TTC with PCOS (Thread lucky #4!)

[RoseBud2016]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find our third thread >>>>>>>>>HERE

And you can find our stats >>>>>> HERE

Aisha might be worth stating a thread with the same bits you've told us about? I'm sure there will be others on here with similar experiences to you that may be able to give more advice than us ladies with pcos - not sure if anyone on here has any issues with tube damage. Good luck whatever the outcome

Is pebbles around? I think it was her that had both tubes removed and is now getting ready for a round of IVF. Pebbles where are you?!!

Hello! I hope all is well today.
Pretty sure I ovulated this month. Time to see what happens :D

Hello, sorry for being AWOL Rosebud! On phone and we have guests staying so may not be able to fit in personals to all.

I've been doing at least a couple of tests a day, like a lunatic. The FRER are getting darker, but I'm not sure my internet cheapies are. I rang the clinic on Friday to find out what's next- basically, I'm to ring again on Monday if I'm still testing positive, and they will book me in for an 8 week scan. There is no way I can wait that long to know if things are OK, so I'm going to investigate maybe having some blood tests and an earlier scan. My only symptoms so far seem to be occasional light cramps and sometimes a twinge or two, all in my belly. Have switched to pregnancy vitamins and bought a pregnancy book but otherwise pretty much not really daring to believe it's true and will carry on.
Aisha, I have blocked tubes which is why I went straight to IVF rather than clomid. They apparently look clear and I've not knowingly had any infection etc so it's a bit of a mystery. It took a couple of months to get my head around but I'm majorly grateful IVF exists. It's given me a (very new) bfp when I've had no whiff of one in over 20 months of trying.

DrewOB that's fab!! Fingers crossed and legs, and toes, and all lol xx

Drew yay for ovulation. Hodo you think?
shellbell, I'm glad your lining increased. Did you decide just to go for it?
stealth, how exciting that your FET is approaching! Do you know whether plan for it is? Glad you're feeling better.
aisha, so sorry, have been reading messages in reverse order and have now seen your message about your relationship. That's really tough. IVF is hard but manageable and there seem to be quite a few people, eg on fertility friends website, who choose to do it alone. Having online support is a real help, I think, but for you.
nurse, yay for metformin working so well for you!
bananafish, how are you doing sweetie? Thinking of you.

Ugh epic phone fail. drew, that was meant to say when do you test?

Test is first week of April. 2ww :(

Hugs to all

Well my week has been an absolute cluster fuck of MMC, nurses thinking I was in for a routine endoscopy (ERCP) and not to have my dead baby removed (ERPC), ongoing miscarrying and then today the histology report giving me a blow by blow autopsy report of our 'products of conception'. They have managed to obtain these so will do the karotyping (basically look at the genetics to see if the miscarriage was due to chromosomal abnormalities within the embryo or not) and the good news is there's no sign of pregnancy related tumours. But fuck me the gruesome detail. To them it's products of conception but to us it's our dead baby. DH is fuming that we were sent the full report when the covering letter told us everything we needed to know.

I'm having some serious one on one time with the duvet as the bleeding has now kicked in big time and I feel pretty grim. Although at the same time it actually feels really cathartic like my body is managing to un pregnant itself. Urgh.

Hope you're having better weekends than me!! Sorry for me me me post. Love and hugs xx

That's terrible about the report banana - can you maybe bring this up with your consultant? That's shockingly bad practice! Hugs to you. Have as much chocolate as you feel necessary. Duvet time the bit out!! Thinking of you and your OH x

banana I am genuinely shocked and horrified to hear of your experiences, and gutted for you too. My hospital referred to my op(s) as surgical management of miscarriage (SMM) and actively avoid using the term ERPC, for the reasons you describe. I am so sorry that this has happened; it must be making a very difficult time even more challenging. Do take it steady over the coming days and weeks. Obviously I had complications, which probably added to it, but I underestimated how long I would feel like shit and how long I would bleed for. It knocked me for six. Look after yourself lovely xxx

Banana I'm so sorry :( I can't believe the hospital sent you that!! No wonder he's ragin!! I hope your planning on taking it easy for a few days with lots of cuddles and chocolate and movies!!

Drew if this works this weekend then I maybe the same time as you...

Feefee I'm hoping it increases abit more!! Not done as yet as step daughter staying this weekend so pouncing not as easy!! Haha..
How are you doing??

Nurse and stealth you's ok?

So spoke to DH and he went with the to hell with it we should just try!! So guess that's a good sign? Also bought pomegranate as read that's supposed to be good!!

