted to do another interim test now to see where I'm at. As for being a geek, I'm so with you there! I can't remember how many times I've been told to step away from the research but I can't. Knowledge is power, and miscarriage research really is just in its infancy so there's such a variation in treatment and opinions of medics. I just feel I have to educate myself so I can be my own advocate. And I'm sick of being told it's "just bad luck"

Having a wobble this morning. Have been so positive the past few days that we've caught again but this morning boobs don't feel as sore...I hate the tww. Xxx

@Laney79 I've been using the Thriva ones because you can get it as part of a thyroid package that includes folate, B12 and auto antibodies. There is a discount from Thyroid UK. Next time I will use a cheaper one though as the recurrent miscarriage clinic has just checked my thyroid antibodies (prior to that the NHS refused to do it) so I don't need those tested again.

I've lost faith in the doctors (especially those at the fertility clinic, the ones at the recurrent miscarriage clinic have been quite good so far) so doing my own research is really important to me. Honestly I think if men were the ones who physically suffered miscarriages the research and care would be far more advanced than it is now!

@TinyPaws couldn't agree more on the men front! Because of my phobia I don't easily trust medics, and have to feel in control as much as possible so my own research is very important. I get fed up of me/my family being seen as a condition by medics rather than a whole person with feelings and contributing issues. I'm not a geriatric want to be mother with 2x miscarriages, I'm a woman who's heartbroken and doing her best to hold it together!

CD33 and still no AF. And BFN. I'm so fed up! What's going on with my body! And why this cycle of all cycles! IVF is planned for this cycle. Still waiting

Thank you all! Very pleased to report that today on day 3, all 13 of my little embabies are going strong and are grade 1. 😀🤞

@frillyfarmer how did your scan go today?

@KnitKitty that's frustrating that you are still waiting for answers. Hope you get some soon. I know what you mean, I feel like the people in my life who have had a MC then went onto have a healthy pregnancy the next month, hardly anyone has had an ectopic and only one other friend is experiencing infertility. I talk to her a lot!

@Russkispy that's so frustrating. Hope it comes soon.

@TinyPaws I know what you mean. I wanted something fixable too and hearing there is nothing wrong is bittersweet. I'm finding my response to IVF amazing but part of me is saying if you have been producing good eggs which have been fertilising with good sperm, why hasn't it worked?? I'm glad there is nothing hugely wrong though and hope your next cycle is your lucky one!

@Lilimum6 so glad to hear your consultant was great but so sorry it looks like you have to have surgery again. It's so unfair how it drags on.

Hugs to everyone else!