Hi Nurse- thanks, I have made a thread, and I've had some comments from women who have experienced similar things to me. I was directed here by RoseBud :)

FeeFee- congratulations! I hope everything works out well for you :) thanks it has been hard but I feel like everyday that goes by I am getting stronger again. I'm waiting atm to see if the injection I had to end the pregnancy has worked, so it's a waiting game. Mixed emotions, I have dealt with this twice before I know I can deal with it again!
If you don't mind me asking, have you conceived naturally with your tubes being clear before IVF?
I am slowly accepting the fact that IVF may be the only option for me, I wouldn't even know where to start!

Hi banafish- I'm so sorry for your loss, it sounds like you are having a really rough time!
I am also feeling exactly the same at the min, dealing with the loss of a pregnancy, going through the motions!

Xxxx

Aisha when do you go back to see if the injection has worked? Hopefully you get some more answers

Don't try to rush grief and feeling angry about loss. It's taken me over a year to get past chemical preg. / mmc . I know everyone thought I was ridiculous to grieve for a 6 weeks preg but if you need to, just do.

Nurse- I had a blood test yesterday, but it's normal with the first result for the hcg level to go up, I haven't found out the result yet. But by Tuesday when it will be day 7 after the injection they will expect my hcg level to go down.

Drew- So sorry for your loss I am struggling, I think it's something you never really get over, I still cry about my first that was 6 years ago, I have the scars from my operation that remind me everyday.
The only way I have dealt with it, is to think it wasn't meant to be, when the time is right it will happen. I'm sure for all of us!! Xxx

Hugs to those with losses, past and present

I am only just now starting to bleed after my op on Monday, which tbh I am quite glad about, as I haven't had a period since October (despite having ovulated twice since then) and it feels like my body needs to cleanse itself and wipe the slate clean.

I will probably start testing with Internet cheapie tests in a week or so to check when my hCG levels have fallen enough to get a BFN

My Dr said the ERPC was definitely the right decision as at 9.5 weeks the sac was sizeable enough that expectant or medical management would have been horrendous.

My heart goes out to all you who've suffered losses, at whatever stage of your pregnancies

As much as I would want to punch anyone who said to me 'well at least you know you can get pregnant!' I actually do take some comfort from that

We made embryos. One implanted in my crappy lining. It propagated a pregnancy. The embryo grew and turned into a foetus. We will see what the tissue testing says, but in my heart of hearts I believe that the embryo just wasn't right. 9.5 weeks is around the time that the placenta takes over so it's a bit of a make or break time, and I think our little duracell 4AA blastocyst just ran out of batteries We had already done all the thrombophilia tests so we know it wasn't related to any clotting disorders, and that it's not something that could have been prevented with a 15p baby aspirin tablet or some Clexane. It could still be immune issues, so we'll treat empirically with prednisolone, intralipids, Clexane and injectable progesterone for a belt and braces approach. And I'd like to do a hysteroscopy to check out the uterine environment before we put anything else back, if only to see what nick the endometrium is after the ERPC. It helps me to think about a plan going forwards!

Much love and hugs. Xxx

banana you are an incredibly strong person. I am in utter awe of you.

bananafish I had really been hoping your week had got better, even if it will forever be remembered as an epically shit one. So sorry you were faced with the no-holds-barred report with no warning, and that the nurses were so thoughtless at your ERPC.
I hope you're feeling (physically, at least) a bit better today.

aisha, thank you. No, I've not conceived naturally before- had never tried until summer 2014, and had a catalogue of issues before getting referred for IVF (prolactinoma, ovarian cyst which had to be removed, pcos which I already knew about, blocked tubes which were a surprise).

shellbell, thanks, feeling fine, just tired and nervous! Hope your lining has thickened and you've found some time with your DP

drew, good luck in the TWW!

Hadn't refreshed the page before posting - bananafish, I echo what cwtchy says. And I recall you saying previously how in favour of exploratory hysteroscopy your consultant is. Sounds like a good plan.

To the metformin users - how is it going? Any weight loss? Any cycle changes? I'm on 1000mg now and boy do I feel shit. Will be bumping it up to 1500mg at some point this week when I have nothing on so I can be prepared for the nausea!

cwtchy a word of advice - wait until you've stabilised on one dose before bumping up - it really does make a difference

Cwtchy it gets better! Promise! I find eating it with meals really helps - never on an empty stomach. After 2 weeks or so all my symptoms stopped and I felt ten times better. I've lost a bit of weight and regained a cycle that I hadn't had in a year :)

Thanks stealth - I'm spending about a week at a time on each dose I think, but won't push it if I feel terrible.

nurse that is so encouraging! Fingers crossed I see some good effects!